Re: ' Neurosurgeon Appt -

[Guest guest]

,

Thanks so much for your support. I agree with so much of what you've

said. I understand how serious cranial synostosis is, that is why I

wondered why the Dr would have us wait another 2-3 weeks for the

xrays or ct scan to be done and then another who knows how long

before he can see us and tell us what the problem is. Shouldn't that

be done right away?

Kristi

(10mos) and (4)

OH

> > Well, we finally saw the neurosurgeon on Tuesday. It almost

didn't

> > happen as right about the time of our appt, the nurse made an

> > announcement to the waiting room that the Dr. had been called to

> > emergency surgery and we could reschedule or wait. Hubby and I

> > decided to wait since we had already waited four weeks (with one

> > reschedule in there) Glad we did, because about 1/2hr later, we

> were

> > called in. The guy barely looked at , measured his head by

> > putting the tape measure around his eyes and told us his plagio

was

> > very mild and that he has seen hundreds of cases and they have

all

> > rounded out on their own - even the severe ones. That it would

> take

> > a long time so the fact that we have seen no resolution over the

> past

> > 6 months means nothing. He also told us that gravity caused it

and

> > gravity will put it back. Is this guy a quack or what? Aren't

we

> > all subject to the same gravitational forces? Now I am wondering

> if

> > all these road blocks are the signs I have been asking for..... I

> > have heard at least two more stories of severe plagio rounding

out

> on

> > its own and all these doctors keep telling me it will, just be

> > patient. Then again, this neuro told me that for the helmet to

> work

> > it would have to apply so much pressure that it would put holes

in

> > the skin and would be so hot and uncomfortable that the baby

would

> be

> > miserable (which is, of course, completely contrary to everything

I

> > have learned about helmet therapy). Further, he said that the

> couple

> > patients he had that went with helmet therapy had these problems

> and

> > were also upset that after several months they weren't seeing any

> > results. He says that with or without the helmet it is going to

> take

> > a long time to round out. He reiterated what my ped said about

the

> > studies being the manufacturer's way of making you buy their

$3,000

> > product. Then he said he wanted to do xrays to rule out suture

> > closure so make an appt with the receptionist for two to three

> weeks

> > from now. If cranial synostosis is a concern, why would he wait

> that

> > long? would have to be sedated for this and I am not sure

I

> > want to do it. It doesn't seem as though the dr is really

> concerned

> > about it. And wouldn't his head be severely misshappen at 10mos

if

> > the suture were closed? Keep in mind that we first noticed the

> > flatness at around 3mos and it hasn't gotten any worse since

then.

> I

> > had at CT fax over her measurments and opinion to this guy

> and

> > it was quite obvious he never looked at it. I really didn't get

to

> > ask all the questions I wanted too because was getting

fussy

> > and biting my shoulder and the dr was standing at the door with

his

> > hand on the knob almost the whole time.

> >

> > Well, I am sure I have rambled on long enough.

> > Kristi

> > (10mos) and (4)

> > OH

[Guest guest]

Kristi,

It would only be done right away if your son was experiencing

symptoms of pressure on his brain. I'm pretty sure some of the signs

are inconsolable crying, (probably from headaches) vomiting after

eating,decreased appetite. I'm sure there are more, but I can't

remember them all right now. If you went to your ped neuro with those

concerns and a mishappen head and he didn't get you in right away for

a CT scan...he'd be one lousy doctor!

Please keep us posted!

> > > Well, we finally saw the neurosurgeon on Tuesday. It almost

> didn't

> > > happen as right about the time of our appt, the nurse made an

> > > announcement to the waiting room that the Dr. had been called

to

> > > emergency surgery and we could reschedule or wait. Hubby and I

> > > decided to wait since we had already waited four weeks (with

one

> > > reschedule in there) Glad we did, because about 1/2hr later,

we

> > were

> > > called in. The guy barely looked at , measured his head

by

> > > putting the tape measure around his eyes and told us his plagio

> was

> > > very mild and that he has seen hundreds of cases and they have

> all

> > > rounded out on their own - even the severe ones. That it would

> > take

> > > a long time so the fact that we have seen no resolution over

the

> > past

> > > 6 months means nothing. He also told us that gravity caused it

> and

> > > gravity will put it back. Is this guy a quack or what? Aren't

> we

> > > all subject to the same gravitational forces? Now I am

wondering

> > if

> > > all these road blocks are the signs I have been asking for.....

I

> > > have heard at least two more stories of severe plagio rounding

> out

> > on

> > > its own and all these doctors keep telling me it will, just be

> > > patient. Then again, this neuro told me that for the helmet to

> > work

> > > it would have to apply so much pressure that it would put holes

> in

> > > the skin and would be so hot and uncomfortable that the baby

> would

> > be

> > > miserable (which is, of course, completely contrary to

everything

> I

> > > have learned about helmet therapy). Further, he said that the

> > couple

> > > patients he had that went with helmet therapy had these

problems

> > and

> > > were also upset that after several months they weren't seeing

any

> > > results. He says that with or without the helmet it is going

to

> > take

> > > a long time to round out. He reiterated what my ped said about

> the

> > > studies being the manufacturer's way of making you buy their

> $3,000

> > > product. Then he said he wanted to do xrays to rule out suture

> > > closure so make an appt with the receptionist for two to three

> > weeks

> > > from now. If cranial synostosis is a concern, why would he

wait

> > that

> > > long? would have to be sedated for this and I am not

sure

> I

> > > want to do it. It doesn't seem as though the dr is really

> > concerned

> > > about it. And wouldn't his head be severely misshappen at

10mos

> if

> > > the suture were closed? Keep in mind that we first noticed the

> > > flatness at around 3mos and it hasn't gotten any worse since

> then.

> > I

> > > had at CT fax over her measurments and opinion to this

guy

> > and

> > > it was quite obvious he never looked at it. I really didn't

get

> to

> > > ask all the questions I wanted too because was getting

> fussy

> > > and biting my shoulder and the dr was standing at the door with

> his

> > > hand on the knob almost the whole time.

> > >

> > > Well, I am sure I have rambled on long enough.

> > > Kristi

> > > (10mos) and (4)

> > > OH