Re: New member with Questions about symptoms...

[Guest guest]

Oh ya, I had a dex test to see fi I had cushings, and it came back

neg. I am skinny and witht he ketones lost 7 pounds that week ( I

was eating and eating carbs, so it isnt that that wa scausing

ketones) I weigh 125 lbs, and am female. My periods seem to be

screwy too. Doctors look at me and say you dont have acortisol

problem because im skinny. THey think I am nuts.

>

> Hello everyone, thank you for taking the time to read my post. I

> have been very sick for quite some time. I am the sickest person I

> know, with the best test outcome I have seen. Most of my tests

come

> back NORMAL. I will give a quick history of my symptoms, which may

> or may not be related to what has been going on now.

> I am 26. When I was 11, I had a hep b immunization and it made me

> sick. I was in hosp and was homeschooled and ill since. In my

lkate

> teens and early twenties I was a bit better. I did have a bad

> stomach. DIarrhea, nausea, bloatedness, gas, upset stomach, lack

of

> appetite, feeling sick every time I ate etc. Beano helps a bit.

> About 2 years ago I started to get aseverly restless feeling ( not

> restless legs, this was different, like adrenaline running through

> my body, mybody almost felt liek I was buzzing from my chest

> throughout the rest of body) It was highly uncomfortable. Of

course

> the fantastic doctors here diagnosed me with, you guessed it,

stress

> and anxiety and depression. (Grrrrrrrr. I demanded for tests, and

> the only test (they didnt tets much) that came back abnormal was a

> high cortisol test (normal 170-500, mine three tests AM, came back

> 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal 0.8-

5.0

> mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3) However

I

> have had 6 thyroid tests since and they have all been normal. I

have

> had one positive ANA test, one negative ANA test. I go up and

down.

> EIther I feel liek I am crawling out of my skin, I feel

intoxicated

> with some sort of an adrenaline type feeling, pee often, shake,

feel

> nauseated. Or I go weeks feeling the complete opposite- Tired,

achy,

> joint pain, extreme malaise, like poison is in my body, Headache,

> Vertigo comes and goes (liek an inner ear infection, without the

ear

> infection) No appetite etc. SOmetimes random symptoms that can

> happen at any time are not being able to eat even though empty and

> hungry because i feel like my whole body is tense including my

> stomach muscles and if I try to eat I gag and can barely swallow,

> headache, diarrhea, constipation alternate. So those symptoms

seem

> to switch from one to the other. SO then September 27th of this

> year, All of a sudden ( I have a history of sometimes getting

> palpitations an drapid heartbeat) My heart started to just beat

> differently, I was getting tons of palpitations ( sometimes 3 a

> minute) skipped heartbeats, rapid heart beat, pain in my left arm

> and chest, dizziness with palpitations ( sometimes when I breath

otu

> I get adizzy spell with palpitatin, breath in skipped beat with

> dzziness) This happens worst at night. I wake up for th epast

month

> eveyr night with rapid heart beat in the early AM, or middle of

> night. So I went to the E.R, where they said its stress go home.

My

> ECG had some changes with t waves s stuff that I dont understand.

> They said 'its fine' My only test that came back abnormal in the

E.R

> was very high ketones in my urine ( I dont have diabetes). I had

> never heard of ketones before...overthe next few days My heart

> symptoms completely dissapeared (this was oct 5th) but I was so

> nauseas and shaking so badly and I stopped peeing I peed only a

very

> small amount and it was dark orange. Went back to E.R High

ketones,

> but they sent me home. I drank 8 bottles of watter a day and still

> felt so overly dehydrated I thought I was going to die. I bought a

> home ketone kit. No glucose in urine, normal glucose blood test,

btu

> high ketones in urine. ( oh ya, when I went to E.R first time my

> potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> feel less shaky and nauseas, the ketones dissapeared ( this was

> about october 7th) and I peed normally again, but witht he

> dissapearance of the ketones, nausea, pee problems, back came my

> caridac issues. It is like one replaced the other. OR what ever

was

> triggering this ( some hormone) was going up and then down. I am

> truly sorry fi this post is confusing, I feel there is so much

> information and symptoms and history and I have such little energy

> and tolerance anymore to keep fighting that I have to try and

write

> it as quick as possible. I am seeing an internist, I am in canada

> and to get referals is impossible where I am. The medical system

is

> failing me. I go to doctors all the time and they run the same

basic

> tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> fluctuations sound familiar? Oh ya, I have a history of having to

> pee very much at night, but then every once in awhile it will be

the

> opposite and I cant pee at all. Any ideas to bounce off me would

be

> great, thanks!

>

[Guest guest]

Sorry me again...the past monthw hen my heart is beating weird fast

and palpitating, I also feel odd with my hands and feet, liek I need

to clench them and move them...I am not involuntarily twitching but

it is liek I have to do it...they feel wierd. I am also gettign

weird tingles in my upper lip sometimes...and my finger tips feel

burny or something...I am ALWAYS cold...and sometimes lately my face

also feels like its burning, not hot so much a like burning or

tingling but a bit different from pins and needles...

>

> Hello everyone, thank you for taking the time to read my post. I

> have been very sick for quite some time. I am the sickest person I

> know, with the best test outcome I have seen. Most of my tests

come

> back NORMAL. I will give a quick history of my symptoms, which may

> or may not be related to what has been going on now.

> I am 26. When I was 11, I had a hep b immunization and it made me

> sick. I was in hosp and was homeschooled and ill since. In my

lkate

> teens and early twenties I was a bit better. I did have a bad

> stomach. DIarrhea, nausea, bloatedness, gas, upset stomach, lack

of

> appetite, feeling sick every time I ate etc. Beano helps a bit.

> About 2 years ago I started to get aseverly restless feeling ( not

> restless legs, this was different, like adrenaline running through

> my body, mybody almost felt liek I was buzzing from my chest

> throughout the rest of body) It was highly uncomfortable. Of

course

> the fantastic doctors here diagnosed me with, you guessed it,

stress

> and anxiety and depression. (Grrrrrrrr. I demanded for tests, and

> the only test (they didnt tets much) that came back abnormal was a

> high cortisol test (normal 170-500, mine three tests AM, came back

> 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal 0.8-

5.0

> mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3) However

I

> have had 6 thyroid tests since and they have all been normal. I

have

> had one positive ANA test, one negative ANA test. I go up and

down.

> EIther I feel liek I am crawling out of my skin, I feel

intoxicated

> with some sort of an adrenaline type feeling, pee often, shake,

feel

> nauseated. Or I go weeks feeling the complete opposite- Tired,

achy,

> joint pain, extreme malaise, like poison is in my body, Headache,

> Vertigo comes and goes (liek an inner ear infection, without the

ear

> infection) No appetite etc. SOmetimes random symptoms that can

> happen at any time are not being able to eat even though empty and

> hungry because i feel like my whole body is tense including my

> stomach muscles and if I try to eat I gag and can barely swallow,

> headache, diarrhea, constipation alternate. So those symptoms

seem

> to switch from one to the other. SO then September 27th of this

> year, All of a sudden ( I have a history of sometimes getting

> palpitations an drapid heartbeat) My heart started to just beat

> differently, I was getting tons of palpitations ( sometimes 3 a

> minute) skipped heartbeats, rapid heart beat, pain in my left arm

> and chest, dizziness with palpitations ( sometimes when I breath

otu

> I get adizzy spell with palpitatin, breath in skipped beat with

> dzziness) This happens worst at night. I wake up for th epast

month

> eveyr night with rapid heart beat in the early AM, or middle of

> night. So I went to the E.R, where they said its stress go home.

My

> ECG had some changes with t waves s stuff that I dont understand.

> They said 'its fine' My only test that came back abnormal in the

E.R

> was very high ketones in my urine ( I dont have diabetes). I had

> never heard of ketones before...overthe next few days My heart

> symptoms completely dissapeared (this was oct 5th) but I was so

> nauseas and shaking so badly and I stopped peeing I peed only a

very

> small amount and it was dark orange. Went back to E.R High

ketones,

> but they sent me home. I drank 8 bottles of watter a day and still

> felt so overly dehydrated I thought I was going to die. I bought a

> home ketone kit. No glucose in urine, normal glucose blood test,

btu

> high ketones in urine. ( oh ya, when I went to E.R first time my

> potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> feel less shaky and nauseas, the ketones dissapeared ( this was

> about october 7th) and I peed normally again, but witht he

> dissapearance of the ketones, nausea, pee problems, back came my

> caridac issues. It is like one replaced the other. OR what ever

was

> triggering this ( some hormone) was going up and then down. I am

> truly sorry fi this post is confusing, I feel there is so much

> information and symptoms and history and I have such little energy

> and tolerance anymore to keep fighting that I have to try and

write

> it as quick as possible. I am seeing an internist, I am in canada

> and to get referals is impossible where I am. The medical system

is

> failing me. I go to doctors all the time and they run the same

basic

> tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> fluctuations sound familiar? Oh ya, I have a history of having to

> pee very much at night, but then every once in awhile it will be

the

> opposite and I cant pee at all. Any ideas to bounce off me would

be

> great, thanks!

>

[Guest guest]

Based on your lab tests you may have Cushing's syndrome. How did

your Drs interpret these results. Did they do a Dex suppression test.

Google images of Cushing's syndrome to see if you look like any of

them or send picture to us to put in files so we can see if you look

Cushingoid.

Wouldn't worry about Thyroid tests now.

The low K and irregular heart beats and peeing a lot at night suggest

primary aldosteronism. But BP almost alwasy high.

What is your BP? Has it ever been high? Has it changed much in last

few years.

Please tell us ALL meds and over the counter and herbal stuff your

are taking and what you are taking it for.

The ketones were likely because you were starving as you were

vomiting and not eating. Indeed checking the ketones in your urine

is an old way (used by the first Adkins program) to tell if you are

eating a small enough amount that you will lose weight aka starving.

Any EKG mention of U waves or hypokalemia?

On Nov 20, 2008, at 2:10 PM, Carolee wrote:

> Hello everyone, thank you for taking the time to read my post. I

> have been very sick for quite some time. I am the sickest person I

> know, with the best test outcome I have seen. Most of my tests come

> back NORMAL. I will give a quick history of my symptoms, which may

> or may not be related to what has been going on now.

> I am 26. When I was 11, I had a hep b immunization and it made me

> sick. I was in hosp and was homeschooled and ill since. In my lkate

> teens and early twenties I was a bit better. I did have a bad

> stomach. DIarrhea, nausea, bloatedness, gas, upset stomach, lack of

> appetite, feeling sick every time I ate etc. Beano helps a bit.

> About 2 years ago I started to get aseverly restless feeling ( not

> restless legs, this was different, like adrenaline running through

> my body, mybody almost felt liek I was buzzing from my chest

> throughout the rest of body) It was highly uncomfortable. Of course

> the fantastic doctors here diagnosed me with, you guessed it, stress

> and anxiety and depression. (Grrrrrrrr. I demanded for tests, and

> the only test (they didnt tets much) that came back abnormal was a

> high cortisol test (normal 170-500, mine three tests AM, came back

> 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal 0.8-5.0

> mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3) However I

> have had 6 thyroid tests since and they have all been normal. I have

> had one positive ANA test, one negative ANA test. I go up and down.

> EIther I feel liek I am crawling out of my skin, I feel intoxicated

> with some sort of an adrenaline type feeling, pee often, shake, feel

> nauseated. Or I go weeks feeling the complete opposite- Tired, achy,

> joint pain, extreme malaise, like poison is in my body, Headache,

> Vertigo comes and goes (liek an inner ear infection, without the ear

> infection) No appetite etc. SOmetimes random symptoms that can

> happen at any time are not being able to eat even though empty and

> hungry because i feel like my whole body is tense including my

> stomach muscles and if I try to eat I gag and can barely swallow,

> headache, diarrhea, constipation alternate. So those symptoms seem

> to switch from one to the other. SO then September 27th of this

> year, All of a sudden ( I have a history of sometimes getting

> palpitations an drapid heartbeat) My heart started to just beat

> differently, I was getting tons of palpitations ( sometimes 3 a

> minute) skipped heartbeats, rapid heart beat, pain in my left arm

> and chest, dizziness with palpitations ( sometimes when I breath otu

> I get adizzy spell with palpitatin, breath in skipped beat with

> dzziness) This happens worst at night. I wake up for th epast month

> eveyr night with rapid heart beat in the early AM, or middle of

> night. So I went to the E.R, where they said its stress go home. My

> ECG had some changes with t waves s stuff that I dont understand.

> They said 'its fine' My only test that came back abnormal in the E.R

> was very high ketones in my urine ( I dont have diabetes). I had

> never heard of ketones before...overthe next few days My heart

> symptoms completely dissapeared (this was oct 5th) but I was so

> nauseas and shaking so badly and I stopped peeing I peed only a very

> small amount and it was dark orange. Went back to E.R High ketones,

> but they sent me home. I drank 8 bottles of watter a day and still

> felt so overly dehydrated I thought I was going to die. I bought a

> home ketone kit. No glucose in urine, normal glucose blood test, btu

> high ketones in urine. ( oh ya, when I went to E.R first time my

> potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> feel less shaky and nauseas, the ketones dissapeared ( this was

> about october 7th) and I peed normally again, but witht he

> dissapearance of the ketones, nausea, pee problems, back came my

> caridac issues. It is like one replaced the other. OR what ever was

> triggering this ( some hormone) was going up and then down. I am

> truly sorry fi this post is confusing, I feel there is so much

> information and symptoms and history and I have such little energy

> and tolerance anymore to keep fighting that I have to try and write

> it as quick as possible. I am seeing an internist, I am in canada

> and to get referals is impossible where I am. The medical system is

> failing me. I go to doctors all the time and they run the same basic

> tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> fluctuations sound familiar? Oh ya, I have a history of having to

> pee very much at night, but then every once in awhile it will be the

> opposite and I cant pee at all. Any ideas to bounce off me would be

> great, thanks!

>

>

>

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

[Guest guest]

Good should have read this before sending last note. Again you cant

give us too many details in as few emails as possible.

Do you ever have your hands draw up like claws from hand cramps?

CE Grim MD

On Nov 20, 2008, at 2:13 PM, Carolee wrote:

> Oh ya, I had a dex test to see fi I had cushings, and it came back

> neg. I am skinny and witht he ketones lost 7 pounds that week ( I

> was eating and eating carbs, so it isnt that that wa scausing

> ketones) I weigh 125 lbs, and am female. My periods seem to be

> screwy too. Doctors look at me and say you dont have acortisol

> problem because im skinny. THey think I am nuts.

>

>

> >

> > Hello everyone, thank you for taking the time to read my post. I

> > have been very sick for quite some time. I am the sickest person I

> > know, with the best test outcome I have seen. Most of my tests

> come

> > back NORMAL. I will give a quick history of my symptoms, which may

> > or may not be related to what has been going on now.

> > I am 26. When I was 11, I had a hep b immunization and it made me

> > sick. I was in hosp and was homeschooled and ill since. In my

> lkate

> > teens and early twenties I was a bit better. I did have a bad

> > stomach. DIarrhea, nausea, bloatedness, gas, upset stomach, lack

> of

> > appetite, feeling sick every time I ate etc. Beano helps a bit.

> > About 2 years ago I started to get aseverly restless feeling ( not

> > restless legs, this was different, like adrenaline running through

> > my body, mybody almost felt liek I was buzzing from my chest

> > throughout the rest of body) It was highly uncomfortable. Of

> course

> > the fantastic doctors here diagnosed me with, you guessed it,

> stress

> > and anxiety and depression. (Grrrrrrrr. I demanded for tests, and

> > the only test (they didnt tets much) that came back abnormal was a

> > high cortisol test (normal 170-500, mine three tests AM, came back

> > 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal 0.8-

> 5.0

> > mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3) However

> I

> > have had 6 thyroid tests since and they have all been normal. I

> have

> > had one positive ANA test, one negative ANA test. I go up and

> down.

> > EIther I feel liek I am crawling out of my skin, I feel

> intoxicated

> > with some sort of an adrenaline type feeling, pee often, shake,

> feel

> > nauseated. Or I go weeks feeling the complete opposite- Tired,

> achy,

> > joint pain, extreme malaise, like poison is in my body, Headache,

> > Vertigo comes and goes (liek an inner ear infection, without the

> ear

> > infection) No appetite etc. SOmetimes random symptoms that can

> > happen at any time are not being able to eat even though empty and

> > hungry because i feel like my whole body is tense including my

> > stomach muscles and if I try to eat I gag and can barely swallow,

> > headache, diarrhea, constipation alternate. So those symptoms

> seem

> > to switch from one to the other. SO then September 27th of this

> > year, All of a sudden ( I have a history of sometimes getting

> > palpitations an drapid heartbeat) My heart started to just beat

> > differently, I was getting tons of palpitations ( sometimes 3 a

> > minute) skipped heartbeats, rapid heart beat, pain in my left arm

> > and chest, dizziness with palpitations ( sometimes when I breath

> otu

> > I get adizzy spell with palpitatin, breath in skipped beat with

> > dzziness) This happens worst at night. I wake up for th epast

> month

> > eveyr night with rapid heart beat in the early AM, or middle of

> > night. So I went to the E.R, where they said its stress go home.

> My

> > ECG had some changes with t waves s stuff that I dont understand.

> > They said 'its fine' My only test that came back abnormal in the

> E.R

> > was very high ketones in my urine ( I dont have diabetes). I had

> > never heard of ketones before...overthe next few days My heart

> > symptoms completely dissapeared (this was oct 5th) but I was so

> > nauseas and shaking so badly and I stopped peeing I peed only a

> very

> > small amount and it was dark orange. Went back to E.R High

> ketones,

> > but they sent me home. I drank 8 bottles of watter a day and still

> > felt so overly dehydrated I thought I was going to die. I bought a

> > home ketone kit. No glucose in urine, normal glucose blood test,

> btu

> > high ketones in urine. ( oh ya, when I went to E.R first time my

> > potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> > feel less shaky and nauseas, the ketones dissapeared ( this was

> > about october 7th) and I peed normally again, but witht he

> > dissapearance of the ketones, nausea, pee problems, back came my

> > caridac issues. It is like one replaced the other. OR what ever

> was

> > triggering this ( some hormone) was going up and then down. I am

> > truly sorry fi this post is confusing, I feel there is so much

> > information and symptoms and history and I have such little energy

> > and tolerance anymore to keep fighting that I have to try and

> write

> > it as quick as possible. I am seeing an internist, I am in canada

> > and to get referals is impossible where I am. The medical system

> is

> > failing me. I go to doctors all the time and they run the same

> basic

> > tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> > fluctuations sound familiar? Oh ya, I have a history of having to

> > pee very much at night, but then every once in awhile it will be

> the

> > opposite and I cant pee at all. Any ideas to bounce off me would

> be

> > great, thanks!

> >

>

>

>

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

[Guest guest]

Hi, thank you for your reply,

There wa sno vomiting and even though I was so severly nauseaus I

was forcing down food ( even if it took me 2 hours) I made sure to

eat carbs in case that was it. The ketones stayed at a very high

amount. The EKG said nothing about hypokalemia, or U waves. My blood

pressure has always usually been low, however in the last few years

I have felt as though it was high ( a feeling of pressure in my head

with headache, sometimes just lying flat on the floor in my

livingroom would be the only thing that would help) When I went to

the hospital the second time with the dehydration and ketones ( this

is when the cardiac symptoms dissapeared for a few days) My BP was

on the higher end, especially for me. I believe it was 140/90. I was

surprised because even though I have only had my blood pressure

taken a few times in 3 or 4 years it has always been normal/low.

Doctors have blamed my cortisol levels on stress. The only stress in

my life is I am too sick to do anything (grocery shopping, living a

life, working outside of home, functioning), and the doctors arent

helpig me, SO that diagnosis is so frustrating. This is very real

and not stress related.

Medication- I take no medication at this time. When my heart started

to go all weird, I tried to take calcium.mgnesium.vit D. It makes me

feel worse however. So I thought that was odd. I am not sure why it

makes me heart feel worse and also my symtpoms of tenseness in my

hands and shoulders. The tension isnt like when you're nervous or

sitting at a desk, it is like the urge to move and squeze my

muscles. CLench my fists and shrug my shoulders. I am not getting

cramps in my hands though. I have a lot of muscle aches that come

and go, But it isnt the same as when your muscle gets stuck ina

position and cramps up ( always somethign I knew in the past to eat

abanana or something) I am not getting cramps liek that, just liek I

need to clench or my muscle is tense. The doctor prescribed me

propranolol for fast heartrate ( he prescribed it days before th

eheart symptoms started, because he saw on an old holter monitor

that I had rapid HB) SO I took the low low dose ( I took half of a

20 MG pill)( I took this a week ago) and was so sick for 3 days I

thought once again I was going to die. It seemed to effect my urine

and I didnt pee as much and it turned kind of dark again, I was

severly nauseated and shook alot on it. I felt liek I had been

poisoned. Not a normal side effect type feeling, this was more

severe. One more thing, I also find my lymph nodes have been

swollen, My glands hurt and seem more swollen for the last few

months. It seems to get worse on the magnesium calcium/vit d

supplement. Thanks so much for helping me,

Carolee

> > >

> > > Hello everyone, thank you for taking the time to read my post.

I

> > > have been very sick for quite some time. I am the sickest

person I

> > > know, with the best test outcome I have seen. Most of my tests

> > come

> > > back NORMAL. I will give a quick history of my symptoms, which

may

> > > or may not be related to what has been going on now.

> > > I am 26. When I was 11, I had a hep b immunization and it made

me

> > > sick. I was in hosp and was homeschooled and ill since. In my

> > lkate

> > > teens and early twenties I was a bit better. I did have a bad

> > > stomach. DIarrhea, nausea, bloatedness, gas, upset stomach,

lack

> > of

> > > appetite, feeling sick every time I ate etc. Beano helps a bit.

> > > About 2 years ago I started to get aseverly restless feeling (

not

> > > restless legs, this was different, like adrenaline running

through

> > > my body, mybody almost felt liek I was buzzing from my chest

> > > throughout the rest of body) It was highly uncomfortable. Of

> > course

> > > the fantastic doctors here diagnosed me with, you guessed it,

> > stress

> > > and anxiety and depression. (Grrrrrrrr. I demanded for tests,

and

> > > the only test (they didnt tets much) that came back abnormal

was a

> > > high cortisol test (normal 170-500, mine three tests AM, came

back

> > > 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal

0.8-

> > 5.0

> > > mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3)

However

> > I

> > > have had 6 thyroid tests since and they have all been normal. I

> > have

> > > had one positive ANA test, one negative ANA test. I go up and

> > down.

> > > EIther I feel liek I am crawling out of my skin, I feel

> > intoxicated

> > > with some sort of an adrenaline type feeling, pee often, shake,

> > feel

> > > nauseated. Or I go weeks feeling the complete opposite- Tired,

> > achy,

> > > joint pain, extreme malaise, like poison is in my body,

Headache,

> > > Vertigo comes and goes (liek an inner ear infection, without

the

> > ear

> > > infection) No appetite etc. SOmetimes random symptoms that can

> > > happen at any time are not being able to eat even though empty

and

> > > hungry because i feel like my whole body is tense including my

> > > stomach muscles and if I try to eat I gag and can barely

swallow,

> > > headache, diarrhea, constipation alternate. So those symptoms

> > seem

> > > to switch from one to the other. SO then September 27th of this

> > > year, All of a sudden ( I have a history of sometimes getting

> > > palpitations an drapid heartbeat) My heart started to just beat

> > > differently, I was getting tons of palpitations ( sometimes 3 a

> > > minute) skipped heartbeats, rapid heart beat, pain in my left

arm

> > > and chest, dizziness with palpitations ( sometimes when I

breath

> > otu

> > > I get adizzy spell with palpitatin, breath in skipped beat with

> > > dzziness) This happens worst at night. I wake up for th epast

> > month

> > > eveyr night with rapid heart beat in the early AM, or middle of

> > > night. So I went to the E.R, where they said its stress go

home.

> > My

> > > ECG had some changes with t waves s stuff that I dont

understand.

> > > They said 'its fine' My only test that came back abnormal in

the

> > E.R

> > > was very high ketones in my urine ( I dont have diabetes). I

had

> > > never heard of ketones before...overthe next few days My heart

> > > symptoms completely dissapeared (this was oct 5th) but I was so

> > > nauseas and shaking so badly and I stopped peeing I peed only a

> > very

> > > small amount and it was dark orange. Went back to E.R High

> > ketones,

> > > but they sent me home. I drank 8 bottles of watter a day and

still

> > > felt so overly dehydrated I thought I was going to die. I

bought a

> > > home ketone kit. No glucose in urine, normal glucose blood

test,

> > btu

> > > high ketones in urine. ( oh ya, when I went to E.R first time

my

> > > potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> > > feel less shaky and nauseas, the ketones dissapeared ( this was

> > > about october 7th) and I peed normally again, but witht he

> > > dissapearance of the ketones, nausea, pee problems, back came

my

> > > caridac issues. It is like one replaced the other. OR what ever

> > was

> > > triggering this ( some hormone) was going up and then down. I

am

> > > truly sorry fi this post is confusing, I feel there is so much

> > > information and symptoms and history and I have such little

energy

> > > and tolerance anymore to keep fighting that I have to try and

> > write

> > > it as quick as possible. I am seeing an internist, I am in

canada

> > > and to get referals is impossible where I am. The medical

system

> > is

> > > failing me. I go to doctors all the time and they run the same

> > basic

> > > tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> > > fluctuations sound familiar? Oh ya, I have a history of having

to

> > > pee very much at night, but then every once in awhile it will

be

> > the

> > > opposite and I cant pee at all. Any ideas to bounce off me

would

> > be

> > > great, thanks!

> > >

> >

> >

> >

>

> May your pressure be low!

>

>

> 

>

>

>

>

>

>

> CE Grim BS, MS, MD

>

> High Blood Pressure Consulting

>

> Senior Consultant to Shared Care Research and Education

Consulting

> Inc.(sharedcareinc.com)

>

> Clinical Professor of Internal Medicine Medical and Cardiology

> Medical College of Wisconsin

>

> Board certified in Internal Med, Geriatrics and Hypertension.

>

> Interests:

> 1. Difficult to control high blood pressure.

> 2. The effect of recent evolutionary forces on high blood

pressure

> in human populations.

> 3. Improving blood pressure measurement in the office and out.

>

>

>

>

>

>

>

[Guest guest]

Carolee, if I had all your symptoms, I would get checked for Lyme disease

and Celiac Sprue disease. Do you ever remember a tick bite? My

daughter-in-law had a lot of the gastro problems and was diagnosed with

Celiac. She cannot have even a tiny bit of gluten.

Also, when my TSH is over 4, I am very ill - very cold and fatigued. The

American Association of Clinical Endocrinologists has set limits of 0.3 -

3.0 but many labs have not adopted those bands. I was called " normal " for

years and years and suffered all of them. I used to wear long underwear,

summer and winter.

I hope you are getting copies of your tests. Have you had aldosterone and

renin tests? Many of us on this site have many of your symptoms and

sincerely sympathize with you.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Carolee

Hello everyone, thank you for taking the time to read my post. I

have been very sick for quite some time. I am the sickest person I

know, with the best test outcome I have seen. Most of my tests come

back NORMAL. I will give a quick history of my symptoms, which may

or may not be related to what has been going on now.

I am 26. When I was 11, I had a hep b immunization and it made me

sick. I was in hosp and was homeschooled and ill since. In my lkate

teens and early twenties I was a bit better. I did have a bad

stomach. DIarrhea, nausea, bloatedness, gas, upset stomach, lack of

appetite, feeling sick every time I ate etc. Beano helps a bit.

About 2 years ago I started to get aseverly restless feeling ( not

restless legs, this was different, like adrenaline running through

my body, mybody almost felt liek I was buzzing from my chest

throughout the rest of body) It was highly uncomfortable. Of course

the fantastic doctors here diagnosed me with, you guessed it, stress

and anxiety and depression. (Grrrrrrrr. I demanded for tests, and

the only test (they didnt tets much) that came back abnormal was a

high cortisol test (normal 170-500, mine three tests AM, came back

1200, 1257, 1087) I had a slightly high Thyroid (tsh normal 0.8-5.0

mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3) However I

have had 6 thyroid tests since and they have all been normal. I have

had one positive ANA test, one negative ANA test. I go up and down.

EIther I feel liek I am crawling out of my skin, I feel intoxicated

with some sort of an adrenaline type feeling, pee often, shake, feel

nauseated. Or I go weeks feeling the complete opposite- Tired, achy,

joint pain, extreme malaise, like poison is in my body, Headache,

Vertigo comes and goes (liek an inner ear infection, without the ear

infection) No appetite etc. SOmetimes random symptoms that can

happen at any time are not being able to eat even though empty and

hungry because i feel like my whole body is tense including my

stomach muscles and if I try to eat I gag and can barely swallow,

headache, diarrhea, constipation alternate. So those symptoms seem

to switch from one to the other. SO then September 27th of this

year, All of a sudden ( I have a history of sometimes getting

palpitations an drapid heartbeat) My heart started to just beat

differently, I was getting tons of palpitations ( sometimes 3 a

minute) skipped heartbeats, rapid heart beat, pain in my left arm

and chest, dizziness with palpitations ( sometimes when I breath otu

I get adizzy spell with palpitatin, breath in skipped beat with

dzziness) This happens worst at night. I wake up for th epast month

eveyr night with rapid heart beat in the early AM, or middle of

night. So I went to the E.R, where they said its stress go home. My

ECG had some changes with t waves s stuff that I dont understand.

They said 'its fine' My only test that came back abnormal in the E.R

was very high ketones in my urine ( I dont have diabetes). I had

never heard of ketones before...overthe next few days My heart

symptoms completely dissapeared (this was oct 5th) but I was so

nauseas and shaking so badly and I stopped peeing I peed only a very

small amount and it was dark orange. Went back to E.R High ketones,

but they sent me home. I drank 8 bottles of watter a day and still

felt so overly dehydrated I thought I was going to die. I bought a

home ketone kit. No glucose in urine, normal glucose blood test, btu

high ketones in urine. ( oh ya, when I went to E.R first time my

potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

feel less shaky and nauseas, the ketones dissapeared ( this was

about october 7th) and I peed normally again, but witht he

dissapearance of the ketones, nausea, pee problems, back came my

caridac issues. It is like one replaced the other. OR what ever was

triggering this ( some hormone) was going up and then down. I am

truly sorry fi this post is confusing, I feel there is so much

information and symptoms and history and I have such little energy

and tolerance anymore to keep fighting that I have to try and write

it as quick as possible. I am seeing an internist, I am in canada

and to get referals is impossible where I am. The medical system is

failing me. I go to doctors all the time and they run the same basic

tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

fluctuations sound familiar? Oh ya, I have a history of having to

pee very much at night, but then every once in awhile it will be the

opposite and I cant pee at all. Any ideas to bounce off me would be

great, thanks!

[Guest guest]

If your Bp has always been below 100 then you now have personal

hypertension most likely see my evolution article

Sent from my iPhone

May your pressure be low!

CE Grim MS MD

Specializing in Difficult Hypertension

Senior Consultant to Shared Care Research and Education Comsulting Inc

Sharedcareinc@...

On Nov 20, 2008, at 3:21 PM, Carolee <bettyboop16@...> wrote:

> Hi, thank you for your reply,

> There wa sno vomiting and even though I was so severly nauseaus I

> was forcing down food ( even if it took me 2 hours) I made sure to

> eat carbs in case that was it. The ketones stayed at a very high

> amount. The EKG said nothing about hypokalemia, or U waves. My blood

> pressure has always usually been low, however in the last few years

> I have felt as though it was high ( a feeling of pressure in my head

> with headache, sometimes just lying flat on the floor in my

> livingroom would be the only thing that would help) When I went to

> the hospital the second time with the dehydration and ketones ( this

> is when the cardiac symptoms dissapeared for a few days) My BP was

> on the higher end, especially for me. I believe it was 140/90. I was

> surprised because even though I have only had my blood pressure

> taken a few times in 3 or 4 years it has always been normal/low.

> Doctors have blamed my cortisol levels on stress. The only stress in

> my life is I am too sick to do anything (grocery shopping, living a

> life, working outside of home, functioning), and the doctors arent

> helpig me, SO that diagnosis is so frustrating. This is very real

> and not stress related.

> Medication- I take no medication at this time. When my heart started

> to go all weird, I tried to take calcium.mgnesium.vit D. It makes me

> feel worse however. So I thought that was odd. I am not sure why it

> makes me heart feel worse and also my symtpoms of tenseness in my

> hands and shoulders. The tension isnt like when you're nervous or

> sitting at a desk, it is like the urge to move and squeze my

> muscles. CLench my fists and shrug my shoulders. I am not getting

> cramps in my hands though. I have a lot of muscle aches that come

> and go, But it isnt the same as when your muscle gets stuck ina

> position and cramps up ( always somethign I knew in the past to eat

> abanana or something) I am not getting cramps liek that, just liek I

> need to clench or my muscle is tense. The doctor prescribed me

> propranolol for fast heartrate ( he prescribed it days before th

> eheart symptoms started, because he saw on an old holter monitor

> that I had rapid HB) SO I took the low low dose ( I took half of a

> 20 MG pill)( I took this a week ago) and was so sick for 3 days I

> thought once again I was going to die. It seemed to effect my urine

> and I didnt pee as much and it turned kind of dark again, I was

> severly nauseated and shook alot on it. I felt liek I had been

> poisoned. Not a normal side effect type feeling, this was more

> severe. One more thing, I also find my lymph nodes have been

> swollen, My glands hurt and seem more swollen for the last few

> months. It seems to get worse on the magnesium calcium/vit d

> supplement. Thanks so much for helping me,

> Carolee

>

>

> > > >

> > > > Hello everyone, thank you for taking the time to read my post.

> I

> > > > have been very sick for quite some time. I am the sickest

> person I

> > > > know, with the best test outcome I have seen. Most of my tests

> > > come

> > > > back NORMAL. I will give a quick history of my symptoms, which

> may

> > > > or may not be related to what has been going on now.

> > > > I am 26. When I was 11, I had a hep b immunization and it made

> me

> > > > sick. I was in hosp and was homeschooled and ill since. In my

> > > lkate

> > > > teens and early twenties I was a bit better. I did have a bad

> > > > stomach. DIarrhea, nausea, bloatedness, gas, upset stomach,

> lack

> > > of

> > > > appetite, feeling sick every time I ate etc. Beano helps a bit.

> > > > About 2 years ago I started to get aseverly restless feeling (

> not

> > > > restless legs, this was different, like adrenaline running

> through

> > > > my body, mybody almost felt liek I was buzzing from my chest

> > > > throughout the rest of body) It was highly uncomfortable. Of

> > > course

> > > > the fantastic doctors here diagnosed me with, you guessed it,

> > > stress

> > > > and anxiety and depression. (Grrrrrrrr. I demanded for tests,

> and

> > > > the only test (they didnt tets much) that came back abnormal

> was a

> > > > high cortisol test (normal 170-500, mine three tests AM, came

> back

> > > > 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal

> 0.8-

> > > 5.0

> > > > mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3)

> However

> > > I

> > > > have had 6 thyroid tests since and they have all been normal. I

> > > have

> > > > had one positive ANA test, one negative ANA test. I go up and

> > > down.

> > > > EIther I feel liek I am crawling out of my skin, I feel

> > > intoxicated

> > > > with some sort of an adrenaline type feeling, pee often, shake,

> > > feel

> > > > nauseated. Or I go weeks feeling the complete opposite- Tired,

> > > achy,

> > > > joint pain, extreme malaise, like poison is in my body,

> Headache,

> > > > Vertigo comes and goes (liek an inner ear infection, without

> the

> > > ear

> > > > infection) No appetite etc. SOmetimes random symptoms that can

> > > > happen at any time are not being able to eat even though empty

> and

> > > > hungry because i feel like my whole body is tense including my

> > > > stomach muscles and if I try to eat I gag and can barely

> swallow,

> > > > headache, diarrhea, constipation alternate. So those symptoms

> > > seem

> > > > to switch from one to the other. SO then September 27th of this

> > > > year, All of a sudden ( I have a history of sometimes getting

> > > > palpitations an drapid heartbeat) My heart started to just beat

> > > > differently, I was getting tons of palpitations ( sometimes 3 a

> > > > minute) skipped heartbeats, rapid heart beat, pain in my left

> arm

> > > > and chest, dizziness with palpitations ( sometimes when I

> breath

> > > otu

> > > > I get adizzy spell with palpitatin, breath in skipped beat with

> > > > dzziness) This happens worst at night. I wake up for th epast

> > > month

> > > > eveyr night with rapid heart beat in the early AM, or middle of

> > > > night. So I went to the E.R, where they said its stress go

> home.

> > > My

> > > > ECG had some changes with t waves s stuff that I dont

> understand.

> > > > They said 'its fine' My only test that came back abnormal in

> the

> > > E.R

> > > > was very high ketones in my urine ( I dont have diabetes). I

> had

> > > > never heard of ketones before...overthe next few days My heart

> > > > symptoms completely dissapeared (this was oct 5th) but I was so

> > > > nauseas and shaking so badly and I stopped peeing I peed only a

> > > very

> > > > small amount and it was dark orange. Went back to E.R High

> > > ketones,

> > > > but they sent me home. I drank 8 bottles of watter a day and

> still

> > > > felt so overly dehydrated I thought I was going to die. I

> bought a

> > > > home ketone kit. No glucose in urine, normal glucose blood

> test,

> > > btu

> > > > high ketones in urine. ( oh ya, when I went to E.R first time

> my

> > > > potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> > > > feel less shaky and nauseas, the ketones dissapeared ( this was

> > > > about october 7th) and I peed normally again, but witht he

> > > > dissapearance of the ketones, nausea, pee problems, back came

> my

> > > > caridac issues. It is like one replaced the other. OR what ever

> > > was

> > > > triggering this ( some hormone) was going up and then down. I

> am

> > > > truly sorry fi this post is confusing, I feel there is so much

> > > > information and symptoms and history and I have such little

> energy

> > > > and tolerance anymore to keep fighting that I have to try and

> > > write

> > > > it as quick as possible. I am seeing an internist, I am in

> canada

> > > > and to get referals is impossible where I am. The medical

> system

> > > is

> > > > failing me. I go to doctors all the time and they run the same

> > > basic

> > > > tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> > > > fluctuations sound familiar? Oh ya, I have a history of having

> to

> > > > pee very much at night, but then every once in awhile it will

> be

> > > the

> > > > opposite and I cant pee at all. Any ideas to bounce off me

> would

> > > be

> > > > great, thanks!

> > > >

> > >

> > >

> > >

> >

> > May your pressure be low!

> >

> >

> > 

> >

> >

> >

> >

> >

> >

> > CE Grim BS, MS, MD

> >

> > High Blood Pressure Consulting

> >

> > Senior Consultant to Shared Care Research and Education

> Consulting

> > Inc.(sharedcareinc.com)

> >

> > Clinical Professor of Internal Medicine Medical and Cardiology

> > Medical College of Wisconsin

> >

> > Board certified in Internal Med, Geriatrics and Hypertension.

> >

> > Interests:

> > 1. Difficult to control high blood pressure.

> > 2. The effect of recent evolutionary forces on high blood

> pressure

> > in human populations.

> > 3. Improving blood pressure measurement in the office and out.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

You have many of the symptoms of low K and alkalosis

You need to get an accurate K measurement see our files

Would also do renin also Mg and Ca

Sent from my iPhone

May your pressure be low!

CE Grim MS MD

Specializing in Difficult Hypertension

Senior Consultant to Shared Care Research and Education Comsulting Inc

Sharedcareinc@...

On Nov 20, 2008, at 12:19 PM, Carolee <bettyboop16@...> wrote:

> Sorry me again...the past monthw hen my heart is beating weird fast

> and palpitating, I also feel odd with my hands and feet, liek I need

> to clench them and move them...I am not involuntarily twitching but

> it is liek I have to do it...they feel wierd. I am also gettign

> weird tingles in my upper lip sometimes...and my finger tips feel

> burny or something...I am ALWAYS cold...and sometimes lately my face

> also feels like its burning, not hot so much a like burning or

> tingling but a bit different from pins and needles...

>

>

> >

> > Hello everyone, thank you for taking the time to read my post. I

> > have been very sick for quite some time. I am the sickest person I

> > know, with the best test outcome I have seen. Most of my tests

> come

> > back NORMAL. I will give a quick history of my symptoms, which may

> > or may not be related to what has been going on now.

> > I am 26. When I was 11, I had a hep b immunization and it made me

> > sick. I was in hosp and was homeschooled and ill since. In my

> lkate

> > teens and early twenties I was a bit better. I did have a bad

> > stomach. DIarrhea, nausea, bloatedness, gas, upset stomach, lack

> of

> > appetite, feeling sick every time I ate etc. Beano helps a bit.

> > About 2 years ago I started to get aseverly restless feeling ( not

> > restless legs, this was different, like adrenaline running through

> > my body, mybody almost felt liek I was buzzing from my chest

> > throughout the rest of body) It was highly uncomfortable. Of

> course

> > the fantastic doctors here diagnosed me with, you guessed it,

> stress

> > and anxiety and depression. (Grrrrrrrr. I demanded for tests, and

> > the only test (they didnt tets much) that came back abnormal was a

> > high cortisol test (normal 170-500, mine three tests AM, came back

> > 1200, 1257, 1087) I had a slightly high Thyroid (tsh normal 0.8-

> 5.0

> > mine was 4.97, and my T3 was normal 3.5-5.8, mine was 6.3) However

> I

> > have had 6 thyroid tests since and they have all been normal. I

> have

> > had one positive ANA test, one negative ANA test. I go up and

> down.

> > EIther I feel liek I am crawling out of my skin, I feel

> intoxicated

> > with some sort of an adrenaline type feeling, pee often, shake,

> feel

> > nauseated. Or I go weeks feeling the complete opposite- Tired,

> achy,

> > joint pain, extreme malaise, like poison is in my body, Headache,

> > Vertigo comes and goes (liek an inner ear infection, without the

> ear

> > infection) No appetite etc. SOmetimes random symptoms that can

> > happen at any time are not being able to eat even though empty and

> > hungry because i feel like my whole body is tense including my

> > stomach muscles and if I try to eat I gag and can barely swallow,

> > headache, diarrhea, constipation alternate. So those symptoms

> seem

> > to switch from one to the other. SO then September 27th of this

> > year, All of a sudden ( I have a history of sometimes getting

> > palpitations an drapid heartbeat) My heart started to just beat

> > differently, I was getting tons of palpitations ( sometimes 3 a

> > minute) skipped heartbeats, rapid heart beat, pain in my left arm

> > and chest, dizziness with palpitations ( sometimes when I breath

> otu

> > I get adizzy spell with palpitatin, breath in skipped beat with

> > dzziness) This happens worst at night. I wake up for th epast

> month

> > eveyr night with rapid heart beat in the early AM, or middle of

> > night. So I went to the E.R, where they said its stress go home.

> My

> > ECG had some changes with t waves s stuff that I dont understand.

> > They said 'its fine' My only test that came back abnormal in the

> E.R

> > was very high ketones in my urine ( I dont have diabetes). I had

> > never heard of ketones before...overthe next few days My heart

> > symptoms completely dissapeared (this was oct 5th) but I was so

> > nauseas and shaking so badly and I stopped peeing I peed only a

> very

> > small amount and it was dark orange. Went back to E.R High

> ketones,

> > but they sent me home. I drank 8 bottles of watter a day and still

> > felt so overly dehydrated I thought I was going to die. I bought a

> > home ketone kit. No glucose in urine, normal glucose blood test,

> btu

> > high ketones in urine. ( oh ya, when I went to E.R first time my

> > potassium was at 3.6 normal is 3.5-5.5) Eventually I started to

> > feel less shaky and nauseas, the ketones dissapeared ( this was

> > about october 7th) and I peed normally again, but witht he

> > dissapearance of the ketones, nausea, pee problems, back came my

> > caridac issues. It is like one replaced the other. OR what ever

> was

> > triggering this ( some hormone) was going up and then down. I am

> > truly sorry fi this post is confusing, I feel there is so much

> > information and symptoms and history and I have such little energy

> > and tolerance anymore to keep fighting that I have to try and

> write

> > it as quick as possible. I am seeing an internist, I am in canada

> > and to get referals is impossible where I am. The medical system

> is

> > failing me. I go to doctors all the time and they run the same

> basic

> > tests CBC, Thyroid, GLucose. Does anyone think these symptoms,

> > fluctuations sound familiar? Oh ya, I have a history of having to

> > pee very much at night, but then every once in awhile it will be

> the

> > opposite and I cant pee at all. Any ideas to bounce off me would

> be

> > great, thanks!

> >

>

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