Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 HI Tony, I read your post and I got the goose bumps. You must have some awesome parents. Your whole outlook is wonderful. It's hard to believe that your only 17. I'm sure that whatever you chose to do will be the RIGHT thing for you. I wish you all the best and I hope your going to stick around. > > Hello and welcome! I'm sorry to hear of the problems you are > experiencing now > > due to plagio. It further confirms in my mind that treating my > baby was the > > best thing I've ever done. It all fairness to your parents, the > kind of > > helmet/band therapy that our children go through today is very new > and > > probably wasn't even around when you were a baby. > > > > It seems as if your concerns are very serious and significant to > you. I would > > highly recommend seeing if you could have a consultation with a > neurosurgeon > > or a cranial-facial specialist if for no other reason then to get > some > > answers to the excellent questions you pose about skull growth and > the shape > > of your brain. Have you noticed any other medical conditions that > might be > > related to the plagio? > > > > Best of luck to you and I hope you will stick with our group. > > > > Marci (Mom to ) > > Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Thanks for sharing such personal information with us Tony. You definitely have a positive outlook on things. That's very important. The best news is that you've never had any medical problems as a result of your untreated plagio. Many of our group's parents are concerned about that possibility. Thanks again. Debbie Abby's mom DOCGrad MI > > Hello and welcome! I'm sorry to hear of the problems you are > experiencing now > > due to plagio. It further confirms in my mind that treating my > baby was the > > best thing I've ever done. It all fairness to your parents, the > kind of > > helmet/band therapy that our children go through today is very new > and > > probably wasn't even around when you were a baby. > > > > It seems as if your concerns are very serious and significant to > you. I would > > highly recommend seeing if you could have a consultation with a > neurosurgeon > > or a cranial-facial specialist if for no other reason then to get > some > > answers to the excellent questions you pose about skull growth and > the shape > > of your brain. Have you noticed any other medical conditions that > might be > > related to the plagio? > > > > Best of luck to you and I hope you will stick with our group. > > > > Marci (Mom to ) > > Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Tony, thank you so much for sharing your story and your personal feelings. I was very moved. You can ramble anytime. We are here to listen and offer support when needed. There is also alot of experience on this board as you probably have seen. You sound like you made peace with your parents. It is only normal to blame them initially and it takes a strong and wise person to move beyond that and look at the positives and the good they did for you. They sound like wonderful people just by the way they raised you. Wish you all the best and feel free to chat here anytime. ann/ NJ > Message: 6 > Date: Sun, 07 Jul 2002 19:45:25 -0000 > From: " doogie0003 " <doogie@...> > Subject: Growing up w/ Plagio > > This is in response to , Marcie, and Kellie. > > I was never very sensitive about the shape of my head when I was > little. I remember people would point it out and mention how " cute " > it was probably because I looked like a cartoon character with a big > head. I also remember this one time we went horse back riding and > my mom's friend couldn't get the helmet on my head, it was rather > funny at the moment and it didn't matter much since I wouldn't have > worn it anyway. > > In fifth grade someone pointed out that the back of my head was > flat, he called me names and pranced around. You couldn't see it > but it was pretty flat to the touch. That was probably the first > time I've ever really noticed it. So I took it as constructive > criticism and I started seeking ways to make my head look " normal. " > I sincerely believe that I started the trend with hair gel, when I > first used it my friends criticized me of using " girly products, " > but not a year after everyone started gelling their hair to look > cool. I soon grew out of that, now I pretty much keep my hair short > by getting it cut every week (I stopped going to Great Clips because > some trainee cut my neck, but that's a different story.) > > Has it affected me psychologically and hindered some self- > confidence? Of course. Am I emotionally traumatized for life? > Probably not. No one can tell that I have plagiocephaly from > looking at me now, but I seem to have developed an obsessive > compulsive disorder towards getting my hair cut every week. Sure I > can't get a helmet on and a baseball cap doesn't fit too well, but > there's more things to life than simple aesthetics (this contradicts > with my previous posts of getting surgical help, but... we all want > to look " normal " to some degree.) > > As for related medical conditions, I have always been in good > health. I did at one point feel that I was always " half or 3/4 > conscious " and my brain is " restricted " due to the flattening of my > head. I think this was purely psychological as nothing showed up on > the CAT scan and it only started after I noticed my plagiocephaly. > > I don't know whether I've answered any of your concerns here or > simply rambled on about my personal life. Even if your kids do grow > up with plagiocephaly, it doesn't mean that you're a bad parent. > Although I admit I did blame my parents at one time, I know they've > done everything they could and raised me to the best of their > abilities. Growing up can be tough, as a parent, all you have to do > is provide emotional support and be understanding when your children > need it. I'm sure they'll all grow up to be alright, I did. > > Best of luck to all of you, > > Tony > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Tony, I have to say that you are quite an inspiration. And please do ramble on as long as you want! They say that life is 10% what happens to you and 90% attitude. Attitude is almost everything. Armed with an attitude like yours, and being in your teens, I'd say, the world and your future is limitless in its possibilities. Rock on... (Kale's mom) > > Hello and welcome! I'm sorry to hear of the problems you are > experiencing now > > due to plagio. It further confirms in my mind that treating my > baby was the > > best thing I've ever done. It all fairness to your parents, the > kind of > > helmet/band therapy that our children go through today is very new > and > > probably wasn't even around when you were a baby. > > > > It seems as if your concerns are very serious and significant to > you. I would > > highly recommend seeing if you could have a consultation with a > neurosurgeon > > or a cranial-facial specialist if for no other reason then to get > some > > answers to the excellent questions you pose about skull growth and > the shape > > of your brain. Have you noticed any other medical conditions that > might be > > related to the plagio? > > > > Best of luck to you and I hope you will stick with our group. > > > > Marci (Mom to ) > > Oklahoma Quote Link to comment Share on other sites More sharing options...
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