Re: Should I be feeling ill.....

June 21, 2008

Hi, actually i also have had a smimular experience for the last 4 years , doing

well on the same amount of spiro, not until the past 3 months did i have a

change in symptoms, which now will make me pursuit furthur treatment. I had new

MRI revealed a second tumor, Just keep doing well!!!! It is nice to hear others

doing well! Peace, Pam from texas!

catma1162 <beecathy@...> wrote: My adrenal tumour (about 15mm -

I forget actually) is on my left

adrenal,I take 50mg spiro a day. now, I'm not sweating/losing

hair/concerned about my potassium (Was fine at Christmas when I last

saw Consultant). I don't take my BP much (except when I see GP for

other stuff)as it's fine. I'm not worried about what I eat, I just eat

healthily but not to any plan. I'm not having crises of any

kind,losing strength or mobility. I sleep well, I'm not depressed,I

travel around to strange places with no ill effects,I have a full time

Job and have had 3 days off sick in 4 years (for tracheitis), in fact

I don't really think about my condition at all except to remember my

tablet once a day.

Is this normal?? Compared to everyone elses stories where Conn's seems

to be a real daily burden and impacts on every part of life and health

am I a rare event? Is this because I'm in the UK? Our approach to

healthcare is different, we don't have to worry about who to see/where

to go.... we don't expect to have chapter and verse on every little

particle of our blood tests, just it's OK or it's not..... I just feel

so starkly in contrast to the posts I read here. I really don't think

of myself as sick.

Just curious

June 21, 2008

You appear to have early Conn's and trust you have read my evolution

article.

You would fit in the personal aldosteronism group.

Some evolve faster than others for reasons we do not yet know.

DASHing clearly lowers symptoms, no sodium no HTN or low K etc.

CE Grim MD

On Jun 21, 2008, at 4:03 AM, Pam Parrott wrote:

> Hi, actually i also have had a smimular experience for the last 4

> years , doing well on the same amount of spiro, not until the past

> 3 months did i have a change in symptoms, which now will make me

> pursuit furthur treatment. I had new MRI revealed a second tumor,

> Just keep doing well!!!! It is nice to hear others doing well!

> Peace, Pam from texas!

>

> catma1162 <beecathy@...> wrote: My adrenal tumour (about

> 15mm - I forget actually) is on my left

> adrenal,I take 50mg spiro a day. now, I'm not sweating/losing

> hair/concerned about my potassium (Was fine at Christmas when I last

> saw Consultant). I don't take my BP much (except when I see GP for

> other stuff)as it's fine. I'm not worried about what I eat, I just eat

> healthily but not to any plan. I'm not having crises of any

> kind,losing strength or mobility. I sleep well, I'm not depressed,I

> travel around to strange places with no ill effects,I have a full time

> Job and have had 3 days off sick in 4 years (for tracheitis), in fact

> I don't really think about my condition at all except to remember my

> tablet once a day.

>

> Is this normal?? Compared to everyone elses stories where Conn's seems

> to be a real daily burden and impacts on every part of life and health

> am I a rare event? Is this because I'm in the UK? Our approach to

> healthcare is different, we don't have to worry about who to see/where

> to go.... we don't expect to have chapter and verse on every little

> particle of our blood tests, just it's OK or it's not..... I just feel

> so starkly in contrast to the posts I read here. I really don't think

> of myself as sick.

>

> Just curious

>

June 21, 2008

catma1162, I think it is wonderful that you are doing so well.

I do not think that the mode of healthcare delivery has anything to do with

the severity of one's disease. Because we are able to obtain all our

records, go to any physician we please, and do our own study, it cannot be

concluded that we make ourselves sicker. I have had too many wrong

diagnoses to trust any physician to take care of me. I spent 14 years on

powerful NSAIDS for a disease I never had. That was back when I believed my

doc when he said something was okay or it was not. Whether in the UK or US,

one out of every two physicians graduated in the bottom 50% of his or her

class

We have another member on the board from the UK. He just had an

adrenalectomy without AVS and is now having symptoms again. He didn't get

prior AVS because the all-knowing powers wouldn't allow it (or didn't want

to spend the money on it).

If you remember, Helen in Scotland was not allowed to have the pathology

report of her adrenalectomy and now, the superior, all-knowing powers have

lost it.

I say " phooey " to a system that treats people like stupid children.

Anyway, that's my rant for the day. I'm happy you are doing well.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of catma1162

My adrenal tumor (about 15mm - I forget actually) is on my left

adrenal,I take 50mg spiro a day. now, I'm not sweating/losing

hair/concerned about my potassium (Was fine at Christmas when I last

saw Consultant). I don't take my BP much (except when I see GP for

other stuff)as it's fine. I'm not worried about what I eat, I just eat

healthily but not to any plan. I'm not having crises of any

kind,losing strength or mobility. I sleep well, I'm not depressed,I

travel around to strange places with no ill effects,I have a full time

Job and have had 3 days off sick in 4 years (for tracheitis), in fact

I don't really think about my condition at all except to remember my

tablet once a day.

Is this normal?? Compared to everyone elses stories where Conn's seems

to be a real daily burden and impacts on every part of life and health

am I a rare event? Is this because I'm in the UK? Our approach to

healthcare is different, we don't have to worry about who to see/where

to go.... we don't expect to have chapter and verse on every little

particle of our blood tests, just it's OK or it's not..... I just feel

so starkly in contrast to the posts I read here. I really don't think

of myself as sick.

Just curious

June 21, 2008

Except for Yale which does not grade medical students at all so all

graduate in the top 100% (or lower 100%).

OTHO I would suspect that most Drs graduated from the upper 10% of

their college class.

On Jun 21, 2008, at 4:19 PM, Valarie wrote:

> catma1162, I think it is wonderful that you are doing so well.

>

> I do not think that the mode of healthcare delivery has anything to

> do with

> the severity of one's disease. Because we are able to obtain all our

> records, go to any physician we please, and do our own study, it

> cannot be

> concluded that we make ourselves sicker. I have had too many wrong

> diagnoses to trust any physician to take care of me. I spent 14

> years on

> powerful NSAIDS for a disease I never had. That was back when I

> believed my

> doc when he said something was okay or it was not. Whether in the

> UK or US,

> one out of every two physicians graduated in the bottom 50% of his

> or her

> class

>

> We have another member on the board from the UK. He just had an

> adrenalectomy without AVS and is now having symptoms again. He

> didn't get

> prior AVS because the all-knowing powers wouldn't allow it (or

> didn't want

> to spend the money on it).

>

> If you remember, Helen in Scotland was not allowed to have the

> pathology

> report of her adrenalectomy and now, the superior, all-knowing

> powers have

> lost it.

>

> I say " phooey " to a system that treats people like stupid children.

>

> Anyway, that's my rant for the day. I'm happy you are doing well.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of catma1162

>

> My adrenal tumor (about 15mm - I forget actually) is on my left