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  • 6 years later...
Guest guest

,

I've been involved in implant support since 1994, and

I don't know of any tests! They have carefully avoided

studying those of us who are sick. . . If a woman gets

sick enough she has her implants removed and not

replaced, . . . guess what? they drop her from the

study!!

If you'll spend a few hours reading through the

messages from women on this group, and some of the

stories in the archives, I think you will know if your

implants are causing your health problems!

Even not knowing what your problems are, I would bet

that you are having muscle/joint pain, fatigue,

cognitive problems, possibly rashes, allergies

(actually multiple chemical sensitivty) . . . probably

undiagnosed systemic fungal problems and thyroid

problems as well. Just to name a few!

If you have any questions, that's what we're here for!

Wish you didn't need to be here . . . but welcome

anyway!

Hugs and prayers,

Rogene

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Guest guest

,

I hate to tell you this, but it is the truth...there are no tests that

will point to your implants as causing your symptoms of illness. If

there were, there would be no controversy! We wouldn't have to have

FDA hearings, write journalists, and jump through hoops to try to get

any doctors to listen to us when we drop the bomb, " implants " into our

conversations.

You can definitely have tests done which will show you that you may be

having an autoimmune reaction or inflammation or other abnormality.

Seomtimes though, we can feel like we are dying, only to end up with

completely normal test results. That is when the doctors start rolling

their eyes and telling us to go see a psychiatrist.

Many of us have come to the realization that our implants are the

source of our illness by communicating with other women going through

the same suffering, and from our own intuition about our body. I had

never been sick with much of anything in my whole life, but 8 months

after getting implants, I felt like I was dying. It was confusing at

first and I was really scared, but it was really the only thing that

made any sense, especially when our family had no history of

autoimmune disease anywhere. It had to be the implants.

And of course, getting them out proved to be vital to my ability to

regain my health.

If you want to do some testing, I can suggest things like ANA rate,

SED rate, rheumatoid factor, complements, and thyroid. There are

others, but this should get you started. Stay with us and you will

begin to get answers to many of your questions. Most doctors are

clueless, and we have found we have to take charge of our own health.

Testing is good, but then you need to decide where to go from there,

and detoxing, detoxing, detoxing is key.

Love,

Patty

--- In , " am_verdugo " <mandabr1@n...>

wrote:

> Hello,

> I am new to the group, and I have been pretty sick for quite a while.

> I have been going to doctors to try and figure out what is wrong, and

> they can't find anything. I was just wondering if someone could let

me

> know the exact tests I should ask to have run to find out if it is my

> implants that are causing the problem.

> Thanks so much,

>

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  • 1 year later...
Guest guest

Yeah, actually vets are great. But like Tarello found, not taken all

that seriously when it comes to human illness, which is ridiculous

since so much testing is done in animals to start.

Perhaps what we need to do is raise money to fund a substantial

research grant that would go to an existing facility that would then

test our group's samples, with guidelines that we set.

We could tie the labwork in with some kind of study of chronic

illness, and maybe actually make a difference out there.

A good existing research facility would give our study credibility.

If we could find the right match, then all we need to do is raise

the money and buy ourselves a scientist or two. :-)

Basically, this is what the NCF does, but I don't think they're

focused on the right causes of our illness. Their contibutions to

projects like the ciguatera toxin may eventually be helpful, but we

need to do something that opens the medical establishments eyes to

the fact that a larger percentage of these mysterious, ill defined,

chronic ailments are in fact due to infection. They need to see why

our immune systems have been forced into high gear resulting in

massive inflammation, endocrine imbalance, energy depletion, etc.

penny

You know what else? Maybe we should focus on Australia. It seems

like very medical breakthrough is coming out of there these days.

>

> I think that what we need is an existing lab that is prepared to

do

> work ups and drug probes privately.

>

> How about a good vet?

>

> bleu

>

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  • 6 months later...

Felice,

Based on my last post I would suggest just dont touch to much as not to stir

things up un nessesarily. I don't know, lets see what responces I get. Try to

ask him to take the outdoor sample not on the front porch but maybe out in the

yard sommewhere. I often wonder how much this might change the outdoor readings.

I wish you all the luck in the world...

Chris...

felice <anupath14@...> wrote:

Well, I've decided on investing on having my home inspected and tested

next Tuesday. Wish me luck. I'll take it from there.

I had to do something. Either move around the world to find a " safe " home and go

nuts in the process, or stay here and see if it's fixable, and go nuts in the

process.

I know it's expensive either way. As I was told, " I didn't say it was going to

be easy " . Any suggestions?? They'll be inspecting from basement thru attic.

felice

Life is a balance of holding on and letting go...

---------------------------------

Everyone is raving about the all-new .

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Felice, I have a VERY important question for you. Where do you live, what

state?

Sue

Well, I've decided on investing on having my home inspected and tested next

Tuesday. Wish me luck. I'll take it from there.

I had to do something. Either move around the world to find a " safe " home

and go nuts in the process, or stay here and see if it's fixable, and go nuts

in the process.

I know it's expensive either way. As I was told, " I didn't say it was going

to be easy " . Any suggestions?I know it's expensive either way. As I was told,

" I didn

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If you are doing air spore testing, and ONLY IF YOU CAN DO THIS WITHOUT

PERMANENTLY DAMAGING YOUR HEALTH you will definitely want to turn off any

air filtration units or ventilation fans and let the indoor air in your

house sit for a while so that the air they test will be the air that you

would be breathing and not cleaned air..

This might seem obvious but many of us get so used to cleaning our air that

we can't/wont turn the cleaners off. This is a normal reaction, but we have

to try to override it. Don't clean the air or open any windows for at least

48 hours before they come. If that means you have to leave, maybe you should

leave.

I wish I could have stood to do this before they tested my house but we

couldn't stand it. So we only closed the windows a half hour before they

arrived.. In retrospect, this was probably a mistake, because the counts in

one of our rooms seemed much lower than I would have expected based on how

sick it made me feel.. and how much our stuff stored there smelled and made

me sick afterwards.(maybe that room had stachy.. or ??? we still don't

know..)

Also, if they can test when it is windy, and/or whatever time of day you

usually get the sickest, that is more accurate as to what is inside the

walls.. Also, bear in mind that most air testing just tests for spores, it

can't /doesn't show mycotoxins..and ALL aspergillius and penicillium species

are lumped together..

On 11/4/06, Tazin Round <unitedstatesvet@...> wrote:

>

> Felice,

> Based on my last post I would suggest just dont touch to much as not to

> stir things up un nessesarily. I don't know, lets see what responces I get.

> Try to ask him to take the outdoor sample not on the front porch but maybe

> out in the yard sommewhere. I often wonder how much this might change the

> outdoor readings.

> I wish you all the luck in the world...

> Chris...

>

> felice <anupath14@...> wrote:

> Well, I've decided on investing on having my home inspected and

> tested next Tuesday. Wish me luck. I'll take it from there.

> I had to do something. Either move around the world to find a " safe " home

> and go nuts in the process, or stay here and see if it's fixable, and go

> nuts in the process.

> I know it's expensive either way. As I was told, " I didn't say it was

> going to be easy " . Any suggestions?? They'll be inspecting from basement

> thru attic. felice

>

>

>

>

>

>

> Life is a balance of holding on and letting go...

>

> ---------------------------------

> Everyone is raving about the all-new .

>

>

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This is important: DON'T TAKE THE OUTDOOR SAMPLE ANYWHERE NEAR YOUR HOUSE..

It should be outside and in the clear.. at least 50-100 feet away.. and

preferably upwind of your house..

Definitely not on any porches...

I just had a long discussion about this with an expert and that is what he

said.. If they take 'control' samples on the porch, they are trying to make

the situation look better than it really is.. because there it is quite

possible that they will find spores that grew inside of/on, below, etc. your

house..

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Since conditions in your house may change from

day to day ask if they would be willing to come

and test on a day you feel sick. I had someone

willing to do that....!!! It is a reasonable

request, so ask.

Also I did make mistake that Live Simply made one

time and forgot to remove my numberous filters

around house on a day before testing. I

remembered to remove them when testing started

but I should have done it ahead of time.

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The downside as I see it with testing is they only test for spores-if

the walls are tightly closed the people in the house may be sick from

mycotoxins- but the testers cannot find enough spores to decide the

place is contaminated- this has been discussed many times on this site-

the house I bought in NM did not test as having spores- but I was

burnt up and sick as a dog from toxin after 2 weeks n it- the kitchen

counter was so hot I culd not go near it. A good moisture meter gone

all over the walls and ceiling may help locate and areas of moisture

and give an added level of information-I had the home inspecter come

and go over every inch of the apt I am in now with his moisture meter

befor I moved in- I have been getting gradually better since i moved

in- good luck

--- In , felice <anupath14@...>

wrote:

>

> Well, I've decided on investing on having my home inspected and

tested next Tuesday. Wish me luck. I'll take it from there.

> I had to do something. Either move around the world to find

a " safe " home and go nuts in the process, or stay here and see if it's

fixable, and go nuts in the process.

> I know it's expensive either way. As I was told, " I didn't say it

was going to be easy " . Any suggestions?? They'll be inspecting from

basement thru attic. felice

>

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Felice, You have to have the best inspectors who know what they

are doing to do the job correctly!I know of two in my area that I

would recommend and trust completely. I live in land and both

these guys travel but I don't know how far. e-mail me if you want

more info.

Sue

Why have the outside area tested?? My neighbor has a moldy gargae out there.

also, right now, since i'm reacting to sooooo much, i react to my wooden

deck which my dog has ruined!!

Will they test for MYCOTOXINS?? And if found, can things be remediated??Will

they test for MYCOTOXINS?? And if found, can things be remediated??<WBR>? I

really do

ice,

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I have noticed that several of you are now using the words " spore

testing " instead of the more common " mold testing. "

Not only do I agree and approve but I wish I had thought of using

that label!

Almost all testing involving mold detects only the spores so " spore

testing " is much more accurate and can result in much less confusion.

Carl Grimes

Healthy Habitats LLC

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Mr. Grimes,

Would air sampeling be for air samples and swap and tape samples be more

accuratly labeled as mold testing or do you say it is all spore testing?

Chris...

" Carl E. Grimes " <grimes@...> wrote:

I have noticed that several of you are now using the words " spore

testing " instead of the more common " mold testing. "

Not only do I agree and approve but I wish I had thought of using

that label!

Almost all testing involving mold detects only the spores so " spore

testing " is much more accurate and can result in much less confusion.

Carl Grimes

Healthy Habitats LLC

Life is a balance of holding on and letting go...

---------------------------------

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I read a post here about a guy in Orlando that uses dogs. I think this

by far would be the best method. Dogs are not giving you an overall

sample of the problem. They are leading you right to the source of the

problem. I would think if you had a dude with a dog and a remediater

working side by side until all the mold is gone this would be the most

cost effective solution. If I still had my house and it wasn't to cost

prohibitive I might have given this a shot.

On Sat, 04 Nov 2006 09:06:53 -0600 (CST), you wrote:

>Well, I've decided on investing on having my home inspected and tested next

Tuesday. Wish me luck. I'll take it from there.

>I had to do something. Either move around the world to find a " safe " home and

go nuts in the process, or stay here and see if it's fixable, and go nuts in the

process.

>I know it's expensive either way. As I was told, " I didn't say it was going to

be easy " . Any suggestions?? They'll be inspecting from basement thru attic.

felice

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An expert will take a sample of mold count outside at same time he/she

takes one inside since outside mold count will affect inside count and

type to some degree. If it is extremely moldy outside, like this

summer mold count was 5000+ (not in a culture plate though of course),

and right now in cooler, drier air it is 600+. If high count of mold

outside and it is high in cladosporum for example and your mold sample

inside has alot of cladorsporum may not be from your house but be from

outside air. To determine which, you'd have to do other testing.

>

> Why have the outside area tested?? My neighbor has a moldy gargae

out there.

> also,

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Wouldn't the important count be of toxinogenic species?

I've read some good arguments that overall spore count seems to be less

important than the percentage of toxinogenic to nontoxinogenic..

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I think much is written that high count of any

mold can cause health problems. This may have to

do with your immune system and what you are

suffering from but even high outside mold counts

make me feel sick. I live in Ohio River valley

though which is very mold in summer, as well as

Mississippi is bad also, with summer mold counts

going up to 5000 (do not know how much volume of

air) but yesterday mold count was only 456,

whereas a month ago it was 4000-close to 6000.

On those days I feel sick. Since the first

freeze count has never gone above 1000.

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Where do you obtain the routine outdoor mold counts?

In a message dated 11/7/2006 9:40:12 PM Central Standard Time,

barb1283@... writes:

I think much is written that high count of any

mold can cause health problems. This may have to

do with your immune system and what you are

suffering from but even high outside mold counts

make me feel sick. I live in Ohio River valley

though which is very mold in summer, as well as

Mississippi is bad also, with summer mold counts

going up to 5000 (do not know how much volume of

air) but yesterday mold count was only 456,

whereas a month ago it was 4000-close to 6000.

On those days I feel sick. Since the first

freeze count has never gone above 1000.

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  • 1 year later...

Hi Angie,

After the neuro takes a family history, does some manual testing - reflexes,

strength, sensation,eyes, etc., usually an EMG/NCV is the next step. I agree it

is barbaric, however children can be given a mild

sedative, as long as they are coooperative, and you should ask to be in

the room. Yes, there is also the genetic DNA test. A blood sample is

drawn and then sent to the lab for testing. More recently there is also

a 'skin biopsy', although I'm not sure how widespread that test is.

Gretchen

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  • 3 weeks later...

You can get a specific list of blood tests from Dr. Shoemaker's website

www..biotoxin.info (under " Lab Testing " ) or the tests are also listed in the

back of his book " Mold Warriors " . 

[] Testing

Can someone tell me what type of Doctor I should see and what types of

tests I should have done to find out how seriously infected I am? I had

a blood mold antibody testing done and it came back normal. What

exactly am I testing for? Also, someone said on here that your computer

if you take it with you can re-infect another house? Is this really

true? Is all of my stuff ruined? I have a 3 bedroom house full of 4

peoples lifetimes and am not monitarily able to replace it all. Can a

lawsuit be filed for ruined possesions even though we dont have renters

insurance? Thanks

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I had several test done and need to think about this a bit before I recomend any

specific, or the best ones anlthough I have to admit Shoemakers testing is very

telling and probobly a great start but is not cheap.

Leave it all. I am sure it gives you the chills thinking about it but I walked

out of my house naked got in my parents car, put new cloths on and moved on from

there. It all must be destroyed. In the end you will find out takeing anything

will not be worth the risk and what may come from it in the future. Before I

left some things got put in storage if for no other reason for legal reasons but

that became to expensive after a year or so plus I reacted badley anytime I went

there when I needed to get prior records for lawyers. Rental insurance did me no

good although it was good to have them turn me down stateing it was the

responsability of the landlord but did not help replace anything.

Yes you can file a lawsuit against your landlord wich in the end will be against

his liability insurance and takes for ever but it is your only option. Be sure

to give at least 2 request to fix the issue and one evacuation notice du to

health issues but you must also have the house tested by a reputable testing

company.

Thats alot to dump on you but I am sorry. You will hear it over and over. Let us

know of any questions you have after this and other answers you will recieve.

Chris...

 

 

 

 

 

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you can call Dr. Shoemaker's office he is a toxic mold specialist, the number is

410-957-1552.

[] Testing

Can someone tell me what type of Doctor I should see and what types of

tests I should have done to find out how seriously infected I am? I had

a blood mold antibody testing done and it came back normal. What

exactly am I testing for? Also, someone said on here that your computer

if you take it with you can re-infect another house? Is this really

true? Is all of my stuff ruined? I have a 3 bedroom house full of 4

peoples lifetimes and am not monitarily able to replace it all. Can a

lawsuit be filed for ruined possesions even though we dont have renters

insurance? Thanks

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for mold allergy/sensitivity's a aaem member doctor would be good.

for mold illness(toxic encephalpathy) Dr. Shoemaker in MD. is good.

he doesn't due allergy testing.

there's also Dr. Gray in AZ. and Dr. Rea at EHC in TX.(Dr.Rea is with

aaem.org) a search " aaem,doctor member " should bring up the state by

state doctor's. there's others some here might sujest if we knew what

area your in.

>

> Hello All,

>

> I have a client who asked if I knew what tests needed to be done to

find

> out if she is allergic/sensitive to mold. Can anyone point me in the

> correct direction?

> --

>

========================================================================

=========================

> Visionary Interiors 206-849-1101 Designs for

Living,

> Janet A Harden www.visionaryinteriors.com Designs for Life

>

========================================================================

=========================

>

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  • 3 months later...

I think that 50/50 chance is true.

I think that there is a test.

>

> Does anyone know if their is a test I can take while I am pregnant to

> find out if my child will be born with this eye condition? the father

> of my unborn child and his 4 year old son both have blepharophimosis.

> I have read that it is a 50/50 chance that it will be passed on to

> your child...is that true?

>

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