Hashimoto/Morbus Addison and Conn's

[Guest guest]

Hello group!

Thanks for letting me join firsteval, I can't tell you how relieved I am to

finally find some kind of support or other patients. Still my hope to

finding someone who knows my problems isn't really high, but here I try:

My name is Eva, I'm 25 years old and I was diagnosed with Conn's a few month

ago - but my Aldosteron/Renin quotient has been bad since 2003 really.

Nobody noticed it though because everyone was focused on my other

endocrinological problems: I had Morbus (hypocortisolism) first, but

then it disappeared again - my right adrenal gland is gone for good though,

they're not sure about the left one right now (and I'm asking myself where

should all the Aldosteron come from if it was gone, too).

Additionally I have Hashimoto Thyreoditis (hypothyreodism), also since 2003

or earlier, also only diagnosed this year.

That's why probably my Conn's syndroms are really weird. I still don't have

severe hypertonia for example. I was suffering from hypotonia for many

years, then everything seemed perfect with 105/75 or 110/80 for a really

long time until I started taking hormones for my thyreoid and now I'm on a

level between 130/80 until 140/90. I know for all of you that isn't really

high, but sometimes I just go back to 80/80 and that's really not a nice

experience either, I can tell you. The doctor's right now tell me not to

take more thyroid-medications so I won't develop more hypertonia, but I

really do feel tired and awful all the time.

I have no idea weather I can get an operation with only one adrenal gland

left (probably - they're figuring out it yet - I had my MRI last week and

they weren't sure if it was a piece of intestines or a giant left adrenal

gland with tumor) and if I don't have, weather my symptoms will get better

at all: I suffer from severe muskle cramps, a constant feeling of high

stress (even if I had to drop out of university for a semester and my life

besides the body is quite yummy ), Kalium problems (but I've been craving

Bananas a lot - good girl ) as well as a lot of Cushing's symptoms - I

gained loads of weight in 2 steps: 2003 (40 pounds) and 2008 (32 pounds from

July-November) without changing my eating pattern, and almost all of it on

the belly, as well as the skin and the tendency to get marks really easy. My

cortisol is still bordering very low though, but normal now, my testosteron

is also extremly high though (without ovarial failure). All in all, I just

feel extremly unwell and here in Germany nobody really seems to care for

such a complicate case as mine. I'll be entering a medicinal investigation

about Conn's in January though, it might get better (and I can tell you the

newest developements).

Anyway - I also highly doubt that my symptoms can get any better with

medications against Aldosteron and I'm not really convinced I should take

some with Hashimoto and everything else that I have..

Right now I'm just really confused and it seems as if I were an alien or

something. They actually asked me that after the MRI: How can you have

primary hyperaldosteronism e.g. Conn's, if you don't have adrenal glands

anymore?

So anybody any tipps or advice for me? Thanks for listening anyway...

Eva