Re: Re: Educating Doctors Tami

[Guest guest]

:

The article that I have is: " Nonsurgical, nonorthotic

treatmetn of occipital plagiocephaly: what is the

natural history of the misshapen neonatal head? "

written by S. Moss, M.D. I believe it is the

following journal: J. Neurosurg 87; 667, 1997.

My daughter's neurosurgeon told me that this article

supported the assertion that her head would continue

to round out until she was 4 years old. Upon review

of the article, it seems to state that there is no

difference between letting nature take its course and

using a band. The study seems to support that result

for a very narrow group of children who were young and

still had time for aggressive repositioning (average

age was 6 months).

When I got this article, my daughter was almost 11

months and repositioning was no longer working. So we

decided to band. I do not regret it.

Hope this is what you are looking for.

Tami (mom to Annika)

--- stripes6060 <taime@...> wrote:

> Hi Tami,

> Thank you, Thank you,Thank you!

>

>

> > > > Has anyone in the group had any luck in

> educating

> > > his doctors? I'd

> > > like

> > > > to read the study that all the docs. seem to

> cite

> > > that pertains to a

> > > > study group where half the patients were

> banded

> > > and half were not.

> > > The

> > > > results (I'm told) indicated that those banded

> > > were no better

> > > off " years "

> > > > later. If true, these results are hard to

> > > believe, and are at best

> > > > biased.

> > > >

> > > > I'd like to write a lengthy letter to our

> > > neurosurgeon not so much

> > > > chastising him, as educating him, especially

> from

> > > the parental

> > > viewpoint.

> > > > It breaks my heart to hear " our story " over

> and

> > > over across the

> > > country.

> > > >

> > > > Has anyone taken their headsicles in to show

> their

> > > doctors? How

> > > did they

> > > > respond?

> > > >

> > > > Does anyone know of any scientific studies

> proving

> > > that banding is

> > > highly

> > > > effective? Maybe the folks at Cranial Tech.

> can

> > > tell me if they

> > > have

> > > > participated or initiated any studies,

> > > particularly follow-up

> > > studies on

> > > > their patients?

> > > >

> > > > Other than those with craniosynostosis and

> mild

> > > cases, who is NOT a

> > > > candidate for banding, or in other words what

> > > plagio. conditions

> > > can't be

> > > > improved by banding?

> > > >

> > > > Ellen (Mom to Amy- 2nd day in DOC Band and

> doing

> > > great)

> > > > New Jersey

> > > >

> > > >

> > >

> >

>

________________________________________________________________

> > > > GET INTERNET ACCESS FROM JUNO!

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> for

> > > less!

> > > > Join Juno today! For your FREE software,

> visit:

> > > > http://dl.www.juno.com/get/web/.

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Found it! Now I'm going to go read it...here it is guys:

http://www.neurosurgery.org/journals/online_j/feb97/2-2-3.html

tsesq <tsesq@...> wrote: :The article that I have is: "Nonsurgical, nonorthotictreatmetn of occipital plagiocephaly: what is thenatural history of the misshapen neonatal head?" written by S. Moss, M.D. I believe it is thefollowing journal: J. Neurosurg 87; 667, 1997.My daughter's neurosurgeon told me that this articlesupported the assertion that her head would continueto round out until she was 4 years old. Upon reviewof the article, it seems to state that there is nodifference between letting nature take its course andusing a band. The study seems to support that resultfor a very narrow group of children who were young andstill had time for aggressive repositioning (averageage was 6 months). When I got this article, my daughter was almost 11months and repositioning was no longer working. So wedecided to band. I do not regret it. Hope this is what you are looking for. Tami (mom to Annika)--- stripes6060 <taime@...> wrote:> Hi Tami,> Thank you, Thank you,Thank you!> > > > > > Has anyone in the group had any luck in> educating> > > his doctors? I'd > > > like> > > > to read the study that all the docs. seem to> cite> > > that pertains to a> > > > study group where half the patients were> banded> > > and half were not. > > > The> > > > results (I'm told) indicated that those banded> > > were no better > > > off "years"> > > > later. If true, these results are hard to> > > believe, and are at best> > > > biased. > > > > > > > > I'd like to write a lengthy letter to our> > > neurosurgeon not so much> > > > chastising him, as educating him, especially> from> > > the parental > > > viewpoint.> > > > It breaks my heart to hear "our story" over> and> > > over across the > > > country.> > > > > > > > Has anyone taken their headsicles in to show> their> > > doctors? How > > > did they> > > > respond?> > > > > > > > Does anyone know of any scientific studies> proving> > > that banding is > > > highly> > > > effective? Maybe the folks at Cranial Tech.> can> > > tell me if they > > > have> > > > participated or initiated any studies,> > > particularly follow-up > > > studies on> > > > their patients?> > > > > > > > Other than those with craniosynostosis and> mild> > > cases, who is NOT a> > > > candidate for banding, or in other words what> > > plagio. conditions > > > can't be> > > > improved by banding?> > > > > > > > Ellen (Mom to Amy- 2nd day in DOC Band and> doing> > > great)> > > > New Jersey> > > > > > > >> > >> >>________________________________________________________________> > > > GET INTERNET ACCESS FROM JUNO!> > > > Juno offers FREE or PREMIUM Internet access> for> > > less!> > > > Join Juno today! For your FREE software,> visit:> > > > http://dl.www.juno.com/get/web/.> > > > > > > > > > > > __________________________________________________> >