Re: Re: My first visit to neurologist

[Guest guest]

This guy disturbs me, too...well put, . What's his deal? I can assure you...my almost 9 month old barely notices his DOCband is on his head...except when he realizes he can tap it against hard things and it makes a funny noise...that gets him laughing HYSTERICALLY, lol! You know, I think as long as your in the hands of an experienced orthotist the risks are small and potential benefits are GREAT. And THERE ARE studies that CT has done...how does this doctor think these things GOT FDA APPROVAL??? I can send him plenty of studies...he can bet all these parents have done their homework before they banded their kids?! Sorry...but, pompous docs like this really get to me.

rmanias <rmanias@...> wrote: -This guy disturbs me because he says he never recommends helmets and never will. Boy, that's pretty open minded!? NOT!I can assure you, the bands do work. My son is a crawling example of this. He looks awesome and I would say that his his facial asymmetry was enough prior to the band to make him look deformed. If this dr. son needed braces, would he be opposed to them? Probably not. I can't understand why dentists aren't against braces, but these pompous dr are against banding.I'm not saying Kale needs a band, just that you might want to consider another dr since this one is so close minded.Dane's mom DOC Grad> Hello there,> > Today my husband and I went to see a neurologist. It didn't go as > we expected in that he was totally against the helmet. We were told > what we already knew, that our baby had plagiocephaly. Since we've > educated ourselves about the helmet, we asked the doctor about > getting one. The Dr. flat out said "No, I would not recommend a > helmet. I never have and I never will." Basically he feels that no > one has a perfectly shaped head and that it should improve from > these months onward. He says that the helmets are 'a product of > american enterprise'. He says that there has been no medical > evidence to prove that these helmets work. Dr. H says that most > insurance co.s will not provide coverage because it is not medically > necessary. He wonders why these helmet making companies have not > commissioned any studies because if they are so good, it could only > benefit them? He insinuated that it might be possible that they > have but the results are not favorable - like tobacco companies. > What I am feeling now is that I don't know if or how I should pursue > this. Gosh, I was so sure about getting the helmet and now I find > myself backing away. I don't want to have any regrets next year and > for the rest of his life. I asked the Dr whether he usually sees > patients after this initial visit. He says no. How the heck does > he know that these babies heads round out then? There must be many > of you who have had difficulty getting the helmet. I am from > Toronto, Canada and I anticipate more difficult getting one here.> > The neurologist says he used to see these cases only occassionally, > and now he sees 7-15 cases per week. So could it be that this is a > new problem for which the solution: the helmet - is just so new that > doctors are tenative because they are inexperienced? > > Truth is, I'm not sure what to do now.> > > (mom to Kale)For more plagio info

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In a message dated 6/20/2002 10:20:22 AM Eastern Daylight Time, mjl_2@... writes:

.. I asked her

what her stance was and she said that she didn't know yet because

it's all so new.

,

This speaks volumes about the character of your ped. If she was willing to admit she wasn't sure, I would put more trust in her for being honest, because NOW she will know more, thanks to you and probaby because she will be beside herself if she doesn't look into it. I felt so relieved when my neuro admitted the same thing, and he was glad that the internet was able to help me. It's great to find Docs that are not so all-knowing that they can't admit that they make mistakes too. Good luck and great job mom!

'Mom

[Guest guest]

In a message dated 6/20/02 9:20:14 AM Central Daylight Time, mjl_2@...

writes:

<< I told her

that time was of the essence since he's already 7 1/2 months. She

was willing to give the referral, and even said she'd try to speed

up the process. Would you beleive that she even asked if she could

have those printouts? I feel proud of myself today, that I gave her

the chance to learn what I know. And now this information can help

some other babies sooner. Thanks guys for setting me straight.

>>

-

Hooray for you! Wow - sounds like you have a good ped who is interested in

learning and improving! I think you have done something wonderful for Kale

and for the ped - good for you!

Let us know how it goes with the referral!

Marci (Mom to )

Oklahoma

[Guest guest]

,

Way to go, like the rest of us you have discovered that each of us is

responsible for our own health care. The stupidity of some doctors

stunned me. What a great mom you are to have done your homework and done

what is best for your child! Print out that torticollis article posted

recently, our ortho and PT said that most plagio kids have some tort too.

We are now working on our 13 mo. old's tort. which I couldn't see.

Again you need to see the right people to get a good diagnosis.

Congratulations!

Ellen (Mom to Amy)

New Jersey

On Thu, 20 Jun 2002 14:19:06 -0000 " mjl_2 " <mjl_2@...> writes:

> Hi everyone,

> I just loved all your replies about my pompous neurologist. I was

> feeling pretty bad. I came out of that appointment feeling vain,

> and guilty for wanting to get a helmet - like I should be greatful

> that he's happy and healthy the way he is. To the neurologist, it

> was like if I wanted the helmet, that would make me a superficial

> and bad mom. Who could love and accept Kale for who he is, more

> than me?

>

> After reading your responses and talking to my husband and sister, I

>

> realized that I was wavering on the helmet because I put too much

> faith and trust into these professionals are supposed to be more

> educated, experienced and knowledgeable. But the fact is, they

> aren't. So, yesterday I made an appointment with our pediatrician

> again and this time I armed myself with printouts of studies, before

>

> and after shots, names of the doctors whom I need to be referred to

> etc. I expected to be stonewalled and have to go to another doctor.

>

> I was really surprised that my ped was so positive. I asked her

> what her stance was and she said that she didn't know yet because

> it's all so new. She said that we just don't know what the after

> affects of these helmets are (20yrs down the line)but, if the child

> does not protest in it, then that's a good indication. I told her

> that time was of the essence since he's already 7 1/2 months. She

> was willing to give the referral, and even said she'd try to speed

> up the process. Would you beleive that she even asked if she could

> have those printouts? I feel proud of myself today, that I gave her

>

> the chance to learn what I know. And now this information can help

> some other babies sooner. Thanks guys for setting me straight.

>

> (Kale's mom)

>

>

>

> > Hello there,

> >

> > Today my husband and I went to see a neurologist. It didn't go as

>

> > we expected in that he was totally against the helmet. We were

> told

> > what we already knew, that our baby had plagiocephaly. Since

> we've

> > educated ourselves about the helmet, we asked the doctor about

> > getting one. The Dr. flat out said " No, I would not recommend a

> > helmet. I never have and I never will. " Basically he feels that

> no

> > one has a perfectly shaped head and that it should improve from

> > these months onward. He says that the helmets are 'a product of

> > american enterprise'. He says that there has been no medical

> > evidence to prove that these helmets work. Dr. H says that most

> > insurance co.s will not provide coverage because it is not

> medically

> > necessary. He wonders why these helmet making companies have not

> > commissioned any studies because if they are so good, it could

> only

> > benefit them? He insinuated that it might be possible that they

> > have but the results are not favorable - like tobacco companies.

> > What I am feeling now is that I don't know if or how I should

> pursue

> > this. Gosh, I was so sure about getting the helmet and now I find

>

> > myself backing away. I don't want to have any regrets next year

> and

> > for the rest of his life. I asked the Dr whether he usually sees

> > patients after this initial visit. He says no. How the heck does

>

> > he know that these babies heads round out then? There must be

> many

> > of you who have had difficulty getting the helmet. I am from

> > Toronto, Canada and I anticipate more difficult getting one here.

> >

> > The neurologist says he used to see these cases only

> occassionally,

> > and now he sees 7-15 cases per week. So could it be that this is

> a

> > new problem for which the solution: the helmet - is just so new

> that

> > doctors are tenative because they are inexperienced?

> >

> > Truth is, I'm not sure what to do now.

> >

> >

> > (mom to Kale)

>

>

>