Re: CranioCap (another orthosis) for beck

[Guest guest]

Pattie,

Thanks for sharing your story- your a great mom to continue to go the

distance!! It's really great to hear that he has been discharged from any

further physical pt- great news!!! Hopefully will just be a late

talker- my brother did not talk at 2 (we are twins) and I was his translator

for baby babble. I think all kids are different, and maybe since he was a

late starter on other milestones, its just one more thing to worry about

until all of a sudden he's picking it up! Hang in there!

' mom

[Guest guest]

> Atleast tell us your story:-)

> beck

I'm sorry, here's 's story-

My son was born 8-24-00. He had jaundice in the first few

days and had photolight therapy. Then at 2 weeks old- severe reflux

began that lasted until he was just over 1 year old. Allergy to milk

developed (he still has that). At two months old his head began

tilting all the time to the left. Pediatrician said " it's nothing " so

he didn't get diagnosed with torticollis and plagiocephaly until 6

months old. We went to therapy but our insurance (BCBS) only allowed

10 visits. Somehow we squeezed 14 out of them. Then we turned to

Alabama's Early Intervention services where has been treated

ever since. suffered from chronic ear infections and

developmental delays in addition to everything else. He started

crawling at 9 months, walking at 14-1/2 months old, running at 15

months. He wasn't very far off developmental wise but it was enough

to get services with EI. They have provided us with a PT and an OT.

The PT released officially released him last month because she can no

longer say he is behind physically. (YEAH) The OT still sees him

because had some sensory problems (not sure at this point if

it is sensory integration dysfuntion or not) and next month

will see a speech therapist since he babbles, but doesn't make any

sense.

I will be glad when the day comes when we don't have to see any more

therapists or be going to the doctor every other week. Of course,

when that happens, what will I ever do with the extra time?

Pattie

[Guest guest]

> I will be glad when the day comes when we don't have to see any more

> therapists or be going to the doctor every other week. Of course,

> when that happens, what will I ever do with the extra time?

>

> Pattie

How about a day at the spa for mommy!!!

[Guest guest]

you certainly went thorough a lot with your little miracle boy there- thank

you for sharing your story with me:-)

beck

[Guest guest]

In a message dated 6/27/2002 8:36:38 AM Central Daylight Time, littletwisters@... writes:

I will be glad when the day comes when we don't have to see any more

therapists or be going to the doctor every other week. Of course,

when that happens, what will I ever do with the extra time?

Pattie

I say have another baby- my solution to everything:-)

Beck

[Guest guest]

In a message dated 6/27/2002 8:36:38 AM Central Daylight Time, littletwisters@... writes:

longer say he is behind physically. (YEAH) The OT still sees him

because had some sensory problems (not sure at this point if

it is sensory integration dysfuntion or not) and next month

will see a speech therapist since he babbles, but doesn't make any

sense

congrats on the PT graduation- I don't think it is uncommon for kids to do this excel in one skill before mastering the next- I am very interested to know what the ST says though. Please let us know!

beck

[Guest guest]

Pattie,

Thanks for sharing 's story with us. Sounds like you are a great mom that

is doing all she can for her boy. seems to be coming along with his gross

motor skills very well. My daughter, , was not big on talking either. She

was almost two before it really kicked in for her. She just didn't seem to want

to talk. She was busy learning to walk, run, gallop, jump you name it! She

seemed to be more interested in that then talking. I have heard that kids often

will focus on one set of skills before moving to another. Also, had severe

and chronic ear infections. We took her into the ENT when she was about 18

months and they could not get a hearing test score at all. She did not (or would

not) respond to their stimuli. The ear infections had been severe and ongoing

long enough to warrant tubes and we did that when she was about 19 months old.

Her speech took off from there and we have had only 2 ear infections since she

got the tubes about a year ago. The ped also started her on Zyrtec for allergies

and the combination of the two has been a Godsend.

I think it is a good idea to get a speech eval. That way you have a better idea

of what is going on and will probably some great tips and hints for helping

develop his speech. Let us know how that goes.

Marci (Mom to )

Oklahoma