Re: Hello! New here.

[Guest guest]

Hi

Welcome to the group!! I am pretty new myself. I am soooooo happy

to see you have researched this and know as much as you do about it

already. You are in a great position (age wise) to do something

about it. Good luck to you at your appointment and be sure to let us

know how everything turns out!

Kristi

(4) and (9 1/2 mos)

OH

PS - I don't think you're worrying too much at all - you are his

mother and his advocate. Keep it up!!

> Hi there,

>

> My name is (Chris), and I believe my 7 week old son,

Mack, has

> plagio and tort. I had noticed his head was misshapen since birth

but

> figured it was normal since I had a very hard vaginal delivery.

Plus Mack

> was stuck in the same position through most of my pregnancy. Every

> ultrasound from 20 weeks on showed him in the same exact spot.

>

> Soon after birth I noticed his ears were not the same. His right

ear is much

> flatter and larger looking, plus he favored that side and wouldn't

turn his

> head to the left. He's getting better at it now because his crib

mirror is

> on his left side, but always sleeps and does everything looking

right.

> I mentioned these to his pediatrician and she didn't seem

concerned. Just

> said to try to get his attention on the other side so he's turn his

head.

> She told me about tummy time, but only so he'd crawl someday - not

because

> of head shape. I only gave him tummy time for a few minutes 2 times

a day,

> but now I know he needs much more! Unfortunately, he screams and

screams. I

> think it's because he has trouble lifting his face up forward and

just ends

> up smashing his face into the blanket. (Any advice?)

>

> Anyway, recently I happened to look at the top of his head and was

shocked

> to see how misaligned his ears are. Plus he has a bulge on one side

of his

> forehead.

>

> We have a ped appt. on the 29th and I'm going to show her this and

hopefully

> get referred. She probably thinks I'm a worrier because on top of

this I am

> rearranging Mack's vaccination schedule too (we have autism and

autoimmune

> problems in the family) which doesn't make her job easy. LOL

>

> I'm happy to have found this group. You all seem very nice. I took

some

> photos of Mack's head and ears. They are at this link if you'd like

to see

> them:

> http://users.adelphia.net/~chanisco/plagio/

>

> Thanks! I look forward to getting to know you all.

> Chris

> New Hampshire, USA

[Guest guest]

Thank you Kristi! I really appreciate it. I'm glad I found some support!

Chris

> Hi

>

> Welcome to the group!! I am pretty new myself. I am soooooo happy

> to see you have researched this and know as much as you do about it

> already. You are in a great position (age wise) to do something

> about it. Good luck to you at your appointment and be sure to let us

> know how everything turns out!

>

> Kristi

> (4) and (9 1/2 mos)

> OH

>

> PS - I don't think you're worrying too much at all - you are his

> mother and his advocate. Keep it up!!

[Guest guest]

Hi

Welcome to the group.

I too see what you see in Mack's pictures. He's sooooo cute!

I'm new here too so I don't really have any advice for you, all I can

tell you is to STAND YOUR GROUND!!! Don't let your doc put you off.

You should check out the bookmarks section (on the left) there's a

file in there all about repositioning. I think with Mack being so

young, you'd get great results! Also you might want to check out the

torticollis file in there also, it has alot of information.

Good luck and please keep us posted.

Again welcome,

> Hi there,

>

> My name is (Chris), and I believe my 7 week old son,

Mack, has

> plagio and tort. I had noticed his head was misshapen since birth

but

> figured it was normal since I had a very hard vaginal delivery.

Plus Mack

> was stuck in the same position through most of my pregnancy. Every

> ultrasound from 20 weeks on showed him in the same exact spot.

>

> Soon after birth I noticed his ears were not the same. His right

ear is much

> flatter and larger looking, plus he favored that side and wouldn't

turn his

> head to the left. He's getting better at it now because his crib

mirror is

> on his left side, but always sleeps and does everything looking

right.

> I mentioned these to his pediatrician and she didn't seem

concerned. Just

> said to try to get his attention on the other side so he's turn his

head.

> She told me about tummy time, but only so he'd crawl someday - not

because

> of head shape. I only gave him tummy time for a few minutes 2 times

a day,

> but now I know he needs much more! Unfortunately, he screams and

screams. I

> think it's because he has trouble lifting his face up forward and

just ends

> up smashing his face into the blanket. (Any advice?)

>

> Anyway, recently I happened to look at the top of his head and was

shocked

> to see how misaligned his ears are. Plus he has a bulge on one side

of his

> forehead.

>

> We have a ped appt. on the 29th and I'm going to show her this and

hopefully

> get referred. She probably thinks I'm a worrier because on top of

this I am

> rearranging Mack's vaccination schedule too (we have autism and

autoimmune

> problems in the family) which doesn't make her job easy. LOL

>

> I'm happy to have found this group. You all seem very nice. I took

some

> photos of Mack's head and ears. They are at this link if you'd like

to see

> them:

> http://users.adelphia.net/~chanisco/plagio/

>

> Thanks! I look forward to getting to know you all.

> Chris

> New Hampshire, USA

[Guest guest]

Hi Chris!

Mack is really cute. You're definitely getting on top of this nice

and early. I don't think it's even possible to start helmet

treatment until he is 4 or 5 months old (my doctor insisted my twins

be able to hold their heads up first). So really, all you can do for

now is to find creative ways to keep him off his preferred side and

work on the tort (I'm no expert there).

My twins both adored tummy time from the get-go (bribing them with

pacifiers..probably helped this process). We did the tummy time on

our bed, and lay next to them which seemed to help them settle down.

Eventually they were able to nap that way..so we'd just lie there and

watch them nap. Now they love it and if they get fussy now, I

actually put them on their tummies to settle them down. You can also

try sleep positioner to angle him so that he sleeps on the other side

(I believe the files section has loads of tips).

I see that you're in New Hampshire..how close are you to Boston? We

live on the North shore (Topsfield) and our cranio-facial plastic

surgeon is in Chelmsford -> he hasn't been overwhelmingly great, but

he didn't give us any hassles about signing off on helmets. I can

give you his contact information if you like.

Ken

Zack & Zoey's dad

[Guest guest]

Hi and welcome to the group! Mack is such a cutie pie!!

I see that you already received some excellent and very helpful

replies! I was also going to suggest that you check out our Bookmark

section for info on repositioning and torticollis. You can also find

some repositioning techniques here:

http://www.plagiocephaly.org/support/repotech.htm

Good luck to you and keep us posted! Again, welcome to the

group!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi there,

>

> My name is (Chris), and I believe my 7 week old son,

Mack, has

> plagio and tort. I had noticed his head was misshapen since birth

but

> figured it was normal since I had a very hard vaginal delivery.

Plus Mack

> was stuck in the same position through most of my pregnancy. Every

> ultrasound from 20 weeks on showed him in the same exact spot.

>

> Soon after birth I noticed his ears were not the same. His right

ear is much

> flatter and larger looking, plus he favored that side and wouldn't

turn his

> head to the left. He's getting better at it now because his crib

mirror is

> on his left side, but always sleeps and does everything looking

right.

> I mentioned these to his pediatrician and she didn't seem

concerned. Just

> said to try to get his attention on the other side so he's turn his

head.

> She told me about tummy time, but only so he'd crawl someday - not

because

> of head shape. I only gave him tummy time for a few minutes 2 times

a day,

> but now I know he needs much more! Unfortunately, he screams and

screams. I

> think it's because he has trouble lifting his face up forward and

just ends

> up smashing his face into the blanket. (Any advice?)

>

> Anyway, recently I happened to look at the top of his head and was

shocked

> to see how misaligned his ears are. Plus he has a bulge on one side

of his

> forehead.

>

> We have a ped appt. on the 29th and I'm going to show her this and

hopefully

> get referred. She probably thinks I'm a worrier because on top of

this I am

> rearranging Mack's vaccination schedule too (we have autism and

autoimmune

> problems in the family) which doesn't make her job easy. LOL

>

> I'm happy to have found this group. You all seem very nice. I took

some

> photos of Mack's head and ears. They are at this link if you'd like

to see

> them:

> http://users.adelphia.net/~chanisco/plagio/

>

> Thanks! I look forward to getting to know you all.

> Chris

> New Hampshire, USA

[Guest guest]

Welcome to our group Chris!

So happy you found us. WOW - I must compliment you on what a great

mom you sound like! You are SO on top of Mack's plagio & tort., with

a wonderful webpage. Mack is very lucky to have such a great mom!

Mack is also VERY cute!

My daughter Abby was also stuck in the same position inutero for at

least the final 10 wks of my pregnancy. That is where a lot of

plagio & tort. cases begin & develop.

I didn't notice a lot of flattening of Mack's head shape, did see

some, but I would say it's minor. However, the ear assymetry is

obvious as well as the bossing forehead. My Abby's right ear (that's

her plagio side) was also differently shaped than her left, it stuck

in to her skull more, whereas her left ear stuck out normally, and

was in a diff. position. What you are describing are definitely all

plagio symptoms.

I see you've already rec'd a lot of great replies with repositioning

& tummy time tips. I hope they'll help.

You'll also recieve some helpful torticollis stretching tips frmo

if you haven't already. She's our tort guru! My daughter did

not have tort so I can't offer much help there, sorry!

You also are not jumping the gun with this like your family may

think! The younger the baby, the better chance of faster & best

correction your child can receive, and you can hopefully avoid a

helmet or band by repositioning!

Good luck at your Drs appt the 29th......don't let her turn you away,

demand for a referral to a specialist! If she won't give you one,

then find a new ped. who will.

Welcome again to our group!

Debbie Abby's mom 3/1/00 DOCgrad 6/.01

MI

> Hi there,

>

> My name is (Chris), and I believe my 7 week old son,

Mack, has

> plagio and tort. I had noticed his head was misshapen since birth

but

> figured it was normal since I had a very hard vaginal delivery.

Plus Mack

> was stuck in the same position through most of my pregnancy. Every

> ultrasound from 20 weeks on showed him in the same exact spot.

>

> Soon after birth I noticed his ears were not the same. His right

ear is much

> flatter and larger looking, plus he favored that side and wouldn't

turn his

> head to the left. He's getting better at it now because his crib

mirror is

> on his left side, but always sleeps and does everything looking

right.

> I mentioned these to his pediatrician and she didn't seem

concerned. Just

> said to try to get his attention on the other side so he's turn his

head.

> She told me about tummy time, but only so he'd crawl someday - not

because

> of head shape. I only gave him tummy time for a few minutes 2 times

a day,

> but now I know he needs much more! Unfortunately, he screams and

screams. I

> think it's because he has trouble lifting his face up forward and

just ends

> up smashing his face into the blanket. (Any advice?)

>

> Anyway, recently I happened to look at the top of his head and was

shocked

> to see how misaligned his ears are. Plus he has a bulge on one side

of his

> forehead.

>

> We have a ped appt. on the 29th and I'm going to show her this and

hopefully

> get referred. She probably thinks I'm a worrier because on top of

this I am

> rearranging Mack's vaccination schedule too (we have autism and

autoimmune

> problems in the family) which doesn't make her job easy. LOL

>

> I'm happy to have found this group. You all seem very nice. I took

some

> photos of Mack's head and ears. They are at this link if you'd like

to see

> them:

> http://users.adelphia.net/~chanisco/plagio/

>

> Thanks! I look forward to getting to know you all.

> Chris

> New Hampshire, USA