Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Hi Emilie, Good luck with the fitting, let us know how it goes. > > Hi everyone, > went to New England Orthotics in Providence RI last Friday and > was scanned for her STARband. It was quick. I was surprised that she > has a 11.6mm asymetry and that her ears are only 4mm off. At the > neuro office they said her ear misalignment was worse that the shape > of her head. The ortho said the opposite. at New England > orthotics was great friendly and knowledgeable. He won't be there > for her fitting next thursday, he is going to be out on paternity > leave hopefully we have a good experience with the next ortho. We > also had our intake appt with EI yesterday. It has been a busy > couple of weeks. > Hope all are well, > Emilie > Mommy to 2.5yrs and 4.75 months tort & plagio to be > STARbanded on 1/27/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Hi Emilie....I hope everything goes well for the fitting. It sounds like you have had a good turn of events lately. Keep us updated. Becky, mom to , repo grad in Pgh, PA > > Hi everyone, > went to New England Orthotics in Providence RI last Friday and > was scanned for her STARband. It was quick. I was surprised that she > has a 11.6mm asymetry and that her ears are only 4mm off. At the > neuro office they said her ear misalignment was worse that the shape > of her head. The ortho said the opposite. at New England > orthotics was great friendly and knowledgeable. He won't be there > for her fitting next thursday, he is going to be out on paternity > leave hopefully we have a good experience with the next ortho. We > also had our intake appt with EI yesterday. It has been a busy > couple of weeks. > Hope all are well, > Emilie > Mommy to 2.5yrs and 4.75 months tort & plagio to be > STARbanded on 1/27/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Emilie, That is great! I agree I would keep her in it as long as it fits and you would like more improvement. mom to na DOC Grad emiliejoost <emiliejoost@...> wrote: Hi Everyone, went in for an adjustment today and had a scan. Her assymetry is now 7.2mm down from 11.6mm. She will have been in her band one month on the 27th! Her ears are still 4mm off. But her head looks really good. The ortho said we could stop now if we wanted. We are going to keep her in the STARband for another month or so then decide. She still has some areas that I would like some more improvement in. I just wanted to share our good news.Emilie, Mommy to 2.5yrs and 5.75months tort and Plagio STARbanded on 1/27/05 in Rhode IslandFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Emilie, That is great! I agree I would keep her in it as long as it fits and you would like more improvement. mom to na DOC Grad emiliejoost <emiliejoost@...> wrote: Hi Everyone, went in for an adjustment today and had a scan. Her assymetry is now 7.2mm down from 11.6mm. She will have been in her band one month on the 27th! Her ears are still 4mm off. But her head looks really good. The ortho said we could stop now if we wanted. We are going to keep her in the STARband for another month or so then decide. She still has some areas that I would like some more improvement in. I just wanted to share our good news.Emilie, Mommy to 2.5yrs and 5.75months tort and Plagio STARbanded on 1/27/05 in Rhode IslandFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Hi Emilie, WOW is improving nicely! She's going to be a grad before you know it. > > Hi Everyone, > went in for an adjustment today and had a scan. Her assymetry > is now 7.2mm down from 11.6mm. She will have been in her band one > month on the 27th! Her ears are still 4mm off. But her head looks > really good. The ortho said we could stop now if we wanted. We are > going to keep her in the STARband for another month or so then > decide. She still has some areas that I would like some more > improvement in. I just wanted to share our good news. > Emilie, > Mommy to 2.5yrs and 5.75months tort and Plagio STARbanded > on 1/27/05 in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Thanks for the great update on megan. I tihnk the scan comparisons would be really neat. Angie and Jenna update on > > > Hi Everyone, > went in for an adjustment today and had a scan. Her assymetry > is now 7.2mm down from 11.6mm. She will have been in her band one > month on the 27th! Her ears are still 4mm off. But her head looks > really good. The ortho said we could stop now if we wanted. We are > going to keep her in the STARband for another month or so then > decide. She still has some areas that I would like some more > improvement in. I just wanted to share our good news. > Emilie, > Mommy to 2.5yrs and 5.75months tort and Plagio STARbanded > on 1/27/05 in Rhode Island > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Since she has already received such great correction, why not continue on and try and see more? Good luck to you! Natasha > > Hi Everyone, > went in for an adjustment today and had a scan. Her assymetry > is now 7.2mm down from 11.6mm. She will have been in her band one > month on the 27th! Her ears are still 4mm off. But her head looks > really good. The ortho said we could stop now if we wanted. We are > going to keep her in the STARband for another month or so then > decide. She still has some areas that I would like some more > improvement in. I just wanted to share our good news. > Emilie, > Mommy to 2.5yrs and 5.75months tort and Plagio STARbanded > on 1/27/05 in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Hi , I can sympathize with your growth situation. My son's circumference didn't increase hardly any during 7.5 months and two DOCbands. It was really frustrating. I'll keep my fingers crossed for to have a huge growth spurt!! Good luck! Natasha --- In Plagiocephaly , " " <sarahhj1222@y...> wrote: > > Hi all, > > had his appt today and he has grown 1mm (in 3 weeks)! So, after 2 months of NO > PROGRESS, we are finally seeing some progress. > > He has been in the Starband for 6 months, which is the time limit usually referred to, > but he wasn't growing for a while and the band still fits, and his orthotist thinks that > we can get more out of it, so we decided to try to keep it on for a little while longer. > There is still a stubborn flat spot (it has gotten smaller in the last 3 weeks though) > and his cephalic index is 90, which is still a bit on the high side. We're hoping for the > high 80's. > > So, we are on our last leg in the band. Hopefully this growth spurt will last a little bit > longer and not taper off for another 2 months. I'm ready to start putting regular hats > on him. > > > Sunnyvale, CA > Plagio/Brachy/Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Hi , I can sympathize with your growth situation. My son's circumference didn't increase hardly any during 7.5 months and two DOCbands. It was really frustrating. I'll keep my fingers crossed for to have a huge growth spurt!! Good luck! Natasha --- In Plagiocephaly , " " <sarahhj1222@y...> wrote: > > Hi all, > > had his appt today and he has grown 1mm (in 3 weeks)! So, after 2 months of NO > PROGRESS, we are finally seeing some progress. > > He has been in the Starband for 6 months, which is the time limit usually referred to, > but he wasn't growing for a while and the band still fits, and his orthotist thinks that > we can get more out of it, so we decided to try to keep it on for a little while longer. > There is still a stubborn flat spot (it has gotten smaller in the last 3 weeks though) > and his cephalic index is 90, which is still a bit on the high side. We're hoping for the > high 80's. > > So, we are on our last leg in the band. Hopefully this growth spurt will last a little bit > longer and not taper off for another 2 months. I'm ready to start putting regular hats > on him. > > > Sunnyvale, CA > Plagio/Brachy/Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Sounds good , WTG ! Thanks for the great report. ) Sue mom of colin F., 18 mos. STARband grad brachy --- In Plagiocephaly , " " <sarahhj1222@y...> wrote: > > Hi all, > > had his appt today and he has grown 1mm (in 3 weeks)! So, after 2 months of NO > PROGRESS, we are finally seeing some progress. > > He has been in the Starband for 6 months, which is the time limit usually referred to, > but he wasn't growing for a while and the band still fits, and his orthotist thinks that > we can get more out of it, so we decided to try to keep it on for a little while longer. > There is still a stubborn flat spot (it has gotten smaller in the last 3 weeks though) > and his cephalic index is 90, which is still a bit on the high side. We're hoping for the > high 80's. > > So, we are on our last leg in the band. Hopefully this growth spurt will last a little bit > longer and not taper off for another 2 months. I'm ready to start putting regular hats > on him. > > > Sunnyvale, CA > Plagio/Brachy/Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Sounds good , WTG ! Thanks for the great report. ) Sue mom of colin F., 18 mos. STARband grad brachy --- In Plagiocephaly , " " <sarahhj1222@y...> wrote: > > Hi all, > > had his appt today and he has grown 1mm (in 3 weeks)! So, after 2 months of NO > PROGRESS, we are finally seeing some progress. > > He has been in the Starband for 6 months, which is the time limit usually referred to, > but he wasn't growing for a while and the band still fits, and his orthotist thinks that > we can get more out of it, so we decided to try to keep it on for a little while longer. > There is still a stubborn flat spot (it has gotten smaller in the last 3 weeks though) > and his cephalic index is 90, which is still a bit on the high side. We're hoping for the > high 80's. > > So, we are on our last leg in the band. Hopefully this growth spurt will last a little bit > longer and not taper off for another 2 months. I'm ready to start putting regular hats > on him. > > > Sunnyvale, CA > Plagio/Brachy/Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Hi , Nice to see the light at the end of the tunnel, huh? I'll keep my fingers crossed that will have a big growth spurt for you! , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com --- In Plagiocephaly , " " <sarahhj1222@y...> wrote: > > Hi all, > > had his appt today and he has grown 1mm (in 3 weeks)! So, after 2 months of NO > PROGRESS, we are finally seeing some progress. > > He has been in the Starband for 6 months, which is the time limit usually referred to, > but he wasn't growing for a while and the band still fits, and his orthotist thinks that > we can get more out of it, so we decided to try to keep it on for a little while longer. > There is still a stubborn flat spot (it has gotten smaller in the last 3 weeks though) > and his cephalic index is 90, which is still a bit on the high side. We're hoping for the > high 80's. > > So, we are on our last leg in the band. Hopefully this growth spurt will last a little bit > longer and not taper off for another 2 months. I'm ready to start putting regular hats > on him. > > > Sunnyvale, CA > Plagio/Brachy/Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Great to hear from you! He looks gorgeous! Thanks for the update. Natasha > , mild plagio and tort, repositioning only, > > Is doing well, He is almost 8 months now, developing nicely. > > His forehead bossing is rounding out. His ears are still off a bit, > but I see small improvements. > > His right cheek is a little more forward than his left cheek. He > leans a little to the right but I see improvements. > > Repositioning at this age is a challenge, because he is all over when > he sleeps, but at least during the day his head is almost always > upright, with him crawling,sitting, pulling himself up to stand , > etc... > > > Many people cannot tell he had a plagio problem. > > > I have entered him into a photo contest if you want to see his latest > picture. > > http://www.abeautifulbaby.com/view.asp?i=152 & c=0 > > > Thank you for this forum...... It helped me alot! > > MOAB > Gail Carson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Great to hear from you! He looks gorgeous! Thanks for the update. Natasha > , mild plagio and tort, repositioning only, > > Is doing well, He is almost 8 months now, developing nicely. > > His forehead bossing is rounding out. His ears are still off a bit, > but I see small improvements. > > His right cheek is a little more forward than his left cheek. He > leans a little to the right but I see improvements. > > Repositioning at this age is a challenge, because he is all over when > he sleeps, but at least during the day his head is almost always > upright, with him crawling,sitting, pulling himself up to stand , > etc... > > > Many people cannot tell he had a plagio problem. > > > I have entered him into a photo contest if you want to see his latest > picture. > > http://www.abeautifulbaby.com/view.asp?i=152 & c=0 > > > Thank you for this forum...... It helped me alot! > > MOAB > Gail Carson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Hi Gail, Thanks for the update! I'm happy to hear that is doing so well! Thanks for linking the picture, he's just adorable! I hope he continues rounding so nicely for you. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > , mild plagio and tort, repositioning only, > > Is doing well, He is almost 8 months now, developing nicely. > > His forehead bossing is rounding out. His ears are still off a bit, > but I see small improvements. > > His right cheek is a little more forward than his left cheek. He > leans a little to the right but I see improvements. > > Repositioning at this age is a challenge, because he is all over when > he sleeps, but at least during the day his head is almost always > upright, with him crawling,sitting, pulling himself up to stand , > etc... > > > Many people cannot tell he had a plagio problem. > > > I have entered him into a photo contest if you want to see his latest > picture. > > http://www.abeautifulbaby.com/view.asp?i=152 & c=0 > > > Thank you for this forum...... It helped me alot! > > MOAB > Gail Carson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Hi Gail, Thanks for the update! I'm happy to hear that is doing so well! Thanks for linking the picture, he's just adorable! I hope he continues rounding so nicely for you. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > , mild plagio and tort, repositioning only, > > Is doing well, He is almost 8 months now, developing nicely. > > His forehead bossing is rounding out. His ears are still off a bit, > but I see small improvements. > > His right cheek is a little more forward than his left cheek. He > leans a little to the right but I see improvements. > > Repositioning at this age is a challenge, because he is all over when > he sleeps, but at least during the day his head is almost always > upright, with him crawling,sitting, pulling himself up to stand , > etc... > > > Many people cannot tell he had a plagio problem. > > > I have entered him into a photo contest if you want to see his latest > picture. > > http://www.abeautifulbaby.com/view.asp?i=152 & c=0 > > > Thank you for this forum...... It helped me alot! > > MOAB > Gail Carson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Thanks for the update on . 8 month old that are all over the crib - hmm never heard of that I'm so glad the repo is working for you. Keep up the good work. He looks so cute in the picture! mom to na DOC Grad www.thefilyaws.commoabtheoriginal <pcgailc@...> wrote: , mild plagio and tort, repositioning only,Is doing well, He is almost 8 months now, developing nicely. His forehead bossing is rounding out. His ears are still off a bit, but I see small improvements.His right cheek is a little more forward than his left cheek. He leans a little to the right but I see improvements.Repositioning at this age is a challenge, because he is all over when he sleeps, but at least during the day his head is almost always upright, with him crawling,sitting, pulling himself up to stand , etc...Many people cannot tell he had a plagio problem. I have entered him into a photo contest if you want to see his latest picture.http://www.abeautifulbaby.com/view.asp?i=152 & c=0Thank you for this forum...... It helped me alot!MOABGail CarsonFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Thanks for the update on . 8 month old that are all over the crib - hmm never heard of that I'm so glad the repo is working for you. Keep up the good work. He looks so cute in the picture! mom to na DOC Grad www.thefilyaws.commoabtheoriginal <pcgailc@...> wrote: , mild plagio and tort, repositioning only,Is doing well, He is almost 8 months now, developing nicely. His forehead bossing is rounding out. His ears are still off a bit, but I see small improvements.His right cheek is a little more forward than his left cheek. He leans a little to the right but I see improvements.Repositioning at this age is a challenge, because he is all over when he sleeps, but at least during the day his head is almost always upright, with him crawling,sitting, pulling himself up to stand , etc...Many people cannot tell he had a plagio problem. I have entered him into a photo contest if you want to see his latest picture.http://www.abeautifulbaby.com/view.asp?i=152 & c=0Thank you for this forum...... It helped me alot!MOABGail CarsonFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Gail, Great update. Sounds like is doing well. Keep up the repo and the stretches, and keep us posted. CAROLG > , mild plagio and tort, repositioning only, > > Is doing well, He is almost 8 months now, developing nicely. > > His forehead bossing is rounding out. His ears are still off a bit, > but I see small improvements. > > His right cheek is a little more forward than his left cheek. He > leans a little to the right but I see improvements. > > Repositioning at this age is a challenge, because he is all over when > he sleeps, but at least during the day his head is almost always > upright, with him crawling,sitting, pulling himself up to stand , > etc... > > > Many people cannot tell he had a plagio problem. > > > I have entered him into a photo contest if you want to see his latest > picture. > > http://www.abeautifulbaby.com/view.asp?i=152 & c=0 > > > Thank you for this forum...... It helped me alot! > > MOAB > Gail Carson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2005 Report Share Posted July 4, 2005 I'm glad to hear that 's ears and forehead have made good improvements! I'm sure that was a hard decision to make to get a second band! You're right in saying that you probably wouldn't be happy if you stopped now since this is the only time to get it corrected. Hope the casting goes well for him and you!! Lacy Waydon's mom 8.5 months DOCband 2 weeks > We went to CT on July 1st. We found out our insurance approved our > appeal!!! Not sure how much they're going to cover yet. We will know > more on Tuesday. has been in his DOCband for 14 weeks. We > decided Friday to go ahead and do a second band. He still has quite a > bit of flatness in the back. His forehead and ears have come along > very well, it's just taking longer for the back to round out. He will > be casted for the second band on the 22nd and will wear it for 4 > months. That puts him at 20 months old when he will finally be band > free. It was a tough decision to make. We were definately ready for > him to be done, but I just don't think we would be happy if we stopped > now. > > (mom to , 16 mo.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2005 Report Share Posted July 4, 2005 I'm glad to hear that 's ears and forehead have made good improvements! I'm sure that was a hard decision to make to get a second band! You're right in saying that you probably wouldn't be happy if you stopped now since this is the only time to get it corrected. Hope the casting goes well for him and you!! Lacy Waydon's mom 8.5 months DOCband 2 weeks > We went to CT on July 1st. We found out our insurance approved our > appeal!!! Not sure how much they're going to cover yet. We will know > more on Tuesday. has been in his DOCband for 14 weeks. We > decided Friday to go ahead and do a second band. He still has quite a > bit of flatness in the back. His forehead and ears have come along > very well, it's just taking longer for the back to round out. He will > be casted for the second band on the 22nd and will wear it for 4 > months. That puts him at 20 months old when he will finally be band > free. It was a tough decision to make. We were definately ready for > him to be done, but I just don't think we would be happy if we stopped > now. > > (mom to , 16 mo.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2005 Report Share Posted July 4, 2005 , Congrats on your appeal. That's awesome. I am glad to hear that had good correction so far. If you thought he could have better correction, it's best that you went with the second band, then you can say you did all you could. Let us know how things go. CAROLG > We went to CT on July 1st. We found out our insurance approved our > appeal!!! Not sure how much they're going to cover yet. We will know > more on Tuesday. has been in his DOCband for 14 weeks. We > decided Friday to go ahead and do a second band. He still has quite a > bit of flatness in the back. His forehead and ears have come along > very well, it's just taking longer for the back to round out. He will > be casted for the second band on the 22nd and will wear it for 4 > months. That puts him at 20 months old when he will finally be band > free. It was a tough decision to make. We were definately ready for > him to be done, but I just don't think we would be happy if we stopped > now. > > (mom to , 16 mo.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 , Yeah you won your appeal - hopefully they will cover a lot!!!! Great news about the ears and forehead they are usually last to correct. Let us know how casting goes. mom to na, DOC Grad & Kiersten, preventative repo www.thefilyaws.com <mklafoll@...> wrote: We went to CT on July 1st. We found out our insurance approved our appeal!!! Not sure how much they're going to cover yet. We will know more on Tuesday. has been in his DOCband for 14 weeks. We decided Friday to go ahead and do a second band. He still has quite a bit of flatness in the back. His forehead and ears have come along very well, it's just taking longer for the back to round out. He will be casted for the second band on the 22nd and will wear it for 4 months. That puts him at 20 months old when he will finally be band free. It was a tough decision to make. We were definately ready for him to be done, but I just don't think we would be happy if we stopped now. (mom to , 16 mo.) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 , Yeah you won your appeal - hopefully they will cover a lot!!!! Great news about the ears and forehead they are usually last to correct. Let us know how casting goes. mom to na, DOC Grad & Kiersten, preventative repo www.thefilyaws.com <mklafoll@...> wrote: We went to CT on July 1st. We found out our insurance approved our appeal!!! Not sure how much they're going to cover yet. We will know more on Tuesday. has been in his DOCband for 14 weeks. We decided Friday to go ahead and do a second band. He still has quite a bit of flatness in the back. His forehead and ears have come along very well, it's just taking longer for the back to round out. He will be casted for the second band on the 22nd and will wear it for 4 months. That puts him at 20 months old when he will finally be band free. It was a tough decision to make. We were definately ready for him to be done, but I just don't think we would be happy if we stopped now. (mom to , 16 mo.) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Glen, Thanks for posting, I have been really worried about her. Just let her know were all praying for her. Tawny > regained consciousness this morning. However, they are keeping > her sedated while she fights the infection. They do have her off all > of her current RA medications so I don't know exactly how that will > play out. I know she was hurting pretty bad before this happened and > she does not take pain medication. If everything goes according to > plan she should be out of the ICU by the end of the week. I will keep > you posted as best I can. > Thank you, > Glen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.