Re: Scaphocephaly

[Guest guest]

Hi Nita & welcome to our group:

I have found a few links about scaphocephaly that might be of help to

you:

http://www.scaphocephaly.info/ (if this link doesn't work, go to

www.plagiocephaly.org)

http://www.plagiocephaly.org/support/types.htm

http://www.cappskids.org/PlagioFAQ.htm

I hope some of these links will give you some information. Welcome

again.

Debbie Abby's mom DOCGrad

MI

> Hello, I am new here and have a few questions. Today, we met my

> husbands 9 month old infant daughter for the first time. I

> recognized something was not quite right as her head was very long

> and narrow and she had what seemed were very large eyes. She was

> very passive, non verbal, and remained this way for 3 hours. She

is

> also rather small for a 9 month old, about the size of an average 5

> month old. When we came home, I did research on abnormal head

shapes

> and found this site and information that describes her well. Can

> anyone give me any other info about this, anything at all would be

> helpful right now.

>

> Thanks

> Nita

[Guest guest]

Hi there!! Welcome to the group!! My daughter had scaphocephaly. I

will be more than happy to talk with you, and help if I can. You can

email me directly at work djones@... or here. Your

daughter is at a great young age to start treatment.

Dustie, mom to , DOC Grad '03 with Scaphy........

> i'm just looking for another mom to talk about scaphocephaly. my

> daughter is 2 months old and might have it. thanks

[Guest guest]

One of my sons has scaphy too! I'm kinda new at the whole thing,

well at least I feel like I am, but I'll help if I can. It doesn't

seem to be as " popular " as the brachy (at least from pics I've seen)

but I know there are a few of us. Welcome to the group, they are a

wealth of knowledge.

Tricia in CT

Braeden & Spencer (8.5 months, DOCbanded 5-16 & 8-13)

> i'm just looking for another mom to talk about scaphocephaly. my

> daughter is 2 months old and might have it. thanks