Re: CranioCap (another orthosis) For Debbie

[Guest guest]

> isn't in a CranioCap now is he?

~NO, we never did band , now I'm begining to think that maybe

we should have.

>I tried looking up the link, but it didn't work for me, bummer!

~Try doing a " cut and paste " when I looked at the message that was

posted, the last few letters weren't included in the link.

>Weren't you repositioning ? If so, how is that going? Have

> you seen any improvement?

~Yes, we did repositioning, had torticollis/plagiocephaly so

repositioning wasn't easy and in most cases, didn't work well (he

wasn't diagnosed until 6 months old and by then already had his

own " attitude " )

is almost 2 now(b-day 8-24-00) and for the most part, looks

okay. Not perfect, slightly noticeable flatness on the left side of

his head and face. but...What concerns me most right now is that he

doesn't talk. He will babble your ear off, but none of it makes

sense. He'll get a speech eval next month to find out why. I can't

help but think it has something to do with his jaw being off. He

slept alot on the left side of his face (he had left-side

torticollis) and for awhile he had a flat cheek and noticeable jaw

mis-alignment on the left but as the torticollis resolved and he

began to sleep on the right side- everything seemed to round out

more. Of course, could just be " normal " and I am worring too

much. Ah, but isn't that what mothers do? Worry too much...(ha,ha)

Pattie

[Guest guest]

Pattie:

Sorry you didn't have better success with repositioning, it is hard

enough but even more difficult when tort is involved.

Does say anything? Abby was a bit delayed in her speech as

well, she's 27 mos now and is finally starting to talk more & more

every day. At 2 she said about 20-30 understandable words, now is

saying at least 50. Good luck with his speech eval., please let us

know how it goes.

Debbie Abby's mom DOCGrad

MI

--- In Plagiocephaly@y..., " littletwisters " <littletwisters@e...>

wrote:

> > isn't in a CranioCap now is he?

>

> ~NO, we never did band , now I'm begining to think that maybe

> we should have.

>

>

> >I tried looking up the link, but it didn't work for me, bummer!

>

> ~Try doing a " cut and paste " when I looked at the message that was

> posted, the last few letters weren't included in the link.

>

>

> >Weren't you repositioning ? If so, how is that going? Have

> > you seen any improvement?

>

> ~Yes, we did repositioning, had torticollis/plagiocephaly so

> repositioning wasn't easy and in most cases, didn't work well (he

> wasn't diagnosed until 6 months old and by then already had his

> own " attitude " )

> is almost 2 now(b-day 8-24-00) and for the most part, looks

> okay. Not perfect, slightly noticeable flatness on the left side of

> his head and face. but...What concerns me most right now is that he

> doesn't talk. He will babble your ear off, but none of it makes

> sense. He'll get a speech eval next month to find out why. I can't

> help but think it has something to do with his jaw being off. He

> slept alot on the left side of his face (he had left-side

> torticollis) and for awhile he had a flat cheek and noticeable jaw

> mis-alignment on the left but as the torticollis resolved and he

> began to sleep on the right side- everything seemed to round out

> more. Of course, could just be " normal " and I am worring too

> much. Ah, but isn't that what mothers do? Worry too much...(ha,ha)

> Pattie