Guest guest Posted July 9, 1999 Report Share Posted July 9, 1999 I am so glade that is home now and doing better I hope all goes well >From: Skis@... >Reply- onelist > onelist >Subject: [ ] EMILY >Date: Thu, 8 Jul 1999 23:56:37 EDT >MIME-Version: 1.0 >From errors-80038-789-shancna Thu Jul 08 20:57:45 1999 >Received: from [209.207.164.221] by hotmail.com (1.5) with SMTP id >MHotMailB94EBE39017AD82197E7D1CFA4DD209D0; Thu Jul 08 20:57:45 1999 >Received: (qmail 11074 invoked by alias); 9 Jul 1999 03:58:39 -0000 >Received: (qmail 11057 invoked from network); 9 Jul 1999 03:58:38 -0000 >Received: from unknown (HELO imo14.mx.aol.com) (198.81.17.4) by >pop.onelist.com with SMTP; 9 Jul 1999 03:58:38 -0000 >Received: from Skis@... by imo14.mx.aol.com (IMOv20.21) id >hOIBa25615 (4452) for < onelist>; Thu, 8 Jul 1999 23:56:37 >-0400 (EDT) >Message-ID: <9901610c.24b6ccf5@...> >X-Mailer: AOL 4.0 for Windows 95 sub 10 >Mailing-List: list onelist; contact -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Skis@... > > came how tonight after nearly three weeks in the hospital. The doctor >said that only 30% of kids with severe hepatic toxicity don't need a >transplant. It looks like we dodged the bullet this time! Now she is on 10 >mg >daily of Decadron. Apparently that 10X the normal does and it will be like >that for a while because we have just tapered down from 84mg!!!! She has >pitikie (Spelling?) or burst blood vessels in her legs that are due to the >steroids and they said we should expect them to be all over before we are >finished because of her high doses. Does any one else have experience with >either Decadron and or bursting blood vessels in the legs due to steroids? > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 1999 Report Share Posted July 11, 1999 <!doctype html public " -//w3c//dtd html 4.0 transitional//en " > <html> Hi , <p>I was so happy to read about coming home. Three weeks was a long time. That is very good news about her liver, too. No. I can't say that we've had any experience with those bursting blood vessels. Maybe someone else here knows more about that? We also have never needed to try Decadron. Try the RX list site and they should have plenty of info. If you don't get around to it, I'll try a little later this evening and see if I find anything. I guess the worst of it is over. & nbsp; I'm sure you guys must be really happy to have your daughter back at home with the family :-) <p>Aloha, <br>Georgina <p>Skis@... wrote: <blockquote TYPE=CITE>From: Skis@... <p> came how tonight after nearly three weeks in the hospital. The doctor <br>said that only 30% of kids with severe hepatic toxicity don't need a <br>transplant. It looks like we dodged the bullet this time! Now she is on 10 mg <br>daily of Decadron. Apparently that 10X the normal does and it will be like <br>that for a while because we have just tapered down from 84mg!!!! She has <br>pitikie (Spelling?) or burst blood vessels in her legs that are due to the <br>steroids and they said we should expect them to be all over before we are <br>finished because of her high doses. & nbsp; Does any one else have experience with <br>either Decadron and or bursting blood vessels in the legs due to steroids?</blockquote> </html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2002 Report Share Posted June 30, 2002 Hey how is Timmy doing? beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2002 Report Share Posted June 30, 2002 Thanks for a great update ! Things defintiely sound like they are going well so already and that his bulge is decreasing, I remember that was the 1st thing we noticed to improve on Abby's head as well. The train decorations sound adorable. We'd love to see a picture if you have a scanner or digital That's great you ran into another helmeted baby. Isn't it such a huge relief to run into someone else experiencing the same thing? I ran into another STARbanded baby on Abby's very 1st trip in public with her band on. The mom & I chatted like we were long lost friends! Good luck with the move Uggg, we've been in our house 6 yrs now & we dread the idea of packing & moving all our junk! Hope it all goes smooth. Debbie Abby's mom DOCGrad MI > Thanks for asking....he's doing really well. He will have had his band two > weeks on Tuesday and already I am seeing a difference. His bulge in the > back definitely isn't as " bulgy. " His flat spot is still flat, but with the > bulge looking better it makes his whole head look tons better. He is > completely used to it....in fact I think he almost counts on the band being > on his head. He has gotten a little careless while wearing it. He will > bang his head into something and it doesn't hurt, so he will bang it again. > But then when he's not wearing it, he will bang into something on purpose > and burst out crying because he just hurt his head!! He'll figure it out > eventually! LOL > > This week I decorated his band with train stickers going around the top of > it. He looks very cute with it on. I also went a little sticker crazy and > have about 7 more packages of different types, just waiting to be used. > > I also ran into another mom with a son with a helmet at the grocery store on > Thursday. Her son is only one day older than Timmy (10 months this past > week) but he has been wearing his helmet since he was 4 months old and still > has 2 more months to go. I thought that sounded like a very long time, but > it was a passive type helmet rather than an active band. She was very > excited to see another kid with a helmet. We ended up talking for close to > ten minutes about heads and stuff. > > I've been lurking and trying to keep up with messages, but I've been hitting > that delete button a lot this week. We're moving in about a month and > things have been a little crazy this week with house inspections and such. > Soon we have to start packing...ugh! I'll try to keep up with everyone, but > may have to utilize that delete key some more. > > ~~ > > > emily > > > Hey how is Timmy doing? > beck > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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