Re: Pediatricians - I am starting to hate them all

[Guest guest]

Hi Kristy,

Don't give up. I had to go through the same thing. But couldn't even

get in touch with my pediatrician. We had to communicate through

nurses. English is my second language, and it was very frustrating to

explain them that I need a prescription for a band or a referral to a

neurosurgeon. When I thought they understood what I meant, they made

me wait for a week and then got back to me with a name of a physical

therapist...

I found the name of a neurosurgeon on a plagiocephaly web-site and

called his office to schedule an appointment. When we came to see

him, he said that only surgery can help. I asked him about a band. He

was very pessimistic about it. He dealt with some helmets, but as far

as I understood never heard of DOC bands. I begged him to write a

prescription. He did. All it was saying was: Helmet/band treatment is

recommended. And Cranial Technologies accepted this prescription.

That is my story. I hope the doctor you see tomorrow will write you a

prescription. It is tough, but don't give up and fight for it.

Good luck,

Leana, Katya's mom (almost 18 months old, will be out of the band in

3 weeks)

> well, here i am again. I just got off the phone with a

pediatrician

> whom I thought was going to help me. Knowing that time is of the

> essence, she can't even see till 8/6. (He'll be over 10 mos

> at that time) and there is no guarantee that she'll write the

> prescription at that point so I'll be back to square one. I can't

> wait another month for another dead end. I just don't know what

else

> to do. The appointment with the nuerosurgeon is tomorrow, but this

> is the guy that my original ped said was going to tell me the same

> thing she did - " it'll round out on its own and if it doesn't -

well

> we're all a little asymmetric anyway " Funny thing is, I almost

> didn't make an appointment with him because it was too long to wait

> (three weeks at the time I made it) Hopefully the hubby will be

able

> to attend the appointment with me. He is more likely to open his

> mouth and fight where I'll try and stutter and give up.

>

> Kristi

> (4) and (9 1/2 mos)

> OH

[Guest guest]

Kristi:

I am hoping the neurosurgeon will go ahead & write you the

rx.....let's hope so anyway. If not, then find someone who will,

find a new pediatrician & move on from there. I know you want to get

the band ASAP with ' age, load yourself with all the plagio &

band information you can to take to the specialist tomorrow. Demand

he write you a prescription.

Good luck.....let us know how it goes.

Debbie Abby's mom DOCGrad

MI

> well, here i am again. I just got off the phone with a

pediatrician

> whom I thought was going to help me. Knowing that time is of the

> essence, she can't even see till 8/6. (He'll be over 10 mos

> at that time) and there is no guarantee that she'll write the

> prescription at that point so I'll be back to square one. I can't

> wait another month for another dead end. I just don't know what

else

> to do. The appointment with the nuerosurgeon is tomorrow, but this

> is the guy that my original ped said was going to tell me the same

> thing she did - " it'll round out on its own and if it doesn't -

well

> we're all a little asymmetric anyway " Funny thing is, I almost

> didn't make an appointment with him because it was too long to wait

> (three weeks at the time I made it) Hopefully the hubby will be

able

> to attend the appointment with me. He is more likely to open his

> mouth and fight where I'll try and stutter and give up.

>

> Kristi

> (4) and (9 1/2 mos)

> OH

[Guest guest]

Kristi, I don't remember your exact story but do you need an Rx or a referral

(because

of an HMO)? If you only need the Rx, maybe you can try to look for a Pediatric

Plastic Surgeon in your area. I looked at CT site and for some reason, Ohio is

listed but can't be accessed for physicians but there is a clinic in Cleveland

and

maybe they can refer you to someone who works with them for the Rx. Maybe you

have already gone this route but if you haven't, I listed the center below:

Ohio

Straight Ahead Pediatric Physical Therapy, LLC

Hillcrest Medical Bldg.

781 Beta Drive, Suite C

Mayfield Village (Cleveland), OH 44143

Lepp, PT

Karmel-Ross, PT, PCS

Phone: 440-460-0923

Good Luck.

ann/

NJ

DOCband 2 weeks

>

>

> Message: 5

> Date: Wed, 10 Jul 2002 16:18:05 -0000

> From: " jketcline " <kmccpa@...>

> Subject: Pediatricians - I am starting to hate them all

>

> well, here i am again. I just got off the phone with a pediatrician

> whom I thought was going to help me. Knowing that time is of the

> essence, she can't even see till 8/6. (He'll be over 10 mos

> at that time) and there is no guarantee that she'll write the

> prescription at that point so I'll be back to square one. I can't

> wait another month for another dead end. I just don't know what else

> to do. The appointment with the nuerosurgeon is tomorrow, but this

> is the guy that my original ped said was going to tell me the same

> thing she did - " it'll round out on its own and if it doesn't - well

> we're all a little asymmetric anyway " Funny thing is, I almost

> didn't make an appointment with him because it was too long to wait

> (three weeks at the time I made it) Hopefully the hubby will be able

> to attend the appointment with me. He is more likely to open his

> mouth and fight where I'll try and stutter and give up.

>

> Kristi

> (4) and (9 1/2 mos)

> OH

>