Re: ' Consultation : (

[Guest guest]

Kristi:

Oh decisions decisions huh? Ultimately, the final decision is yours

& your family's. The decision for us to band Abby was difficult

enough and Abby's case was considered severe, so I can imagine how

hard it is for you to reach this decision. Do you have any pictures

of 's head you could send us? We'd love to take a look at

them. I totally understand what you are also saying about your long

drives. I too had about a 4 hr one way drive to the Chicago CT for

Abby's band - with a ton of construction also, nothing like sittin in

a 10 mile traffic jam with a screaming 1 yr old BUT, the drives

were worth it for Abby....her head improved sooo much while in her

band. IF you do decide to band , do you have anyone else who

could go along for the drive with you?

Take your time to come to your decision, think about it some, weigh

the pros & cons. Whatever you decide, Mommy knows best. Please keep

us posted.

Debbie Abby's mom DOCgrad

MI

> Well,

>

> We drove three hours to Cleveland with construction almost the

entire

> way. Couldn't drop the four year old off at her aunt's house

because

> the construction put us so far behind schedule. The consult went

> o.k. ' measurements put him in a mild-moderate range which is

> better than we had feared but puts him in a grey area. They are

> neither recommmending the band nor not recommending it. So here we

> are trying to figure out if we should spend the $3000. Even CT is

> saying it isn't all that bad. And after seeing some of the head

> molds at this clinic, I am feeling guilty about complaining and

> making such a ruckous (??) over the whole thing. If we do decide

to

> go ahead with it, we have to find a pediatrician who will write the

> sript, and if we want the insurance to pay any of it, the same

> physician will have to write a letter of medical neccesity, which

> doesn't seem likely.

>

> We have decided that we want to do it because we feel it won't harm

> him now, and this way we can be sure it won't bother him later. I

> just wish (and I know this sounds terrible) that it was worse and I

> was being told, " Yes, you absolutely should do this. " Then I am

> thinking, I am going to have to make this three hour (one way)

> journey once a week and by myself since dh is studying for the BAR

> exam at the moment. For just a minor flat spot - is it really

worth

> it? Are we certain it won't round out on its own?

>

> I was just talking with a neighbor about it and she said her

daughter

> was very flat in the back - much worse than and it rounded

out

> nicely - not perfect - but much better than it was without any

> intervention other that staying off the back of her head during the

> day. Of course, started sitting up around 4 months and

spent

> a lot of time in the jhonny jump-up and the exersaucer during the

day

> and his hasn't changed a bit.

>

> Ok. I am definitely rambling - sorry to be so long winded. Any

> advice would be welcome!

>

> Kristi

> ' mom

> OH