help

[Guest guest]

I will also write you privately. You are in all of our prayers and many of

us are in the same position. I finally got Medicare after years of suffering

but I could not and still can't afford many of my meds. There is help for your

meds depending on your income.....

This is a great group however and you have come to the right place!

Peace to you and our prayers are with your son !

Jacquie

[Guest guest]

I have RA as well I'm 36 and was diagnosed at the age of 14 and have been

getting medical and SSI benifits and all my medications are covered by it

including Drs. visits. Good luck

tdianaok <tdianaok@...> wrote:

Welcome Cheryl,

I am sending you a private email, Tawny

--- In , " cs " <cheryl011020012000@y...>

wrote:

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF 49 YEARS I

WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT 300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT IN THERE

NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY OPNE GIVE ME

SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

[Guest guest]

Welcome to the group.

I was saddened by your post, and wanted to let you know that I am

wishing you the best. There are many wonderful people who post here

and share information and resources. I am certain that with their help,

you will be on your way to getting the help and assistance you so

desperately need.

Nobody should have to suffer in pain without medical care the way you

are.

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF

49 YEARS I WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY

THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT

300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH

FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

IN THERE NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT

SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY

SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER

CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY

OPNE GIVE ME SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT

CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

[Guest guest]

Isn't our medical system frustrating? Can you call your insurance company,

or visit their web site, to find out if there is a rheumetologist that is in

your network? If there isn't a rheumy in your network, maybe you can call

the insurance company and appeal? If your insurance is through an employer,

maybe they have someone on staff who can help you with this? Good luck!

> > THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

> IN THERE NETWORK

> > THEY WILL NOT ACCEPT IT

[Guest guest]

I agree- I would see if I could appeal the decision immediately. Check with your

local department of social services/public health. Michigan has a state

disability/medical program. Maybe your state does as well. Are you medicaid

eligible?

-------------- Original message ----------------------

From: " ~B " <wgbren@...>

>

>

> Isn't our medical system frustrating? Can you call your insurance company,

> or visit their web site, to find out if there is a rheumetologist that is in

> your network? If there isn't a rheumy in your network, maybe you can call

> the insurance company and appeal? If your insurance is through an employer,

> maybe they have someone on staff who can help you with this? Good luck!

>

>

> > > THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

> > IN THERE NETWORK

> > > THEY WILL NOT ACCEPT IT

>

>

>

>

>

>

>

>

>

[Guest guest]

I'm sorry you were treated this way. Doctors usually let you know

before you make the appointment if your insurance isn't accepted

there. They really messed up. Contact your insurance company and let

them tell you who is a participating physician.

I hope you find a good one.

a

On Thu, 03 Mar 2005 21:01:18 -0000, cs <cheryl011020012000@...> wrote:

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF 49 YEARS I WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT 300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT IN THERE NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY OPNE GIVE ME SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

>

>

>

>

>

>

>

>

>

[Guest guest]

I agree- I would see if I could appeal the decision immediately. Check with your

local department of social services/public health. Michigan has a state

disability/medical program. Maybe your state does as well. Are you medicaid

eligible?

-------------- Original message ----------------------

From: " ~B "

>

>

> Isn't our medical system frustrating? Can you call your insurance company,

> or visit their web site, to find out if there is a rheumetologist that is in

> your network? If there isn't a rheumy in your network, maybe you can call

> the insurance company and appeal? If your insurance is through an employer,

> maybe they have someone on staff who can help you with this? Good luck!

>

>

> > > THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

> > IN THERE NETWORK

> > > THEY WILL NOT ACCEPT IT

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Tom,

If there is something that I can do from Calif. please let me know. How about a check for $50. Could that help with paying for some help? We save so much money by using LDN rather than the CRABS that I should allocate some money for helping others.

Aletha

[low dose naltrexone] help

Dear Ms. ,

Congratulations on your new post. I have been diagnosed with MS since 1984. Coincidentally, I sent the following post to my MS groups last night ;

Dear Fellow MS"ER,

I have a friend with ms that is living nearby and is all alone. He is doing as best as he can. As we all know there are times that we all need a hand. This friend does everything in his power to help any and all other ms'er's via the internet. However, there are times that he needs a little help and there is no help available for him. My wife and I do the shopping for him but my wife works and it is hard to assist him in other areas.

No doubt there are other ms'er's with similar problems, I know several myself. Needless to say living with ms is a burden but to do it all alone is sometimes damn near impossible.

You all know how I basically feel about drugs, doctors, the Nat'l MS Society and the usual procedures that are perpetrated on those with ms. They are with good intentions but actually do little to help when help is required. It usually involves a waiting list, a lack of funds or some other half-ass reason to put off help.

Several years ago myself and several other ms'er's attempted to create a group to help other ms'ers with unexpected circumstances. These situations might involve anything and everything that could cause an ms'er difficulty. Unfortunately, we failed. The "Red Tape" was just too overbearing for us and we did not have the expertise to get through it. ie: Tax status, legal issues, accounting issues, etc.

Be that as it may...There is still a need and if it is going to occur it will only happen if we the ms'er's do it. I would like to try again but we need expert help and expert connections to get it done.

If someone needs help we should be able to help now right now.

Is anyone interested? Any suggestions?

Regards,

Tom

Ms , what we need is a network that one could call if and when help is required. Hopefully it could be set up to assist immediately. With the wondrous communication today involving the internet, cell phones, etc. we could accomplish this for emergencies, unexpected problems, etc....this is a dire need especially for those that are alone.

I belong to a number of internet support groups and most folks with ms are ready, willing and able to help others with ms in any way that they can.

Thank you for your time and consideration.

Tom Bayuk 19868 Cypress Woods Ct.

North Fort Myers, Florida 33903

239-543-4105

[Guest guest]

Aletha,

Thanks so much but what we are going to try to do is create a phone network. When one needs help hopefully we will be able to find the help via the network to get the help to where it is needed.

Thank you for your concern, I'll keep you informed.

Regards,

Tom

[low dose naltrexone] help

Dear Ms. ,

Congratulations on your new post. I have been diagnosed with MS since 1984. Coincidentally, I sent the following post to my MS groups last night ;

Dear Fellow MS"ER,

I have a friend with ms that is living nearby and is all alone. He is doing as best as he can. As we all know there are times that we all need a hand. This friend does everything in his power to help any and all other ms'er's via the internet. However, there are times that he needs a little help and there is no help available for him. My wife and I do the shopping for him but my wife works and it is hard to assist him in other areas.

No doubt there are other ms'er's with similar problems, I know several myself. Needless to say living with ms is a burden but to do it all alone is sometimes damn near impossible.

You all know how I basically feel about drugs, doctors, the Nat'l MS Society and the usual procedures that are perpetrated on those with ms. They are with good intentions but actually do little to help when help is required. It usually involves a waiting list, a lack of funds or some other half-ass reason to put off help.

Several years ago myself and several other ms'er's attempted to create a group to help other ms'ers with unexpected circumstances. These situations might involve anything and everything that could cause an ms'er difficulty. Unfortunately, we failed. The "Red Tape" was just too overbearing for us and we did not have the expertise to get through it. ie: Tax status, legal issues, accounting issues, etc.

Be that as it may...There is still a need and if it is going to occur it will only happen if we the ms'er's do it. I would like to try again but we need expert help and expert connections to get it done.

If someone needs help we should be able to help now right now.

Is anyone interested? Any suggestions?

Regards,

Tom

Ms , what we need is a network that one could call if and when help is required. Hopefully it could be set up to assist immediately. With the wondrous communication today involving the internet, cell phones, etc. we could accomplish this for emergencies, unexpected problems, etc....this is a dire need especially for those that are alone.

I belong to a number of internet support groups and most folks with ms are ready, willing and able to help others with ms in any way that they can.

Thank you for your time and consideration.

Tom Bayuk 19868 Cypress Woods Ct.

North Fort Myers, Florida 33903

239-543-4105

[Guest guest]

In a message dated 4/13/2005 9:43:54 AM Central Daylight Time, tbayuk@... writes:

Is anyone interested? Any suggestions?

Regards,

Tom

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++\

Tom,

Where do we begin? Sign me up!

Marcie

[Guest guest]

Hi Marcie,

Thank you. Apparently we have to establish a board of directors and get credible status. I am not familiar with the requirements but several others are working on it. I'll keep you informed.

Regards,

Tom

Re: [low dose naltrexone] help

In a message dated 4/13/2005 9:43:54 AM Central Daylight Time, tbayuk@... writes:

Is anyone interested? Any suggestions? Regards, Tom ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++\ Tom, Where do we begin? Sign me up! Marcie

[Guest guest]

Babs,

That is just what I am thinking. My MIL said I am too demanding and that I

should just take the meds they prescribe and not ask questions. she siad all

about the meds are on the slips the pharmacy gives out and that if I need more

info I can go online. It is so frustrating trying to explain to people that I

want to be an active participant in my care and that is how it SHOULD be. I do

not think asking questions about my treatment is demanding at all and that just

because a doc prescribes something that I should just take it= no questions

asked. I owe it to myself to get the best care I can get. period. why do so

many people just not get it????

ugh! The stress of it!!!!

thanks for your input.

Sandie

[Guest guest]

Where are you located?

www.marybradleybooks.com

> I am a 27 yr old male that got diagnosed with ms about 3 years ago

> I have been on rebif since I dont like haveing to inject my self so I

> am very interested in ldn I am have trouble geting it prescribed

though

> any recomendations would be greatly appreciated e-mail me at

> cautionmaycausedeath@y...

[Guest guest]

I got my first Revia(naltrexone name brand) from www.medsmex.com 28

pills for $99.95 and learned of this medsmex here on this group.

Totally legite and legal to order from Mexico without a prescription.

I also tried the compounded in capsules and did not work for me.

Liquid LDN is the way it works for me and gave me energy the crushed

method did not. I would try the liquid method of 50mgs of Revia

dissolved in 50mls of bottled water. www.goodshape.net will have

instructions at the bottom. Homemade LDN.

Rhonda

> I am a 27 yr old male that got diagnosed with ms about 3 years ago

> I have been on rebif since I dont like haveing to inject my self so I

> am very interested in ldn I am have trouble geting it prescribed

though

> any recomendations would be greatly appreciated e-mail me at

> cautionmaycausedeath@y...

[Guest guest]

> This is a quite different post than I've made in the last two years.

> My daughter has been on LDN for two years and it has been amazing.

> Last Wednesday she complained of being hot, even tho our air

> conditioning is on 24/7 and it was quite cool. First indication of

> trouble. Then her appetite went. Friday she woke up unable to move

> her right arm and very confused. It is Sunday. She can now lift her

> arm and squeeze her exercise ball, but cannot feed herself or brush

> her teeth, etc. She can't seem to tell where the spoon or toothbrush

> are going. She knows she is going through an episode but her

> concentration and thought process are very bad. She needs pretty

> well constant care right now. An immediate change from the week

> before when she was actually walking down the exercise bars and doing

> great bed exercises! She had a busy week that week, my grandson was

> here (they get along famously and he is very quite and good to her),

> she had two appointments and I was home on holidays for a week. I

> would think minor stress, but perhaps this helped. However, this is

> a regular occurrance and it has never affected her this way.

> Question. Has anyone else had a major setback like this on LDN? If

> so, any help as to what to do to help get some recovery? She is on

> 3.5 mg LDN and has been for some time. We had changed to 4 for a

> while but neither seems to make a great difference for her. I would

> welcome with open arms any help or suggestions!! She cannot be alone

> for any period of time. I work, but can take a week or two off. We

> have a caregiver one hour a day but that will not be enough if this

> does not improve.

=========

Has she recently started a new batch of LDN? Is she on liquid LDN or compounded

capsule? If on capsule what filler is being used and what pharmacy are you

using? Has your daughter ever been seen by a Lyme Literate Doctor and tested

for Lyme? Could your daughter have a bladder infection she is unaware of?

Suggestions...try 6.0mg for a couple of weeks or a month and see what happens.

Also if she doesn't have high blood pressure go to the healthfood store or

internet search engine and order Solaray brand(a very good brand)

DL-Phenylalanine 500mg...Do not settle for D-Phenylalanine or

L-Phenylalanine...get the DL-Phenylalanine combo. First have her experiment and

take one 500mg DL-P in the AM on an empty stomach and take one 500mg capsule

around 2pm on an empty stomach. See how that goes. Choose a couple nights in a

row that she can instead try taking one 500mg DL-P at the same time as her LDN

dose and another 500mg DL-P at noon or shortly before noon. See how that works.

DL-Phenylalanine(feenal-al-a-neen)

Also, get some cranberry capsules at Wal-Mart or healthfood store. Have her

take three in AM, 3 at noon and 3 in PM for 5 days and then back down to 2 in

AM, 2 at noon and 2 in PM for 3 days and then go to 1 in AM and 1 in PM for

life. I can't even remember the last bladder infection I had it has been so

many years ago. I've been on Cranberry capsules for over 10 years. Cranberry

capsules are good to take for the urinary tract. Avoid cranberry juice as it

has sugar and will cause a yeast infection.

I hope your daughter gets better soon. How old is she?

Has she been running any sort of fever?

[Guest guest]

Hi,

I've been receiving the many LDN posts but haven't had time to read.

Your post entitled 'help', however; caught my attention and on

reading the content I became concerned.

If I read your post correctly, your daughter had a raised

temperature. A raised temperature is a sign of infection. A

temperature combined with confusion could be an indication of

swelling.

Please take your daughter to the doctor if you haven't already done

so.

Regards,

Cris

Cris Kerr

Administrator

Case Health - Health Success Stories

URL: www.casehealth.com.au & www.casehealth.com

Website Email: Online format

Australia

About Case Health ...

'Case Health - Health Success Stories' is a non-income-earning

community website providing a free health information-sharing service

based on visitor's anecdotal stories of health success. The online

database also contains a selection of successful research results.

Any visitor can submit their own non-identifying health success

story, or; search the database for other health success stories of

WHAT WORKS then discuss this information with their doctor. Free

searches by condition, symptom, or treatment. Don't have time to

enter a story via the online submission form? Submit via the email

contact form. We'll do the rest. We can also notify you of new

stories. Case Health is a safe surfing site and does not ... sell

anything, generate SPAM, spy, or conduct any other intrusions.

HONcode accredited website.

--- In low dose naltrexone , " paatti1 " <b_hammel@h...>

wrote:

> This is a quite different post than I've made in the last two

years.

> My daughter has been on LDN for two years and it has been amazing.

> Last Wednesday she complained of being hot, even tho our air

> conditioning is on 24/7 and it was quite cool. First indication of

> trouble. Then her appetite went. Friday she woke up unable to

move

> her right arm and very confused. It is Sunday. She can now lift

her

> arm and squeeze her exercise ball, but cannot feed herself or brush

> her teeth, etc. She can't seem to tell where the spoon or

toothbrush

> are going. She knows she is going through an episode but her

> concentration and thought process are very bad. She needs pretty

> well constant care right now. An immediate change from the week

> before when she was actually walking down the exercise bars and

doing

> great bed exercises! She had a busy week that week, my grandson

was

> here (they get along famously and he is very quite and good to

her),

> she had two appointments and I was home on holidays for a week. I

> would think minor stress, but perhaps this helped. However, this

is

> a regular occurrance and it has never affected her this way.

> Question. Has anyone else had a major setback like this on LDN?

If

> so, any help as to what to do to help get some recovery? She is on

> 3.5 mg LDN and has been for some time. We had changed to 4 for a

> while but neither seems to make a great difference for her. I

would

> welcome with open arms any help or suggestions!! She cannot be

alone

> for any period of time. I work, but can take a week or two off. We

> have a caregiver one hour a day but that will not be enough if this

> does not improve.

[Guest guest]

Reg Reynolds

Forgive me for offering advice when I have never faced this situation

myself. Nevertheless, we often don't apply what we know when faced with

some behaviour (such as running away in public). So, I would suggest

that you try teaching him to stay with you when you are out in public,

i.e., reinforce the positive.

As for medication for children with autism, Dr. (at Sick

Children's Hospital in Toronto, ON) is quite knowledgeable and would

probably be willing to share her experience.

>From: " tinarichard1970 " <tinarichard1970@...>

>Subject: Medication - PLEASE HELP!

>

>I am a single mother with a 7 year old autistic son.

>My son is not very verbal and very echoic. I am having so many

>problems with him running away from me in public places or getting

>out of the house at night. I have made my home a fortress. Key locks

>only on every entry door in my house. I guess I'm writing this

>because I feel so alone. <snip>

>

[Guest guest]

Dear ,

I feel really bad for you and understand how you are feeling.

When I had my implants removed I was very very sick but I had them in for about 9years, I also found out I was pregnant at the same time. My problems really hit home then, to have the removal I had to terminate the baby, I phoned every doctor in America I could (I live in England) trying to find out if the baby would be sick as I was so terribly ill, they all told me the same thing "if you have the baby and IF it lives it could be very very ill" At this point I was so ill I knew I would die if I didn't get them out and I had six children at home to care for. The decision to terminate the baby was the hardest thing I have EVER done but I really had no choice. I guess what I am trying to say is I think you already know what you should do and its very hard to make difficult choices, but here I am eight years later and very much alive and being a good mummy to my kids who I love with all my heart. Of course I think what if, but I could have left six children motherless, I will always regret what I had to do but I didn't see any other choice.

Be strong , you will make the right choice for YOU how ever difficult.

Love Sue.

[Guest guest]

- so many of us can relate to how you're feeling right

now. I flip-flopped quite a bit before I had my explant - and then

suddenly about a month before, I went into a little chapel and asked

just to please guide me to do the right thing, and to have

conviction that I was doing the right thing. From that point on, I

felt confident in what I was doing, and why I was doing it. I

couldn't tolerate having something foreign in my body, I didn't want

to always wonder everytime I had a health problem if it was the

implants or not. For me, I got sick within weeks of having the

implants put in, but I had another health issue that could have been

causing the early symptoms I was having, so I was confused. Then

when I started having symptoms that I never had in my life, such as

joint swelling, numb fingertips, brain fog and headaches, I felt I

had no choice but to have them removed. In my case, I never bonded

with mine because they made me sick right away, so I hated them for

it. Yes, it was nice to wear a few things that I couldn't wear

before, however I realized the majority of things that I liked to

wear in the past, I had become too big for. Honestly, I wish I had

put as much thought into having them implanted as I put into having

them explanted, I probably wouldn't have been in this mess right

now. The implants never made me feel sexy, I felt sexier before I

had them put in. I felt like a freak with them in.

Are you having any other issues besides hair loss? I thought I

remembered that you were having some other health problems, too.

I can relate to the marital problems as well. It seems like the men

either can't handle it or they're very supportive. Seems like some

of them resist at first, only to come around later on. I think part

of my husband's resentment was the money spent on the implants, only

to have them removed. However, he spent about 10 times that on a

building on our property that might have to be torn down, so I

figure my boobs and his garage are one and the same. I'm also

unemployed at the moment, and I don't like the fact that my options

are limited because of it.

I don't think there's any way right now for you to know " for sure "

that the implants are making you sick - I made my decision based on

the fact that my body was ok before the implants, and immediately

afterwards it went downhill. I also compared my symptoms to those

who have implant sickness, and I decided it was worth taking the

chance so that I would know for sure. I'm 3 weeks post explant and

I haven't done much in the way of detoxing yet because I want to be

able to evaluate the changes in my body based on each step I take.

Good luck to you, and please reach out to us whenever you need help,

we'll be here.

Sis

>

> I am 90% positive that my implants are causing my hair loss and

other

> minor symptoms point to my implants as well. But I have become

very

> very depressed with the thought of having them removed. I already

feel

> totally unsexy and it is taking a toll on my marriage infact I

think my

> marriage is pretty much lost now. He is being less and less

> understanding and even mean at times and I am still at least two

months

> away from possible explant....but I am not sure I want to have it

done

> in the spring, I would miss the military ball and not to mention

that

> is the time of year here in Georgia for tank tops so I am not sure

I

> can cope with being explanted then, but on the other hand I have

very

> little hair left to lose and I am having terrible anxiety. My

husband

> is mad at me for the money wasted on my breasts and he has not

touched

> me in three weeks, I am so damn lonely. I have no friends or

family

> here, no job, no nothing. What will I do if he leaves me? He will

take

> my daughter and I can't handle losing my kids. What if my implants

> aren't the problem?! HOw the hell can I know??

>

>

>

[Guest guest]

The thing is I am not sure if all my problems are symptoms of

implants. I am thinking maybe they are but truthfully I am not sure.

I am happy with the look of my breasts with implants and I have

almost all the sensation in them as well, so I just get sick,

literally throwup sometimes at the thought of losing them.

Yes my husband is very upset about the money we are spending on

these especially since he married me with the implants already in

and he has paid for a repair and now we are faced with explant and

he has yelled at me and degraded my emotions and he won't apologize

because it is the truth he is saying but it is the way he says it

that really hurts. I truely can't handle much more of this. He said

we are now spending what was to be out retirement and the last

amount of money was supposed to have been his new truck, he is mad

that I am crying about losing the implants saying that they are fake

and they aren't real they aren't me but he doesn't seee that they

are a part of my identity and have been for nearly 8 years now and I

totally remember guys like him never noticing me before and he even

makes fun of the women who wear the miracle bra saying that it is a

creul joke on men that they think they are getting a women with

boobs and then they don't...how do you think that makes me feel when

I was the queen of the miracle bra before? I was a full A cup small

B cup on a " fat " day I am so miserable.

> >

> > I am 90% positive that my implants are causing my hair loss and

> other

> > minor symptoms point to my implants as well. But I have become

> very

> > very depressed with the thought of having them removed. I

already

> feel

> > totally unsexy and it is taking a toll on my marriage infact I

> think my

> > marriage is pretty much lost now. He is being less and less

> > understanding and even mean at times and I am still at least two

> months

> > away from possible explant....but I am not sure I want to have

it

> done

> > in the spring, I would miss the military ball and not to mention

> that

> > is the time of year here in Georgia for tank tops so I am not

sure

> I

> > can cope with being explanted then, but on the other hand I have

> very

> > little hair left to lose and I am having terrible anxiety. My

> husband

> > is mad at me for the money wasted on my breasts and he has not

> touched

> > me in three weeks, I am so damn lonely. I have no friends or

> family

> > here, no job, no nothing. What will I do if he leaves me? He

will

> take

> > my daughter and I can't handle losing my kids. What if my

implants

> > aren't the problem?! HOw the hell can I know??

> >

> >

> >

>

[Guest guest]

- I can't remember what other symptoms you were having, is

it possible you can refresh my memory?

In the end you have to do whatever you think is right for you. Time

to do alot of soul searching. Don't feel like anyone here expects

you to do anything other than what you think is best for you, we're

just here to help. Just remember what attracts people to others is

their confidence, more than anything else. Guys always noticed me,

small chested or not. In fact, I didn't notice any difference in

that when I got the implants, they probably looked at me less

because I was invisible based on how miserable I was. I hated

having boobs - hated hated hated it - so I was at the opposite end

of the spectrum I guess, I couldn't wait to be my old flat self

again. Now I'm here and I put a shirt on and sigh " yeah, that's

me " .

Good luck, keep venting to us please - your emotions are going to

change from day to day, so don't do anything drastic until you know

what you want. One day I'd be certain it wasn't the implants, and

I'd be like " what the heck am I doing? " , but the next day I'd have

some odd symptom and I'd be like " I can't wait to have these

horrible things out! " . Now I don't have to worry about them ever

again, it's such a relief.

Sis

> > >

> > > I am 90% positive that my implants are causing my hair loss

and

> > other

> > > minor symptoms point to my implants as well. But I have become

> > very

> > > very depressed with the thought of having them removed. I

> already

> > feel

> > > totally unsexy and it is taking a toll on my marriage infact I

> > think my

> > > marriage is pretty much lost now. He is being less and less

> > > understanding and even mean at times and I am still at least

two

> > months

> > > away from possible explant....but I am not sure I want to have

> it

> > done

> > > in the spring, I would miss the military ball and not to

mention

> > that

> > > is the time of year here in Georgia for tank tops so I am not

> sure

> > I

> > > can cope with being explanted then, but on the other hand I

have

> > very

> > > little hair left to lose and I am having terrible anxiety. My

> > husband

> > > is mad at me for the money wasted on my breasts and he has not

> > touched

> > > me in three weeks, I am so damn lonely. I have no friends or

> > family

> > > here, no job, no nothing. What will I do if he leaves me? He

> will

> > take

> > > my daughter and I can't handle losing my kids. What if my

> implants

> > > aren't the problem?! HOw the hell can I know??

> > >

> > >

> > >

> >

>

[Guest guest]

,

I'm sorry to hear of your difficulties--all the symptoms and the relationship troubles around it. It must be hard to go through all of this when your partner is not supportive, and what your husband said about the miracle bra is lame. But try to believe that whatever happens, you will be 100% better off without those alien twins. If you are already reacting to them now, it will probably continue to get worse, and that's no way to live. I know how you feel about the impending change in your body, but you'll get used to it and you'll feel better, truly. I had the same fears--I did love my hourglass figure-- but I am MUCH happier now. I can't describe it well, but it just feels good to be free of them. One of the gifts of getting sick (don't laugh, it's true) is that we are forced to let go of old ways of perceiving ourselves and create something new, deeper, more authentic. Believe this. I hope your husband comes around and starts being more compassionate about your struggles, but regardless of how he behaves, YOU and your health and happiness are worth whatever it takes. Believe in yourself and know you'll get better. Good things are just around the corner.

Love, Melinda

Re: Help

The thing is I am not sure if all my problems are symptoms of implants. I am thinking maybe they are but truthfully I am not sure. I am happy with the look of my breasts with implants and I have almost all the sensation in them as well, so I just get sick, literally throwup sometimes at the thought of losing them.Yes my husband is very upset about the money we are spending on these especially since he married me with the implants already in and he has paid for a repair and now we are faced with explant and he has yelled at me and degraded my emotions and he won't apologize because it is the truth he is saying but it is the way he says it that really hurts. I truely can't handle much more of this. He said we are now spending what was to be out retirement and the last amount of money was supposed to have been his new truck, he is mad that I am crying about losing the implants saying that they are fake and they aren't real they aren't me but he doesn't seee that they are a part of my identity and have been for nearly 8 years now and I totally remember guys like him never noticing me before and he even makes fun of the women who wear the miracle bra saying that it is a creul joke on men that they think they are getting a women with boobs and then they don't...how do you think that makes me feel when I was the queen of the miracle bra before? I was a full A cup small B cup on a "fat" day I am so miserable.> >> > I am 90% positive that my implants are causing my hair loss and > other > > minor symptoms point to my implants as well. But I have become > very > > very depressed with the thought of having them removed. I already > feel > > totally unsexy and it is taking a toll on my marriage infact I > think my > > marriage is pretty much lost now. He is being less and less > > understanding and even mean at times and I am still at least two > months > > away from possible explant....but I am not sure I want to have it > done > > in the spring, I would miss the military ball and not to mention > that > > is the time of year here in Georgia for tank tops so I am not sure > I > > can cope with being explanted then, but on the other hand I have > very > > little hair left to lose and I am having terrible anxiety. My > husband > > is mad at me for the money wasted on my breasts and he has not > touched > > me in three weeks, I am so damn lonely. I have no friends or > family > > here, no job, no nothing. What will I do if he leaves me? He will > take > > my daughter and I can't handle losing my kids. What if my implants > > aren't the problem?! HOw the hell can I know??> > > > > >>

[Guest guest]

Oh my gosh -- please do not allow implants to be the basis for your existence!!!!! You have SO much more than that -- and 100% of it does not have anything to do with a false, fake product stuck under your skin!!!!! You have to realize that. If your husband does not understand that -- and values something like implants more than yourself -- then, he should not be in your life. You need to find something more in your life.....

I was explanted a year ago - and my gosh....I feel SO stupid that I allowed something like a breast augmentation to give me what I thought I needed. I was so far from the truth. I don't have much now - but, I feel so much better.

Just last week I had a mammogram -- routine one. Actually, the first one since explantation. The technician was telling me how that had to have been the best thing I did. She kept saying how they wish women with implants could understand how mammography just doesn't work with implants. They can't really see anything - but the implants!

I'm now in my mid 40's - and maybe that has something to do with it - I got implants when I was in my early 20's -- so I blame a lot of it on just being young. I'm curious how old you are? If you don't mind my asking!!!

Kate

[Guest guest]

, I am so sorry that you are going thru all of this. i just

want to say that I hope you come to terms with this and do decide to

have them taken out. You are just going to have to continue to have

revision surgeries down the road anyhow, so think about the money

you will have to eventually spend anyhow? You are right, it is a

difficult decision because we don't have proof for sure if the

implants are related to your symptoms but look at my outcome. I am

100% better after explant. How can you explain that?? My hair is

growing in fully again, no rashes, no bone pain and the numbness is

completely gone. Also, one more thing, after looking at your pic

that you shared with me, it makes me sick to my tummy when you say

that you were never looked at before your implants!! Are you

CRAZY??? I am sorry girl but you are HOT, such a beautiful face and

body! Your big breasts do not make you beautiful! Oh, and by the

way...I saw my entire family at Thanksgiving for the first time

since surgery. Half of them didn't know and you know what I got from

everyone? You look YOUNGER. I will take that as a nice compliment! I

really think those things were running me down to the ground! I will

continue to keep you in my thoughts and prayers girl. You don't

deserve to be going thru all of this!

Jenna

> > >

> > > I am 90% positive that my implants are causing my hair loss

and

> > other

> > > minor symptoms point to my implants as well. But I have become

> > very

> > > very depressed with the thought of having them removed. I

> already

> > feel

> > > totally unsexy and it is taking a toll on my marriage infact I

> > think my

> > > marriage is pretty much lost now. He is being less and less

> > > understanding and even mean at times and I am still at least

two

> > months

> > > away from possible explant....but I am not sure I want to have

> it

> > done

> > > in the spring, I would miss the military ball and not to

mention

> > that

> > > is the time of year here in Georgia for tank tops so I am not

> sure

> > I

> > > can cope with being explanted then, but on the other hand I

have

> > very

> > > little hair left to lose and I am having terrible anxiety. My

> > husband

> > > is mad at me for the money wasted on my breasts and he has not

> > touched

> > > me in three weeks, I am so damn lonely. I have no friends or

> > family

> > > here, no job, no nothing. What will I do if he leaves me? He

> will

> > take

> > > my daughter and I can't handle losing my kids. What if my

> implants

> > > aren't the problem?! HOw the hell can I know??

> > >

> > >

> > >

> >

>

[Guest guest]

,

Breasts do NOT make you a woman! If that was the case, there are

plenty of men I know of who are really women with penises then

because they have more on their chest than I'll have when I get my

implants out. Our culture, perhaps more than any other, make breasts

into nothing more than a sex object. Have you ever noticed how breast-

feeding is kinda looked down upon by society.And from what I've read,

there are no medical function of a bra. they were invented soley to

cover up the breasts from view as if we should be ashamed of them

because they're sex objects. We even go to great lenghts to make sure

you can't even see our bra under the clothes. In fact, it's been

shown that bras are harmful because they don't allow for the free

circulation of lymph and they cause the ligaments that were meant to

support the breasts to become weak from disuse so bras actually

encourage sagging, not prevent it.In some parts of countries like

Africa, women can still go bare chested and nobody think anything of

it because the breast is thought of just what god intended, a means

of food for the babies.I don't think women should give in to the

shallow definition of what our culture considers our breasts to be

and how they should look. I got implnats 10 yrs ago, not becuase I

didn't think I was sexy anymore after breast-feeding but because I

couldn't find clothes or bras to wear.Now clothes styles are

different and more versatile and I could care less what anybody else

is gonna think about my flat chest. Thankfully, my husband adores

small breasts and even dated a totally flat-chested woman before. But

if he didn't, I'd gladly let him right out the door because I'd know

he didn't love me,just my breasts.Don't get me wrong, I was grateful

to have 10 yrs to see what it's like to have breasts but if I had

known the price I'd pay for the experience, I'd would've gladly

passed up the opportunity.It looks like your husband has three

choices: he can accept you with hair and small breasts or as bald and

with breasts or he can decide not to accept either one.But you need

to do what's best for YOU. there are men who will accept a woman for

than just what she looks like.Breasts do NOT make you a woman. Men

with small penises are till men and they can still have sex and

produce babies and women with samll or no breasts can still get

pregnant and nurse and have sex just like any other woman. Myabe your

husband needs to be educated or reminded some of these points.

Cosima

>

> I am 90% positive that my implants are causing my hair loss and

other

> minor symptoms point to my implants as well. But I have become very

> very depressed with the thought of having them removed. I already

feel

> totally unsexy and it is taking a toll on my marriage infact I

think my

> marriage is pretty much lost now. He is being less and less

> understanding and even mean at times and I am still at least two

months

> away from possible explant....but I am not sure I want to have it

done

> in the spring, I would miss the military ball and not to mention

that

> is the time of year here in Georgia for tank tops so I am not sure

I

> can cope with being explanted then, but on the other hand I have

very

> little hair left to lose and I am having terrible anxiety. My

husband

> is mad at me for the money wasted on my breasts and he has not

touched

> me in three weeks, I am so damn lonely. I have no friends or family

> here, no job, no nothing. What will I do if he leaves me? He will

take

> my daughter and I can't handle losing my kids. What if my implants

> aren't the problem?! HOw the hell can I know??

>

>

>