Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Marilyn: I would say you are not overreacting for a second. I can imagine how difficult it is for you not having your family's acceptance, but the important thing is that your husband is supportive, and it's YOUR child! Noone else's. Many people don't understand the use of the helmets/bands and immediately think the parent is overreacting to somethign the child will " probably " outgrow. It is possible your son's head will round on it's own over time, but that's something noone knows for sure. All you are doing right now, is taking him in for an evaluation, to get your son every ounce of attention he needs & deserves right now to be on the safe side. See what the specialist recommends, then go from there. IF you decide to band or helmet him, it's YOUR decision to make. Phooey on everyone else. Please know whatever you do, we'll support you and I'm sure your family will as well. Good luck with this all, I know how stressful it is. Debbie Abby's mom DOCGrad MI --- In Plagiocephaly@y..., " haydensmom122101 " <marilynheston@a...> wrote: > Thankyou everyone for your carseat repositiong and tort strecthing > advise, it has all been very helpful. I am having mixed emotions that > maybe I am over reacting to his misshapen head. > Some family members think I am crazy for taking him for his > evaluation- and say he'll grow out of it-and tell me some story about > a child they knew who looked worse and did grow out of it. I have > read up on it alot lately and know that at his age (6 1/2 mths) he > most likely will not just grow out of it. I have noticed a big change > in his head since he has learned to sit up unassisted to play, and > since I have been doing stretching and repositiong for a few weeks. > My family seems to have some stigma against seeing kids with helmets. > They tend to think the child had major physical handicaps if they > have to wear a helmet. How do I deal with these mixed emotions that > my family is causing? I must add that my husband is incredibly > supportive- and I see him doing stretches with Hayden when they are > having their play time. > Thanks again for your support > > Marilyn- Haydens mommy 6 1/2 months awaiting evaluation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Marilyn, I know exactly how you feel! We didn't tell the majority of my family (except immediate family) that we were banding the twins because they have an irritating habit of acting very snobby. My hubby was very supportive of the bands behind closed doors, but if we were going out, the bands stayed home. He was afraid that people would look at our kids like they were " some kind of circus freak " It totally broke my heart that he thought that, but for the most part,he was right. I'm so glad that you have started seeing improvement already, that is terrific. Every amount of roundness you get now, is less time time that he will be in the band. You know you are doing the right thing. If your people have a stigma about seeing kids in bands or helmets, imagine what they would think of an adult with a misshapen head. More importantly, how would you feel? The thing to remember is, your son is so young right now, he will never remember going through all of this. The only souvenir he takes with him is a nice round head! Niki Kaylie & Danny (STAR grads) Phila., PA --- In Plagiocephaly@y..., " haydensmom122101 " <marilynheston@a...> wrote: > Thankyou everyone for your carseat repositiong and tort strecthing > advise, it has all been very helpful. I am having mixed emotions that > maybe I am over reacting to his misshapen head. > Some family members think I am crazy for taking him for his > evaluation- and say he'll grow out of it-and tell me some story about > a child they knew who looked worse and did grow out of it. I have > read up on it alot lately and know that at his age (6 1/2 mths) he > most likely will not just grow out of it. I have noticed a big change > in his head since he has learned to sit up unassisted to play, and > since I have been doing stretching and repositiong for a few weeks. > My family seems to have some stigma against seeing kids with helmets. > They tend to think the child had major physical handicaps if they > have to wear a helmet. How do I deal with these mixed emotions that > my family is causing? I must add that my husband is incredibly > supportive- and I see him doing stretches with Hayden when they are > having their play time. > Thanks again for your support > > Marilyn- Haydens mommy 6 1/2 months awaiting evaluation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 I don't know how misshapen Hayden's head is but I can tell you that at six months I was also told to wait it out. Now my daughter, Novali, is 15 months and I really regret not having been more aggressive and not having pushed for an evaluation sooner. It's now that I'm really starting to see the assymetry in her face. She started treatment with the Starband last week and I wish I could go back several months to start her treatment sooner. You are definitely doing the right thing. In the end your son will benefit, regardless of what anyone else thinks! And that is what's most important! Follow your instincts, and remember, a mother's instinct is never wrong! Tamara --- In Plagiocephaly@y..., " haydensmom122101 " <marilynheston@a...> wrote: > Thankyou everyone for your carseat repositiong and tort strecthing > advise, it has all been very helpful. I am having mixed emotions that > maybe I am over reacting to his misshapen head. > Some family members think I am crazy for taking him for his > evaluation- and say he'll grow out of it-and tell me some story about > a child they knew who looked worse and did grow out of it. I have > read up on it alot lately and know that at his age (6 1/2 mths) he > most likely will not just grow out of it. I have noticed a big change > in his head since he has learned to sit up unassisted to play, and > since I have been doing stretching and repositiong for a few weeks. > My family seems to have some stigma against seeing kids with helmets. > They tend to think the child had major physical handicaps if they > have to wear a helmet. How do I deal with these mixed emotions that > my family is causing? I must add that my husband is incredibly > supportive- and I see him doing stretches with Hayden when they are > having their play time. > Thanks again for your support > > Marilyn- Haydens mommy 6 1/2 months awaiting evaluation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Hi Marilyn, Boy can I relate!! Only since has been her in band has my family started to accept it. Even 's Father tells me her head is fine and I'm seeing things. I think his Mother and his Sister think I'm out of my mind! They've yet to see her in her band, except for pictures I've e-mailed to them and they only live 10 minutes away.I couldn't let them influence my decision to do what I felt was not only best for but was right for her also. I knew from the time she was 1 1/2 months old.. something wasn't right with her head or her face. I had to follow my own instincts. I'm so glad I did, even if it took me for her to be 11 months old to finally get her a DOCband. I can only hope for a good amount of correction. Good luck in whatever you decide to do and please know, that no matter what is it, you have our support!! --- In Plagiocephaly@y..., " haydensmom122101 " <marilynheston@a...> wrote: > Thankyou everyone for your carseat repositiong and tort strecthing > advise, it has all been very helpful. I am having mixed emotions that > maybe I am over reacting to his misshapen head. > Some family members think I am crazy for taking him for his > evaluation- and say he'll grow out of it-and tell me some story about > a child they knew who looked worse and did grow out of it. I have > read up on it alot lately and know that at his age (6 1/2 mths) he > most likely will not just grow out of it. I have noticed a big change > in his head since he has learned to sit up unassisted to play, and > since I have been doing stretching and repositiong for a few weeks. > My family seems to have some stigma against seeing kids with helmets. > They tend to think the child had major physical handicaps if they > have to wear a helmet. How do I deal with these mixed emotions that > my family is causing? I must add that my husband is incredibly > supportive- and I see him doing stretches with Hayden when they are > having their play time. > Thanks again for your support > > Marilyn- Haydens mommy 6 1/2 months awaiting evaluation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 YOU ARE A WONDERFUL GROUP OF PEOPLE!!! THANK YOU SO MUCH FOR YOUR SUPPORT. 2 MORE WEEKS UNTIL THE EVALUATION AND I FEEL LIKE I AM NOT GOING INTO THIS ALONE- I HAVE ALL OF YOU. I FEEL ARMED WITH KNOWLEDGE THAT WILL HELP ME MAKE GOOD DECISIONS. I CALLED THE INSURANCE COMPANY TO SEE WHAT THEIR COVERAGE WOULD BE IF WE HAD TO DO BAND TREATMENT. BECAUSE OF THEIR MISTAKES HAYDEN DIDN'T HAVE INSURANCE UNTIL HE WAS 3 MONTHS OLD. THEY SAID IF THE CONDITION WAS CONSDERED PREXISTING THEN THEY WOULD NOT COVER IT- THERE IS A 12 MONTH PRE-EXISTING CLAUSE IN THE INSURANCE. ANYONES INSURANCE EVER SAID THIS BEFORE? IS THIS CONSIDERED PREXISTING? HE HAD SOMEWHAT OF A CONE HEAD WHEN HE WAS BORN, BUT THIS FLATTENNG ON ONE SIDE HAS DEVELOPED OVER TIME- AS HE PREFERS TO LSY ON THAT SIDE? I AM AFRAID WE WILL BE IN FOR A FIGHT WITH INSURANCE? BUT AT THIS TIME- I AM JUMPING THE GUN BECAUSE I DON'T KNOW WHAT KIND OF TREATMENT THE DOCTOR WILL RECOMMEND. THANKS AGAIN MARILYN- HAYDENS MOMMY Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.