coQ10

[Guest guest]

At 09:07 08.03.99 -0500, you wrote:

>From: shouse@... (Sharon L. House)

>

>Dusan,

>

>Can you tell me how much CoenzymeQ10 recommends in this one time dose

>to kill tapeworms? Does she say why or how this works?

>

>Also, in order to see pinworms, you MAY be able to see them with the naked

>eye but they're very tiny. The only ones I actually saw were under a

>microscope (an old timey doctor with a " lab " in his back room) and under

>the microscope appeared to be about the size and shape of a common pin.

>Which is why they're called pinworms.

>

>Sharon

Information about new methods for treating parasites have been obtained

from the newsletter published by the Dr. Research Association:

http://www..ch/

I do not have a new book.

Please direct this question to

david@...

P. Amrein

President, Dr. Research Association

Dusan

[Guest guest]

I get my CoQ10 from CFIDS & Fibromyalgia Health Resource

www.ImmuneSupport.com I get the soft gel 100 mg soft gel with Vita-E and take

2 a day. They also have the wafer(sublingual) which is 200 mg which contains

Vita-E. It is $44.99 for 30 wafers. I am a discount shopper and get 33% off

and it arrives each month. If your order is over $50 there is not shipping

charge. Part of the proceeds from their sales goes to help research CFIDS.

Regards,

[Guest guest]

In a message dated 3/19/00 5:05:09 PM Eastern Standard Time,

onelist writes:

<< Subject: Re: CoQ10 - for interpres

Checked out the bulk prices at http://www.seaquake.com/

It's a bit of a blast sitting around the kitchen table filling your own

capsules...

>>

Check out the prices for magnesium and niacinamide while you are there. Those

are two supplements where the dosage doesn't have to e exact, so the bulk

form works well and is VERY inexpensive.

Mike

[Guest guest]

Hi,

Thank you for the info :-).. I have had a very hard time with the

doctors treatment of me at least locally, and appreciate you writing.

And Beth, Dr Cohen doesn't want me to have a muscle biopsy because general

anesthetic is used (although why this is necessary is beyond me), which

could result in neurologic damage or death. I imagine he is thinking of

malignent hyperthermia. But also said reason for not wanting to use general

is because of cardio problems - same ones that local docs say I don't

have. He spoke of a needle biopsy but they are not done at CC.

I want to welcome the new people to this list. Hearing a doctor and PhD

helped me pull quite a bit of the CFIDS mystery together for me. This is

first day I have really been online for any length of time, so please

forgive the late welcomes.

Take care,

Christie

----------------

>

>,

>

>Thank you so much for posting info on coQ10!! I've been having worse and

>worse cardiac problems. Nothing shows up on EKG's but I know my heart is

>long and skinny according to Dr. Bell (like in 's disease, which

>is typical for CFS) and I have real problems with orthostatic

>intolerance (have been through tilt table testing twice, was positive)

>and get a LOT of chest pressure and pain.

>

>In two weeks I get tested for mito disease at the Cleveland Clinic but

>it is really " heartening " (!) to hear that CoQ10 has had such a good

>impact on your situation and I have my fingers crossed it will help me

>out to. I did take 100 mg for four days and was noticably better each

>day but then had to stop so as to have it out of my system for the skin

>biopsy THEN I have to wait another two months until I have the muscle

>biopsy. best, Beth

>

>

>

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>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

>

[Guest guest]

In a message dated 8/30/00 3:49:14 AM, egroups writes:

<< Co-Enzyme Q10 >>

Hi

My LLMD, a researcher, has warned me to stay away from CoQ10 while taking

Mepron for Babesia. I personally stopped taking it many months ago, as my

symptoms were worsening. I believe that CoQ10 is food for the spirochetes,

and I may not be too

far off the mark on this one.

Take care,

Jane

[Guest guest]

Hi Jane, I wasnt allowed Coenzyme Q-10, I think you are right! Bill

Re: [ ] CoQ10

>

>

>In a message dated 8/30/00 3:49:14 AM, egroups writes:

>

> << Co-Enzyme Q10 >>

>

>

>Hi

>My LLMD, a researcher, has warned me to stay away from CoQ10 while taking

>Mepron for Babesia. I personally stopped taking it many months ago, as my

>symptoms were worsening. I believe that CoQ10 is food for the spirochetes,

>and I may not be too

>far off the mark on this one.

>Take care,

>Jane

>

>

>

>Many thanks to our founder and friend, Marta McCoy, for making

what it is today.

>

>

>Easy Reference:

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[Guest guest]

,

I went off of coQ 10 for a period,, and then back on again. I think i could

tell the difference in energy and mental clarity-some! But if your peripheral

circulation is impacted by it don't you imagine it is helping the circulation

to your organs as well?

I take grape seed extract just for the sake of improved visual

sharpness.definitely worth it. So maybe we need to do one pill per sympyom.

Simetimes it seeks like that.

And alpha lipoic acid just because I believe its good fer 'ya :-).

My experience with this disease is that if you just go with what makes you

feel better, which is very tempting, that you may find you have short-changed

yourself in the long run. For example, caffeine makes me cheerful, painfree,

and energetic-- for a while. And then I pay the piper.

`I think it was Steve B said Cheny cautions against stimulants, as leading to

serious early burnout. I agree, but what really qualifies as " stimulants " ?

Maybe anything that gives you more energy to live, without actiually

addressing the disease process.

In the mid eighties, before I had ever heard about cfids I started taking DL-

phenylalanine It helped w. the terrible neurological/cognitive problems,+ w.

depression, + w. pain. When I learned I was in fact enhancing

neurotransmission with it, but nobody could tell me what the long-term

effects would be, I went ahead anyhow, because there was no way -or reason-

to keep living the way I was.

I try to keep a balance between looking out for my longterm well-being when I

can see a way to, and also find whatever can make the present less wretched.

Adrienne

In a message dated 9/23/00 8:08:52 PM Mountain Daylight Time,

lindaj@... writes:

>

> I have another question. I'm trying to figure out how CoQ10 is used in

> metabolism. I keep reading that it's used in the production of ATP, but in

> all the things I've learned about the citric acid cycle, I can't find how

> CoQ10 is involved. Anyone happen to know? Does the body have to get it from

> food, or does it make it, and if it makes it, what does it make it out of?

> Internet sites with information would also be helpful.

>

> Also, anyone benefited from using CoQ10? I've been taking 100 mg. that I

got

> from my doctor, and at one point ran out, and bought some from a natural

> foods store, and could really tell the difference between the two. The one

> from my doctor seemed to make a definate impact, as far as my cold

> hands/cold feet warmed up some, and the natural foods store CoQ10 did

> absolutely nothing. But neither has improved my energy. I'm trying to

figure

> out if its worth the cost that I'm paying to get it through my doctor,

which

> is twice the price as the stuff from the natural foods store. Obviously the

> stuff from the natural foods store isn't worth what I paid for it. But I'm

> not sure about the benefits of taking CoQ10 for the cost that I pay for it

> through the doctor just to have warm hands/warm feet, unless there are some

> other benefits that I'm just not feeling yet.

>

>

> lindaj@...

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

>

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> Subject: CoQ10

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[Guest guest]

Hi ,

I don't know about your medical situation, but it sounds like you

might need a higher dose. I do best when I take 300mg in divided

doses. Use softgels, they are easier to absorb. Also, the brand I use

contains vitamin E which might help make it more effective.

As far as I know, there are not any adverse reactions from taking a

higher dose, but it can be expensive.

Yes, you can get it from food. The highest levels are in beef heart

(YUK!) which my dogs get at the first indication of ilness. Raw of

course. The pill form is grown on yeast and then extracted.

Here are some websites you can read:

United Mitochondrial Disease Foundation, www.umdf.org if you

click on links from their site you can go to the International CoQ10

Association. The direct link to their website is

wwwcsi.unian.it/coenzymeQ/indexd.html

If you want buy a book or search medline I would suggest starting

with the work of Dr. Karl Folker. He laid the foundation for most of

the research being done today. It'll give you a good start.

Be Well,

In egroups, lindaj@h... wrote:

> I have another question. I'm trying to figure out how CoQ10 is used

in

> metabolism. I keep reading that it's used in the production of ATP,

but in

> all the things I've learned about the citric acid cycle, I can't

find how

> CoQ10 is involved. Anyone happen to know? Does the body have to get

it from

> food, or does it make it, and if it makes it, what does it make it

out of?

> Internet sites with information would also be helpful.

>

> Also, anyone benefited from using CoQ10? I've been taking 100 mg.

that I got

> from my doctor, and at one point ran out, and bought some from a

natural

> foods store, and could really tell the difference between the two.

The one

> from my doctor seemed to make a definate impact, as far as my cold

> hands/cold feet warmed up some, and the natural foods store CoQ10

did

> absolutely nothing. But neither has improved my energy. I'm trying

to figure

> out if its worth the cost that I'm paying to get it through my

doctor, which

> is twice the price as the stuff from the natural foods store.

Obviously the

> stuff from the natural foods store isn't worth what I paid for it.

But I'm

> not sure about the benefits of taking CoQ10 for the cost that I pay

for it

> through the doctor just to have warm hands/warm feet, unless there

are some

> other benefits that I'm just not feeling yet.

>

>

> lindaj@h...

[Guest guest]

hi . i've spent many thousands of dollars over the years on homeopathic

remedies, including coq10. nothing has made a noticeable difference anywhere

except in my pocket book. i've had cfs and fm for 10+ years now. i'm not

trying to burst any of your " hope " bubbles. i've been through all of this

for so long now. something comes along to build up my hope, deplete my

money, and ends up doing nothing except crushing my hope and sending me into

depression. i don't know how long you've had cfs or what you've tried so

far. i'm just giving you my experiences.

take care,

Spacerobber@...

[Guest guest]

Hi, ,

>Also, anyone benefited from using CoQ10?

I have been on 200 mg CoQ10, sublingual, for some years. My MD who

originally Rxed it said that he could see a big improvement in my mental

function from it - I think that is its main effect, mental not on fatigue.

From my biochem text: CoQ (there are a group of them, with CoQ10 being the

most common in animals & people) is " a lipid-soluble electron-carrying

coenzyme. "

It hangs out in the inner membrane of mitochondria, and is used in the

passing of electrons from organic molecules to O2 during oxidative

phosphorylation. Increasing its level should help to increase your aerobic

metabolism, decreasing your need for anaerobic metabolism. Aerobic

metabolism is important in generating body heat, so having warmer hands &

feet makes sense. That suggests that it is working for you, so IMO (not a

med doctor) you should continue it.

Jerry

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

,

I'v also been taking sublingual CoQ10 for about 2 years and have found that

it improves cognitive function. It's also suppose to be very good for the

heart. I got nothing from the regular CoQ10 pills. Steve B.

Re: CoQ10

> Hi, ,

>

> >Also, anyone benefited from using CoQ10?

> I have been on 200 mg CoQ10, sublingual, for some years. My MD who

> originally Rxed it said that he could see a big improvement in my mental

> function from it - I think that is its main effect, mental not on fatigue.

>

> From my biochem text: CoQ (there are a group of them, with CoQ10 being the

> most common in animals & people) is " a lipid-soluble electron-carrying

> coenzyme. "

> It hangs out in the inner membrane of mitochondria, and is used in the

> passing of electrons from organic molecules to O2 during oxidative

> phosphorylation. Increasing its level should help to increase your aerobic

> metabolism, decreasing your need for anaerobic metabolism. Aerobic

> metabolism is important in generating body heat, so having warmer hands &

> feet makes sense. That suggests that it is working for you, so IMO (not a

> med doctor) you should continue it.

>

> Jerry

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

Somewhere I remember someone posting about Hulda rewriting her

original Cure for all Diseases Book. And in it she uses a large dose of

CoQ10 as a cleanse. I've got 3 of her books, but haven't found this one.

Does anyone know what dosage CoQ10 is needed for a cleanse? I'm allergic to

walnuts, so am hesitant to try the green walnut cleanse. But I already take

60 units of vitamin C daily to strengthen my cardiovascular system.

Thanks

M. Kate

[Guest guest]

Hi

Thank you for the info. According to the calculation formula

that you gave me I weigh 140 lbs. or 63 Kilos. So at 5-10 mg. per

kilo I would be taking 315-630 mg. per day ?! WOW! You said that some

people notice a dramatic differnce right away. wonder what kind of a

difference? Iwill look at the info on the site that you gave me.

[Guest guest]

a;

Dramatic difference = feel better, more energy, longer exercise tolerance =

essentially an amelioration of symptoms. Some people can tell right awaw if

they have missed a doseage of Co Q10!

Another thing which people take is Carnitor .... pharmacetical quality

L-Carnitine produced by Sigma Tau. In BC it is covered under the pharmacy plan!

It helps with the assimilation of Co Q and

the long chain fatty acids.

About the night sweats ... it is possible that it is an autonomic dysfunction

also! I have had drenching night sweats for a very long time. Since I went on

Carnitor the night sweats are rare

events!

Jean

a wrote:

> Hi

> Thank you for the info. According to the calculation formula

> that you gave me I weigh 140 lbs. or 63 Kilos. So at 5-10 mg. per

> kilo I would be taking 315-630 mg. per day ?! WOW! You said that some

> people notice a dramatic differnce right away. wonder what kind of a

> difference? Iwill look at the info on the site that you gave me.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I went off CoQ10 because it was contraindicated

while on heparin. But I'ld like to go back on it

cause I really feel it helps. I'm considering one shot

heparin instead of two/day and re-introducing the CoQ10...

Any thoughts on this?

As ever, (WA)

> > Hey Rich,

> > Would you mind reviewing what the other four foundational

antioxidants

> > are? I don't think I've seen it expressed quite so succintly.

> > Thanks

> > Cindi

>

> Cindi,

>

> They are vitamin C, vitamin E, coenzyme Q-10, and alpha lipoic

acid.

> Together with glutathione, they form the foundation of the

antioxidant

> system, and they interact with, and support, each other. This is

based on

> Lester Packer's book " The Antioxidant Miracle. " Packer is at

> U.C.-Berkeley, and has been doing research on antioxidants for

about 40

> years. I view him as an expert in antioxidants, and I recommend

the book.

> It's a paperback.

>

> Rich

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Here is my 2 cents. I know that CoQ10 is contraindicated with blood

thinners, particularly coumadin. But the amount of heparin that we take

is very very low compared to a normal dosage. I am not worried at all and

I take plenty of " blood thinning " supplements while I am on heparin. My

blood is still thick.

Of course, I'm not a doctor, but that is what I do.

Cindi

moonju8@...

03/13/01 04:01 PM

Please respond to

cc:

Subject: Re: CoQ10

I went off CoQ10 because it was contraindicated

while on heparin. But I'ld like to go back on it

cause I really feel it helps. I'm considering one shot

heparin instead of two/day and re-introducing the CoQ10...

Any thoughts on this?

As ever, (WA)

> Thanks, I guess I need to get some more CoQ10. I am stumped

because there

> is such a variation in price and is the more expensive stuff a lot

better?

> Also people have reported needing around 600mg, which seems

incredibly

> high. Will it still do good to just take 100mg a day?

>

> When you say they support it other, is it useful to take them all

at the

> same time, or not necessarily?

>

> Thanks

> Cindi

>

>

>

[Guest guest]

My drugstore had Cardio Q-Gel in the discount clearance bin for $1.92

(30 softgels) today, I had never heard of it, but thought I had to

try it at that price!

It sounds like a good product to boot.

:-) synchronicity

>There is a patented form of COQ10 that has been

>tested. You can buy it directly from the manufacture

>at a great price. http://www.tishcon.com/

>Also go to http://www.consumerlabs.com/ for more info.

>

[Guest guest]

Bev wrote:

I think you need to visit the www VitaLine .com website and read all the

research on this wonderful supplement. Until this past year, our 91 year old

physician who continued to practice in Northville, Michigan 2 mornings a

week, was absolutely convinced of its effect on so many things. He even

took it. He was the best diagnostician in Michigan. He had treated Lyme

Disease over the years and had helped many people because of his practicing

knowledge. Before he died, he told me about several Cancer patients that

this one supplement had put his patient in to a remission. These were people

he knew in this town also on a social basis. The benefits to the heart are

endless. He also told me that with Lyme Disease, I should be taking 200 -

400 mg daily if I could afford the price. Vita Line is a company that only

professionals are able to order from and their products can be trusted by

physicians that recommend them. If there is scientific proof, indeed let me

know. For now, I will go with this man's recommendation. He was a wonderful

General Practicioner and love medicine. Ask your physician to order the

information that Vitaline Corporation can send him. Vista line's Coenzyme

Q10 products are listed in the " Physician's Desk Reference " too.

Just my opinion, but I remain convenced of its benefits and with all our

systems being attacked, we need all the defense we can get. >>

Hi Bev

My LLMD is a researcher and well respected physician. When he added CoQ10 to

Lyme bacteria he observed a marked increase in the activity and growth of the

bacteria. Sugar also caused this type of reaction. While CoQ10 is a

wonderful

supplement for some people, it may actually feed the spirochetes. I for one

am not willing to take the chance. I had done an elimination and then

reintroduction of supplements. When I reintroduced CoQ10 I felt worse. My

doctor shared his observations with me after I told him I had discontinued

CoQ10. It is interesting

that without my knowledge, my own self test concurred with my doctor's lab

observations.

We do what we feel works for us. It was my choice not to continue taking

CoQ10, and

it is the best course of action for me.

Take care,

Jane

(BTW Saw LLMD this afternoon, and he put my on Ceftin and Biaxin)

[Guest guest]

Jane: I'm glad I read your email as I remember some time ago hearing about

CoQ and the effects on lyme. I also was on CoQ and feeling worse and worse

but now I am on the IV rocephin...all my lymph nodes are swollen and painful

in neck. That choky feeling I had at the beginning of this illness is also

back and luckily my night time meds allow me to sleep and forget that I ever

had lyme. The one respite of my 24/7 existence. I feel fortunate to be able

to sleep after hearing the terrible sleeplessness of some among us.

Healing wishes to all,

Donna

[Guest guest]

Hi,

I talked w. LLMD just yesterday about this supplement, as my nutritionist

had recommended it. I learned something interesting: we shouldn't take

anti-oxidants (which CoQ10 is). They help wash the antibiotics we are

taking out of our system - that is, making them less effective.

My LLMD has been pretty adamant about not taking certain supplements for

this reason.

(So, whereas a cancer patient would want to take CoQ10, our situation is

different).

Just wanted to chime in. I know we're all following advice of people we

like and trust; there's just so much that needs to be found out.

Healing to all,

Marie

[Guest guest]

In a message dated 3/7/02 10:55:12 PM, alopeztcr@... writes:

<< all my lymph nodes are swollen and painful

in neck. >>

Donna-

I would check out some lymphatic cleansers...i.e. echinacea

(www.pureherbs.com) NOT store bought, red clover, Noni juice for example. You

don't want to use oils because these go to the lymphatic which is being

overtaxed already. Drink tons of distilled water too and I would check out

getting a lymphatic massage~~you will not believe the difference it will

make!!! (I LOVE studying this stuff!!!!)

sue in nj

sue massie

[Guest guest]

Hey Donna and everyone I was sjsut curious to know if anyone out there has tried

or heard of something called NAT CEll. It is supposed to be a huge immune

booster to help your bodys t-cells and to recognize difficult disease. My

nutritionist reccomened it but I have never heard of it and was kind of hesitant

as it is a liquid tht is frozen and sounded weird. Any information would be much

appreciated. Thank you -Val

[Guest guest]

In a message dated 5/13/2003 6:14:30 AM Eastern Daylight Time,

angelwind@... writes:

<< I have been on ER4YT for about 6 months now. Not losing any weight, but

with the combined issue of thyroid and I quit smoking, I think my metabolism

just hasnt caught up yet. >>

The sad truth for me was that it took a very long time to start losing any

significant weight, I think, largely because I was a heavy smoker. Keep with

it. Your body is probably still looking for a place of lasting stability

depending on how long and how much you smoked. You'll feel wonderful but

treat the weight loss aspect as a byproduct. It'll happen eventually.

I take COQ10 for my heart.

[Guest guest]

Hi Doris,

I found this on a search. Anything sound familiar?

> Adverse effects with CoQ10 supplementation are rarely reported, but

> include headache, heartburn, fatigue, and increased involuntary

> movements at high doses of 600 mg to 1200 mg per day. Mild diarrhea

> and skin reactions have also been reported.

>

> Adverse reactions to Co-Q10 include anorexia, diarrhea, epigastric

> discomfort, ischemic tissue damage - tissue damage due to a deficiency

> in blood in a specific part of the body (during intense exercise), and

> mild nausea.

Tracey

Doris Brown wrote:

>Has anyone had bad effects from CoQ10?

>

>I have been really slacking off the supplements lately because one of them is

making me feel yucky, but I couldn't figure out which. I was trying to

eliminate them one by one. First curcumin, then b vitamins, then omega oils,

etc... The other day somebody on the lyme list said they couldn't take CoQ10,

and another person said her doctor told her not to. So I figured what they

heck. So for 2 days now I have taken all the supplements except the CoQ10 and I

have felt fine. I was taking 100mg.

>

>Rich, can you think of any biochemical reason why this might happen?

>Thanks,

>Doris

>

>

[Guest guest]

I think I have been having some reactions to

Co- Q10 also. I upped the dosage & have been getting some new symptoms,

neurological pains & sensations & nausea.

I am going to go off it for a while & see if the symptoms stop