Re: Graces 9 month check (sorry a little long!)

[Guest guest]

-

Dane just had his 9 month checkup yesterday!

Were there openings on the helmet where the bumps are? Dane had a

ridge where his buckle was, but it's clearing up well. He has been

out of his band since 5/16.

Tell your mom to stuff a sock in it! I'm sure nobody would notice

it if it wasn't pointed out!

Congrats on the tort being resolved!

Dane's mom DOC Grad

> Hi all~ Grace went in for her 9 month check today. How fast time

> flies! Anyway she officially stopped wearing her helmet almost 4

> weeks ago. We took her in for her last appt with the orthotist 2

> weeks ago. Throughout the whole process we were concerned about

the

> lumps that had developed above her ears (the helmet had some space

> above each ear) we addressed this practically each visit with the

> orthotist, asking about spacers etc for that area, once we started

> noticing these lumps developing. He told us everytime that they

were

> totally normal, he saw them happen all the time and that once the

> helmet was off and the head continued to round on its' own that

the

> lumps would eventually just become part of the rounding. So now I

am

> so self conscience about these lumps. Today at her appt the ped of

> course noticed them, so I told him the whole thing that the

orthotist

> said and the ped said that he can see what the orthotist is saying

> but that it will be " interesting " to see if they actually

disappear.

> He wants us to come for a 12 month visit so that he can see the

> progress of the lumps. (he called them boney protrusions) Has

anybody

> else had this problem or heard of this? (Ours was a locally made

> helmet)

> And now I can tell that my mom is all critical of her head which

> makes me really feel bad. She had to keep pointing it out to

people

> in the doctors office (nurses etc) saying that the lumps are

supposed

> to go down. It makes me feel like people are looking at her like

she

> is a freak. I never was this self conscience when she was in the

> helmet! Now it makes me wonder if we made a mistake (which i know

we

> didn't because her head had drifted on the top and back from her

> torticollis and was so oddly shaped and now it is not) but I am

just

> having a " feeling bad " day.

> Anyway on a good note the ped thinks the tort is resolved and so

does

> the PT.....but I still want to continue PT for awhile longer to

make

> sure we have covered all the bases since she is not walking on her

> own yet etc. and Grace

[Guest guest]

~

Yes there were openings above each ear. My husband said that he thinks they are already starting to go down but I look at her head 24/7 and I guess I can't see the improvement. And I guess my mom can't either! ha ha I like that "put a sock in it" idea. And I have asked her before not to pick on Grace's head because it makes me feel bad but I guess she just can't help herself. I told my husband last night that I don't want to be critical of Grace the way my mom is of her and how she was on my brother and I. And now I am feeling like I am starting to do that when I sit there and examine her head!!! I guess I need to patient with those lumps and eventually they will start to go down

and Grace

[Guest guest]

:

I don't ever recall hearing them described as " boney protrusions " .

This would have my worry wart self concerned as well. We do have

several posts usually about DOCband babies developing a " bump " over

where the band's velcro closure is, but this is described as water

retention that I have always heard goes away usually w/i 2 wks post

graduation.

I read your later post too where you think you've noticed the bumps

decreasing. I would suggest, just like with flat heads, taking wkly

pictures of these bumps to see if they do in fact decrease in size

over the next few wks or so. Becuz we all know how our mommy minds

work!!!!

Please keep us posted on this.

Debbie Abby's mom DOCGrad

MI

> Hi all~ Grace went in for her 9 month check today. How fast time

> flies! Anyway she officially stopped wearing her helmet almost 4

> weeks ago. We took her in for her last appt with the orthotist 2

> weeks ago. Throughout the whole process we were concerned about the

> lumps that had developed above her ears (the helmet had some space

> above each ear) we addressed this practically each visit with the

> orthotist, asking about spacers etc for that area, once we started

> noticing these lumps developing. He told us everytime that they

were

> totally normal, he saw them happen all the time and that once the

> helmet was off and the head continued to round on its' own that the

> lumps would eventually just become part of the rounding. So now I

am

> so self conscience about these lumps. Today at her appt the ped of

> course noticed them, so I told him the whole thing that the

orthotist

> said and the ped said that he can see what the orthotist is saying

> but that it will be " interesting " to see if they actually

disappear.

> He wants us to come for a 12 month visit so that he can see the

> progress of the lumps. (he called them boney protrusions) Has

anybody

> else had this problem or heard of this? (Ours was a locally made

> helmet)

> And now I can tell that my mom is all critical of her head which

> makes me really feel bad. She had to keep pointing it out to people

> in the doctors office (nurses etc) saying that the lumps are

supposed

> to go down. It makes me feel like people are looking at her like

she

> is a freak. I never was this self conscience when she was in the

> helmet! Now it makes me wonder if we made a mistake (which i know

we

> didn't because her head had drifted on the top and back from her

> torticollis and was so oddly shaped and now it is not) but I am

just

> having a " feeling bad " day.

> Anyway on a good note the ped thinks the tort is resolved and so

does

> the PT.....but I still want to continue PT for awhile longer to

make

> sure we have covered all the bases since she is not walking on her

> own yet etc. and Grace