Re: Possible Plagio. Help!

[Guest guest]

Hi & welcome to our group!

We're glad you have found us.......all the symptoms you mentioned

definitely sound like plagio. Repositioning does work for some, but

doesn't work for others. My daughter's plagio was severe, so

repositioning did not help her plagio.

I definitely recommend repositioning for your daughter. If her case

is mild, then you could see good improvement with repositioning

alone. Check out www.plagiocephaly.org/support for some helpful

repositioning tips.

If you are not comfortable with your pediatrician's laid back

attitude, then I would seek another opinion. Perhaps your

pediatrician would refer you to a specialist (pediatric

neurosurgoen). A lot of our plagio babies were referred to a

speciliast from our ped. for an evaluation, my daughter was. I would

suggest calling your ped's office & explain your concerns, and ask to

be referred to a specialist. If your ped. will not authorize it, then

switch.

Good luck with all of this. You are being a terrific mom! Please

let us know what your ped. tells you & keep us updated on your

repositioning efforts.

Debbie Abby's mom DOCGrad

MI

> hi,

>

> i recently noticed that my daughter, who is 6 months old, has VERY

> asymmetrical eyes. one appears much rounder and larger than the

> other. i took her to the pediatrician today. the ped said that

her

> head shape is " a little bit flat, but her ears are even " (when

viewed

> from the top). the ped also noticed that there was a " slight "

bulge

> in my child's forehead. overall, though, she told me that i have

> nothing to worry about and that there was no need to look further

at

> this problem.

>

> i disagree with the doctor and am not convinced that i should

simply

> ignore this problem when it might get worse. i will try

> repositioning techniques on my own, however, does anyone know of

the

> effectiveness of this? do you think i should see another

> pediatrician or am i being overly reactionary? does very mild

plagio

> generally self correct? if my daughter had plagio would it be more

> obvious than it is?

>

> any thoughts, info, input would be WELCOMED.

>

> thank you.

>

> jennifer in san francisco

[Guest guest]

debbie,

thank you for your thoughts and kind support! i will let you know

how things go. i think i will try repositioning on my own for 4

weeks and if i don't think lucy's plagio is improving will insist on

a consult with a specialist.

in that vein, i propped her right shoulder last night in order to

make her sleep with her head turned to the left (she ALWAYS sleeps

with it turned to the right), and that worked out pretty well. i

intend to do the same thing in her car seat, using a folded receiving

blanket. have you tried this? i see that there are some props that

i can purchase to this end...but i imagine a blanket would work

equally well, no?

it looks as though your daughter is out of her doc band...congrats!

did you find that it worked as you had hoped?

again, thank you for your support!

jen and lucy

> > hi,

> >

> > i recently noticed that my daughter, who is 6 months old, has

VERY

> > asymmetrical eyes. one appears much rounder and larger than the

> > other. i took her to the pediatrician today. the ped said that

> her

> > head shape is " a little bit flat, but her ears are even " (when

> viewed

> > from the top). the ped also noticed that there was a " slight "

> bulge

> > in my child's forehead. overall, though, she told me that i have

> > nothing to worry about and that there was no need to look further

> at

> > this problem.

> >

> > i disagree with the doctor and am not convinced that i should

> simply

> > ignore this problem when it might get worse. i will try

> > repositioning techniques on my own, however, does anyone know of

> the

> > effectiveness of this? do you think i should see another

> > pediatrician or am i being overly reactionary? does very mild

> plagio

> > generally self correct? if my daughter had plagio would it be

more

> > obvious than it is?

> >

> > any thoughts, info, input would be WELCOMED.

> >

> > thank you.

> >

> > jennifer in san francisco

[Guest guest]

:

You are more than welcome! Here's a link with some other helpful

repositioning products:

Plagiocephaly/links/Repositioning_001021

174219/

If this link doesn't work it is in our " bookmarks " section,

then " repositioning ideas " .

I know what you are saying about your daughter sleeping on her right

ONLY! My daughter did the same thing, there was nothing I could do

to keep her off her flat side.

My daughter graduated from her DOCband almost one year ago

today....6/22/01. Abby began her DOCband older at 11.5 mos of age,

wore one band for 4.5 mos with 50-60% correction which we are

thrilled with. I cannot believe she's been out of it for a year now.

Time sure does fly.

Is Lucy your 1st baby?

Debbie Abby's mom 3/1/00 DOCGrad 2/16/01-6/22/01

MI

> > > hi,

> > >

> > > i recently noticed that my daughter, who is 6 months old, has

> VERY

> > > asymmetrical eyes. one appears much rounder and larger than

the

> > > other. i took her to the pediatrician today. the ped said

that

> > her

> > > head shape is " a little bit flat, but her ears are even " (when

> > viewed

> > > from the top). the ped also noticed that there was a " slight "

> > bulge

> > > in my child's forehead. overall, though, she told me that i

have

> > > nothing to worry about and that there was no need to look

further

> > at

> > > this problem.

> > >

> > > i disagree with the doctor and am not convinced that i should

> > simply

> > > ignore this problem when it might get worse. i will try

> > > repositioning techniques on my own, however, does anyone know

of

> > the

> > > effectiveness of this? do you think i should see another

> > > pediatrician or am i being overly reactionary? does very mild

> > plagio

> > > generally self correct? if my daughter had plagio would it be

> more

> > > obvious than it is?

> > >

> > > any thoughts, info, input would be WELCOMED.

> > >

> > > thank you.

> > >

> > > jennifer in san francisco

[Guest guest]

Hi -

It definetly sounds like your daughter has plagio to some degree. My

son Ian has severe plagio but exhibits all of the symptons that you

described.

I noticed that you live in the S.F. area we are in Sacramento but we

go to Palo Alto for our STARband treatment every couple of weeks.

The place we go is Center for Independent Rehabilitative Services and

the phone i 650-237-9217 I am wondering if they will give you and

evaluation of your daughter and let you know if she needs treatment.

They are wonderful people and so helpful, we have been very impressed

with the care we have received.

I would definetely get a second opinion, the sooner the better baby's

heads grow very fast at this early age.

Good luck and keep us posted with what happens

-Ian &

> hi,

>

> i recently noticed that my daughter, who is 6 months old, has VERY

> asymmetrical eyes. one appears much rounder and larger than the

> other. i took her to the pediatrician today. the ped said that

her

> head shape is " a little bit flat, but her ears are even " (when

viewed

> from the top). the ped also noticed that there was a " slight "

bulge

> in my child's forehead. overall, though, she told me that i have

> nothing to worry about and that there was no need to look further

at

> this problem.

>

> i disagree with the doctor and am not convinced that i should

simply

> ignore this problem when it might get worse. i will try

> repositioning techniques on my own, however, does anyone know of

the

> effectiveness of this? do you think i should see another

> pediatrician or am i being overly reactionary? does very mild

plagio

> generally self correct? if my daughter had plagio would it be more

> obvious than it is?

>

> any thoughts, info, input would be WELCOMED.

>

> thank you.

>

> jennifer in san francisco

[Guest guest]

debbie,

lucy is my first, is abby yours? i never dreamed i could care so

much and feel so tuned in to another person...it's awesome (in both

the good and bad ways that one can use that word).

interestingly (to me, anyway), i might never have noticed the

asymmetry in lucy's eyes if i did not have asymmetrical eyes myself!

i had very minor surgery on a tear duct in my top lid about ten years

ago, and it left me with some scar tissue that causes my left eyelid

to look bigger than my right. no one seems to notice it unless i

point it out but it used to make me feel very self conscious. i

don't want that for lucy.

did a doc point out abby's plagio or did you notice it?

jen

> > > > hi,

> > > >

> > > > i recently noticed that my daughter, who is 6 months old, has

> > VERY

> > > > asymmetrical eyes. one appears much rounder and larger than

> the

> > > > other. i took her to the pediatrician today. the ped said

> that

> > > her

> > > > head shape is " a little bit flat, but her ears are even "

(when

> > > viewed

> > > > from the top). the ped also noticed that there was

a " slight "

> > > bulge

> > > > in my child's forehead. overall, though, she told me that i

> have

> > > > nothing to worry about and that there was no need to look

> further

> > > at

> > > > this problem.

> > > >

> > > > i disagree with the doctor and am not convinced that i should

> > > simply

> > > > ignore this problem when it might get worse. i will try

> > > > repositioning techniques on my own, however, does anyone know

> of

> > > the

> > > > effectiveness of this? do you think i should see another

> > > > pediatrician or am i being overly reactionary? does very

mild

> > > plagio

> > > > generally self correct? if my daughter had plagio would it

be

> > more

> > > > obvious than it is?

> > > >

> > > > any thoughts, info, input would be WELCOMED.

> > > >

> > > > thank you.

> > > >

> > > > jennifer in san francisco

[Guest guest]

megan,

THANK YOU for the information...that is exactly what i was looking

for. i will call these folks tomorrow.

tell me, did you notice ian's plagio before the doc did, or was it

not diagnosed until it was severe? is the STARband helping?

jen

> > hi,

> >

> > i recently noticed that my daughter, who is 6 months old, has

VERY

> > asymmetrical eyes. one appears much rounder and larger than the

> > other. i took her to the pediatrician today. the ped said that

> her

> > head shape is " a little bit flat, but her ears are even " (when

> viewed

> > from the top). the ped also noticed that there was a " slight "

> bulge

> > in my child's forehead. overall, though, she told me that i have

> > nothing to worry about and that there was no need to look further

> at

> > this problem.

> >

> > i disagree with the doctor and am not convinced that i should

> simply

> > ignore this problem when it might get worse. i will try

> > repositioning techniques on my own, however, does anyone know of

> the

> > effectiveness of this? do you think i should see another

> > pediatrician or am i being overly reactionary? does very mild

> plagio

> > generally self correct? if my daughter had plagio would it be

more

> > obvious than it is?

> >

> > any thoughts, info, input would be WELCOMED.

> >

> > thank you.

> >

> > jennifer in san francisco

[Guest guest]

Hi -

Sorry it's taken me so long to respond but we have been out of town

for a long weekend. First time with the twins. So anyway on to

business, we noticed Ian's head at 2 months was very flat so we

mentioned it to his peditrician who said will watch it and revaluate

at 4 months. At the 4 month checkup he referred us to a nuerosurgeon

who did xrays that day and told us he had severe plagio. Within two

weeks we had a appt for his helmet and the insurance covered it with

no problems what so ever.

The STARband is helping, he has hd it on a little over a month and

they have already seen about a 20% change. He has a series of

problems we are working on that have come with the plagio so we still

have many months to go, but are convinced the helmet is doing alot of

good for him. If the helmet doesn't work our nuerosurgeon would like

to do the surgery on him to correct it, because later in life it

could lead to many other problems such as jaw problems, eye

alignment, and of course head shape. He is not a beliver in

the " It's just cosmetic " excuse. Of course he is beautiful as a baby

but it is later in life that he is conerned about.

The band is truly harder on the parents than on the child, and I

wasn't convinced of that until now. He is very happy in it and

doesn't mind it one bit. We are even starting to get use to it.

I can't wait to hear what you found out from your phone call. Go with

your gut feeling.

Keep us posted

-Ian

> > > hi,

> > >

> > > i recently noticed that my daughter, who is 6 months old, has

> VERY

> > > asymmetrical eyes. one appears much rounder and larger than

the

> > > other. i took her to the pediatrician today. the ped said

that

> > her

> > > head shape is " a little bit flat, but her ears are even " (when

> > viewed

> > > from the top). the ped also noticed that there was a " slight "

> > bulge

> > > in my child's forehead. overall, though, she told me that i

have

> > > nothing to worry about and that there was no need to look

further

> > at

> > > this problem.

> > >

> > > i disagree with the doctor and am not convinced that i should

> > simply

> > > ignore this problem when it might get worse. i will try

> > > repositioning techniques on my own, however, does anyone know

of

> > the

> > > effectiveness of this? do you think i should see another

> > > pediatrician or am i being overly reactionary? does very mild

> > plagio

> > > generally self correct? if my daughter had plagio would it be

> more

> > > obvious than it is?

> > >

> > > any thoughts, info, input would be WELCOMED.

> > >

> > > thank you.

> > >

> > > jennifer in san francisco

[Guest guest]

Hi ,

We went to the CIRS at Palo Alto also. We live in

San . The phone of the CIRS we went to is

650-462-0102 however. Could you please let us know

the address of your CIRS and the name of your

orthosist?

I don't think our orthosist has many experiences.

Thanks a lot.

Lucy, mom of

--- tmster2000 <tamkster@...> wrote:

> Hi -

> It definetly sounds like your daughter has plagio to

> some degree. My

> son Ian has severe plagio but exhibits all of the

> symptons that you

> described.

>

> I noticed that you live in the S.F. area we are in

> Sacramento but we

> go to Palo Alto for our STARband treatment every

> couple of weeks.

> The place we go is Center for Independent

> Rehabilitative Services and

> the phone i 650-237-9217 I am wondering if they will

> give you and

> evaluation of your daughter and let you know if she

> needs treatment.

> They are wonderful people and so helpful, we have

> been very impressed

> with the care we have received.

>

> I would definetely get a second opinion, the sooner

> the better baby's

> heads grow very fast at this early age.

>

> Good luck and keep us posted with what happens

> -Ian &

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> > hi,

> >

> > i recently noticed that my daughter, who is 6

> months old, has VERY

> > asymmetrical eyes. one appears much rounder and

> larger than the

> > other. i took her to the pediatrician today. the

> ped said that

> her

> > head shape is " a little bit flat, but her ears are

> even " (when

> viewed

> > from the top). the ped also noticed that there

> was a " slight "

> bulge

> > in my child's forehead. overall, though, she told

> me that i have

> > nothing to worry about and that there was no need

> to look further

> at

> > this problem.

> >

> > i disagree with the doctor and am not convinced

> that i should

> simply

> > ignore this problem when it might get worse. i

> will try

> > repositioning techniques on my own, however, does

> anyone know of

> the

> > effectiveness of this? do you think i should see

> another

> > pediatrician or am i being overly reactionary?

> does very mild

> plagio

> > generally self correct? if my daughter had plagio

> would it be more

> > obvious than it is?

> >

> > any thoughts, info, input would be WELCOMED.

> >

> > thank you.

> >

> > jennifer in san francisco

>

>

>