Re:

[Guest guest]

Anne Marie,

Thanks for your reply!! I am waiting for EI to call me back to set

up an appt. I am in Lafayette Hill, west of Philly. What book are

you referring to? The " KKR's Tort book " ??

Thanks

- Logan 5 months

PA

> ,

>

> Yes, I would recommend EI. If he qualifies, they will provide free

PT for Logan. EI told me that most tort babies will qualify, some

states automatically cover babies that have torticollis.

was considered to have a 25% developmental delay in his gross motor

skills (he rolled over at 4 mos. but only to one side and from only

his back to his belly - then he would get stuck and start to cry - he

also hated it on his tummy!!) He was evaluated by EI at 5 1/2 mos.

of age.

>

> If you do qualify, just make sure the PT that they assign you knows

what he/she is doing. Our first PT (thru EI) was supposed to

be " very good " and experienced with tort. I'm sure she did help

some, but she told us NOT to do any

stretches/strengthening at home! She would see him every other week

(unless something came up and she had to reschedule - which happened

quite often) at his daycare. His daycaregiver (who me and

loved to death - now goes to another daycare,

but if I could have taken Mrs. Manning along -- I most certainly

would have!!) would tell me that his PT hardly did anything to

. She would do a little stretching and some massage and

then most of the time she would " monitor " him. She told my husband

and I that had mild tort and that we could actually do

more harm than good by " over-stretching " him. She said that the

therapy that she gave him (every other week) was all that he needed.

She did have us do passive exercises and re-positioning at home. But

that just wasn't enough. Twice I called a meeting with her and her

supervisor (EI social worker) and questioned the fact that everything

I read was telling me that the at-home therapy with the parents is of

utmost importance. Again, she said not to do it -- what she was

doing was enough. Being a layperson - we listened her. I'm ashamed

to say, we were relieved that we DIDN'T have to do anything at home.

I feel a lot of guilt about that to this day.

> Anyway, I've went on long enough, and most of the people in this

group have heard this all before. My next step was to set up an

appt. with Karmel-Ross (Tort guru) in Cleveland for an

evaluation/consultation. After our visit with her, I contacted EI

and we got rid of his PT. The second PT we got was inexperienced

with tort (but willing to learn). He knew what needed done, but he

was just a little too rough with . We also had him

dismissed through EI - he completely understood the reasons behind it.

> I strongly recommended EI, just be on top of things when it comes

to the therapist they assign you. I wish I would have been in the

very beginning of 's PT. By the time we got the second

one -- I knew not to mess around and this PT actually welcomed any

advice/tips that I would give him about tort. (I even bought him

KKR's Tort book for him to learn more!)

> Good-luck to you and Logan, let us know how you make out with EI.

>

> AnnMarie and (17 mos.)

> STARgrad

> Tort (1 yr. in PT tomorrow, July 10th)

> PS -- After you sign your name I see you put " PA " . Do you live

in Pennsylvanian? If so, where are you? I live about 1 hr. west of

Pittsburgh.