Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 I have a question about the helmet... If has to get the helmet...will he be able to lay on the back of his head with it or will it be the same as now...trying to keep him off the back of his head? My husband thinks that he will be able to..b/c the helmet protects his head and won't put pressure on the back of his head..but i'm not sure... Thanks, Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 what type of device did your daughter use? Did you notice at the end of treatment that there was no improvement what did the ortho say? Was there an option of a second helmet? beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 Debbie- Thanks for responding. Sylvia got her helmet at a place where the have walkers and such. I have to go find the name of it. Honestly I didn't research at the time. I just went where the doctor pointed me. I guess I was just feeling guilty for not finding someone else to treat Syl. I was just so clueless. After reading through posts it sounds like Sylvia just had a bad orthotist. Like I said he told me some kids just don't get any correction from the bands and she fell into this category. Sylvia can't wear a bike helmet. I can honestly say the helmet did NOTHING. Hair doesn't always cover it up Oh well, I guess I just better put this aside. I love my daughter and don't want her to think that she is anything other than beautiful. I just got in the regret mode after looking up info recently. She doesn't need to get a complex because I feel guilty. Mel My daughter Sylvia wore a helmet when she was 6 months to about 10 > months of age. Syl is now 2.5 years old. It was open on the top > and was really bulky looking. I swear it looked like the thing > devoured her head. > When I was bathing her last night I just wanted to cry. She had > absolutely no improvement while wearing the gigantic thing and this > damn flat spot is still here. > We did everything we were supossed to do in regards to getting the > helmet at the right age. I think something must have been wrong > with it because she grew by leaps and bounds during that time. > Has anyone tried to hold the helmet people accountable for any > wrongdoing? I hate to think about suing someone, but my daughter's > head will never be the way it should be. > Maybe I am just letting guilt get the best of me. > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 Mel, So sorry to hear that you were unfortunate to have a bad ortho experience- it is certainly nothing that you should feel guilty for- the ortho is the paid professional here, and you did your best in getting your daughter treatment. I hope that mother nature will continue to allow a rounder shape to happen, my friend's son had severe brachy who did not band, and he has seen some minimal improvement through time, and we have also experienced addt'l rounding since graduation- I hope Syl is still growing and it will get somewhat better over time. Unfortunately, we have had members with some ill fitting bands, and I hope that something can or will be done to address inexperienced orthos- its certainly not fair to the children (or the parents) who are getting this raw deal. Good luck to you and keep in mind that you did everything right, it was the ortho who should be losing sleep at night. You have a great attitude in not giving your daughter a complex, your a good mom and hats off to you for getting as far into the process as you did to try and help Syl! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Hi....my son just got the DOC band yesterday and I am in the same boat...( afraid to go out)..but you will get responses from moms who have been through this....and I know we have to go out sometime! Like they said, it is a way to educate the public too....My husband isnt afraid, he said " I am not going to hibernate my son! " LOL.....I guess it is something new to get used to.....Good luck! Carol ( mom to Dylan, 5 1/2 mos, Doc band 9/30/05) Helmet > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Hi....my son just got the DOC band yesterday and I am in the same boat...( afraid to go out)..but you will get responses from moms who have been through this....and I know we have to go out sometime! Like they said, it is a way to educate the public too....My husband isnt afraid, he said " I am not going to hibernate my son! " LOL.....I guess it is something new to get used to.....Good luck! Carol ( mom to Dylan, 5 1/2 mos, Doc band 9/30/05) Helmet > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Welcome, You are like alot of us who diagnosed thier baby. that is great tha you caught it and acted on it, way to go mommy! How old is your daughter and where is she being treated? We have members from all over and chances are that someone else is using the same facility as you. Remember in the beginning to dress them lightly especially at bedtime, they will need to stay cool until thier body temp adjusts to the helmet. We have a file here called Helping Baby Adjust To The Helmet, it is worth looking at. How are you doing with the tort? Are you doing the stretches at home? Do you go to physical therapy? Those stretches are extremely important. As far as going out in public, it is not easy at first, but before you know it you will have to wonder what someone is looking at,lol. Try to look at each outing as a chance to educate someone else on the subject and maybe you will save another baby from going through this or help one in need of treatment. The helmet is a part of her for a while, so you should have a positive attitude about or she will feel that. Look at it this way, a short time ago you would have been left with two options, live with the deformity or put your baby through life risking surgery, now be thankful and happy that the worry you have is someone staring when you go out,lol. Everything you are feeling is normal and we have all been there, I'm sure others will share more ways to help overcome the fears of the first outings. Let us know how the adjustment period is going or if you have any other questions. I wish you and your daughter an easy stress free treatment. Keep us posted. CAROLG --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Welcome, You are like alot of us who diagnosed thier baby. that is great tha you caught it and acted on it, way to go mommy! How old is your daughter and where is she being treated? We have members from all over and chances are that someone else is using the same facility as you. Remember in the beginning to dress them lightly especially at bedtime, they will need to stay cool until thier body temp adjusts to the helmet. We have a file here called Helping Baby Adjust To The Helmet, it is worth looking at. How are you doing with the tort? Are you doing the stretches at home? Do you go to physical therapy? Those stretches are extremely important. As far as going out in public, it is not easy at first, but before you know it you will have to wonder what someone is looking at,lol. Try to look at each outing as a chance to educate someone else on the subject and maybe you will save another baby from going through this or help one in need of treatment. The helmet is a part of her for a while, so you should have a positive attitude about or she will feel that. Look at it this way, a short time ago you would have been left with two options, live with the deformity or put your baby through life risking surgery, now be thankful and happy that the worry you have is someone staring when you go out,lol. Everything you are feeling is normal and we have all been there, I'm sure others will share more ways to help overcome the fears of the first outings. Let us know how the adjustment period is going or if you have any other questions. I wish you and your daughter an easy stress free treatment. Keep us posted. CAROLG --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Hi, Welcome to the group! I'm sorry I don't have any advice for you, the stares never stopped bothering me. I'm in the minority though, most parents adjust pretty quickly to it. If you do take her out today, let us know how you make out. --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Hi, Welcome to the group! I'm sorry I don't have any advice for you, the stares never stopped bothering me. I'm in the minority though, most parents adjust pretty quickly to it. If you do take her out today, let us know how you make out. --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Tomorrow will be her first venture out and about. She does look adorable in it. I will let you know how it goes. stripes6060 <taime@...> wrote: Hi,Welcome to the group! I'm sorry I don't have any advice for you, the stares never stopped bothering me. I'm in the minority though, most parents adjust pretty quickly to it. If you do take her out today, let us know how you make out.> Hello everyone.> I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Tomorrow will be her first venture out and about. She does look adorable in it. I will let you know how it goes. stripes6060 <taime@...> wrote: Hi,Welcome to the group! I'm sorry I don't have any advice for you, the stares never stopped bothering me. I'm in the minority though, most parents adjust pretty quickly to it. If you do take her out today, let us know how you make out.> Hello everyone.> I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 I would recommend decorating the helmet. It really makes the whole situation so much more comfortable. Our daughter's band is pink camo. Today at our oldest's daughter's soccer game she wore a pink camo shirt also. People honestly kept asking me where I got such a cool hat to match the shirt! I agree with Carol G too. Whenever someone asks I try to think of it as a chance to prevent it from happening to someone else or getting the word out for babies who might need this treatment. There used to be cards in the files section that explained plagiocephaly. You could print them out and hand them out when people asked so you didn't have to explain it each time. , I think Beck made it. Do you know where it is? I can't find it! Mom to Dane (DOC Grad 02) and Cece (DOC Band 9/02) --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 I would recommend decorating the helmet. It really makes the whole situation so much more comfortable. Our daughter's band is pink camo. Today at our oldest's daughter's soccer game she wore a pink camo shirt also. People honestly kept asking me where I got such a cool hat to match the shirt! I agree with Carol G too. Whenever someone asks I try to think of it as a chance to prevent it from happening to someone else or getting the word out for babies who might need this treatment. There used to be cards in the files section that explained plagiocephaly. You could print them out and hand them out when people asked so you didn't have to explain it each time. , I think Beck made it. Do you know where it is? I can't find it! Mom to Dane (DOC Grad 02) and Cece (DOC Band 9/02) --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Carol, I noticed that each of my banded babies like the stares. They love the attention. I love seeing people's faces when they look at Cece not understanding what all of this is about. She'll flash a huge smile and she gets one right back! Sounds like Dylan did great last night in his band! Mom to Dane (DOC Grad 02) and Cecelia (DOC Band 9/05) > Hi....my son just got the DOC band yesterday and I am in the same boat...( > afraid to go out)..but you will get responses from moms who have been > through this....and I know we have to go out sometime! Like they said, it is > a way to educate the public too....My husband isnt afraid, he said " I am > not going to hibernate my son! " LOL.....I guess it is something new to get > used to.....Good luck! Carol ( mom to Dylan, 5 1/2 mos, Doc band 9/30/05) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Thanks for the advice. Her helmet came molded with a pattern on it, looks cute.rmanias <manias@...> wrote: I would recommend decorating the helmet. It really makes the whole situation so much more comfortable. Our daughter's band is pink camo. Today at our oldest's daughter's soccer game she wore a pink camo shirt also. People honestly kept asking me where I got such a cool hat to match the shirt! I agree with Carol G too. Whenever someone asks I try to think of it as a chance to prevent it from happening to someone else or getting the word out for babies who might need this treatment.There used to be cards in the files section that explained plagiocephaly. You could print them out and hand them out when people asked so you didn't have to explain it each time. , I think Beck made it. Do you know where it is? I can't find it!Mom to Dane (DOC Grad 02) and Cece (DOC Band 9/02)> Hello everyone.> I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 This is all so new to me, it is so nice to see all of the support groups online, it sure helps. Carol, let me know how it goes! (mom to , 6 1/2 months, Hanger Band 9/27/05) > Hi....my son just got the DOC band yesterday and I am in the same boat...( > afraid to go out)..but you will get responses from moms who have been > through this....and I know we have to go out sometime! Like they said, it is > a way to educate the public too....My husband isnt afraid, he said " I am > not going to hibernate my son! " LOL.....I guess it is something new to get > used to.....Good luck! Carol ( mom to Dylan, 5 1/2 mos, Doc band 9/30/05) > Helmet > > > > Hello everyone. > > I am a first time mother who self diagnosed her daughter with > > plagiocephaly and torticollis. Does anyone have any suggestions on > > making the helmet process a little smoother. My daughter has only had > > it on for 4 days now, and I am still uneasy about taking her out in > > public. Any advice? > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 Taking her out will get easier. You will get to the point that you don't even know why people are staring...lol! I think a lot of moms here self diagnosed their babies. Our ped told us about the flat spot, but he never said the word plagiocephaly to me so I found that out on my own and insisted on getting him in his band. I just wanted to welcome you to the group, these ladies all know what you're going through, because we're all going through the same thing, so any questions you have please post them!! Lacy Waydon 11 months DOCband since 6/20--grad on 10/14 --- In Plagiocephaly , " roldanfam2 " <roldanfam2@y...> wrote: > Hello everyone. > I am a first time mother who self diagnosed her daughter with > plagiocephaly and torticollis. Does anyone have any suggestions on > making the helmet process a little smoother. My daughter has only had > it on for 4 days now, and I am still uneasy about taking her out in > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi. I would agree with what Lacy said. My son will be in his helmet three weeks Wednesday. Our first trip out in public was to the mall last week. I thought I would be really tense, but I was fine. I just chose to not look for people staring. I know it's hard, but try to just focus on your daughter/family when you are out. They are the most important ones! Also, I would decorate the helmet. It looks less scary and " medical, " plus it's really therapeutic to paint/put stickers on. Good luck! mom of Andy and Ella, 8 mos. > > Hello everyone. > > I am a first time mother who self diagnosed her daughter with > > plagiocephaly and torticollis. Does anyone have any suggestions on > > making the helmet process a little smoother. My daughter has only had > > it on for 4 days now, and I am still uneasy about taking her out in > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Hi. I would agree with what Lacy said. My son will be in his helmet three weeks Wednesday. Our first trip out in public was to the mall last week. I thought I would be really tense, but I was fine. I just chose to not look for people staring. I know it's hard, but try to just focus on your daughter/family when you are out. They are the most important ones! Also, I would decorate the helmet. It looks less scary and " medical, " plus it's really therapeutic to paint/put stickers on. Good luck! mom of Andy and Ella, 8 mos. > > Hello everyone. > > I am a first time mother who self diagnosed her daughter with > > plagiocephaly and torticollis. Does anyone have any suggestions on > > making the helmet process a little smoother. My daughter has only had > > it on for 4 days now, and I am still uneasy about taking her out in > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Hi, I agree with the previous posters. It does get easier. Decorating helps break the ice especially if you include her name on the front. Folks were always coming up to us and greeting na by name. She just loved all of the attention. In time I forgot she even had it on. Kiersten, 4 months, tort & repo na 2 yrs (DOC Grad) www.thefilyaws.com/plagio.html > > > Hello everyone. > > > I am a first time mother who self diagnosed her daughter with > > > plagiocephaly and torticollis. Does anyone have any suggestions > on > > > making the helmet process a little smoother. My daughter has > only had > > > it on for 4 days now, and I am still uneasy about taking her out > in > > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 When I am out in public and people are looking at Aidan's helmet, I just think about what a perfect head he is going to have in about 5 weeks. Also, I look around at the other kids. Obviously, some of them are going to have misshapen heads because I never see any of them in helmets and since plagio effects 1 in 50 (something like that), we should be seeing more babies in helmets but we don't. Therefore, I convert my upset feelings and just feel sorry for those parents who are uneducated now but will likely later in life learn what Aidan's helmet was for when their kids are being teased. I know it's not the most adult behavior, but it gets me through my outings easier. > > > > Hello everyone. > > > > I am a first time mother who self diagnosed her daughter with > > > > plagiocephaly and torticollis. Does anyone have any > suggestions > > on > > > > making the helmet process a little smoother. My daughter has > > only had > > > > it on for 4 days now, and I am still uneasy about taking her > out > > in > > > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 When I am out in public and people are looking at Aidan's helmet, I just think about what a perfect head he is going to have in about 5 weeks. Also, I look around at the other kids. Obviously, some of them are going to have misshapen heads because I never see any of them in helmets and since plagio effects 1 in 50 (something like that), we should be seeing more babies in helmets but we don't. Therefore, I convert my upset feelings and just feel sorry for those parents who are uneducated now but will likely later in life learn what Aidan's helmet was for when their kids are being teased. I know it's not the most adult behavior, but it gets me through my outings easier. > > > > Hello everyone. > > > > I am a first time mother who self diagnosed her daughter with > > > > plagiocephaly and torticollis. Does anyone have any > suggestions > > on > > > > making the helmet process a little smoother. My daughter has > > only had > > > > it on for 4 days now, and I am still uneasy about taking her > out > > in > > > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 -I have also gotten the stares and i just also dont pay attention to it however some times people will say and " are you a little football player or motorcyle guy,etc.I just smile and explain what the helmet is for ,taking the opportunity to educate the people.Also I have found that some older people believe that the helmet has to do with mental retardation and they get that poor you look and dont ask questions so i make sure to let them know that is just not the case,and educate them also.But most people are nice .trust me you wont even think about it after a while.I also am just glad im having his head corrected. -- In Plagiocephaly , " clmacarthur " <clmacarthur@y...> wrote: > When I am out in public and people are looking at Aidan's helmet, I > just think about what a perfect head he is going to have in about 5 > weeks. Also, I look around at the other kids. Obviously, some of > them are going to have misshapen heads because I never see any of > them in helmets and since plagio effects 1 in 50 (something like > that), we should be seeing more babies in helmets but we don't. > Therefore, I convert my upset feelings and just feel sorry for those > parents who are uneducated now but will likely later in life learn > what Aidan's helmet was for when their kids are being teased. I know > it's not the most adult behavior, but it gets me through my outings > easier. > > > > > > > Hello everyone. > > > > > I am a first time mother who self diagnosed her daughter with > > > > > plagiocephaly and torticollis. Does anyone have any > > suggestions > > > on > > > > > making the helmet process a little smoother. My daughter has > > > only had > > > > > it on for 4 days now, and I am still uneasy about taking her > > out > > > in > > > > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 -I have also gotten the stares and i just also dont pay attention to it however some times people will say and " are you a little football player or motorcyle guy,etc.I just smile and explain what the helmet is for ,taking the opportunity to educate the people.Also I have found that some older people believe that the helmet has to do with mental retardation and they get that poor you look and dont ask questions so i make sure to let them know that is just not the case,and educate them also.But most people are nice .trust me you wont even think about it after a while.I also am just glad im having his head corrected. -- In Plagiocephaly , " clmacarthur " <clmacarthur@y...> wrote: > When I am out in public and people are looking at Aidan's helmet, I > just think about what a perfect head he is going to have in about 5 > weeks. Also, I look around at the other kids. Obviously, some of > them are going to have misshapen heads because I never see any of > them in helmets and since plagio effects 1 in 50 (something like > that), we should be seeing more babies in helmets but we don't. > Therefore, I convert my upset feelings and just feel sorry for those > parents who are uneducated now but will likely later in life learn > what Aidan's helmet was for when their kids are being teased. I know > it's not the most adult behavior, but it gets me through my outings > easier. > > > > > > > Hello everyone. > > > > > I am a first time mother who self diagnosed her daughter with > > > > > plagiocephaly and torticollis. Does anyone have any > > suggestions > > > on > > > > > making the helmet process a little smoother. My daughter has > > > only had > > > > > it on for 4 days now, and I am still uneasy about taking her > > out > > > in > > > > > public. Any advice? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.