My story

[Guest guest]

Happy to be among equals. I am a male born 1950. There is a history

of autoimmune deseases in our family. My sister has pernicious

anemia, hypothereose and arthrisis. Her daughter has pernicious

anemia, hypothyreose, and living with lupus since she was borne.

I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

the right gland and the surgeon said the tumor was as big as the the

gland.

I think i had the symptoms from very early on, maybe already as a

child. During college I used to skip to days a week. Looking back I

see that I was feeling tired. I used to train during wintertime, but

had trouble to run playing soccer in summer. Enlisted in the military

19 years old and had diffuculties competing with the others when it

was hot. One warm day I even fainted standing along the others. Other

symptoms were anxiety, my handwas shaking when drinking coffee and I

had to use both hands. Turning 20 and the headaches started on. In 81

I was diagnosed with hypertension and low pottassium. At 30 I begun

to frequent the bathroom during nighttime. I used to fall asleep 4 to

6 oclock`in the morning, sleeping to 11 to 14. After surgery the

headaches disapeared and I started to sleep well again. The left

gland was producing to much aldo, 1400, and I was put on 50-100

spiro. Still BP remained high, about 105, and the endo I was seeing

every 3 months said it was ok. Because of the sideeffects we tried

another medicament. In the beginning it worked ok, but then BP was

140. We then had to use spiro again, but at that time I started to

get irregular heartbeats. Determined to lower BP I visited a

cardiovascular center and I got 100 mg Selozok in addition. Since

then BP has been ok and for a while the extra systoles stopped. One

night in 90 I started to frequent the the bathroom again and the

irregular heartbeats got worse and I had it 24 hours a day. Going to

bed was terrible because then it got even worse and I had problems

laying on my left side and the stomach. My endo thought this was not

related to PA and in 96 I had surgery burning the nerves in the

bladder, but to no help. During this years I had almost no sleep. I

would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

sleep. In 2 weeks time I would almost certain have 3 days with no

sleep. In 2000 I met another endo who is quit controversial. He did a

lot of tests, and I was set on low dose levaxin. My aching muscles

got better and the sleep started to be better, I even fall into deep

sleep. Then he adviced me to eat every 2 hours, mostly vegetables, no

fruit,no potatoes, no sweet,no dairy products. After 1 week the

irregular heartbeats disappeared and I am in much better conditons

now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

d and k suplements, calsium, omega 3 and DHEA. The sleep is still not

perfect. I dont know if could be better with low salt diet. The

kidney areas is hurting and I some time have problems to swallow. If

you have some advice? This was not meant to complain, I am feeling

quit well and is in fulltime job.