Val's story (cont)

[Guest guest]

I went to my endo today to get her signature and a lab order for MEN1

testing. She seems far more knowledgeable than last time. I still don't

think she's seen much PA. She seems so over-loaded.

She tried to talk me out of MEN1 testing because of the cost. She wasn't up

on any connection of parathyroid and adrenal adenomas so I related the

research. In the end, my husband and I decided I would have it done, just

in case I could have passed any mutations onto my children.

I asked her about AVS. She said, yes they do it at CU Medical. (At that

point, I had a seizure.) She said was thinking about sending another

patient there for AVS. (Another seizure.) I asked her about Mayo. She

said, " Sure, but be sure you see Dr. Young. " I asked her if she could help

me to see him. She said, " Sure, no problem, just let me know what you want

to do and I'll set it up. " (At that point, I had another seizure.)

She wants me to see a shrink and get on a mood stabilizer drug. I am going

to do that, at least until I stabilize. She thinks if I could get a full

night's sleep, I could cope better. I certainly don't want to stay on psych

drugs forever. I've wondered if my night sweats are psych related. In the

day, when I get upset, I get sweats, too, but they aren't as bad.

My BP was not so good in her office, measured on the bench with my feet

hanging down. At home, it is running 144 when I'm anxious down to 123 when

I'm (relatively) at ease. I can predict where it will be. I upped spiro to

100 today.

So now I'm thinking.

Val