' Consultation : ( - Kristi

[Guest guest]

My son was diagnosed with moderate plagio. But from some of the pictures

I've seen, 's isn't nearly as bad and I felt foolish making a big deal

about

him while others are so far worse. But the fact of the matter is, it does

bother me,

especially since his head was perfectly round before (we even called him Charlie

Brown head because it was so perfectly round...)

At 8 months, I didn't notice any difference and I became very concerned.

We weren't told that we absolutely needed to do this. We were told it was up

to us - just like getting braces - some parents elect to do it and some don't.

I too wanted them to tell me that it was a bad case and that he absolutely

needed the

band. Bottom line is regardless of how mild it is, if it bothers you, do

something about

it because you may regret it in the future and that guilt will be with you

forever.

At least that is what I felt.

In terms of others telling you it will round out, I feel every kid is different

and

for some it rounds and some it doesn't. I didn't want to take the chance

to see if it would because once you are certain it won't round, it will be too

late

to correct.

ann/

NJ

DOC 1 week

> Message: 21

> Date: Wed, 26 Jun 2002 03:02:43 -0000

> From: " jketcline " <kmccpa@...>

> Subject: ' Consultation : (

>

> Well,

>

> We drove three hours to Cleveland with construction almost the entire

> way. Couldn't drop the four year old off at her aunt's house because

> the construction put us so far behind schedule. The consult went

> o.k. ' measurements put him in a mild-moderate range which is

> better than we had feared but puts him in a grey area. They are

> neither recommmending the band nor not recommending it. So here we

> are trying to figure out if we should spend the $3000. Even CT is

> saying it isn't all that bad. And after seeing some of the head

> molds at this clinic, I am feeling guilty about complaining and

> making such a ruckous (??) over the whole thing. If we do decide to

> go ahead with it, we have to find a pediatrician who will write the

> sript, and if we want the insurance to pay any of it, the same

> physician will have to write a letter of medical neccesity, which

> doesn't seem likely.

>

> We have decided that we want to do it because we feel it won't harm

> him now, and this way we can be sure it won't bother him later. I

> just wish (and I know this sounds terrible) that it was worse and I

> was being told, " Yes, you absolutely should do this. " Then I am

> thinking, I am going to have to make this three hour (one way)

> journey once a week and by myself since dh is studying for the BAR

> exam at the moment. For just a minor flat spot - is it really worth

> it? Are we certain it won't round out on its own?

>

> I was just talking with a neighbor about it and she said her daughter

> was very flat in the back - much worse than and it rounded out

> nicely - not perfect - but much better than it was without any

> intervention other that staying off the back of her head during the

> day. Of course, started sitting up around 4 months and spent

> a lot of time in the jhonny jump-up and the exersaucer during the day

> and his hasn't changed a bit.

>

> Ok. I am definitely rambling - sorry to be so long winded. Any

> advice would be welcome!

>

> Kristi

> ' mom

> OH

>