Re: Need some Good Luck Vibes

[Guest guest]

Trisha!!!

I'm definitely praying for you!!! Please let us know as soon as you know

something..but you are in my thoughts!!

Mom to

[Guest guest]

Oh Trisha

I was unaware of your condition & I'm so sorry to hear about it. I

can imagine how totally freaked out & worried you are right now. And

to not get the results til next Tues., it will definitely be a VERY

long & worrisome weekend for you & your family.

I am sending EVERY possible good luck vibe I can your way right now.

I'll also say a prayer for you. HUGS HUGS & MORE HUGS

But I am happy to hear your Grandma is doing so well....it sounds

like you have a very strong family, so I'm sure you'll be just fine

also!

Enjoy Braeden in his band for the final week. I can't believe he's

almost done already! What terrific news. Can't wait to see pics of

his new round head

Hugs again....hang in there.

Debbie Abby's mom DOCgrad

MI

>

> Hey everyone,

> I hate to ask you guys this but I am in need of some GLV here. I

dont know how many of you may or may not know but I am 33 and was

diagnosed with discoid lupus (of the skin) 10 years ago then 5 years

later it was diagnosed as systemic (can affect my vital organs) so

for the last 5 years my ANA Lupus antibodies have been there w/no

real signs of worsening. Last week I went in for my every 3 mo blood

work, 2 days later I got a call that they were abnormal I needed to

go back for a follow up. Well it was my liver the normal high level

is 40 (thats what they told me) and I was at 78 so I went in for the

re-test and it has gone up even more I didnt ask what it went up to

because I was so scared I didnt really want to know. Anywho, I had

to go back again yesterday to have a full liver work up dont and a

full hepatitis panel done. The Nurse said they dont think it is Hep.

but they have to run it to rule it out before they refer me to a

specialist. I wont know the results of these until next Tuesday so I

am a little scared. I have 2 young kids and I am so afraid my lupis

is getting worse and setting into my liver. I hate to seem like I

always have " Bad News " but I cant help it. On a good note my Grandma

is doing Great, crabby as ever and Braeden only has 1 more week left

of the helmet and has a beautiful head! stinky but beautiful. So if

you guys can just keep your fingers crossed for me. And if anyone

here knows about Lupus and your Liver PLEASE let me know what you

do. Thanks Again, Trisha ( mom of Braeden and Drake)

>

>

>

>

> For more plagio info

[Guest guest]

Trisha,

Wow - you are really going through alot right now. I can't imagine how anxious

and scared you are right now - I would be going out of my mind!! I will be

sending all the positive energy I can your way. I hope you will let us know what

you find out.

Marci (mom to )

Oklahoma

[Guest guest]

Marci,

I know I feel like everytime I turn around I am having a

crisis...thats why I didnt post it when I first found out but then

after yesterday I just wanted see if anyone would have some

information and could send me some good vibes...My lupus has scared

me from the day I got diagnosed but I have always kept it in and not

shown it but now I am just scared to death. Thanks for the

GLV...Trisha

> Trisha,

>

> Wow - you are really going through alot right now. I can't imagine

how anxious and scared you are right now - I would be going out of my

mind!! I will be sending all the positive energy I can your way. I

hope you will let us know what you find out.

>

> Marci (mom to )

> Oklahoma

[Guest guest]

Trisha,

I'm so sorry. I'm not only sending you good vibes, I'm praying for

you too!

>

> Hey everyone,

> I hate to ask you guys this but I am in need of some GLV here. I

dont know how many of you may or may not know but I am 33 and was

diagnosed with discoid lupus (of the skin) 10 years ago then 5 years

later it was diagnosed as systemic (can affect my vital organs) so

for the last 5 years my ANA Lupus antibodies have been there w/no

real signs of worsening. Last week I went in for my every 3 mo blood

work, 2 days later I got a call that they were abnormal I needed to

go back for a follow up. Well it was my liver the normal high level

is 40 (thats what they told me) and I was at 78 so I went in for the

re-test and it has gone up even more I didnt ask what it went up to

because I was so scared I didnt really want to know. Anywho, I had

to go back again yesterday to have a full liver work up dont and a

full hepatitis panel done. The Nurse said they dont think it is Hep.

but they have to run it to rule it out before they refer me to a

specialist. I wont know the results of these until next Tuesday so I

am a little scared. I have 2 young kids and I am so afraid my lupis

is getting worse and setting into my liver. I hate to seem like I

always have " Bad News " but I cant help it. On a good note my Grandma

is doing Great, crabby as ever and Braeden only has 1 more week left

of the helmet and has a beautiful head! stinky but beautiful. So if

you guys can just keep your fingers crossed for me. And if anyone

here knows about Lupus and your Liver PLEASE let me know what you

do. Thanks Again, Trisha ( mom of Braeden and Drake)

>

>

>

>

> For more plagio info

[Guest guest]

Trisha,

I am definitely sending you tons of good luck vibes. I can't imagine how stressful this must all be for you. I am so happy to hear that your grandmother is doing so much better! And I can't believe Braeden only has a week left in his band. That went so fast!!

Hang in there sweetie and let us know what you find out on Tuesday. Sending you lots of good luck vibes and ((((HUGS))))

Niki

Kaylie & Danny (STAR grads)

Trisha <ttm41@...> wrote:

Hey everyone, I hate to ask you guys this but I am in need of some GLV here. I dont know how many of you may or may not know but I am 33 and was diagnosed with discoid lupus (of the skin) 10 years ago then 5 years later it was diagnosed as systemic (can affect my vital organs) so for the last 5 years my ANA Lupus antibodies have been there w/no real signs of worsening. Last week I went in for my every 3 mo blood work, 2 days later I got a call that they were abnormal I needed to go back for a follow up. Well it was my liver the normal high level is 40 (thats what they told me) and I was at 78 so I went in for the re-test and it has gone up even more I didnt ask what it went up to because I was so scared I didnt really want to know. Anywho, I had to go back again yesterday to have a full liver work up dont and a full hepatitis panel done. The Nurse said they dont think it is Hep. but they have to run it to rule it out before they refer me to a specialist. I wont know the results of these until next Tuesday so I am a little scared. I have 2 young kids and I am so afraid my lupis is getting worse and setting into my liver. I hate to seem like I always have "Bad News" but I cant help it. On a good note my Grandma is doing Great, crabby as ever and Braeden only has 1 more week left of the helmet and has a beautiful head! stinky but beautiful. So if you guys can just keep your fingers crossed for me. And if anyone here knows about Lupus and your Liver PLEASE let me know what you do. Thanks Again, Trisha ( mom of Braeden and Drake) For more plagio info

[Guest guest]

HI Trisha,

I'm new here but just wanted to say I'm sorry you are having such a hard

time dealing with Lupus. I'm worried I'll be going down that road soon. I

have a couple of autoimmune problems - which actually kept me from getting

pregnant for 6 years! It also affects my insulin levels and my thyroid. I

also had to take low-dose aspirin throughout my pregnancy so I wouldn't

miscarry. Luckily it worked and my son, Mack, is 7 weeks today.

I am positive for ANA (antinuclear), anticardiolipin and peroxidase

(thyroid/Hashimoto's Disease) antibodies. I'm sure those pesky Lupus

Anticoagulant ones will show up someday. Is that what your test showed?

Anyway, hang in there. I hope things don't get worse and I pray that you're

liver is fine.

in NH

[Guest guest]

,

I'm sorry to here you to have autoimmune problems. I never had a hard time getting prego I had to have sonos bi-weekly and had to take baby asprin and iron throughout both of my pregnancys I also have sjogrens (spelling) I know how to say it but not spell it. I first found out I had disoid when I got the butterfly rash and it wouldnt go away for over a month and I had 2 biopsys done on my face and both were (+) but then ANA was negative for 5 years so they thought I would not have the systemic and then .... there ya go like a slap in the face it shows up...I guess since that was 5 years ago it was time for something else to show up....I am just so scared....I to be honest have blocked it (Lupus & sjogrens) out of my mind and have lived like I dont have any problems because I have always been afraid to face it I have been going every 3 months to have labs run and check in w/my reumatologist but thats it....I guess I have brought it on my self...I hope they dont show up w/you....if you want to talk you can e-mail me privately ....BTW Welcome to our group!!! Trisha

trisham@...

Hanisco <chanisco@...> wrote: HI Trisha,I'm new here but just wanted to say I'm sorry you are having such a hardtime dealing with Lupus. I'm worried I'll be going down that road soon. Ihave a couple of autoimmune problems - which actually kept me from gettingpregnant for 6 years! It also affects my insulin levels and my thyroid. Ialso had to take low-dose aspirin throughout my pregnancy so I wouldn'tmiscarry. Luckily it worked and my son, Mack, is 7 weeks today. :)I am positive for ANA (antinuclear), anticardiolipin and peroxidase(thyroid/Hashimoto's Disease) antibodies. I'm sure those pesky LupusAnticoagulant ones will show up someday. Is that what your test showed?Anyway, hang in there. I hope things don't get worse and I pray that you'reliver is fine.in NHFor more plagio info

[Guest guest]

Trisha,

I am definetly thinking of you and sending you postive vibes your way. I

just heard my boss and co-worker talking about his liver count, and that he

has been using some kind of medicine to raise his enzyme (?) count- but

unfortunately, neither one is here today!!!! If you think this might help

you or is in anyway related, please send me a reminder email and I will find

out what they are taking or talking about! Good luck vibes, good luck

vibes....

' Mom

P.S. Great news about Grandma and a big high five that Braeden will be done

next week!!!

[Guest guest]

Trisha,

Yikes! Girl, you need a break! Do you know what liver test they did that was high? Was it an enzyme or some sort of antibody test? I'm a med tech, and although it's been a few years, I still remember some of my 5 years of college chemistry classes. I also still have a really good clinical chemistry book. Are you looking for any specific information? Let me know what you need and I'll try and come up with some info. Take it easy.

Gail

Need some Good Luck Vibes

Hey everyone, I hate to ask you guys this but I am in need of some GLV here. I dont know how many of you may or may not know but I am 33 and was diagnosed with discoid lupus (of the skin) 10 years ago then 5 years later it was diagnosed as systemic (can affect my vital organs) so for the last 5 years my ANA Lupus antibodies have been there w/no real signs of worsening. Last week I went in for my every 3 mo blood work, 2 days later I got a call that they were abnormal I needed to go back for a follow up. Well it was my liver the normal high level is 40 (thats what they told me) and I was at 78 so I went in for the re-test and it has gone up even more I didnt ask what it went up to because I was so scared I didnt really want to know. Anywho, I had to go back again yesterday to have a full liver work up dont and a full hepatitis panel done. The Nurse said they dont think it is Hep. but they have to run it to rule it out before they refer me to a specialist. I wont know the results of these until next Tuesday so I am a little scared. I have 2 young kids and I am so afraid my lupis is getting worse and setting into my liver. I hate to seem like I always have "Bad News" but I cant help it. On a good note my Grandma is doing Great, crabby as ever and Braeden only has 1 more week left of the helmet and has a beautiful head! stinky but beautiful. So if you guys can just keep your fingers crossed for me. And if anyone here knows about Lupus and your Liver PLEASE let me know what you do. Thanks Again, Trisha ( mom of Braeden and Drake) For more plagio info

[Guest guest]

Hi Trisha

Sorry to hear your news. I sort of understand, when Dylan started his Helmet

treatment i was diagnosed with reactive arthritis caused by a strep throat

infection. What happens is my joints swell up till i am in agony and can

hardly walk. My rheumatologist has got me trying different drugs to control

it. I am the same with 2 youngs boys and worry about the future. i do

realise that what i have is not as serious as your liver. I have to have

monthly blood test too as the drugs i am taking can affect your liver. I

have hoping you get good news Trisha. Hang in there, i am thinking of you.

lots of hugs to you

Kerry - Marcus (3) Dylan (17months)

Calgary,AB

>From: " stripes6060 " <taime@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: Need some Good Luck Vibes

>Date: Fri, 12 Jul 2002 14:37:42 -0000

>

>Trisha,

>I'm so sorry. I'm not only sending you good vibes, I'm praying for

>you too!

>

>

> >

> > Hey everyone,

> > I hate to ask you guys this but I am in need of some GLV here. I

>dont know how many of you may or may not know but I am 33 and was

>diagnosed with discoid lupus (of the skin) 10 years ago then 5 years

>later it was diagnosed as systemic (can affect my vital organs) so

>for the last 5 years my ANA Lupus antibodies have been there w/no

>real signs of worsening. Last week I went in for my every 3 mo blood

>work, 2 days later I got a call that they were abnormal I needed to

>go back for a follow up. Well it was my liver the normal high level

>is 40 (thats what they told me) and I was at 78 so I went in for the

>re-test and it has gone up even more I didnt ask what it went up to

>because I was so scared I didnt really want to know. Anywho, I had

>to go back again yesterday to have a full liver work up dont and a

>full hepatitis panel done. The Nurse said they dont think it is Hep.

>but they have to run it to rule it out before they refer me to a

>specialist. I wont know the results of these until next Tuesday so I

>am a little scared. I have 2 young kids and I am so afraid my lupis

>is getting worse and setting into my liver. I hate to seem like I

>always have " Bad News " but I cant help it. On a good note my Grandma

>is doing Great, crabby as ever and Braeden only has 1 more week left

>of the helmet and has a beautiful head! stinky but beautiful. So if

>you guys can just keep your fingers crossed for me. And if anyone

>here knows about Lupus and your Liver PLEASE let me know what you

>do. Thanks Again, Trisha ( mom of Braeden and Drake)

> >

> >

> >

> >

> > For more plagio info

[Guest guest]

Hi Trisha,

I'm so sorry to hear about your Lupus. I'm sending

you good vibes right now and I'll keep you in my

prayers.

I am glad to here Grandma's better and Braeden's

almost graduated from the band.

, 's mom

Southern California

--- Trisha <ttm41@...> wrote:

>

> Hey everyone,

> I hate to ask you guys this but I am in need of some

> GLV here. I dont know how many of you may or may

> not know but I am 33 and was diagnosed with discoid

> lupus (of the skin) 10 years ago then 5 years later

> it was diagnosed as systemic (can affect my vital

> organs) so for the last 5 years my ANA Lupus

> antibodies have been there w/no real signs of

> worsening. Last week I went in for my every 3 mo

> blood work, 2 days later I got a call that they were

> abnormal I needed to go back for a follow up. Well

> it was my liver the normal high level is 40 (thats

> what they told me) and I was at 78 so I went in for

> the re-test and it has gone up even more I didnt ask

> what it went up to because I was so scared I didnt

> really want to know. Anywho, I had to go back again

> yesterday to have a full liver work up dont and a

> full hepatitis panel done. The Nurse said they dont

> think it is Hep. but they have to run it to rule it

> out before they refer me to a specialist. I wont

> know the results of these until next Tuesday so I am

> a little scared. I have 2 young kids and I am so

> afraid my lupis is getting worse and setting into my

> liver. I hate to seem like I always have " Bad News "

> but I cant help it. On a good note my Grandma is

> doing Great, crabby as ever and Braeden only has 1

> more week left of the helmet and has a beautiful

> head! stinky but beautiful. So if you guys can just

> keep your fingers crossed for me. And if anyone

> here knows about Lupus and your Liver PLEASE let me

> know what you do. Thanks Again, Trisha ( mom of

> Braeden and Drake)

>

>

>

>

> For more plagio info, go to

> www.plagiocephaly.org/support

>