Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 , Thanks! Yea..i'm kind of wondering why he didn't order any kind of scans or anything..but he felt and looked at his head...saw that it was on his right side more and when we told him that he did favor that side a lot...he said it is plagio and tort. He gave us some exercises to do ..b/c it was real mild tort... He doesn't have any symptoms....even though i know there might not be any..and he has no misalignment or anything like that (except the dr said his right ear was very slightly forward..but not noticeable at all). He is 6 months (today) so i guess we will try the helmet...i'm pretty sure it is plagio..but i was just wondering if there was a way to tell besides doing the scan and if most dr's order scans. Thanks !! Mom to In a message dated 7/21/2002 10:29:58 AM Pacific Daylight Time, taime@... writes: , I don't mean to scare you, but I've read stories on the CAPPS page, that babies have been diagnosed with plagio when infact it was cranio. I'll copy paste for you what is says on the CAPPS page: What Are The Symptoms of Craniosynostosis? Most children with Craniosynostosis do not have any symptoms; the head shape is abnormal, and the face may be malformed in certain cases. Rarely, symptoms of increased pressure in the head such as headaches, decreased appetite, vomiting, or even developmental delays or mental retardation may occur. So you see the symptoms are just like plagio. The reason had a CT scan done was b/c her haed was growing faster than her body. The first thing they wanted to do was rule out cranio. X-rays don't always show if a suture is closed, that is why it is best to get a 3D CT scan done. I don't know why a doctor wouldn't order a CT scan for a baby with a misshappen head. After my research and the way 's head looks,if my doc didn't order a CT scan, I would asked her to and would not have taken no for an answer!! Cranio can be very serious, if left untreated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 In a message dated 7/21/2002 10:29:58 AM Pacific Daylight Time, taime@... writes: , I don't mean to scare you, but I've read stories on the CAPPS page, Also , I was just reading about craniosyntosis...and it says it is when the skull fuses together prematurely and there is no soft spot...but you can definitely feel the soft spot...and also at the last dr appt the craniologist said that the sutures (or something like that) was still open which was good....but you can definitely feel the soft spot on the top of his head. I don't know if that is the only thing with it...but maybe that's why he didn't order a scan??? Thanks!! mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 , I don't mean to scare you, but I've read stories on the CAPPS page, that babies have been diagnosed with plagio when infact it was cranio. I'll copy paste for you what is says on the CAPPS page: What Are The Symptoms of Craniosynostosis? Most children with Craniosynostosis do not have any symptoms; the head shape is abnormal, and the face may be malformed in certain cases. Rarely, symptoms of increased pressure in the head such as headaches, decreased appetite, vomiting, or even developmental delays or mental retardation may occur. So you see the symptoms are just like plagio. The reason had a CT scan done was b/c her haed was growing faster than her body. The first thing they wanted to do was rule out cranio. X-rays don't always show if a suture is closed, that is why it is best to get a 3D CT scan done. I don't know why a doctor wouldn't order a CT scan for a baby with a misshappen head. After my research and the way 's head looks,if my doc didn't order a CT scan, I would asked her to and would not have taken no for an answer!! Cranio can be very serious, if left untreated. > I have a question...how do the dr's know if a baby has plagio and not cranio > if they don't do x-rays? > > We took to the craniologist..and right away he said it's plagio and he > didn't order x-rays. So is it possible he is wrong? Should he have gotten > x-rays done? Or can they kind of tell with other symptoms?? > > > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 > I have a question...how do the dr's know if a baby has plagio and not cranio > if they don't do x-rays? > > We took to the craniologist..and right away he said it's plagio and he > didn't order x-rays. So is it possible he is wrong? Should he have gotten > x-rays done? Or can they kind of tell with other symptoms?? > > > Mom to : I dunno, so many Drs say they can tell if it's cranio just by looking at the child, but I don't think that's good enough. I've heard of too many mis-diagnosis's and would personally insist my child get CT scans done or Xrays to rule cranio out, just to be safe. I'm hardly trying to scare you, but cranio is something you want to be sure your child does not have. Debbie Abby's mom dOCGrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 , I went to the Neurosurgeon and he did not take xrays or order a scan either so I asked him how he knew it was plagio and not cranio. He said that because I was certain that my baby's head was born round (and only became flattened after birth) and 2) because of it's parallelogram shape. Cranio babies have a slightly different shape. He only examined Kales head for about 2 mins but I guess he has seen hundreds of skulls, enough to identify them immediately. (mom to Kale) > I have a question...how do the dr's know if a baby has plagio and not cranio > if they don't do x-rays? > > We took to the craniologist..and right away he said it's plagio and he > didn't order x-rays. So is it possible he is wrong? Should he have gotten > x-rays done? Or can they kind of tell with other symptoms?? > > > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 , I think through years of experience and a trained eye, some obvious cases can be ruled out as not cranio. We took the twins to a pediatric neurosurgeon, and he never ordered any X-rays or 3D CT scans. He besically was able to just look at them and know it was plagio, and I felt totally comfortabel with his assessment. BUT, I also knew that if I wasn't seeing the improvemnet within a certain amount of time, then I would have pushed for some further testing. It all depends on your comfort level, if you would feel better having concrete evidence then there is no harm in asking for it. Niki Kaylie & Danny (STAR grads) Phila., PA > I have a question...how do the dr's know if a baby has plagio and not cranio > if they don't do x-rays? > > We took to the craniologist..and right away he said it's plagio and he > didn't order x-rays. So is it possible he is wrong? Should he have gotten > x-rays done? Or can they kind of tell with other symptoms?? > > > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 My neuro said that she could tell just by looking at Logan that he didn't have cranio. One thing she pointed out was his assymetrical ears. If his plates were fused (cranio) it wouldn't be possible for his ears to move. So that's how she knew.... -/Logan 5 1/2 months PA > I have a question...how do the dr's know if a baby has plagio and not cranio > if they don't do x-rays? > > We took to the craniologist..and right away he said it's plagio and he > didn't order x-rays. So is it possible he is wrong? Should he have gotten > x-rays done? Or can they kind of tell with other symptoms?? > > > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 Hi Sometimes plagio can be very obvious that it's only positional. My daughter Willow also did not have tests to rule out cranio. Let us know how it goes on the 29th Sandy Willow's Mom Torticollis resolved Cranio Germany Grad > ...this group is really addictive. I have so much to do and I spend > hours on the computer...:-) > > Any way, a little concerned by the fact that never had a CT > scan to check if he didn't have Craniosynostosis, I e-mail Steve > Mottram to check what he thought. He is very sure that > doesn't have Cranio (although he told me I could do a CT scan if I > wanted to be 100% sure). To help me understand the differences bet. > cranio and plagio he advised me to read the following article. I > think they are very informative and thougth you might be interested > to have a look: > > > http://www.aafp.org/afp/20030501/1953.html > article from the journal " Amercian Family Physician " on Diagnosis and > Management of Positional Head Deformity. among others I thought > figure 5 showing a drawing of a skull in a helmet very interesting. > > I also found in the same journal > http://www.aafp.org/afp/20040615/2863.html > Article I found interesting because it has a table on the timing of > closure of sutures and fontanelles. (some adults still don't have all > sutures closed!!!..may be I could benefit from a band...:-)) > > > > (, 14 months, plagio) Quote Link to comment Share on other sites More sharing options...
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