Re: I've been MIA for a while!

[Guest guest]

Hi Kristi:

My sympathies on the death in your family.

That is sad to read the other parent's email. There are so many

differing opinions regarding plagio, to each their own I suppose. I

definitley hope her daughter's head shape corrects itself over time.

Good luck to you in your decision whether or not to band as

well as finding a ped. who will write you a prescription for one.

Please keep us update...good to hear from you again.

Debbie Abby's mom DOCGrad

MI

> We had a death in the family recently and that, of course, took

> precedence over every thing else. But I am back and have read a

lot

> of what I've missed (or at least I tried) Anyway, thanks to all

who

> responded to my earlier concerns. You guys are great! We are

still

> trying to find a ped who will write the prescription for us. I am

> stressing as is only getting older (he's now 9 1/2 months)

>

> I also have what I consider a sad story to tell. When first

> started attending day care, there was a little girl there named

> who I always knew something was wrong with. I didn't know what

until

> I started researching plagio - and she's got it BAD. She just

looks

> messed up. I orginally thought maybe she was slightly retarded or

> something (please don't take this offensively - I am just trying to

> describe how she looks) Well, its just plagio (luckily). I talked

> to her mom about it a couple weeks ago ( just turned 1) and

gave

> her the web sites I've discovered. I encouraged her to do more

than

> wait it out (her dr assures her it will round out and she says it

has

> some - I haven't noticed a difference and it has been 6 months

since

> started there) I have posted her response below. I know I

> can't force her to do anything, but I just keep thinking - " this

poor

> little girl, she is so cute but is going to get such a bad rap

> because of her head " Her response:

>

> " I did quite a bit of reading on the subject of plagiocephaly and

> talked about it with my husband and various medical professionals.

> We were able to ascertain quickly that isn't suffering any

> developmental or cognitive problems because of her head shape.

That

> was our primary concern. She's slow to get mobile, but she comes

by

> that honestly. My husband and his siblings were all slow to walk

(16-

> 18 months). And she's a smart little cookie, beginning to talk,

> etc. So after eliminating that concern we knew we were looking at

a

> purely cosmetic issue. We like and trust our pediatrician very

much

> and we've asked him about her head at nearly every visit and have

> been assured that it will be okay. Perfect? No. But hardly

anyone

> has a nice, round head with perfectly even ears, etc. We called

two

> other pediatricians for opinions and were told the same thing.

(Both

> of these peds are family friends.)

>

> Her head DOES look better than it did and I expect it will keep

> improving for a while yet. Will her ears probably remain a bit

> crooked? Yup, I imagine so. Mine are crooked. One is about a 1/2

> inch higher and slightly farther back than the other. In 34 years

> not one single person has ever noticed it. Even when I point it

out

> people don't really " see " it. Heck, people don't even notice

's

> ears NOW unless we point it out.

>

> One of the studies I came across on the web was done by a physician

> who researched plagiocephaly in adults. He found that in 1000

> adults, greater than 14% of them had at least some of the

discernable

> after-effects of it-- flat spots, crooked ears, a slight bulge to

> their forehead. Not a single one of them were even AWARE of it and

> none of them had ever had anyone else point it out to them.

>

> I've got to tell you, after speaking with you I've really studied

> , (I still visit at lunchtime most days) and I can barely

see

> anything " off " about his head or ears. And I've looked hard! :-)

I

> don't say that to change your mind but rather to perhaps ease it a

> bit. We mothers all have our things that we get very concerned

about-

> - for me it's rBGH and antibiotics in dairy products. only

has

> organic milk, yogurt, etc. now that she's old enough for dairy. I

> respect your right and need to do what you think is best for

> and I wish you the best of luck with it! "

>

> I just can't believe she would let it go so easily. I know

is

> nowhere near as bad as her little girl, that's probably why she

> doesn't see his plagio. I'll tell you what, if was my little

> girl, I'd have her in a helmet. As it is, I am still struggling

with

> the decision to band -=especially since we can't find a Dr.

to

> sign off on it. Sorry to be so long winded, I just needed to vent.

>

> Kristi

> (4) and (9 1/2 mos)

> OH

[Guest guest]

Kristi,

First and foremost, I want to say how sorry I am for the death in the

family, you have my condolences.

I really think it was very nice of you to give 's mom

so much info regarding plagio. Unfortunately, a lot of parents don't

realise the complications that can arise from plagio and they take

their doctors word at face value. You should feel good that you

helped out this much, but as frustrating as it is, its out of your

hands now. It really was admirable for you to go out of your way to

try and help, I think a lot of us wouldn't know how to approach the

subject and not say anything.

You hang in there! Everything will work out in the end for you and

!!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> We had a death in the family recently and that, of course, took

> precedence over every thing else. But I am back and have read a

lot

> of what I've missed (or at least I tried) Anyway, thanks to all

who

> responded to my earlier concerns. You guys are great! We are

still

> trying to find a ped who will write the prescription for us. I am

> stressing as is only getting older (he's now 9 1/2 months)

>

> I also have what I consider a sad story to tell. When first

> started attending day care, there was a little girl there named

> who I always knew something was wrong with. I didn't know what

until

> I started researching plagio - and she's got it BAD. She just

looks

> messed up. I orginally thought maybe she was slightly retarded or

> something (please don't take this offensively - I am just trying to

> describe how she looks) Well, its just plagio (luckily). I talked

> to her mom about it a couple weeks ago ( just turned 1) and

gave

> her the web sites I've discovered. I encouraged her to do more

than

> wait it out (her dr assures her it will round out and she says it

has

> some - I haven't noticed a difference and it has been 6 months

since

> started there) I have posted her response below. I know I

> can't force her to do anything, but I just keep thinking - " this

poor

> little girl, she is so cute but is going to get such a bad rap

> because of her head " Her response:

>

> " I did quite a bit of reading on the subject of plagiocephaly and

> talked about it with my husband and various medical professionals.

> We were able to ascertain quickly that isn't suffering any

> developmental or cognitive problems because of her head shape.

That

> was our primary concern. She's slow to get mobile, but she comes

by

> that honestly. My husband and his siblings were all slow to walk

(16-

> 18 months). And she's a smart little cookie, beginning to talk,

> etc. So after eliminating that concern we knew we were looking at

a

> purely cosmetic issue. We like and trust our pediatrician very

much

> and we've asked him about her head at nearly every visit and have

> been assured that it will be okay. Perfect? No. But hardly

anyone

> has a nice, round head with perfectly even ears, etc. We called

two

> other pediatricians for opinions and were told the same thing.

(Both

> of these peds are family friends.)

>

> Her head DOES look better than it did and I expect it will keep

> improving for a while yet. Will her ears probably remain a bit

> crooked? Yup, I imagine so. Mine are crooked. One is about a 1/2

> inch higher and slightly farther back than the other. In 34 years

> not one single person has ever noticed it. Even when I point it

out

> people don't really " see " it. Heck, people don't even notice

's

> ears NOW unless we point it out.

>

> One of the studies I came across on the web was done by a physician

> who researched plagiocephaly in adults. He found that in 1000

> adults, greater than 14% of them had at least some of the

discernable

> after-effects of it-- flat spots, crooked ears, a slight bulge to

> their forehead. Not a single one of them were even AWARE of it and

> none of them had ever had anyone else point it out to them.

>

> I've got to tell you, after speaking with you I've really studied

> , (I still visit at lunchtime most days) and I can barely

see

> anything " off " about his head or ears. And I've looked hard! :-)

I

> don't say that to change your mind but rather to perhaps ease it a

> bit. We mothers all have our things that we get very concerned

about-

> - for me it's rBGH and antibiotics in dairy products. only

has

> organic milk, yogurt, etc. now that she's old enough for dairy. I

> respect your right and need to do what you think is best for

> and I wish you the best of luck with it! "

>

> I just can't believe she would let it go so easily. I know

is

> nowhere near as bad as her little girl, that's probably why she

> doesn't see his plagio. I'll tell you what, if was my little

> girl, I'd have her in a helmet. As it is, I am still struggling

with

> the decision to band -=especially since we can't find a Dr.

to

> sign off on it. Sorry to be so long winded, I just needed to vent.

>

> Kristi

> (4) and (9 1/2 mos)

> OH