Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Hi, my name is Tamara and my daughter's name is Novali. First I want to say thank you for all of the responses that I've received to my questions thus far. I am finding this to be very helpful! Novali is about to turn 15 months old and she's been diagnosed with a mild case of positional plagiocephaly. I actually started looking into treatment when she was about 6 months old. Her dad and I noticed the deformity in the shape of her skull early on. I happened to run across an article about the condition in a magazine. Prior to that I didn't even know what plagiocephaly was, or that it could be treated. When I mentioned it to her pediatrician, she encouraged me to wait and see if it would correct itself. She actually did get some natural correction, it was a lot worse than it is now. Finally when she turned a year old, we were referred to the Cranio Facial center at the University of Illinois-Chicago. Now, with waiting for insurance approval and what not, it's 3 months later and she's finally gotten her Starband. They tell me she will probably wear it for a minimum of 7 months. I am praying for at least some correction. Novali received the helmet on Tuesday and she seems to be doing fine. She barely seems to notice it. The sweating seems to be getting better, even though she has a little bit of heat rash on her forehead and down the sides of her face. I'm doing my best to keep her cool. I will keep updating the site on how she is doing... Everyone is also welcome to visit her website... Her dad does web design and she's had this site since the week she was born... Daddy's little girl!!! www.centellas.org/novali Thanks again for the support! Quote Link to comment Share on other sites More sharing options...
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