I e-mailed the author of the Plagio Petition. LONG sorry!

[Guest guest]

Hi All,

I just thought I'd share this with you all. I emailed the Mom who

started the Plagio petition. I'll copy/paste my email to her and her

reply.

Hi ,

My name is and I belong to the Plagiocephaly group. My

daughter who will be 11 months old on the 27th will be getting her

DOCband on July 3rd. Anyway, I'd like to thank you for writing such a

great petition! I don't know if your aware of this or not,but it now

has 2042 signatures!! Isn't that great? The reason I'm writing to you

is because I know that you started this petition on January 10,

2001.I'd really like to know if the people named in the petition (The

American Academy of Pediatrics Task Force on Infant Positioning and

SIDS and The American Board of Pediatrics) have ever been presented

with it. Do they even know it exists? If so,what did they say? If

not, do you know how I'd be able to get it to them? I really don't

mean to bother you with this,as I know your child's plagiocephaly is

behind you now. But we parents need to do something. Plagio used to

occur 1 in every 300 births. It now occurs in 1 in every 60 births.

We are still being told that our babies heads will " round out on it's

own " . I was blown off by 2 different neurosurgeons. Something needs

to be done! I'd really like to start doing something. I thought your

petition would be a good place to start. Any help or advice or

guidance you could give me would be greatly appreciated!

Once again I'm sorry to bother you.

Thanks,

Her reply

Hello ,

Thank you for your kind words. If you look at signature #846 you will

see a member from the AAP has signed the petition. When the petition

was placed on the website, I had emailed all the Neurosurgeons I

could think of. Unfortunately, I found out the Neuro working with the

AAP is not an advocate for plagiocephaly. Basically told me I was

misleading the public and he was currently working with the AAP on a

mission statement that took some years to get out. Maybe your

familiar with it?

http://www.sidsalliance.org/index/default.asp

I feel the AAP will not go the distance to make sure the public is

properly educated for fear parents will place their infants on their

tummies. Which is utterly irresponsible and insulting if you ask me.

I'm sure Kattwinkel and Company are aware of the petition but

still continue to take a firm stand on their position. I am due with

baby # 3 in 9 days, and will wait until this fall (more people will

be inside) to collect the signatures and send them to all the media

giants I can think of. Until then I'm doing my best to educate my due

date group, but I have realized unless it happens to them it is

pretty much ignored. Lets hope out of some eighty members, we won't

have two or more children with plagiocephaly. If you would like to

collect the signatures feel free. My heart goes out to you and your

daughter, I know how tough it is being ignored, and not taken very

seriously when you are trying to find an answer. The DOC is amazing!

I'm sure you'll get wonderful results.

My Best,

11/97

Sierra 07/99 DOC x 2~ treatment started at 15 months

Sebastian edd 07/04/02

Michigan

[Guest guest]

That's great :

I " m glad emailed you back. was a very active

member in this group for quite some time. I still keep touch with

her, she was a very active role in my getting Abby her DOCband.

She's a wonderful person!

Debbie Abby's mom DOCGrad

MI

> Hi All,

> I just thought I'd share this with you all. I emailed the Mom who

> started the Plagio petition. I'll copy/paste my email to her and

her

> reply.

>

> Hi ,

> My name is and I belong to the Plagiocephaly group. My

> daughter who will be 11 months old on the 27th will be getting her

> DOCband on July 3rd. Anyway, I'd like to thank you for writing such

a

> great petition! I don't know if your aware of this or not,but it

now

> has 2042 signatures!! Isn't that great? The reason I'm writing to

you

> is because I know that you started this petition on January 10,

> 2001.I'd really like to know if the people named in the petition

(The

> American Academy of Pediatrics Task Force on Infant Positioning and

> SIDS and The American Board of Pediatrics) have ever been presented

> with it. Do they even know it exists? If so,what did they say? If

> not, do you know how I'd be able to get it to them? I really don't

> mean to bother you with this,as I know your child's plagiocephaly

is

> behind you now. But we parents need to do something. Plagio used to

> occur 1 in every 300 births. It now occurs in 1 in every 60 births.

> We are still being told that our babies heads will " round out on

it's

> own " . I was blown off by 2 different neurosurgeons. Something needs

> to be done! I'd really like to start doing something. I thought

your

> petition would be a good place to start. Any help or advice or

> guidance you could give me would be greatly appreciated!

> Once again I'm sorry to bother you.

> Thanks,

>

>

> Her reply

> Hello ,

>

> Thank you for your kind words. If you look at signature #846 you

will

> see a member from the AAP has signed the petition. When the

petition

> was placed on the website, I had emailed all the Neurosurgeons I

> could think of. Unfortunately, I found out the Neuro working with

the

> AAP is not an advocate for plagiocephaly. Basically told me I was

> misleading the public and he was currently working with the AAP on

a

> mission statement that took some years to get out. Maybe your

> familiar with it?

>

> http://www.sidsalliance.org/index/default.asp

>

> I feel the AAP will not go the distance to make sure the public is

> properly educated for fear parents will place their infants on

their

> tummies. Which is utterly irresponsible and insulting if you ask

me.

> I'm sure Kattwinkel and Company are aware of the petition but

> still continue to take a firm stand on their position. I am due

with

> baby # 3 in 9 days, and will wait until this fall (more people will

> be inside) to collect the signatures and send them to all the media

> giants I can think of. Until then I'm doing my best to educate my

due

> date group, but I have realized unless it happens to them it is

> pretty much ignored. Lets hope out of some eighty members, we won't

> have two or more children with plagiocephaly. If you would like to

> collect the signatures feel free. My heart goes out to you and your

> daughter, I know how tough it is being ignored, and not taken very

> seriously when you are trying to find an answer. The DOC is

amazing!

> I'm sure you'll get wonderful results.

>

> My Best,

>

>

> 11/97

> Sierra 07/99 DOC x 2~ treatment started at 15 months

> Sebastian edd 07/04/02

> Michigan