Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Dear Kate, I have twin boys that will be 9 months next week, as well as a 2.5 year old daughter. My sons were diagnosed with positional plagiocephaly and torticollis at 6 months. Our pediatrician noticed the mishapen head on at 4 months. At that time she recommended aggressive repositioning. I will tell you that for the first four months of their lives I don't know whether I was coming or going. I had to feed them every two hours around the clock. There were times that I just could not do it. Sleep deprivation had set in. I couldn't sleep during the day, there were things to do, play with Lilly, laundry, formula. Heck, I changed 3600 diapers in six months (guess I had time to think about it, not sure how that happened). I felt extremely selfish when I didn't feed them every two hours, which wasn't often. The guilt was definitely there. So, when the pediatrician told me to do aggressive repositioning, the disappointment showed immediately. Again, being selfish, at least that's what I thought at the time. More guilt...I felt, what could I do? Well, after a day or two I felt I was definitely up to the challenge. Yes, there was more chaos than I ever dreamed of in my house. But, after a couple of weeks, we all became a well oiled machine with just a few kinks. I did exactly what was suppose to be done and unfortunately, in our case it, it did not work. I will tell you that somehow through all the chaos that we all bonded, more than I ever dreamed of. At six months, at my mom's urging (and I do mean urging) we had both the boys examined and they both were diagnosed with the positional plagiocephaly and torticollis. I wondered since I was working so hard with , did I miss Winn's signs of having it. Winn is mild to moderate and is moderate to severe. I looked at it, as we are only human and can only do so much. But, whatever you choose to do or can do is more than doing nothing. My sons have been in their DOC Bands for four weeks and we have already seen a big difference in Winn. is progressing, but at a much slower rate. So, Kate, you are not alone in feeling this way. You sound like a great and normal Mom. Bonnie (Mom to , Winn & Lilly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Kate repo can be effective but not always and can be tough that is for sure. It was very hard with our son who was strong and strong willed and we spent so much time putting him back in position only for him to get right out again. I finally needed some rest he wasn't sleeping and neither was I because we were doing so much repo. Being a first time Mom with him I always felt guilty disturbing him to change positions-he also had some mild tort/tightenning. We ended up with the DOC band at 3 months and couldn't have been happier. I think if you feel the helmet is best for you-for whatever reason then just go with it and get some rest. Do you have tort to worry about on top of it. Don't feelbad for feeling guilty this is a very frustrating time! Thinking of you and sending good vibes! beck Mom to doc grad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Kate, I understand what you are saying. Repositioning was never explained to us or even offered as an option when we first mentioned 's plagio at her 4 month well-baby. The ped simply told us that it would round out on its own as she got older and more mobile. We were first time parents and really didn't know any better. I hope you caught a couple of earlier posts from repositioning parents who had some good success - maybe they will serve as inspiration. The good thing to remember is that if the repositioning doesn't work you always have the option of getting the helmet sometime later down the line. Best wishes and I'm certain you are not alone with your feelings. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Kate, You are certainly not alone- we had the hardest time with repositioning as he would just spring right back to that flat spot- with his tort it was hard for him not to- the muscle wasn't long enough for him to keep it there. We felt such relief that the helmet was able to focus on fixing the head shape while we were able to then concentrate more fully on the tort. Not to mention, with him in daycare, they were unable to be on top of this as much as I would have liked- so it really eased my mind while at work knowing that he was NOT on that flat spot!! I personally feel that if the plagio started inutero, you are already behind in the repositioning area because perhaps the head shape has been constricted for a month or so- but again if you have a child that is young enough to benefit from repositioining- it can certainly be effective- I think the key is knowing when to say when if its not working- so that you can have the peace of mind knowing that you tried, it didn't work (for some!) and now there is a product that can help! Good luck! ' Mom (DOC grad, Tort resolved) Quote Link to comment Share on other sites More sharing options...
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