Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Hi there! We've been climbing up the ladder of doctors. We finally went to a craniofacial team today. We got the " good news " (really) that our daughters facial asymmetry is because of plagiocephaly & torticollis. We had been told previously that it was because of a birth defect & possible craniosynostosis. So after sleepless nights, many many tears, x-rays, CT scans, and more prayers than ever, there is some hope Abby will be 3 months old tomorrow. The doc is having us try repositioning for 3 months for the plagio, and PT for the tort. Her ear on the tort side lays way back, her jaw is narrower and the cheek is much thinner than the other side. Did anyone else go through this with their child? Just curious to know what your experience has been and how things are progressing. Thanks, Christy & Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Hi Christy and Abby and welcome! I'm so glad that your specialists have ruled out cranio - what a relief! At 3 months repositioning should be quite effective. Have you checked out www.plagiocephaly.org/support yet? It has a link for good repositioning tips. Also I think Beck just put up a post with all sorts of repositioning links on it. Will Abby be receiving PT for the tort? That will also help with the plagio as it will make the repositioning much easier. Keep us posted! We are always eager to hear of successful repositioning! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Welcome!!! you have found the right place!!! this is an awesome group and very helpful....Trisha christyludwig <christyludwig@...> wrote: Hi there! We've been climbing up the ladder of doctors. We finally went to a craniofacial team today. We got the "good news" (really) that our daughters facial asymmetry is because of plagiocephaly & torticollis. We had been told previously that it was because of a birth defect & possible craniosynostosis. So after sleepless nights, many many tears, x-rays, CT scans, and more prayers than ever, there is some hope Abby will be 3 months old tomorrow. The doc is having us try repositioning for 3 months for the plagio, and PT for the tort. Her ear on the tort side lays way back, her jaw is narrower and the cheek is much thinner than the other side. Did anyone else go through this with their child? Just curious to know what your experience has been and how things are progressing.Thanks,Christy & AbbyFor more plagio info Quote Link to comment Share on other sites More sharing options...
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