We're back!

[Guest guest]

Well, we're back. We had a great time.

Dane cut 2 teeth and got thrush, so the first couple of days he was

really Mr. Crankypants. Since he was so uncomfortable, he was

hanging out on his former flat spot a lot. I wasn't worried about

it, but Guy was freaking out! (we switched positions on this!). He

was terrified the tort was back. He wanted me to call KKR on

vacation and set up therapy for today! We went with my friend who

is a dr and Guy kept asking her to check Dane's neck! Alas, he is

fine. Just needed the comfort of laying on that side for a couple

of days while he wan't feeling so perky!

Dane's mom DOC Grad

[Guest guest]

Great to see your name back on Board ! Sounds like, I think, you had a

goodtime, despite Mr. Crankypants and the tort rearing up its ugly head- I'm

sure he needed that comfort zone! Welcome back!

' Mom

[Guest guest]

glad you are back sorry about crabby boy- but all will be fine:-) that is

great- welcome teeth and nowonto pretzels and other chewy stuff:-) Your hubby

sounds like a real good daddy-

Beck

[Guest guest]

WELCOME BACK RACHEL!!!!!

> Well, we're back. We had a great time.

> Dane cut 2 teeth and got thrush, so the first couple of days he was

> really Mr. Crankypants. Since he was so uncomfortable, he was

> hanging out on his former flat spot a lot. I wasn't worried about

> it, but Guy was freaking out! (we switched positions on this!).

He

> was terrified the tort was back. He wanted me to call KKR on

> vacation and set up therapy for today! We went with my friend who

> is a dr and Guy kept asking her to check Dane's neck! Alas, he is

> fine. Just needed the comfort of laying on that side for a couple

> of days while he wan't feeling so perky!

>

> Dane's mom DOC Grad

[Guest guest]

Glad you are back and had a great time. Sorry to hear about the

thrush! Im glad to hear he is doing better!

Christi

> Well, we're back. We had a great time.

> Dane cut 2 teeth and got thrush, so the first couple of days he was

> really Mr. Crankypants. Since he was so uncomfortable, he was

> hanging out on his former flat spot a lot. I wasn't worried about

> it, but Guy was freaking out! (we switched positions on this!).

He

> was terrified the tort was back. He wanted me to call KKR on

> vacation and set up therapy for today! We went with my friend who

> is a dr and Guy kept asking her to check Dane's neck! Alas, he is

> fine. Just needed the comfort of laying on that side for a couple

> of days while he wan't feeling so perky!

>

> Dane's mom DOC Grad

[Guest guest]

,

Glad to have you back and sorry to hear of Dane's medical problems. Bummer!

Hope he is feeling better now!

Marci

[Guest guest]

Congratulations. I know this is an exciting time for you.

(Alice's daughter)

[Guest guest]

!!! Glad you ya'll had a great time!

Kim (Jaxon and Brixon's mom)

we're back!

hi all!

hope all of you had a great weekend!

we sure did!

and yes - we are hitched!!

we had a safe trip and a wonderful time in vegas!

now we are trying to figure out new sign names for each other, and

having fun practicing saying husband & wife!

there's a pic in his albulm.

anyhow...

take care and thanks so much for all the well wishes!

mrs. cherry, (so far 'shorty wife', sometimes 'mrs. cherry shorty

jerk wife')! but he is very sweet!

[Guest guest]

LOL just had to laugh Kathleen. Troopers were out but Thank Goodness they

never caught Greg since his speed exceeded 80 a few times (something about not

being used to the rental car and no cruise control LOL - sure likely story).

Glad EVERYONE is home safe - if even a little poorer

Greg " REALLY " wants to go to Hershey in 2007- but not sure if it will be

possible - who knows - Donna : can you save $ for us too hahaha ust kidding

love, prayers, and blessings

(age 36 - dx poly @ age 3)

[Guest guest]

Hello. I'm not sure if I'm writing to one person or many. I happened upon this

list by accident, but it may be just what I needed. I have a 14 year old

daughter with Anklyosing Spondylitis and JRA. Unfortunately all her joints are

affected. She is on trexall, sulfasalizine, voltaren, folic acid, nexium and we

just tried flexerall but she had a bad reaction. Her blood work just came back

with an elevated liver score??? Anyone else experience this?? ?? I am taking her

tomorrow to have the bloodwork redone. I would appreciate any advice or any

information or experience with this that you would be willing to share. thanks

for your help.

Marla

Kathleen Bender <kathleenbender@...> wrote:

We're back too! We got back home to FL around 9:30 last night.

Unfortunately, we were making a little too good time....we brought home an extra

gift from the GA highway patrol.....Shoot...neither of us has had a ticket in

like 15 years....guess we can't say that anymore! Hubby was doing real good

keeping an eye on his speed too....but the trooper clocked him for that few

seconds before he realized and slowed down....right at the speed that the ticket

cost goes from $199 to $339 (of course!) Oh well....

I enjoyed meeting Robbin, , Michele, Terri, Alia and some others who I

apologize but can't remember all of the names right now. It was great to put

faces with names.

Alia, when you get a chance can you email me the information I need to order

more bracelets from you? They're going over well here! Thanks!

Kathy

We're back!

It was late last night when we pulled into home but we are safely back in KY.

What a great weekend! I am sure I did not meet everyone from the list and

apologize if I didn't get to you but it was such a fast pace and so many old

friends to see and new ones to meet. It was an incredible pleasure to spend the

time I did with those I managed to locate. I did see , Kathy, ,

, Robbin, Kim, Liz, Alia, Helen and Terri!! Not bad considering I

went to no parents sessions!!

Helen...I hope Nick got to feelin better and that you guys had a safe trip

home.

...it was such a pleasure to see you again, catch up and meet

precious Destiny, who I think I had a crush on my hubby, lol- I will post the

pics!

Liz, Matt was so upset to leave AJAO....he misses and the gang so

much! I know they will be in touch!

My husband really enjoyed meeting so many people who understand our life and

my condition and has suggested we start a AJAO 2007 savings account so I am

doing that today!

I hope to see everyone in 2007!

Hang tight, Hang tough!

Donna

[Guest guest]

Oh, my goodness as if AJAO was not expensive enough without the added bonus

of a speeding ticket and to the tune of $339. are you serious. I've not had a

ticket in years and thought tickets were much less then that. Whoa. Well you

were looking for memories and that is just an added one that you were totally

not expecting.

Veri

[Guest guest]

Yep...$339. We didn't know how much it would be.... not that this matters, but

we were keeping up with the rest of traffic.....they could have picked just

about anyone and ticketed them....it wasn't like we were weaving in and out of

traffic, or even passing anyone...and the roads were busy. It just happened to

be us he chose to stop. We should have known better, though, because we are

from FL and GA is known to be full of speed traps...hubby said he knows exactly

where they clocked him...it was going downhill and he glanced at his speed and

saw how fast he was going and immediately slowed down, but it was too late.

Luke (4 years old) kept asking why we stopped....I don't really know how we got

his attention diverted from that..

Kathy

Re: We're back!

Oh, my goodness as if AJAO was not expensive enough without the added bonus

of a speeding ticket and to the tune of $339. are you serious. I've not had a

ticket in years and thought tickets were much less then that. Whoa. Well you

were looking for memories and that is just an added one that you were totally

not expecting.

Veri

[Guest guest]

Robbin,

It was great to meet you and , too. Sorry things were a bit crazy with

my family....seemed like we were going from one being sick to the next.

Everything is back to normal now, though. Mark and Luke are both doing better.

I wonder if they got some kind of 24 hour bug or something. Even is

doing great....remember how she wouldn't stand on that right leg Saturday and

Sunday? Well, this morning she got up and I let her loosen up a bit, gave her

some breakfast after a bottle and her Naprosyn and she just got up and started

running around like crazy....limping still a little, but definitely not

collapsing on her knees like she was before. So I think maybe she just overdid

it a bit on Friday with all of the activity and the late evening. We started

her on the organic milk as Deidre suggested and she can't tell the difference,

so we'll keep up with that....I figure it can't hurt, right?

I'll have some pics to send/post probably tomorrow.

I'm bumming that I didn't bring my camera for the closing parade on Sunday. If

anyone got pics of the kiddos (0-1 year olds and 4-5 year olds especially) I

would love to get copies of any my kids are in....they did so good.... was

clapping for everyone and having a great time, and Luke came in waving and

smiling like a movie star! It was a real moment in time for us!

Kathy

Re: We're back!

Kathy,

Glad to meet your family. Ummmmm With the speeding ummmm GA will get you.

mentioned doing 80 ohhhhhhhh lordy. Ok I would have been the car

who y'all got behind and said ok what is wrong with this lady. She is driving a

sporty type car ummmm It should go faster than that. lololol. I stay alive

at 55 lolololol. You might catch me at 60 but not any faster. Sorry guys I am

not one to go fast. Maybe it is my age or what I have seen and learned over

the years. But 55 is comfy for me. I love life in the slow lane. I am wild

out of the car though lololol But settled to life watching it go by slow.

Sorry y'all got a ticket though

What part of Ga did you get it? Well off to Target grrrrrrrrrrrrrr another

2 hours in a store. lolololol.

Robbin

[Guest guest]

Hi Kathleen,

I believe that we met you at AJAO. Our daughter

Delaney and Luke, I believe made good friends at the

orientation session. We also met Robbin and

as we were about to leave and we sat with Mikki,

, Molly and during the opening dinner.

Sorry that it has been so long since we were on this

board. Between business trips, vacations, family

weddings, etc., I have fallen behind. 3,340 e-mails

behind to be exact, but I promise to keep up

henceforth.

AJAO was a wonderful experience and we were able to

network with many of the fellows to publicize the need

for a Ped Rhumy here in Alabama. Loved the Father's

networking meeting as well. Special thanks to Mrs.

Cam and Mrs. for all of their hard work with

the 2-3 yr. olds.

Another nice caveat was that we were able to schedule

Delaney's appointment with Dr. Vogler at Emory on the

Thursday before the confence started and so far, so

good with the Aristospan (steroid) injection in her

knee that she got back in January. We go back in

November.

BTW, today, July 18th, is Delaney's 3rd birthday.

Brad Casselman...

--- Kathleen Bender <kathleenbender@...>

wrote:

> Robbin,

> It was great to meet you and , too. Sorry

> things were a bit crazy with my family....seemed

> like we were going from one being sick to the next.

> Everything is back to normal now, though. Mark and

> Luke are both doing better. I wonder if they got

> some kind of 24 hour bug or something. Even

> is doing great....remember how she wouldn't stand on

> that right leg Saturday and Sunday? Well, this

> morning she got up and I let her loosen up a bit,

> gave her some breakfast after a bottle and her

> Naprosyn and she just got up and started running

> around like crazy....limping still a little, but

> definitely not collapsing on her knees like she was

> before. So I think maybe she just overdid it a bit

> on Friday with all of the activity and the late

> evening. We started her on the organic milk as

> Deidre suggested and she can't tell the difference,

> so we'll keep up with that....I figure it can't

> hurt, right?

>

> I'll have some pics to send/post probably tomorrow.

>

>

> I'm bumming that I didn't bring my camera for the

> closing parade on Sunday. If anyone got pics of the

> kiddos (0-1 year olds and 4-5 year olds especially)

> I would love to get copies of any my kids are

> in....they did so good.... was clapping for

> everyone and having a great time, and Luke came in

> waving and smiling like a movie star! It was a

> real moment in time for us!

> Kathy

>

>

>

> Re: We're back!

>

>

>

> Kathy,

> Glad to meet your family. Ummmmm With the speeding

> ummmm GA will get you.

> mentioned doing 80 ohhhhhhhh lordy. Ok I

> would have been the car

> who y'all got behind and said ok what is wrong with

> this lady. She is driving a

> sporty type car ummmm It should go faster than

> that. lololol. I stay alive

> at 55 lolololol. You might catch me at 60 but not

> any faster. Sorry guys I am

> not one to go fast. Maybe it is my age or what I

> have seen and learned over

> the years. But 55 is comfy for me. I love life in

> the slow lane. I am wild

> out of the car though lololol But settled to life

> watching it go by slow.

> Sorry y'all got a ticket though

> What part of Ga did you get it? Well off to Target

> grrrrrrrrrrrrrr another

> 2 hours in a store. lolololol.

> Robbin

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Happy Birthday Delaney.

Glad y'all got home ok. Was nice meeting y'all and Dr. Vogler was great

in the Sessions. DOn't he just remind you of Mr. ? lolololol He was

's Ped Rhuemy. his Asst. I didn't see there but I bet if you

needed to call she would be the one calling you back during the Conference.

lololol.

Robbin

[Guest guest]

Brad,

I remember your family now....yes, Luke and Delaney really hit it off.

Happy Birthday Delaney!

Glad to hear the injection is working out well for her. We anticipate 's

rheumy will be recommending injections for at least some of the larger affected

joints next week at her visit. I met so many people, it's now hard to keep all

of the names straight, who was on the list and who wasn't, etc.

Hopefully, we'll be able to make it to Hershey.

Kathy

Re: We're back!

>

>

>

> Kathy,

> Glad to meet your family. Ummmmm With the speeding

> ummmm GA will get you.

> mentioned doing 80 ohhhhhhhh lordy. Ok I

> would have been the car

> who y'all got behind and said ok what is wrong with

> this lady. She is driving a

> sporty type car ummmm It should go faster than

> that. lololol. I stay alive

> at 55 lolololol. You might catch me at 60 but not

> any faster. Sorry guys I am

> not one to go fast. Maybe it is my age or what I

> have seen and learned over

> the years. But 55 is comfy for me. I love life in

> the slow lane. I am wild

> out of the car though lololol But settled to life

> watching it go by slow.

> Sorry y'all got a ticket though

> What part of Ga did you get it? Well off to Target

> grrrrrrrrrrrrrr another

> 2 hours in a store. lolololol.

> Robbin

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Kathy, isn't the closing awesome albeit very emotional! I have some pics

of the parade and I was at the end of the row so have some good ones, not sure

if they are or Luke but will post when I get them. Again, it was

great to meet you guys even though it was at the end.

Hugs & Smiles !!!!!

Donna

[Guest guest]

Thanks Donna!

You are right about the closing being emotional. But...my emotions were all

over the place through the entire conference. I was talking with hubby about

it, and although it seems like so long ago that was diagnosed, it's only

been 2-1/2 months.....I guess we've just been so wrapped up and focused in all

of it that it wasn't until we started talking to other parents at the conference

that we stepped back and realized how " fresh " this all still is to us.

Kathy

Re: We're back!

Hi Kathy, isn't the closing awesome albeit very emotional! I have some pics

of the parade and I was at the end of the row so have some good ones, not sure

if they are or Luke but will post when I get them. Again, it was

great to meet you guys even though it was at the end.

Hugs & Smiles !!!!!

Donna

[Guest guest]

,

I do remember meeting Greg in the elevator. If you

want me to confuse you more, we actually live right

off of 280 in Chelsea, but since the town is growing

so fast, we are serviced by the Sterrett post office

which is 12 miles away even though the Chelsea post

office is only 1 mile away. Isn't government

efficient.

As to Alabama events, we will be attending Camp MASH

(Make Arthritis Stop Hurting) in August in Mobile.

Hope that all is well and that you made it back OK.

Brad...

--- thewalkers1989@... wrote:

> Happy Birthday Delaney!!!!

> Brad, you also met my husband I think in an elevator

> - you told him you were

> from Sterret. said y'all were from b'ham -

> which is true but we have

> family who lived in Sterret so I know where that is.

> Most of us just tell

> the closest main city.

> Glad y'all had a wonderful time. Wish we could get

> a mini conference or

> family fun day or something going for all of us in

> Alabama - so we can keep in

> touch better.

> Hope y'all have a great week.

>

>

> love, prayers and blessings

> , Greg & Destiny

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Brad,

Hope y'all have an AWESOME time at camp MASH!!!!!!

Sterrett or Chelsea at least we are within 100 miles of each other - which is

pretty close neighbors in this group.

I am changing rheumatologists and my new one will be at Med Center East in

Centerpoint so we'll be traveling south at least

every 6 months and we LOVE the Thrift Stores all around B'ham area LOL

love, prayers and blessings

, Greg & Destiny

[Guest guest]

Kathy,

When I went to my first conference my daughter was diagnosed 1.5 years

prior. I remember very vividly how raw my emotions were, and I cried

thru lots of sessions. My friend Sheila remembers very vividly because

I couldn't leave the mothers networking session. I was too choked up to

look around, and I sobbed at the very end. The acceptance of this does

get easier. We all get frustrated, and we have all had tears with this

disease. We attended our 3rd conference. I think is as much

informational as therapeutic for our family. Hopefully in our

lifetime we will have tears of joy because there will be a cure!

and Allie (10 poly)

________________________________

From: [mailto: ] On

Behalf Of Kathleen Bender

Sent: Tuesday, July 18, 2006 6:10 PM

Subject: RE: We're back!

Thanks Donna!

You are right about the closing being emotional. But...my emotions were

all over the place through the entire conference. I was talking with

hubby about it, and although it seems like so long ago that was

diagnosed, it's only been 2-1/2 months.....I guess we've just been so

wrapped up and focused in all of it that it wasn't until we started

talking to other parents at the conference that we stepped back and

realized how " fresh " this all still is to us.

Kathy

Re: We're back!

Hi Kathy, isn't the closing awesome albeit very emotional! I have some

pics

of the parade and I was at the end of the row so have some good ones,

not sure

if they are or Luke but will post when I get them. Again, it was

great to meet you guys even though it was at the end.

Hugs & Smiles !!!!!

Donna