Re: evaluation...to answer some of your questions.

[Guest guest]

Christy,

I'm glad you are feeling better about everything today. It sounds to me like

you are right on track and have a lot of options still ahead of you! Enjoy

your holiday and I look forward to seeing some pictures!

Marci (Mom to )

Oklahoma

[Guest guest]

Thanks for your concern, Ladies This is such a good group to share

experiences with! I'm doing much better today as I've talked myself

into believing again that it is all plagio/tort related and not a

birth defect. We'll go back to CT in August to remeasure. Plus, I've

sent a certified letter & pictures to the specialist asking him to

address Abby's wierd ear in the report his team was preparing for us.

Abby has all the typical asymmetries that everyone talks about here:

ear misalignment, fuller cheek, smaller eye, bulging forehead (not

anymore), and a once bald/now fuzz covered flat spot behind her right

ear. It's the wierd & tilted ear, flattened jaw, and pull on the eye

that throw things off a bit.

The specialist had said that it wasn't so much that one side of

Abby's face was smaller, but that plagio was making the other

side " bigger " . This all made sense, but then...Charlotte at CT said

it was the tort pulling the ear, jaw and eye to make the other

side " smaller " . Maybe they're both right and that's why she looks so

crooked? I hope.

Charlotte seemed extremely confident that I'd see big improvements

with the stretching, PT and repositioning. " And then if I still

wasn't satisfied we could talk about banding " . So we have options and

things we can do. I guess I just needed a couple of days to process

things and get my focus. I happen to have a gift for convincing

myself of the worst-case scenario instead of a better-case one.

Thanks for listening. I'll have to take some pics and get your input.

Have a great 4th!!!

Christy (mom to Abby ~ getting very, very close to 4 months and

learning to assert her will more and more each day!)

[Guest guest]

Christy sounds like you are on the right track:-)

beck

[Guest guest]

In a message dated 7/3/2002 11:53:44 PM Eastern Daylight Time, christyludwig@... writes:

The specialist had said that it wasn't so much that one side of

Abby's face was smaller, but that plagio was making the other

side "bigger". This all made sense, but then...Charlotte at CT said

it was the tort pulling the ear, jaw and eye to make the other

side "smaller". Maybe they're both right and that's why she looks so

crooked? I hope.

Christy,

In my experience with both tort and plagio- these are very true statements. That's what was so confusing to us- trying to figure out what was causing what- but it really does make sense when you think about it. I am firmly convinced that because tort was a factor, it was a combination of agressive pt, massage, and the DOC band that fixed the asymmetry problems you described, with my son. At 4 months, you have a good month to really try repositioning, stretching, etc. Evaluate your progress with pictures and if your not seeing any major results, I would opt for the band- this may allow you to concentrate more heavily on the tort while the helmet works its magic (and prevention of progression) on the plagio. Good luck and keep us posted!

' Mom