Guest guest Posted January 31, 1999 Report Share Posted January 31, 1999 Please unsubscribe me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 , I've been involved in implant support since 1994, and I don't know of any tests! They have carefully avoided studying those of us who are sick. . . If a woman gets sick enough she has her implants removed and not replaced, . . . guess what? they drop her from the study!! If you'll spend a few hours reading through the messages from women on this group, and some of the stories in the archives, I think you will know if your implants are causing your health problems! Even not knowing what your problems are, I would bet that you are having muscle/joint pain, fatigue, cognitive problems, possibly rashes, allergies (actually multiple chemical sensitivty) . . . probably undiagnosed systemic fungal problems and thyroid problems as well. Just to name a few! If you have any questions, that's what we're here for! Wish you didn't need to be here . . . but welcome anyway! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 , I hate to tell you this, but it is the truth...there are no tests that will point to your implants as causing your symptoms of illness. If there were, there would be no controversy! We wouldn't have to have FDA hearings, write journalists, and jump through hoops to try to get any doctors to listen to us when we drop the bomb, " implants " into our conversations. You can definitely have tests done which will show you that you may be having an autoimmune reaction or inflammation or other abnormality. Seomtimes though, we can feel like we are dying, only to end up with completely normal test results. That is when the doctors start rolling their eyes and telling us to go see a psychiatrist. Many of us have come to the realization that our implants are the source of our illness by communicating with other women going through the same suffering, and from our own intuition about our body. I had never been sick with much of anything in my whole life, but 8 months after getting implants, I felt like I was dying. It was confusing at first and I was really scared, but it was really the only thing that made any sense, especially when our family had no history of autoimmune disease anywhere. It had to be the implants. And of course, getting them out proved to be vital to my ability to regain my health. If you want to do some testing, I can suggest things like ANA rate, SED rate, rheumatoid factor, complements, and thyroid. There are others, but this should get you started. Stay with us and you will begin to get answers to many of your questions. Most doctors are clueless, and we have found we have to take charge of our own health. Testing is good, but then you need to decide where to go from there, and detoxing, detoxing, detoxing is key. Love, Patty --- In , " am_verdugo " <mandabr1@n...> wrote: > Hello, > I am new to the group, and I have been pretty sick for quite a while. > I have been going to doctors to try and figure out what is wrong, and > they can't find anything. I was just wondering if someone could let me > know the exact tests I should ask to have run to find out if it is my > implants that are causing the problem. > Thanks so much, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Yeah, actually vets are great. But like Tarello found, not taken all that seriously when it comes to human illness, which is ridiculous since so much testing is done in animals to start. Perhaps what we need to do is raise money to fund a substantial research grant that would go to an existing facility that would then test our group's samples, with guidelines that we set. We could tie the labwork in with some kind of study of chronic illness, and maybe actually make a difference out there. A good existing research facility would give our study credibility. If we could find the right match, then all we need to do is raise the money and buy ourselves a scientist or two. :-) Basically, this is what the NCF does, but I don't think they're focused on the right causes of our illness. Their contibutions to projects like the ciguatera toxin may eventually be helpful, but we need to do something that opens the medical establishments eyes to the fact that a larger percentage of these mysterious, ill defined, chronic ailments are in fact due to infection. They need to see why our immune systems have been forced into high gear resulting in massive inflammation, endocrine imbalance, energy depletion, etc. penny You know what else? Maybe we should focus on Australia. It seems like very medical breakthrough is coming out of there these days. > > I think that what we need is an existing lab that is prepared to do > work ups and drug probes privately. > > How about a good vet? > > bleu > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 Felice, Based on my last post I would suggest just dont touch to much as not to stir things up un nessesarily. I don't know, lets see what responces I get. Try to ask him to take the outdoor sample not on the front porch but maybe out in the yard sommewhere. I often wonder how much this might change the outdoor readings. I wish you all the luck in the world... Chris... felice <anupath14@...> wrote: Well, I've decided on investing on having my home inspected and tested next Tuesday. Wish me luck. I'll take it from there. I had to do something. Either move around the world to find a " safe " home and go nuts in the process, or stay here and see if it's fixable, and go nuts in the process. I know it's expensive either way. As I was told, " I didn't say it was going to be easy " . Any suggestions?? They'll be inspecting from basement thru attic. felice Life is a balance of holding on and letting go... --------------------------------- Everyone is raving about the all-new . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 Felice, I have a VERY important question for you. Where do you live, what state? Sue Well, I've decided on investing on having my home inspected and tested next Tuesday. Wish me luck. I'll take it from there. I had to do something. Either move around the world to find a " safe " home and go nuts in the process, or stay here and see if it's fixable, and go nuts in the process. I know it's expensive either way. As I was told, " I didn't say it was going to be easy " . Any suggestions?I know it's expensive either way. As I was told, " I didn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 If you are doing air spore testing, and ONLY IF YOU CAN DO THIS WITHOUT PERMANENTLY DAMAGING YOUR HEALTH you will definitely want to turn off any air filtration units or ventilation fans and let the indoor air in your house sit for a while so that the air they test will be the air that you would be breathing and not cleaned air.. This might seem obvious but many of us get so used to cleaning our air that we can't/wont turn the cleaners off. This is a normal reaction, but we have to try to override it. Don't clean the air or open any windows for at least 48 hours before they come. If that means you have to leave, maybe you should leave. I wish I could have stood to do this before they tested my house but we couldn't stand it. So we only closed the windows a half hour before they arrived.. In retrospect, this was probably a mistake, because the counts in one of our rooms seemed much lower than I would have expected based on how sick it made me feel.. and how much our stuff stored there smelled and made me sick afterwards.(maybe that room had stachy.. or ??? we still don't know..) Also, if they can test when it is windy, and/or whatever time of day you usually get the sickest, that is more accurate as to what is inside the walls.. Also, bear in mind that most air testing just tests for spores, it can't /doesn't show mycotoxins..and ALL aspergillius and penicillium species are lumped together.. On 11/4/06, Tazin Round <unitedstatesvet@...> wrote: > > Felice, > Based on my last post I would suggest just dont touch to much as not to > stir things up un nessesarily. I don't know, lets see what responces I get. > Try to ask him to take the outdoor sample not on the front porch but maybe > out in the yard sommewhere. I often wonder how much this might change the > outdoor readings. > I wish you all the luck in the world... > Chris... > > felice <anupath14@...> wrote: > Well, I've decided on investing on having my home inspected and > tested next Tuesday. Wish me luck. I'll take it from there. > I had to do something. Either move around the world to find a " safe " home > and go nuts in the process, or stay here and see if it's fixable, and go > nuts in the process. > I know it's expensive either way. As I was told, " I didn't say it was > going to be easy " . Any suggestions?? They'll be inspecting from basement > thru attic. felice > > > > > > > Life is a balance of holding on and letting go... > > --------------------------------- > Everyone is raving about the all-new . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 This is important: DON'T TAKE THE OUTDOOR SAMPLE ANYWHERE NEAR YOUR HOUSE.. It should be outside and in the clear.. at least 50-100 feet away.. and preferably upwind of your house.. Definitely not on any porches... I just had a long discussion about this with an expert and that is what he said.. If they take 'control' samples on the porch, they are trying to make the situation look better than it really is.. because there it is quite possible that they will find spores that grew inside of/on, below, etc. your house.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Since conditions in your house may change from day to day ask if they would be willing to come and test on a day you feel sick. I had someone willing to do that....!!! It is a reasonable request, so ask. Also I did make mistake that Live Simply made one time and forgot to remove my numberous filters around house on a day before testing. I remembered to remove them when testing started but I should have done it ahead of time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 The downside as I see it with testing is they only test for spores-if the walls are tightly closed the people in the house may be sick from mycotoxins- but the testers cannot find enough spores to decide the place is contaminated- this has been discussed many times on this site- the house I bought in NM did not test as having spores- but I was burnt up and sick as a dog from toxin after 2 weeks n it- the kitchen counter was so hot I culd not go near it. A good moisture meter gone all over the walls and ceiling may help locate and areas of moisture and give an added level of information-I had the home inspecter come and go over every inch of the apt I am in now with his moisture meter befor I moved in- I have been getting gradually better since i moved in- good luck --- In , felice <anupath14@...> wrote: > > Well, I've decided on investing on having my home inspected and tested next Tuesday. Wish me luck. I'll take it from there. > I had to do something. Either move around the world to find a " safe " home and go nuts in the process, or stay here and see if it's fixable, and go nuts in the process. > I know it's expensive either way. As I was told, " I didn't say it was going to be easy " . Any suggestions?? They'll be inspecting from basement thru attic. felice > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Felice, You have to have the best inspectors who know what they are doing to do the job correctly!I know of two in my area that I would recommend and trust completely. I live in land and both these guys travel but I don't know how far. e-mail me if you want more info. Sue Why have the outside area tested?? My neighbor has a moldy gargae out there. also, right now, since i'm reacting to sooooo much, i react to my wooden deck which my dog has ruined!! Will they test for MYCOTOXINS?? And if found, can things be remediated??Will they test for MYCOTOXINS?? And if found, can things be remediated??<WBR>? I really do ice, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 I have noticed that several of you are now using the words " spore testing " instead of the more common " mold testing. " Not only do I agree and approve but I wish I had thought of using that label! Almost all testing involving mold detects only the spores so " spore testing " is much more accurate and can result in much less confusion. Carl Grimes Healthy Habitats LLC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Mr. Grimes, Would air sampeling be for air samples and swap and tape samples be more accuratly labeled as mold testing or do you say it is all spore testing? Chris... " Carl E. Grimes " <grimes@...> wrote: I have noticed that several of you are now using the words " spore testing " instead of the more common " mold testing. " Not only do I agree and approve but I wish I had thought of using that label! Almost all testing involving mold detects only the spores so " spore testing " is much more accurate and can result in much less confusion. Carl Grimes Healthy Habitats LLC Life is a balance of holding on and letting go... --------------------------------- Sponsored Link Try Netflix today! With plans starting at only $5.99 a month what are you waiting for? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 I read a post here about a guy in Orlando that uses dogs. I think this by far would be the best method. Dogs are not giving you an overall sample of the problem. They are leading you right to the source of the problem. I would think if you had a dude with a dog and a remediater working side by side until all the mold is gone this would be the most cost effective solution. If I still had my house and it wasn't to cost prohibitive I might have given this a shot. On Sat, 04 Nov 2006 09:06:53 -0600 (CST), you wrote: >Well, I've decided on investing on having my home inspected and tested next Tuesday. Wish me luck. I'll take it from there. >I had to do something. Either move around the world to find a " safe " home and go nuts in the process, or stay here and see if it's fixable, and go nuts in the process. >I know it's expensive either way. As I was told, " I didn't say it was going to be easy " . Any suggestions?? They'll be inspecting from basement thru attic. felice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 An expert will take a sample of mold count outside at same time he/she takes one inside since outside mold count will affect inside count and type to some degree. If it is extremely moldy outside, like this summer mold count was 5000+ (not in a culture plate though of course), and right now in cooler, drier air it is 600+. If high count of mold outside and it is high in cladosporum for example and your mold sample inside has alot of cladorsporum may not be from your house but be from outside air. To determine which, you'd have to do other testing. > > Why have the outside area tested?? My neighbor has a moldy gargae out there. > also, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Wouldn't the important count be of toxinogenic species? I've read some good arguments that overall spore count seems to be less important than the percentage of toxinogenic to nontoxinogenic.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 I think much is written that high count of any mold can cause health problems. This may have to do with your immune system and what you are suffering from but even high outside mold counts make me feel sick. I live in Ohio River valley though which is very mold in summer, as well as Mississippi is bad also, with summer mold counts going up to 5000 (do not know how much volume of air) but yesterday mold count was only 456, whereas a month ago it was 4000-close to 6000. On those days I feel sick. Since the first freeze count has never gone above 1000. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Where do you obtain the routine outdoor mold counts? In a message dated 11/7/2006 9:40:12 PM Central Standard Time, barb1283@... writes: I think much is written that high count of any mold can cause health problems. This may have to do with your immune system and what you are suffering from but even high outside mold counts make me feel sick. I live in Ohio River valley though which is very mold in summer, as well as Mississippi is bad also, with summer mold counts going up to 5000 (do not know how much volume of air) but yesterday mold count was only 456, whereas a month ago it was 4000-close to 6000. On those days I feel sick. Since the first freeze count has never gone above 1000. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 Hi Angie, After the neuro takes a family history, does some manual testing - reflexes, strength, sensation,eyes, etc., usually an EMG/NCV is the next step. I agree it is barbaric, however children can be given a mild sedative, as long as they are coooperative, and you should ask to be in the room. Yes, there is also the genetic DNA test. A blood sample is drawn and then sent to the lab for testing. More recently there is also a 'skin biopsy', although I'm not sure how widespread that test is. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 You can get a specific list of blood tests from Dr. Shoemaker's website www..biotoxin.info (under " Lab Testing " ) or the tests are also listed in the back of his book " Mold Warriors " . [] Testing Can someone tell me what type of Doctor I should see and what types of tests I should have done to find out how seriously infected I am? I had a blood mold antibody testing done and it came back normal. What exactly am I testing for? Also, someone said on here that your computer if you take it with you can re-infect another house? Is this really true? Is all of my stuff ruined? I have a 3 bedroom house full of 4 peoples lifetimes and am not monitarily able to replace it all. Can a lawsuit be filed for ruined possesions even though we dont have renters insurance? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 I had several test done and need to think about this a bit before I recomend any specific, or the best ones anlthough I have to admit Shoemakers testing is very telling and probobly a great start but is not cheap. Leave it all. I am sure it gives you the chills thinking about it but I walked out of my house naked got in my parents car, put new cloths on and moved on from there. It all must be destroyed. In the end you will find out takeing anything will not be worth the risk and what may come from it in the future. Before I left some things got put in storage if for no other reason for legal reasons but that became to expensive after a year or so plus I reacted badley anytime I went there when I needed to get prior records for lawyers. Rental insurance did me no good although it was good to have them turn me down stateing it was the responsability of the landlord but did not help replace anything. Yes you can file a lawsuit against your landlord wich in the end will be against his liability insurance and takes for ever but it is your only option. Be sure to give at least 2 request to fix the issue and one evacuation notice du to health issues but you must also have the house tested by a reputable testing company. Thats alot to dump on you but I am sorry. You will hear it over and over. Let us know of any questions you have after this and other answers you will recieve. Chris... Â Â Â Â Â Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 you can call Dr. Shoemaker's office he is a toxic mold specialist, the number is 410-957-1552. [] Testing Can someone tell me what type of Doctor I should see and what types of tests I should have done to find out how seriously infected I am? I had a blood mold antibody testing done and it came back normal. What exactly am I testing for? Also, someone said on here that your computer if you take it with you can re-infect another house? Is this really true? Is all of my stuff ruined? I have a 3 bedroom house full of 4 peoples lifetimes and am not monitarily able to replace it all. Can a lawsuit be filed for ruined possesions even though we dont have renters insurance? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 for mold allergy/sensitivity's a aaem member doctor would be good. for mold illness(toxic encephalpathy) Dr. Shoemaker in MD. is good. he doesn't due allergy testing. there's also Dr. Gray in AZ. and Dr. Rea at EHC in TX.(Dr.Rea is with aaem.org) a search " aaem,doctor member " should bring up the state by state doctor's. there's others some here might sujest if we knew what area your in. > > Hello All, > > I have a client who asked if I knew what tests needed to be done to find > out if she is allergic/sensitive to mold. Can anyone point me in the > correct direction? > -- > ======================================================================== ========================= > Visionary Interiors 206-849-1101 Designs for Living, > Janet A Harden www.visionaryinteriors.com Designs for Life > ======================================================================== ========================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 PS, it's best to get testing done in both area's as bith mold allergies and chemical/toxin damage can accure from exposure in a WDB. water damaged building. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 I think that 50/50 chance is true. I think that there is a test. > > Does anyone know if their is a test I can take while I am pregnant to > find out if my child will be born with this eye condition? the father > of my unborn child and his 4 year old son both have blepharophimosis. > I have read that it is a 50/50 chance that it will be passed on to > your child...is that true? > Quote Link to comment Share on other sites More sharing options...
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