Re: My first visit to neurologist

[Guest guest]

Hi ,

Check out this link.

http://www.cranialtech.com/infocenter/infocent.htm

The owner of this group is from Canada. Kendra is her name.

I'm sure she could point you in the right direction.

The neurosurgeon I went to, had the same attitude as the neurologist

you went to. I got a second opinion and then a third. My daughter

gets casted for a DOC band on Wednesday.

I'm sure one of the Moms from Canada will chime in here and help you

out. This group is really GREAT! Very educated on plagio and very

supportive. You've come to the right place.

Welcome!

> Hello there,

>

> Today my husband and I went to see a neurologist. It didn't go as

> we expected in that he was totally against the helmet. We were

told

> what we already knew, that our baby had plagiocephaly. Since we've

> educated ourselves about the helmet, we asked the doctor about

> getting one. The Dr. flat out said " No, I would not recommend a

> helmet. I never have and I never will. " Basically he feels that

no

> one has a perfectly shaped head and that it should improve from

> these months onward. He says that the helmets are 'a product of

> american enterprise'. He says that there has been no medical

> evidence to prove that these helmets work. Dr. H says that most

> insurance co.s will not provide coverage because it is not

medically

> necessary. He wonders why these helmet making companies have not

> commissioned any studies because if they are so good, it could only

> benefit them? He insinuated that it might be possible that they

> have but the results are not favorable - like tobacco companies.

> What I am feeling now is that I don't know if or how I should

pursue

> this. Gosh, I was so sure about getting the helmet and now I find

> myself backing away. I don't want to have any regrets next year and

> for the rest of his life. I asked the Dr whether he usually sees

> patients after this initial visit. He says no. How the heck does

> he know that these babies heads round out then? There must be many

> of you who have had difficulty getting the helmet. I am from

> Toronto, Canada and I anticipate more difficult getting one here.

>

> The neurologist says he used to see these cases only occassionally,

> and now he sees 7-15 cases per week. So could it be that this is a

> new problem for which the solution: the helmet - is just so new

that

> doctors are tenative because they are inexperienced?

>

> Truth is, I'm not sure what to do now.

>

>

> (mom to Kale)

[Guest guest]

,

I am sorry to hear that your appointment didn't go as well as you had

anticipated. The statement your neuro says about never recommending

a band, and never will says a great deal about him. It sounds like

he might have a major case of the God complex. Whether or not these

helmets are product of American enterprise, all of us here are proof

that they do work. If you still are having doubts as to what route

to take, I suggest you get a second opinion. I have heard some

really good things about Dr. Forrest at Toronto Sick

Kids, maybe you could set up an appointment with him.

Good luck , and hang in there!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hello there,

>

> Today my husband and I went to see a neurologist. It didn't go as

> we expected in that he was totally against the helmet. We were

told

> what we already knew, that our baby had plagiocephaly. Since we've

> educated ourselves about the helmet, we asked the doctor about

> getting one. The Dr. flat out said " No, I would not recommend a

> helmet. I never have and I never will. " Basically he feels that

no

> one has a perfectly shaped head and that it should improve from

> these months onward. He says that the helmets are 'a product of

> american enterprise'. He says that there has been no medical

> evidence to prove that these helmets work. Dr. H says that most

> insurance co.s will not provide coverage because it is not

medically

> necessary. He wonders why these helmet making companies have not

> commissioned any studies because if they are so good, it could only

> benefit them? He insinuated that it might be possible that they

> have but the results are not favorable - like tobacco companies.

> What I am feeling now is that I don't know if or how I should

pursue

> this. Gosh, I was so sure about getting the helmet and now I find

> myself backing away. I don't want to have any regrets next year and

> for the rest of his life. I asked the Dr whether he usually sees

> patients after this initial visit. He says no. How the heck does

> he know that these babies heads round out then? There must be many

> of you who have had difficulty getting the helmet. I am from

> Toronto, Canada and I anticipate more difficult getting one here.

>

> The neurologist says he used to see these cases only occassionally,

> and now he sees 7-15 cases per week. So could it be that this is a

> new problem for which the solution: the helmet - is just so new

that

> doctors are tenative because they are inexperienced?

>

> Truth is, I'm not sure what to do now.

>

>

> (mom to Kale)

[Guest guest]

-

This guy disturbs me because he says he never recommends helmets and

never will. Boy, that's pretty open minded!? NOT!

I can assure you, the bands do work. My son is a crawling example

of this. He looks awesome and I would say that his his facial

asymmetry was enough prior to the band to make him look deformed.

If this dr. son needed braces, would he be opposed to them?

Probably not. I can't understand why dentists aren't against

braces, but these pompous dr are against banding.

I'm not saying Kale needs a band, just that you might want to

consider another dr since this one is so close minded.

Dane's mom DOC Grad

> Hello there,

>

> Today my husband and I went to see a neurologist. It didn't go as

> we expected in that he was totally against the helmet. We were

told

> what we already knew, that our baby had plagiocephaly. Since

we've

> educated ourselves about the helmet, we asked the doctor about

> getting one. The Dr. flat out said " No, I would not recommend a

> helmet. I never have and I never will. " Basically he feels that

no

> one has a perfectly shaped head and that it should improve from

> these months onward. He says that the helmets are 'a product of

> american enterprise'. He says that there has been no medical

> evidence to prove that these helmets work. Dr. H says that most

> insurance co.s will not provide coverage because it is not

medically

> necessary. He wonders why these helmet making companies have not

> commissioned any studies because if they are so good, it could

only

> benefit them? He insinuated that it might be possible that they

> have but the results are not favorable - like tobacco companies.

> What I am feeling now is that I don't know if or how I should

pursue

> this. Gosh, I was so sure about getting the helmet and now I find

> myself backing away. I don't want to have any regrets next year

and

> for the rest of his life. I asked the Dr whether he usually sees

> patients after this initial visit. He says no. How the heck does

> he know that these babies heads round out then? There must be

many

> of you who have had difficulty getting the helmet. I am from

> Toronto, Canada and I anticipate more difficult getting one here.

>

> The neurologist says he used to see these cases only

occassionally,

> and now he sees 7-15 cases per week. So could it be that this is

a

> new problem for which the solution: the helmet - is just so new

that

> doctors are tenative because they are inexperienced?

>

> Truth is, I'm not sure what to do now.

>

>

> (mom to Kale)

[Guest guest]

I can't understand why dentists aren't against

braces, but these pompous dr are against banding.

AMEN :

I wonder that EVERY time I read posts like 's. Only difference

between bands & braces are that bands don't hurt like braces do!

grrr....I'm getting all worked up now!

Debbie Abby's mom

MI

[Guest guest]

Hi everyone,

I just loved all your replies about my pompous neurologist. I was

feeling pretty bad. I came out of that appointment feeling vain,

and guilty for wanting to get a helmet - like I should be greatful

that he's happy and healthy the way he is. To the neurologist, it

was like if I wanted the helmet, that would make me a superficial

and bad mom. Who could love and accept Kale for who he is, more

than me?

After reading your responses and talking to my husband and sister, I

realized that I was wavering on the helmet because I put too much

faith and trust into these professionals are supposed to be more

educated, experienced and knowledgeable. But the fact is, they

aren't. So, yesterday I made an appointment with our pediatrician

again and this time I armed myself with printouts of studies, before

and after shots, names of the doctors whom I need to be referred to

etc. I expected to be stonewalled and have to go to another doctor.

I was really surprised that my ped was so positive. I asked her

what her stance was and she said that she didn't know yet because

it's all so new. She said that we just don't know what the after

affects of these helmets are (20yrs down the line)but, if the child

does not protest in it, then that's a good indication. I told her

that time was of the essence since he's already 7 1/2 months. She

was willing to give the referral, and even said she'd try to speed

up the process. Would you beleive that she even asked if she could

have those printouts? I feel proud of myself today, that I gave her

the chance to learn what I know. And now this information can help

some other babies sooner. Thanks guys for setting me straight.

(Kale's mom)

> Hello there,

>

> Today my husband and I went to see a neurologist. It didn't go as

> we expected in that he was totally against the helmet. We were

told

> what we already knew, that our baby had plagiocephaly. Since

we've

> educated ourselves about the helmet, we asked the doctor about

> getting one. The Dr. flat out said " No, I would not recommend a

> helmet. I never have and I never will. " Basically he feels that

no

> one has a perfectly shaped head and that it should improve from

> these months onward. He says that the helmets are 'a product of

> american enterprise'. He says that there has been no medical

> evidence to prove that these helmets work. Dr. H says that most

> insurance co.s will not provide coverage because it is not

medically

> necessary. He wonders why these helmet making companies have not

> commissioned any studies because if they are so good, it could

only

> benefit them? He insinuated that it might be possible that they

> have but the results are not favorable - like tobacco companies.

> What I am feeling now is that I don't know if or how I should

pursue

> this. Gosh, I was so sure about getting the helmet and now I find

> myself backing away. I don't want to have any regrets next year

and

> for the rest of his life. I asked the Dr whether he usually sees

> patients after this initial visit. He says no. How the heck does

> he know that these babies heads round out then? There must be

many

> of you who have had difficulty getting the helmet. I am from

> Toronto, Canada and I anticipate more difficult getting one here.

>

> The neurologist says he used to see these cases only

occassionally,

> and now he sees 7-15 cases per week. So could it be that this is

a

> new problem for which the solution: the helmet - is just so new

that

> doctors are tenative because they are inexperienced?

>

> Truth is, I'm not sure what to do now.

>

>

> (mom to Kale)

[Guest guest]

:

YOu should be VERY proud of yourself! Way to go. By taking the time

to discuss your concerns with your ped. & bringing in tons of backup

information you have probably helped a number of parents & children

in the future I am very happy your ped. listened so well & will

be so helpful in getting your process moving faster.

Please let us know when Kale has any other appts and what you end up

doing.

You're a great great mom!

Debbie Abby's mom DOCGrad

MI

> > Hello there,

> >

> > Today my husband and I went to see a neurologist. It didn't go

as

> > we expected in that he was totally against the helmet. We were

> told

> > what we already knew, that our baby had plagiocephaly. Since

> we've

> > educated ourselves about the helmet, we asked the doctor about

> > getting one. The Dr. flat out said " No, I would not recommend a

> > helmet. I never have and I never will. " Basically he feels that

> no

> > one has a perfectly shaped head and that it should improve from

> > these months onward. He says that the helmets are 'a product of

> > american enterprise'. He says that there has been no medical

> > evidence to prove that these helmets work. Dr. H says that most

> > insurance co.s will not provide coverage because it is not

> medically

> > necessary. He wonders why these helmet making companies have not

> > commissioned any studies because if they are so good, it could

> only

> > benefit them? He insinuated that it might be possible that they

> > have but the results are not favorable - like tobacco companies.

> > What I am feeling now is that I don't know if or how I should

> pursue

> > this. Gosh, I was so sure about getting the helmet and now I

find

> > myself backing away. I don't want to have any regrets next year

> and

> > for the rest of his life. I asked the Dr whether he usually sees

> > patients after this initial visit. He says no. How the heck

does

> > he know that these babies heads round out then? There must be

> many

> > of you who have had difficulty getting the helmet. I am from

> > Toronto, Canada and I anticipate more difficult getting one here.

> >

> > The neurologist says he used to see these cases only

> occassionally,

> > and now he sees 7-15 cases per week. So could it be that this is

> a

> > new problem for which the solution: the helmet - is just so new

> that

> > doctors are tenative because they are inexperienced?

> >

> > Truth is, I'm not sure what to do now.

> >

> >

> > (mom to Kale)