Duke

October 16, 2006

Bill,

Your child is right where he needs to be for that Duke study which should be

excellent! Mr. March who is in charge of that program is top of the field. I

have talked with them a number of times and really liked the two doctors I

talked with. We wanted to do that study and could 't because my son is not

tolerating the meds and couldn't get his dose up. But yours is exactly where

they want him for this study. The neat thing is that it is free and I think

you would have some of the best doctors in the country on OCD there. I even

drove by while I was in the area. They know about OCD more than most. Seemed

to be very kind and gentle. My therapist and I also thought for my son, just

the idea of being part of a college study would be cool for my son and maybe

he would open up more with them. I wonder if it would be helpful to be in a

place with other kids who have the same struggles. My son feels so alone in

this. If your son does not get the improvement he needs they will pay for

him to get further help. Great opportunity if you live in the area. I also

think once the meds are at the right dose they can take you pretty quickly.

As for inpatient, go to Duke first then let them guide you.

Good luck!! I am a little jealous, really wanted to do that, felt like it

would be a very thorough treatment and done just right! They are the

experts!

Adele

Charlotte, NC

_____

From:

[mailto: ] On Behalf Of

Sent: Sunday, October 15, 2006 10:06 PM

Subject: Re: How do I know when its time for inpatient

therapy for son with OCD?

Hi Bill, so far as " time for inpatient " ...well, hard choice for any

parent.

My thoughts on what I might do/choose here in NC:

First, I would call Duke University since they do have a dept

experienced with OCD. (Have you tried them yet over these years??)

http://www2.

<http://www2.mc.duke.edu/depts/psychiatry/pcaad/pcaad_contacts.htm>

mc.duke.edu/depts/psychiatry/pcaad/pcaad_contacts.htm

(search the site, you may find a better phone # to call)

They may have some good knowledge on which hospital is best, may know

where people who trained with them are working (Frye, Winston...),

may know of somewhere your doctor/therapist haven't mentioned. Of

course if you live near Raleigh/Durham, you could seek treatment

there. If you're within driving distance, there's an OCD study he

might get into:

http://www2. <http://www2.mc.duke.edu/depts/psychiatry/pcaad/pcaad_pots.htm>

mc.duke.edu/depts/psychiatry/pcaad/pcaad_pots.htm

although with his cormorbid diagnoses, he might not fit into the

study.

I would also call Frye and Baptist directly and ask about their OCD

treatment. I think you've gathered enough info to know what they

should say about treatment. I think when searching for someone or

some program experienced, it's easy to hear someone/someplace does

CBT but CBT is used for lots of illnesses, and someone who is

qualified to do CBT really may have no experience with treating OCD

or even have a good understanding of it. So, I'd be calling to see

if I liked what they told me (Frye and Baptist).

I think I would wait until later about the SSI, but I'm no expert on

that topic (or OCD either, really, LOL). If you go inpatient, what

is done there will help with records/info needed when applying for

SSI, I would think. If he qualifies for SSI, he'll automatically get

Medicaid. Applying for Medicaid alone is based on family income,

which I guess you know.

Have you checked into any " patient assistance program " in your area

regarding help for paying for medication?

Regarding scrupulosity - I can't say if is better/worse for

all his participation in church, youth group, etc. Overall...I guess

he's better with it. I think he'd sink further down without going

because he enjoys going so much. He's away tonight with the youth

group where they are doing some type " community " work (building

something I think), staying overnight there. Next week they are

supposed to go camping at Hanging Rock. So there's some good things

going on, else he'd be staying home mostly too.

Oh, I catch him praying, down on his knees!, and tell him to get up.

He's so unhappy sometimes with these bad thoughts. And he's where

he's not sure if all his thoughts *are* OCD, maybe some are just

*him*. But I told him if he's worrying himself so much over it/them,

making him so unhappy, then let's call it " OCD. " The other night he

hit himself in the head a couple times, fed up and upset with his

recurring thought. Wouldn't share what it was with me, though I

tried to pry it out of him.

Have you talked with your son about inpatient help yet?

>

> Hi,

> Last Thursday was the start of my sons second week of taking

200mg

> of generic Zoloft per day along with 150mg of Seroquel. His doctor

> worked him up to that dose over four weeks. I have seen no signs of

> improvement yet at this level. The only change I saw was when I

> finally reluctantly agreed to let him drop out of 12 grage for the

October 16, 2006

Hi,

I live in Statesville, have 4 children living at home and work 6 days

a week. Going back and forth to Duke would not work out for me. I am

leaning more towards NC Baptist Hospital for inpatient care. I spoke

with them on the phone today, they said they had staff that was very

skilled with treating OCD and other related disorders. My son has

another appointment with his therapist. I will wait to see what she

thinks. I called my son at 2:00pm today, he was still in the bed. It

would be nice to see him smile again. Thanks for your concern.

Bill

October 16, 2006

Bill,

The quality of care and understanding he would receive at Duke may be worth

the sacrifice.

Dr. Marsh, who really wrote the book on OCD is based there......

Statesville is not really that far away.

Just a thought.

in Southeastern PA

justlivey <justlivey@...> wrote: