Re: Hashimoto's/Addison's and Conn's

[Guest guest]

MRI cannot judge adrenal size well if normal. It tells us nothing

about function.

's and Conn's together have never been reported to my

knowledge. Not adrenals function ('s) not aldo.

Indeed we can improve/cure Conn's with surgical induced 's.

If K is low you dont likely have 's. Has spironlactone been

tried?

CE Grim MD

On Dec 17, 2008, at 12:49 AM, Eva wrote:

> I have tried to send the following messages multiple times, I

> really don't

> know what is wrong with it:

>

> Hello group!

> Thanks for letting me join firsteval, I can't tell you how relieved

> I am to

> finally find some kind of support or other patients. Still my hope to

> finding someone who knows my problems isn't really high, but here I

> try:

> My name is Eva, I'm 25 years old and I was diagnosed with Conn's a

> few month

> ago - but my Aldosteron/Renin quotient has been bad since 2003 really.

> Nobody noticed it though because everyone was focused on my other

> endocrinological problems: I had Morbus (hypocortisolism)

> first, but

> then it disappeared again - my right adrenal gland is gone for good

> though

> (quasi non-existent), and the left one is really small also

> according to the

> MRI.

> Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> since 2003

> or earlier, also only diagnosed this year.

> That's why probably my Conn's syndroms are really weird. I still

> don't have

> severe hypertonia for example. I was suffering from hypotonia for many

> years, then everything seemed perfect with 105/75 or 110/80 for a

> really

> long time until I started taking hormones for my thyreoid and now

> I'm on a

> level between 130/80 until 140/90. I know for all of you that isn't

> really

> high, but sometimes I just go back to 80/80 and that's really not a

> nice

> experience either.

>

Assume you mean 180/80

> The doctors right now tell me not to take more

> thyroid-medications so I won't develop more hypertonia, but I

> really do feel

> tired and awful all the time.

> I have no idea weather my symptoms will get better at all: I suffer

> from

> severe muskle cramps, a constant feeling of high stress (even if I

> had to

> drop out of university for a semester and my life besides the body

> is quite

> yummy ), Kalium problems (but I've been craving Bananas a lot -

> good girl

> ) as well as a lot of Cushing's symptoms - I gained loads of

> weight in 2

> steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date) without

> changing my eating pattern, and almost all of it on the belly, as

> well as

> the skin and the tendency to get marks really easy. My cortisol is

> still

> bordering very low though, but normal now, my testosteron is also

> extremly

> high though (without ovarial failure). All in all, I just feel

> extremly

> unwell and here in Germany nobody really seems to care for such a

> complicate

> case as mine. I'll be entering a medicinal investigation about

> Conn's in

> January though, it might get better (and I can tell you the newest

> developements).

>

Recommend you see Dr. Fred Luft's group in Berlin.

>

> Anyway - I also highly doubt that my symptoms can get any better with

> medications and I'm not really convinced I should take some with

> Hashimoto

> and everything else that I have..

> Right now I'm just really confused and it seems as if I were an

> alien or

> something. They actually asked me that after the MRI: How can you have

> primary hyperaldosteronism e.g. Conn's, if you don't have an adenom

> and your

> adrenal glands are really small or non-existent? I got checked

> multiple

> times for Aldosteron and Renin in the past years, so there's really no

> denying the problem.

> So anybody any tipps or advice for me? Thanks for listening anyway...

> Eva

>

>

[Guest guest]

That should have been no adrenal function no also

Sent from my iPhone

CE Grim MD

On Dec 17, 2008, at 7:26 AM, Clarence Grim <lowerbp2@...> wrote:

> MRI cannot judge adrenal size well if normal. It tells us nothing

> about function.

>

> 's and Conn's together have never been reported to my

> knowledge. Not adrenals function ('s) not aldo.

>

> Indeed we can improve/cure Conn's with surgical induced 's.

>

> If K is low you dont likely have 's. Has spironlactone been

> tried?

>

> CE Grim MD

>

> On Dec 17, 2008, at 12:49 AM, Eva wrote:

>

> > I have tried to send the following messages multiple times, I

> > really don't

> > know what is wrong with it:

> >

> > Hello group!

> > Thanks for letting me join firsteval, I can't tell you how relieved

> > I am to

> > finally find some kind of support or other patients. Still my hope

> to

> > finding someone who knows my problems isn't really high, but here I

> > try:

> > My name is Eva, I'm 25 years old and I was diagnosed with Conn's a

> > few month

> > ago - but my Aldosteron/Renin quotient has been bad since 2003

> really.

> > Nobody noticed it though because everyone was focused on my other

> > endocrinological problems: I had Morbus (hypocortisolism)

> > first, but

> > then it disappeared again - my right adrenal gland is gone for good

> > though

> > (quasi non-existent), and the left one is really small also

> > according to the

> > MRI.

> > Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> > since 2003

> > or earlier, also only diagnosed this year.

> > That's why probably my Conn's syndroms are really weird. I still

> > don't have

> > severe hypertonia for example. I was suffering from hypotonia for

> many

> > years, then everything seemed perfect with 105/75 or 110/80 for a

> > really

> > long time until I started taking hormones for my thyreoid and now

> > I'm on a

> > level between 130/80 until 140/90. I know for all of you that isn't

> > really

> > high, but sometimes I just go back to 80/80 and that's really not a

> > nice

> > experience either.

> >

>

> Assume you mean 180/80

> > The doctors right now tell me not to take more

> > thyroid-medications so I won't develop more hypertonia, but I

> > really do feel

> > tired and awful all the time.

> > I have no idea weather my symptoms will get better at all: I suffer

> > from

> > severe muskle cramps, a constant feeling of high stress (even if I

> > had to

> > drop out of university for a semester and my life besides the body

> > is quite

> > yummy ), Kalium problems (but I've been craving Bananas a lot -

> > good girl

> > ) as well as a lot of Cushing's symptoms - I gained loads of

> > weight in 2

> > steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date)

> without

> > changing my eating pattern, and almost all of it on the belly, as

> > well as

> > the skin and the tendency to get marks really easy. My cortisol is

> > still

> > bordering very low though, but normal now, my testosteron is also

> > extremly

> > high though (without ovarial failure). All in all, I just feel

> > extremly

> > unwell and here in Germany nobody really seems to care for such a

> > complicate

> > case as mine. I'll be entering a medicinal investigation about

> > Conn's in

> > January though, it might get better (and I can tell you the newest

> > developements).

> >

>

> Recommend you see Dr. Fred Luft's group in Berlin.

> >

> > Anyway - I also highly doubt that my symptoms can get any better

> with

> > medications and I'm not really convinced I should take some with

> > Hashimoto

> > and everything else that I have..

> > Right now I'm just really confused and it seems as if I were an

> > alien or

> > something. They actually asked me that after the MRI: How can you

> have

> > primary hyperaldosteronism e.g. Conn's, if you don't have an adenom

> > and your

> > adrenal glands are really small or non-existent? I got checked

> > multiple

> > times for Aldosteron and Renin in the past years, so there's

> really no

> > denying the problem.

> > So anybody any tipps or advice for me? Thanks for listening

> anyway...

> > Eva

> >

> >

[Guest guest]

Hi thanks a lot for the information!

Is a CT better to judge the adrenal gland?

The function of my adrenal glands though has been tested via blood (and

seldomly urin) since 2003 - I both had primary Hypocortisolism for a while

as I have Primary Hyperaldosteronism. The Aldosteron/Renin quotient has been

wrong since the beginning of tests in 2003. My Cortisol right now is okay,

but still always bordering too low. I never had any symptoms, so

nobody knows why that happend, but it was confirmed again and again in the

strangest tests. Nobody really knows why.

But you are definitly right, that there should have been no adrenal gland

function at all if I had . And as there always has been pretty high

Aldosteron, it most likely was an error in diagnosis or body. But it really

was like that for over a year - My cortisol didn't work in any test,

couldn't be stimulated - nothing. But it's back now anyway.

Spirolactone would be my next step I suppose, but doctors work really slow

here in Germany.. My endocrinologist wanted to sent me the prescription and

further informations by mail somewhere in February or March and tell me what

to do next.. I got my diagnosis in late September.

Oh and I meant 80/80.. I had that quite usually during my -period.

Now I have 120/80 until 140/85, sometimes still going down to 80/80. But

that's probably because of Hashimoto and my low Vitamine B12, which is only

now treated - that's what my internist told me.

Thanks for the tipp about Berlin. I'll first check out Düsseldorf though -

they have this scientifical research about Conn's and they gave me an

appointment for January - I'm sure in Berlin I'd be waiting until at least

next summer.

Thanks a lot - I'm just really confused. Does anybody here have any

Autoimmun Diseases besides Conn?

Eva

>

> Hello group!

> Thanks for letting me join firsteval, I can't tell you how relieved

> I am to

> finally find some kind of support or other patients. Still my hope to

> finding someone who knows my problems isn't really high, but here I

> try:

> My name is Eva, I'm 25 years old and I was diagnosed with Conn's a

> few month

> ago - but my Aldosteron/Renin quotient has been bad since 2003 really.

> Nobody noticed it though because everyone was focused on my other

> endocrinological problems: I had Morbus (hypocortisolism)

> first, but

> then it disappeared again - my right adrenal gland is gone for good

> though

> (quasi non-existent), and the left one is really small also

> according to the

> MRI.

> Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> since 2003

> or earlier, also only diagnosed this year.

> That's why probably my Conn's syndroms are really weird. I still

> don't have

> severe hypertonia for example. I was suffering from hypotonia for many

> years, then everything seemed perfect with 105/75 or 110/80 for a

> really

> long time until I started taking hormones for my thyreoid and now

> I'm on a

> level between 130/80 until 140/90. I know for all of you that isn't

> really

> high, but sometimes I just go back to 80/80 and that's really not a

> nice

> experience either.

>

Assume you mean 180/80

> > The doctors right now tell me not to take more

> > thyroid-medications so I won't develop more hypertonia, but I

> > really do feel

> > tired and awful all the time.

> > I have no idea weather my symptoms will get better at all: I suffer

> > from

> > severe muskle cramps, a constant feeling of high stress (even if I

> > had to

> > drop out of university for a semester and my life besides the body

> > is quite

> > yummy ), Kalium problems (but I've been craving Bananas a lot -

> > good girl

> > ) as well as a lot of Cushing's symptoms - I gained loads of

> > weight in 2

> > steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date) without

> > changing my eating pattern, and almost all of it on the belly, as

> > well as

> > the skin and the tendency to get marks really easy. My cortisol is

> > still

> > bordering very low though, but normal now, my testosteron is also

> > extremly

> > high though (without ovarial failure). All in all, I just feel

> > extremly

> > unwell and here in Germany nobody really seems to care for such a

> > complicate

> > case as mine. I'll be entering a medicinal investigation about

> > Conn's in

> > January though, it might get better (and I can tell you the newest

> > developements).

> >

>

> Recommend you see Dr. Fred Luft's group in Berlin.

> >

> > Anyway - I also highly doubt that my symptoms can get any better with

> > medications and I'm not really convinced I should take some with

> > Hashimoto

> > and everything else that I have..

> > Right now I'm just really confused and it seems as if I were an

> > alien or

> > something. They actually asked me that after the MRI: How can you have

> > primary hyperaldosteronism e.g. Conn's, if you don't have an adenom

> > and your

> > adrenal glands are really small or non-existent? I got checked

> > multiple

> > times for Aldosteron and Renin in the past years, so there's really no

> > denying the problem.

> > So anybody any tipps or advice for me? Thanks for listening anyway...

> > Eva

> >

> >

[Guest guest]

80/80 is impossible unless you mean BP and pulse. What are you using

to read BP?

CE Grim

On Dec 17, 2008, at 10:52 AM, Eva wrote:

> Hi thanks a lot for the information!

>

> Is a CT better to judge the adrenal gland?

>

> The function of my adrenal glands though has been tested via blood

> (and

> seldomly urin) since 2003 - I both had primary Hypocortisolism for

> a while

> as I have Primary Hyperaldosteronism. The Aldosteron/Renin quotient

> has been

> wrong since the beginning of tests in 2003. My Cortisol right now

> is okay,

> but still always bordering too low. I never had any

> symptoms, so

> nobody knows why that happend, but it was confirmed again and again

> in the

> strangest tests. Nobody really knows why.

>

> But you are definitly right, that there should have been no adrenal

> gland

> function at all if I had . And as there always has been

> pretty high

> Aldosteron, it most likely was an error in diagnosis or body. But

> it really

> was like that for over a year - My cortisol didn't work in any test,

> couldn't be stimulated - nothing. But it's back now anyway.

>

> Spirolactone would be my next step I suppose, but doctors work

> really slow

> here in Germany.. My endocrinologist wanted to sent me the

> prescription and

> further informations by mail somewhere in February or March and

> tell me what

> to do next.. I got my diagnosis in late September.

>

> Oh and I meant 80/80.. I had that quite usually during my -

> period.

> Now I have 120/80 until 140/85, sometimes still going down to

> 80/80. But

> that's probably because of Hashimoto and my low Vitamine B12, which

> is only

> now treated - that's what my internist told me.

>

> Thanks for the tipp about Berlin. I'll first check out Düsseldorf

> though -

> they have this scientifical research about Conn's and they gave me an

> appointment for January - I'm sure in Berlin I'd be waiting until

> at least

> next summer.

>

> Thanks a lot - I'm just really confused. Does anybody here have any

> Autoimmun Diseases besides Conn?

>

> Eva

>

> >

> > Hello group!

> > Thanks for letting me join firsteval, I can't tell you how relieved

> > I am to

> > finally find some kind of support or other patients. Still my

> hope to

> > finding someone who knows my problems isn't really high, but here I

> > try:

> > My name is Eva, I'm 25 years old and I was diagnosed with Conn's a

> > few month

> > ago - but my Aldosteron/Renin quotient has been bad since 2003

> really.

> > Nobody noticed it though because everyone was focused on my other

> > endocrinological problems: I had Morbus (hypocortisolism)

> > first, but

> > then it disappeared again - my right adrenal gland is gone for good

> > though

> > (quasi non-existent), and the left one is really small also

> > according to the

> > MRI.

> > Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> > since 2003

> > or earlier, also only diagnosed this year.

> > That's why probably my Conn's syndroms are really weird. I still

> > don't have

> > severe hypertonia for example. I was suffering from hypotonia for

> many

> > years, then everything seemed perfect with 105/75 or 110/80 for a

> > really

> > long time until I started taking hormones for my thyreoid and now

> > I'm on a

> > level between 130/80 until 140/90. I know for all of you that isn't

> > really

> > high, but sometimes I just go back to 80/80 and that's really not a

> > nice

> > experience either.

> >

>

> Assume you mean 180/80

> > > The doctors right now tell me not to take more

> > > thyroid-medications so I won't develop more hypertonia, but I

> > > really do feel

> > > tired and awful all the time.

> > > I have no idea weather my symptoms will get better at all: I

> suffer

> > > from

> > > severe muskle cramps, a constant feeling of high stress (even if I

> > > had to

> > > drop out of university for a semester and my life besides the body

> > > is quite

> > > yummy ), Kalium problems (but I've been craving Bananas a lot -

> > > good girl

> > > ) as well as a lot of Cushing's symptoms - I gained loads of

> > > weight in 2

> > > steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date)

> without

> > > changing my eating pattern, and almost all of it on the belly, as

> > > well as

> > > the skin and the tendency to get marks really easy. My cortisol is

> > > still

> > > bordering very low though, but normal now, my testosteron is also

> > > extremly

> > > high though (without ovarial failure). All in all, I just feel

> > > extremly

> > > unwell and here in Germany nobody really seems to care for such a

> > > complicate

> > > case as mine. I'll be entering a medicinal investigation about

> > > Conn's in

> > > January though, it might get better (and I can tell you the newest

> > > developements).

> > >

> >

> > Recommend you see Dr. Fred Luft's group in Berlin.

> > >

> > > Anyway - I also highly doubt that my symptoms can get any

> better with

> > > medications and I'm not really convinced I should take some with

> > > Hashimoto

> > > and everything else that I have..

> > > Right now I'm just really confused and it seems as if I were an

> > > alien or

> > > something. They actually asked me that after the MRI: How can

> you have

> > > primary hyperaldosteronism e.g. Conn's, if you don't have an

> adenom

> > > and your

> > > adrenal glands are really small or non-existent? I got checked

> > > multiple

> > > times for Aldosteron and Renin in the past years, so there's

> really no

> > > denying the problem.

> > > So anybody any tipps or advice for me? Thanks for listening

> anyway...

> > > Eva

> > >

> > >

[Guest guest]

Thanks a lot for that topic. I never thought about it, I usually only get my

BP checked when I got to see the practical doctor. Those weird ones with

80/80 or also 90/60 were only checked at my old house doctor, who also

thought that Hyperaldosteronism was nothing serious and didn't need to be

treated at all... He also always gave me herbal medicine against hypotonia

(low blood pressure).

At my knew doctor there haven't been any measurements under 115/80 anymore

and most of the times if I'm feeling okay it's around 135/85, which is too

high, but not critically.. they have newer electronical devices, while the

old one still checked it with his hand. I'm getting a 24 hour blood pressure

measurement in January though..

The only thing that can be stated is that I really don't have really bad

hypertonia (yet) - which is a pretty strange thing and every doctor keeps

stating that. I'm happy about it though. I have enough problems. I just

don't know what you can do against your high Aldosteron if you don't have

really bad high blood pressure.

Thanks a lot for taking your time.

2008/12/17 Clarence Grim <lowerbp2@...>

> 80/80 is impossible unless you mean BP and pulse. What are you using

> to read BP?

>

> CE Grim

> On Dec 17, 2008, at 10:52 AM, Eva wrote:

>

> > Hi thanks a lot for the information!

> >

> > Is a CT better to judge the adrenal gland?

> >

> > The function of my adrenal glands though has been tested via blood

> > (and

> > seldomly urin) since 2003 - I both had primary Hypocortisolism for

> > a while

> > as I have Primary Hyperaldosteronism. The Aldosteron/Renin quotient

> > has been

> > wrong since the beginning of tests in 2003. My Cortisol right now

> > is okay,

> > but still always bordering too low. I never had any

> > symptoms, so

> > nobody knows why that happend, but it was confirmed again and again

> > in the

> > strangest tests. Nobody really knows why.

> >

> > But you are definitly right, that there should have been no adrenal

> > gland

> > function at all if I had . And as there always has been

> > pretty high

> > Aldosteron, it most likely was an error in diagnosis or body. But

> > it really

> > was like that for over a year - My cortisol didn't work in any test,

> > couldn't be stimulated - nothing. But it's back now anyway.

> >

> > Spirolactone would be my next step I suppose, but doctors work

> > really slow

> > here in Germany.. My endocrinologist wanted to sent me the

> > prescription and

> > further informations by mail somewhere in February or March and

> > tell me what

> > to do next.. I got my diagnosis in late September.

> >

> > Oh and I meant 80/80.. I had that quite usually during my -

> > period.

> > Now I have 120/80 until 140/85, sometimes still going down to

> > 80/80. But

> > that's probably because of Hashimoto and my low Vitamine B12, which

> > is only

> > now treated - that's what my internist told me.

> >

> > Thanks for the tipp about Berlin. I'll first check out Düsseldorf

> > though -

> > they have this scientifical research about Conn's and they gave me an

> > appointment for January - I'm sure in Berlin I'd be waiting until

> > at least

> > next summer.

> >

> > Thanks a lot - I'm just really confused. Does anybody here have any

> > Autoimmun Diseases besides Conn?

> >

> > Eva

> >

> > >

> > > Hello group!

> > > Thanks for letting me join firsteval, I can't tell you how relieved

> > > I am to

> > > finally find some kind of support or other patients. Still my

> > hope to

> > > finding someone who knows my problems isn't really high, but here I

> > > try:

> > > My name is Eva, I'm 25 years old and I was diagnosed with Conn's a

> > > few month

> > > ago - but my Aldosteron/Renin quotient has been bad since 2003

> > really.

> > > Nobody noticed it though because everyone was focused on my other

> > > endocrinological problems: I had Morbus (hypocortisolism)

> > > first, but

> > > then it disappeared again - my right adrenal gland is gone for good

> > > though

> > > (quasi non-existent), and the left one is really small also

> > > according to the

> > > MRI.

> > > Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> > > since 2003

> > > or earlier, also only diagnosed this year.

> > > That's why probably my Conn's syndroms are really weird. I still

> > > don't have

> > > severe hypertonia for example. I was suffering from hypotonia for

> > many

> > > years, then everything seemed perfect with 105/75 or 110/80 for a

> > > really

> > > long time until I started taking hormones for my thyreoid and now

> > > I'm on a

> > > level between 130/80 until 140/90. I know for all of you that isn't

> > > really

> > > high, but sometimes I just go back to 80/80 and that's really not a

> > > nice

> > > experience either.

> > >

> >

> > Assume you mean 180/80

> > > > The doctors right now tell me not to take more

> > > > thyroid-medications so I won't develop more hypertonia, but I

> > > > really do feel

> > > > tired and awful all the time.

> > > > I have no idea weather my symptoms will get better at all: I

> > suffer

> > > > from

> > > > severe muskle cramps, a constant feeling of high stress (even if I

> > > > had to

> > > > drop out of university for a semester and my life besides the body

> > > > is quite

> > > > yummy ), Kalium problems (but I've been craving Bananas a lot -

> > > > good girl

> > > > ) as well as a lot of Cushing's symptoms - I gained loads of

> > > > weight in 2

> > > > steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date)

> > without

> > > > changing my eating pattern, and almost all of it on the belly, as

> > > > well as

> > > > the skin and the tendency to get marks really easy. My cortisol is

> > > > still

> > > > bordering very low though, but normal now, my testosteron is also

> > > > extremly

> > > > high though (without ovarial failure). All in all, I just feel

> > > > extremly

> > > > unwell and here in Germany nobody really seems to care for such a

> > > > complicate

> > > > case as mine. I'll be entering a medicinal investigation about

> > > > Conn's in

> > > > January though, it might get better (and I can tell you the newest

> > > > developements).

> > > >

> > >

> > > Recommend you see Dr. Fred Luft's group in Berlin.

> > > >

> > > > Anyway - I also highly doubt that my symptoms can get any

> > better with

> > > > medications and I'm not really convinced I should take some with

> > > > Hashimoto

> > > > and everything else that I have..

> > > > Right now I'm just really confused and it seems as if I were an

> > > > alien or

> > > > something. They actually asked me that after the MRI: How can

> > you have

> > > > primary hyperaldosteronism e.g. Conn's, if you don't have an

> > adenom

> > > > and your

> > > > adrenal glands are really small or non-existent? I got checked

> > > > multiple

> > > > times for Aldosteron and Renin in the past years, so there's

> > really no

> > > > denying the problem.

> > > > So anybody any tipps or advice for me? Thanks for listening

> > anyway...

> > > > Eva

> > > >

> > > >

[Guest guest]

wow .. pardon me but it sounds like you were seeing a quack.

•••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••

On Dec 17, 2008, at 3:07 PM, Eva wrote:

> Thanks a lot for that topic. I never thought about it, I usually only

> get my

> BP checked when I got to see the practical doctor. Those weird ones

> with

> 80/80 or also 90/60 were only checked at my old house doctor, who also

> thought that Hyperaldosteronism was nothing serious and didn't need

> to be

> treated at all... He also always gave me herbal medicine against

> hypotonia

> (low blood pressure).

>

> At my knew doctor there haven't been any measurements under 115/80

> anymore

> and most of the times if I'm feeling okay it's around 135/85, which

> is too

> high, but not critically.. they have newer electronical devices,

> while the

> old one still checked it with his hand. I'm getting a 24 hour blood

> pressure

> measurement in January though..

>

> The only thing that can be stated is that I really don't have really

> bad

> hypertonia (yet) - which is a pretty strange thing and every doctor

> keeps

> stating that. I'm happy about it though. I have enough problems. I

> just

> don't know what you can do against your high Aldosteron if you don't

> have

> really bad high blood pressure.

>

> Thanks a lot for taking your time.

>

> 2008/12/17 Clarence Grim <lowerbp2@...>

>

> > 80/80 is impossible unless you mean BP and pulse. What are you using

> > to read BP?

> >

> > CE Grim

> > On Dec 17, 2008, at 10:52 AM, Eva wrote:

> >

> > > Hi thanks a lot for the information!

> > >

> > > Is a CT better to judge the adrenal gland?

> > >

> > > The function of my adrenal glands though has been tested via blood

> > > (and

> > > seldomly urin) since 2003 - I both had primary Hypocortisolism for

> > > a while

> > > as I have Primary Hyperaldosteronism. The Aldosteron/Renin

> quotient

> > > has been

> > > wrong since the beginning of tests in 2003. My Cortisol right now

> > > is okay,

> > > but still always bordering too low. I never had any

> > > symptoms, so

> > > nobody knows why that happend, but it was confirmed again and

> again

> > > in the

> > > strangest tests. Nobody really knows why.

> > >

> > > But you are definitly right, that there should have been no

> adrenal

> > > gland

> > > function at all if I had . And as there always has been

> > > pretty high

> > > Aldosteron, it most likely was an error in diagnosis or body. But

> > > it really

> > > was like that for over a year - My cortisol didn't work in any

> test,

> > > couldn't be stimulated - nothing. But it's back now anyway.

> > >

> > > Spirolactone would be my next step I suppose, but doctors work

> > > really slow

> > > here in Germany.. My endocrinologist wanted to sent me the

> > > prescription and

> > > further informations by mail somewhere in February or March and

> > > tell me what

> > > to do next.. I got my diagnosis in late September.

> > >

> > > Oh and I meant 80/80.. I had that quite usually during my -

> > > period.

> > > Now I have 120/80 until 140/85, sometimes still going down to

> > > 80/80. But

> > > that's probably because of Hashimoto and my low Vitamine B12,

> which

> > > is only

> > > now treated - that's what my internist told me.

> > >

> > > Thanks for the tipp about Berlin. I'll first check out Düsseldorf

> > > though -

> > > they have this scientifical research about Conn's and they gave

> me an

> > > appointment for January - I'm sure in Berlin I'd be waiting until

> > > at least

> > > next summer.

> > >

> > > Thanks a lot - I'm just really confused. Does anybody here have

> any

> > > Autoimmun Diseases besides Conn?

> > >

> > > Eva

> > >

> > > >

> > > > Hello group!

> > > > Thanks for letting me join firsteval, I can't tell you how

> relieved

> > > > I am to

> > > > finally find some kind of support or other patients. Still my

> > > hope to

> > > > finding someone who knows my problems isn't really high, but

> here I

> > > > try:

> > > > My name is Eva, I'm 25 years old and I was diagnosed with

> Conn's a

> > > > few month

> > > > ago - but my Aldosteron/Renin quotient has been bad since 2003

> > > really.

> > > > Nobody noticed it though because everyone was focused on my

> other

> > > > endocrinological problems: I had Morbus

> (hypocortisolism)

> > > > first, but

> > > > then it disappeared again - my right adrenal gland is gone for

> good

> > > > though

> > > > (quasi non-existent), and the left one is really small also

> > > > according to the

> > > > MRI.

> > > > Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> > > > since 2003

> > > > or earlier, also only diagnosed this year.

> > > > That's why probably my Conn's syndroms are really weird. I still

> > > > don't have

> > > > severe hypertonia for example. I was suffering from hypotonia

> for

> > > many

> > > > years, then everything seemed perfect with 105/75 or 110/80 for

> a

> > > > really

> > > > long time until I started taking hormones for my thyreoid and

> now

> > > > I'm on a

> > > > level between 130/80 until 140/90. I know for all of you that

> isn't

> > > > really

> > > > high, but sometimes I just go back to 80/80 and that's really

> not a

> > > > nice

> > > > experience either.

> > > >

> > >

> > > Assume you mean 180/80

> > > > > The doctors right now tell me not to take more

> > > > > thyroid-medications so I won't develop more hypertonia, but I

> > > > > really do feel

> > > > > tired and awful all the time.

> > > > > I have no idea weather my symptoms will get better at all: I

> > > suffer

> > > > > from

> > > > > severe muskle cramps, a constant feeling of high stress (even

> if I

> > > > > had to

> > > > > drop out of university for a semester and my life besides the

> body

> > > > > is quite

> > > > > yummy ), Kalium problems (but I've been craving Bananas a

> lot -

> > > > > good girl

> > > > > ) as well as a lot of Cushing's symptoms - I gained loads of

> > > > > weight in 2

> > > > > steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date)

> > > without

> > > > > changing my eating pattern, and almost all of it on the

> belly, as

> > > > > well as

> > > > > the skin and the tendency to get marks really easy. My

> cortisol is

> > > > > still

> > > > > bordering very low though, but normal now, my testosteron is

> also

> > > > > extremly

> > > > > high though (without ovarial failure). All in all, I just feel

> > > > > extremly

> > > > > unwell and here in Germany nobody really seems to care for

> such a

> > > > > complicate

> > > > > case as mine. I'll be entering a medicinal investigation about

> > > > > Conn's in

> > > > > January though, it might get better (and I can tell you the

> newest

> > > > > developements).

> > > > >

> > > >

> > > > Recommend you see Dr. Fred Luft's group in Berlin.

> > > > >

> > > > > Anyway - I also highly doubt that my symptoms can get any

> > > better with

> > > > > medications and I'm not really convinced I should take some

> with

> > > > > Hashimoto

> > > > > and everything else that I have..

> > > > > Right now I'm just really confused and it seems as if I were

> an

> > > > > alien or

> > > > > something. They actually asked me that after the MRI: How can

> > > you have

> > > > > primary hyperaldosteronism e.g. Conn's, if you don't have an

> > > adenom

> > > > > and your

> > > > > adrenal glands are really small or non-existent? I got checked

> > > > > multiple

> > > > > times for Aldosteron and Renin in the past years, so there's

> > > really no

> > > > > denying the problem.

> > > > > So anybody any tipps or advice for me? Thanks for listening

> > > anyway...

> > > > > Eva

> > > > >

> > > > >

[Guest guest]

One can give spiro to see if you feel better and K increases if low.

On Dec 17, 2008, at 2:07 PM, Eva wrote:

> Thanks a lot for that topic. I never thought about it, I usually

> only get my

> BP checked when I got to see the practical doctor. Those weird ones

> with

> 80/80 or also 90/60 were only checked at my old house doctor, who also

> thought that Hyperaldosteronism was nothing serious and didn't need

> to be

> treated at all... He also always gave me herbal medicine against

> hypotonia

> (low blood pressure).

>

> At my knew doctor there haven't been any measurements under 115/80

> anymore

> and most of the times if I'm feeling okay it's around 135/85, which

> is too

> high, but not critically.. they have newer electronical devices,

> while the

> old one still checked it with his hand. I'm getting a 24 hour blood

> pressure

> measurement in January though..

>

> The only thing that can be stated is that I really don't have

> really bad

> hypertonia (yet) - which is a pretty strange thing and every doctor

> keeps

> stating that. I'm happy about it though. I have enough problems. I

> just

> don't know what you can do against your high Aldosteron if you

> don't have

> really bad high blood pressure.

>

> Thanks a lot for taking your time.

>

> 2008/12/17 Clarence Grim <lowerbp2@...>

>

> > 80/80 is impossible unless you mean BP and pulse. What are you using

> > to read BP?

> >

> > CE Grim

> > On Dec 17, 2008, at 10:52 AM, Eva wrote:

> >

> > > Hi thanks a lot for the information!

> > >

> > > Is a CT better to judge the adrenal gland?

> > >

> > > The function of my adrenal glands though has been tested via blood

> > > (and

> > > seldomly urin) since 2003 - I both had primary Hypocortisolism for

> > > a while

> > > as I have Primary Hyperaldosteronism. The Aldosteron/Renin

> quotient

> > > has been

> > > wrong since the beginning of tests in 2003. My Cortisol right now

> > > is okay,

> > > but still always bordering too low. I never had any

> > > symptoms, so

> > > nobody knows why that happend, but it was confirmed again and

> again

> > > in the

> > > strangest tests. Nobody really knows why.

> > >

> > > But you are definitly right, that there should have been no

> adrenal

> > > gland

> > > function at all if I had . And as there always has been

> > > pretty high

> > > Aldosteron, it most likely was an error in diagnosis or body. But

> > > it really

> > > was like that for over a year - My cortisol didn't work in any

> test,

> > > couldn't be stimulated - nothing. But it's back now anyway.

> > >

> > > Spirolactone would be my next step I suppose, but doctors work

> > > really slow

> > > here in Germany.. My endocrinologist wanted to sent me the

> > > prescription and

> > > further informations by mail somewhere in February or March and

> > > tell me what

> > > to do next.. I got my diagnosis in late September.

> > >

> > > Oh and I meant 80/80.. I had that quite usually during my -

> > > period.

> > > Now I have 120/80 until 140/85, sometimes still going down to

> > > 80/80. But

> > > that's probably because of Hashimoto and my low Vitamine B12,

> which

> > > is only

> > > now treated - that's what my internist told me.

> > >

> > > Thanks for the tipp about Berlin. I'll first check out Düsseldorf

> > > though -

> > > they have this scientifical research about Conn's and they gave

> me an

> > > appointment for January - I'm sure in Berlin I'd be waiting until

> > > at least

> > > next summer.

> > >

> > > Thanks a lot - I'm just really confused. Does anybody here have

> any

> > > Autoimmun Diseases besides Conn?

> > >

> > > Eva

> > >

> > > >

> > > > Hello group!

> > > > Thanks for letting me join firsteval, I can't tell you how

> relieved

> > > > I am to

> > > > finally find some kind of support or other patients. Still my

> > > hope to

> > > > finding someone who knows my problems isn't really high, but

> here I

> > > > try:

> > > > My name is Eva, I'm 25 years old and I was diagnosed with

> Conn's a

> > > > few month

> > > > ago - but my Aldosteron/Renin quotient has been bad since 2003

> > > really.

> > > > Nobody noticed it though because everyone was focused on my

> other

> > > > endocrinological problems: I had Morbus

> (hypocortisolism)

> > > > first, but

> > > > then it disappeared again - my right adrenal gland is gone

> for good

> > > > though

> > > > (quasi non-existent), and the left one is really small also

> > > > according to the

> > > > MRI.

> > > > Additionally I have Hashimoto Thyreoditis (hypothyreodism), also

> > > > since 2003

> > > > or earlier, also only diagnosed this year.

> > > > That's why probably my Conn's syndroms are really weird. I still

> > > > don't have

> > > > severe hypertonia for example. I was suffering from hypotonia

> for

> > > many

> > > > years, then everything seemed perfect with 105/75 or 110/80

> for a

> > > > really

> > > > long time until I started taking hormones for my thyreoid and

> now

> > > > I'm on a

> > > > level between 130/80 until 140/90. I know for all of you that

> isn't

> > > > really

> > > > high, but sometimes I just go back to 80/80 and that's really

> not a

> > > > nice

> > > > experience either.

> > > >

> > >

> > > Assume you mean 180/80

> > > > > The doctors right now tell me not to take more

> > > > > thyroid-medications so I won't develop more hypertonia, but I

> > > > > really do feel

> > > > > tired and awful all the time.

> > > > > I have no idea weather my symptoms will get better at all: I

> > > suffer

> > > > > from

> > > > > severe muskle cramps, a constant feeling of high stress

> (even if I

> > > > > had to

> > > > > drop out of university for a semester and my life besides

> the body

> > > > > is quite

> > > > > yummy ), Kalium problems (but I've been craving Bananas a

> lot -

> > > > > good girl

> > > > > ) as well as a lot of Cushing's symptoms - I gained loads of

> > > > > weight in 2

> > > > > steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date)

> > > without

> > > > > changing my eating pattern, and almost all of it on the

> belly, as

> > > > > well as

> > > > > the skin and the tendency to get marks really easy. My

> cortisol is

> > > > > still

> > > > > bordering very low though, but normal now, my testosteron

> is also

> > > > > extremly

> > > > > high though (without ovarial failure). All in all, I just feel

> > > > > extremly

> > > > > unwell and here in Germany nobody really seems to care for

> such a

> > > > > complicate

> > > > > case as mine. I'll be entering a medicinal investigation about

> > > > > Conn's in

> > > > > January though, it might get better (and I can tell you the

> newest

> > > > > developements).

> > > > >

> > > >

> > > > Recommend you see Dr. Fred Luft's group in Berlin.

> > > > >

> > > > > Anyway - I also highly doubt that my symptoms can get any

> > > better with

> > > > > medications and I'm not really convinced I should take some

> with

> > > > > Hashimoto

> > > > > and everything else that I have..

> > > > > Right now I'm just really confused and it seems as if I

> were an

> > > > > alien or

> > > > > something. They actually asked me that after the MRI: How can

> > > you have

> > > > > primary hyperaldosteronism e.g. Conn's, if you don't have an

> > > adenom

> > > > > and your

> > > > > adrenal glands are really small or non-existent? I got checked

> > > > > multiple

> > > > > times for Aldosteron and Renin in the past years, so there's

> > > really no

> > > > > denying the problem.

> > > > > So anybody any tipps or advice for me? Thanks for listening

> > > anyway...

> > > > > Eva

> > > > >

> > > > >