Re: question about torticollis

[Guest guest]

Charlotte,

I don't know if this would be a sign of tort or not. I've never had

to deal with tort, so I really don't have a wealth of information on

it. Hopefully someone here with more experience (!!) will chime

in and help you out here. Have you asked your ped about it? I'd be

interested in hearing what the ped has to say.

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Our 14 month old recently adopted daughter has been diagnosed with

> plagio and we will take her for a second opinion soon in hopes of

> getting some treatment options, but my question is about

> torticollis. While her head does not tilt and she seems to look

both

> directions well, she DOES hold her head forward most of the time so

> her neck is not in line with her spine. I was just curious to know

> if this was possibly a sign of tort or just something she does--

> perhaps from being in a walker the majority of her first year.

> Many thanks,

> Charlotte

[Guest guest]

Hello

Now I will def not scream at you as I've been in your boat. I know

how hard it can be to do all this stuff on a daily basis, and I

would have to lie if I said I always did it.

I can't stress enough though how important this streching is for

paige. CT I guess told you to do the streches longer. I think what

they really mean is to keep up exersising once the torticollis is

resolved. My daughter had a mild case of tort and we were doing

home streches / PT / OT for about 8months total before they said

that her tort was resolved. I STILL keep a very very close tab on

her position. Sometimes when she sits funny and I see a tilt I

FREAK out, but she is good now.

We did several sets a day with Willow of 5 streches each. So every

session I did 10 streches. When we saw Dr. Blecher (will's cranial

facial doc) he actually told us not only to do one side, but to

strech/strenghten both sides equally so one doesn't overstrech or

get too strong. I fully agree with what he said and we did both

sides for Willow's little neck.

I wish I could tell you that it will get easier, but the fact is

that the streches will only become harder as she grows older and

starts to really dislike what you are doing. You are doing it for

her own good though.

Oh Tummytime allows her to do her own streching as well plus put

EVERYTHING on her bad side. All stimulation. Approach her from her

bad side only so she will alredy know that she has to turn that

way. You will get there.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

--- In Plagiocephaly , " yzagumny " <yzagumny@y...>

wrote:

>

> My daughter Paige was diagnosed with a mild case of torticollis on

> the same day she was diagnosed with mild-to-severe brachy. That

was

> a little over a month ago - to be honest, I still don't really see

> it - they were like " do you see that tilt? has she always had

> that? " . And I'm responing, " tilt? what tilt? "

>

> It's mild enough that we were told only to do exercises at home -

no

> extra PT needed.

>

> She has been wearing a DOCBand for six days now.

>

> Before the band we were probably doing the two sets of exercises 5

> times a day. (Not with every diaper change but I thought 5 times

a

> day was good).

>

> Well now that she has the band, we're struggling with a new set of

> issues, like getting it on her, so I have to admit, I've laxed a

bit

> on the exercises because you have to take the band on and off and

> once it's off, it's a struggle to get it back on. We did them 5

> times yesterday but not once today.

>

> I can see the brachy so I'm like " we're keeping the band on and

> getting this fixed! " but I don't see the torticollis so I'm sort

of

> unmotivated to do the exercises because she just SCREAMS while I

do

> them and them fights me to get the band back on.

>

> Can someone who's had experience with mild torticollis tell me how

> long you had to do these exercises and did you notice a difference?

>

> The person at Dallas Medical Center said we would need to do the

> exercises for 4 months and the person at CT told us 18 months.

What

> the heck?

>

> Maybe I'm just looking for someone to yell at me so I'll get back

on

> the wagon with the exercises but I'm really just not seeing the

> purpose here...

>

> Thanks!

>

> -, Mommy to Paige (DOCBanded 7/12/4, almost 9 months old)