Re: Re: had to self diagnose our son...

[Guest guest]

Kristi:

Just thought I would add that I talked to my

daughter's ped about getting a referral to a second

opinion neurosurgeon. The first one that she had

referred me to was awful (but part of the provider's

group). The ped was incredibly resistant, but I told

her that if she didn't give me the referral that I

wanted, I would have no choice but to change to a new

ped. I think she realized that I was determined and

within 4 hours, she had the referral and insurance

approval for the 2nd opinion.

Tami (mom to Annika)

--- stripes6060 <taime@...> wrote:

> Kristi,

> When I took my daughter to CT for a free consult, my

> doctor didn't

> even know I was going. I don't think you need

> anything from your ped.

> to get an eval. at CT. I struck out with my ped and

> 2 neurosurgeons.

> I then went to CT for an evaluation.My daughter has

> moderate plagio

> with facial asymmetry. Your ped sounds like shes

> close minded! I

> don't mean to offend you but this is the impression

> I got. CT mailed

> my ped. pictures of along with a report. She

> was very

> impressed. She wrote me a script for the DOC band. I

> get it July 3rd.

> will be 11 months by then. I regret listening

> to my doc and

> the ns for so long!Go with your Mommy instinct! I

> was ready to switch

> ped. if mine didn't write me a script. Good Luck!

>

>

> > Hi all,

> >

> > I am new to this group and share the problems and

> frustrations of

> > many of you. My pediatrician has been very casual

> about the whole

> > flat-headed thing since I first voiced my concerns

> at a sick visit

> > when my son was barely 4 months old. He is now 9

> months old and

> the

> > asymmetry in his face is striking. The doctor

> continues to shrug

> it

> > off and tells me it will round out on its own.

> She never even

> > mentioned the word " plagiocephaly " My husband and

> I had to

> research

> > it on the internet ourselves. When I went for the

> 9 month check up

> I

> > brought all the information I had and tried to

> present it to her.

> > She was like a brick wall. She insists it will

> round out on its

> own,

> > and if it doesn't, well, " we're all a little

> asymmetric " UGGHHH.

> I

> > am so very frustrated. She also claims that the

> American Academy

> of

> > Pediatrics is recommending against helmet therapy.

> Does any one

> know

> > anything about this? I would rather spend the

> time and money and

> be

> > sure my son looks " normal " than sit back and wait

> and see. It

> can't

> > be corrected later without cutting him open. She

> hesitantly gave

> me

> > a referral to a neurosurgeon, " who is going to

> tell [us] the same

> > thing [she] did " A few days later we called an

> asked her if she

> > would at least write a letter asking for an

> evaluation of '

> > head so that we could take advantage of the free

> evaluation offered

> > by the CT clinic near us - she flat out refused.

> Her first reason

> > was that she wasn't going to refer us to anyone or

> anyplace that

> she

> > knew nothing about. When my husband offered to

> send her the info

> and

> > give her phone numbers to talk to the physicians

> there, she still

> > refused. Anyway, I am rambling and am very

> confused as to what to

> > do next. Any suggestions?

> >

> > Kristi

>

>

__________________________________________________

[Guest guest]

In a message dated 6/22/2002 8:55:26 AM Central Daylight Time, tsesq@... writes:

ped. I think she realized that I was determined and

within 4 hours, she had the referral and insurance

approval for the 2nd opinion.

Tami (mom to Annika)

way to go Tami!

beck