Re: Suggestion for moderators..

[Guest guest]

,

I think this is a great idea! I'd be willing to do it!

> Hello.

>

> I first want to thank you all for the terrific job you all do. You

> are all LIVESAVERS and sanity keepers! Thank you!!!

>

> Secondly, I have a suggestion. I know it is hard to keep all our

> stories straight and follow each story from onset to outcome, so

here

> is my suggestion. Just as we have the " Photos " section, maybe we

> could have a folder for each child under " files " (for those that

want

> to participate, of course). For instance, I could look at the

photo

> of Abby (Hi Debbie) and then go under " files " to " Abby's story "

where

> I could read about when Abby was diagnosed, when she received the

> helmet, how long in the helmet, what the outcome was, etc. Maybe

> moderators or mommies could even have standard info: age of child

at

> onset of helmet, how long in helmet, other therapies used, plagio

> only or tort/plagio, premie/plagio, etc. what worked, what didn't,

> etc. so that " newbies " could see a picture of a baby that is like

> their own little darling, look up how the baby was treated (band

vs.

> positioning only, active vs. passive, etc.)and outcome, and get an

> idea of what it took.

>

> Again, just a suggestion..

>

> ,

> Rhiannon's mommy

[Guest guest]

:

This is a very good suggestion! We'll see what we can put together &

get back with everybody on it. Thanks for your kind words!

Debbie Abby's mom

MI

> Hello.

>

> I first want to thank you all for the terrific job you all do. You

> are all LIVESAVERS and sanity keepers! Thank you!!!

>

> Secondly, I have a suggestion. I know it is hard to keep all our

> stories straight and follow each story from onset to outcome, so

here

> is my suggestion. Just as we have the " Photos " section, maybe we

> could have a folder for each child under " files " (for those that

want

> to participate, of course). For instance, I could look at the

photo

> of Abby (Hi Debbie) and then go under " files " to " Abby's story "

where

> I could read about when Abby was diagnosed, when she received the

> helmet, how long in the helmet, what the outcome was, etc. Maybe

> moderators or mommies could even have standard info: age of child

at

> onset of helmet, how long in helmet, other therapies used, plagio

> only or tort/plagio, premie/plagio, etc. what worked, what didn't,

> etc. so that " newbies " could see a picture of a baby that is like

> their own little darling, look up how the baby was treated (band

vs.

> positioning only, active vs. passive, etc.)and outcome, and get an

> idea of what it took.

>

> Again, just a suggestion..

>

> ,

> Rhiannon's mommy

[Guest guest]

,

I think you have a really good suggestion. I try to keep a notepad

by my computer to try to keep up with everyone, but my kids are

notorious for stealing it to do their doodles. So this would be

great if we could think of a way to do this. The hitch with the

files is, just as in the photos section, we only have a limited

amount of space. And with a group as large as ours, it fills up very

quickly.

If you go to our 'Database' section, there is a link there titled

'Now, Who Are You Again?' It has a lot of the pertinent information

that you have suggested. Everyone, please feel free to add your

information there. I'm sure we can modify it some to include more

information.

Thanks for your suggestion! We love to get feedback from our members

to know how we can make things easier for!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hello.

>

> I first want to thank you all for the terrific job you all do. You

> are all LIVESAVERS and sanity keepers! Thank you!!!

>

> Secondly, I have a suggestion. I know it is hard to keep all our

> stories straight and follow each story from onset to outcome, so

here

> is my suggestion. Just as we have the " Photos " section, maybe we

> could have a folder for each child under " files " (for those that

want

> to participate, of course). For instance, I could look at the

photo

> of Abby (Hi Debbie) and then go under " files " to " Abby's story "

where

> I could read about when Abby was diagnosed, when she received the

> helmet, how long in the helmet, what the outcome was, etc. Maybe

> moderators or mommies could even have standard info: age of child

at

> onset of helmet, how long in helmet, other therapies used, plagio

> only or tort/plagio, premie/plagio, etc. what worked, what didn't,

> etc. so that " newbies " could see a picture of a baby that is like

> their own little darling, look up how the baby was treated (band

vs.

> positioning only, active vs. passive, etc.)and outcome, and get an

> idea of what it took.

>

> Again, just a suggestion..

>

> ,

> Rhiannon's mommy

[Guest guest]

Hi :

If you can and want to, go for it. I will post Rhia's story for sure!

Good luck,

> > Hello.

> >

> > I first want to thank you all for the terrific job you all do.

You

> > are all LIVESAVERS and sanity keepers! Thank you!!!

> >

> > Secondly, I have a suggestion. I know it is hard to keep all our

> > stories straight and follow each story from onset to outcome, so

> here

> > is my suggestion. Just as we have the " Photos " section, maybe we

> > could have a folder for each child under " files " (for those that

> want

> > to participate, of course). For instance, I could look at the

> photo

> > of Abby (Hi Debbie) and then go under " files " to " Abby's story "

> where

> > I could read about when Abby was diagnosed, when she received the

> > helmet, how long in the helmet, what the outcome was, etc. Maybe

> > moderators or mommies could even have standard info: age of

child

> at

> > onset of helmet, how long in helmet, other therapies used, plagio

> > only or tort/plagio, premie/plagio, etc. what worked, what

didn't,

> > etc. so that " newbies " could see a picture of a baby that is like

> > their own little darling, look up how the baby was treated (band

> vs.

> > positioning only, active vs. passive, etc.)and outcome, and get

an

> > idea of what it took.

> >

> > Again, just a suggestion..

> >

> > ,

> > Rhiannon's mommy