Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 We have several on our site going for Years Most " long term follow-up studies are about 10 Years This is where we can make a contribution with A Good data base Sent from my iPhone May your pressure be low! CE Grim MS MD Specializing in Difficult Hypertension Senior Consultant to Shared Care Research and Education Comsulting Inc Sharedcareinc@... On Nov 23, 2008, at 5:15 PM, constellationmike <hohnka@...> wrote: > A question for anyone who might have an answer. I was diagnosed about > 2 years ago with Bilateral Adrenal Hyperplasia. I saw my Endo on > Thursday for my regular visit, and I asked him what the long-term > outlook is for hyperplasia and he responded that he didn't know and, > due to how rare this condition is, he doubts if anyone could answer > that question. So, does anyone out there know? Is this really rare? > Thanks! > > Mike > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 There is one person on this board who has been on spiro for, I believe, 31 years. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of constellationmike A question for anyone who might have an answer. I was diagnosed about 2 years ago with Bilateral Adrenal Hyperplasia. I saw my Endo on Thursday for my regular visit, and I asked him what the long-term outlook is for hyperplasia and he responded that he didn't know and, due to how rare this condition is, he doubts if anyone could answer that question. So, does anyone out there know? Is this really rare? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 The secret is to DASH and take Mcbs to keep bp below 135/85 at home IMHO Sent from my iPhone May your pressure be low! CE Grim MS MD Specializing in Difficult Hypertension Senior Consultant to Shared Care Research and Education Comsulting Inc Sharedcareinc@... On Nov 23, 2008, at 7:01 PM, Valarie <val@...> wrote: > There is one person on this board who has been on spiro for, I > believe, 31 > years. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of > constellationmike > > A question for anyone who might have an answer. I was diagnosed about > 2 years ago with Bilateral Adrenal Hyperplasia. I saw my Endo on > Thursday for my regular visit, and I asked him what the long-term > outlook is for hyperplasia and he responded that he didn't know and, > due to how rare this condition is, he doubts if anyone could answer > that question. So, does anyone out there know? Is this really rare? > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Ask your Endo to join our group To learn that it is not Rare Sent from my iPhone May your pressure be low! CE Grim MS MD Specializing in Difficult Hypertension Senior Consultant to Shared Care Research and Education Comsulting Inc Sharedcareinc@... On Nov 23, 2008, at 5:15 PM, constellationmike <hohnka@...> wrote: > A question for anyone who might have an answer. I was diagnosed about > 2 years ago with Bilateral Adrenal Hyperplasia. I saw my Endo on > Thursday for my regular visit, and I asked him what the long-term > outlook is for hyperplasia and he responded that he didn't know and, > due to how rare this condition is, he doubts if anyone could answer > that question. So, does anyone out there know? Is this really rare? > Thanks! > > Mike > > Quote Link to comment Share on other sites More sharing options...
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