Re: Frazier's no helmet success story...

[Guest guest]

Eileen,

Congradulations on your success!!! It's so nice to hear

repositioning success stories. I have a quick question for you. At

what age would you say Fraziers head was completely round? My son

will be graduating form his helmet in Aug at 12 mo. BUT he still has

some flattening which I am concerned about. Just wondering if we

can continue to see improvement as he gets older.

Thanks...

Dana (mom2)

Ont.

> Hi to all! It's been a long time since I've been on the site, but

> thought it was time to check in and share Frazier's success!! I

tried

> to post some pictures, not sure if it worked! Our story begins

when

> Frazier was 3 months old, I started to worry about the odd shape

of

> his head. He had the traditional flat right side and he looked

> extremely strange in the mirror. His ears were a bit off and he

> preffered to only look to the right. Thanks to the internet, I

found

> this site in May of 2001. I immediately began to panic. We got

> Frazier into see a neurologist and a neurosurgeon immediately with

> the help of a doctor friend. Frazier was diagnosed with moderate

> plagio and mild torticollis. The surgeon we saw at Dupont Hospital

> for Children in Wilmington Delaware told us he'd grow out of it

and

> sent us to rehab for the tort. I wasn't sure he'd grow out of it

and

> I went back in forth - " to band or not to band " until finally we

> actually had Frazier casted for the STARband. But I felt sick to

my

> stomach about it, and after talking to family and friends and

another

> non-banding mom from this site, we cancelled the making of our

band!

> We have never looked back since! We practiced re-positioning as

best

> we could (but not frantically) and his head got better with each

> month. Frazier's head is perfect now at 18 months old! There is NO

> sign of plagio. We are a true non-banding success story! I know

every

> story and every head is different, but we just wanted to share

what

> we've been through! Thanks and hope everyone is doing well!

> Eileen and Frazier

[Guest guest]

Eileen,

It is so good to hear from you again! I am just shocked to hear that

Frazier is 18 months already!! Where did all that time go?! I am

thrilled for you and Frazier that you stuck to your guns and it all

paid off for you. Your story really is an inspiration to those who

don't band, and I thank you for coming back and sharing it with us!

Congrats to you on a job well done, you should be very proud of

yourself!!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi to all! It's been a long time since I've been on the site, but

> thought it was time to check in and share Frazier's success!! I

tried

> to post some pictures, not sure if it worked! Our story begins when

> Frazier was 3 months old, I started to worry about the odd shape of

> his head. He had the traditional flat right side and he looked

> extremely strange in the mirror. His ears were a bit off and he

> preffered to only look to the right. Thanks to the internet, I

found

> this site in May of 2001. I immediately began to panic. We got

> Frazier into see a neurologist and a neurosurgeon immediately with

> the help of a doctor friend. Frazier was diagnosed with moderate

> plagio and mild torticollis. The surgeon we saw at Dupont Hospital

> for Children in Wilmington Delaware told us he'd grow out of it and

> sent us to rehab for the tort. I wasn't sure he'd grow out of it

and

> I went back in forth - " to band or not to band " until finally we

> actually had Frazier casted for the STARband. But I felt sick to my

> stomach about it, and after talking to family and friends and

another

> non-banding mom from this site, we cancelled the making of our

band!

> We have never looked back since! We practiced re-positioning as

best

> we could (but not frantically) and his head got better with each

> month. Frazier's head is perfect now at 18 months old! There is NO

> sign of plagio. We are a true non-banding success story! I know

every

> story and every head is different, but we just wanted to share what

> we've been through! Thanks and hope everyone is doing well!

> Eileen and Frazier

[Guest guest]

Hi Eileen, I dont come here much anymore but like to pop back

and I luckily saw your post and I'm thrilled for you and Frazier. I

was the one remember telling you to do it. My only reasons were I

felt if you did the wait and see like us you would leave it to late

like us to get a full correction like us. Our daughter Mackenzie has

had more natural correction post banding and is now three and our

pead was thrilled with her improvement, as for me I always have that

niggly thing blaming myself for not pusing treatment at 6 mths when I

was first told to and left it to 12 yrs. Her head is pretty round to

the untained eye, its her cheeks that are uneven, to notice it you

have to keep her still and look down and I'm sure most people will

never took at her like I do.

Lorraine.

> Hi to all! It's been a long time since I've been on the site, but

> thought it was time to check in and share Frazier's success!! I

tried

> to post some pictures, not sure if it worked! Our story begins when

> Frazier was 3 months old, I started to worry about the odd shape of

> his head. He had the traditional flat right side and he looked

> extremely strange in the mirror. His ears were a bit off and he

> preffered to only look to the right. Thanks to the internet, I

found

> this site in May of 2001. I immediately began to panic. We got

> Frazier into see a neurologist and a neurosurgeon immediately with

> the help of a doctor friend. Frazier was diagnosed with moderate

> plagio and mild torticollis. The surgeon we saw at Dupont Hospital

> for Children in Wilmington Delaware told us he'd grow out of it and

> sent us to rehab for the tort. I wasn't sure he'd grow out of it

and

> I went back in forth - " to band or not to band " until finally we

> actually had Frazier casted for the STARband. But I felt sick to my

> stomach about it, and after talking to family and friends and

another

> non-banding mom from this site, we cancelled the making of our

band!

> We have never looked back since! We practiced re-positioning as

best

> we could (but not frantically) and his head got better with each

> month. Frazier's head is perfect now at 18 months old! There is NO

> sign of plagio. We are a true non-banding success story! I know

every

> story and every head is different, but we just wanted to share what

> we've been through! Thanks and hope everyone is doing well!

> Eileen and Frazier

[Guest guest]

Eileen!

I am SOOOOO SOOOOO Happy to read of your non banding success story

for Frazier. I remember you posting last year about your dilemma. I

couldn't be any happier to hear of Frazier's naturally rounded head!

We really really appreciate you updating us, we rarely hear back from

other plagio parents who have not banded & we'd all love to hear

stories like yours & Fraziers!

Thanks so much for the good news. I am again SO happy for you all!

Debbie Abby's mom DOCGrad

MI

-- In Plagiocephaly@y..., " frazleen2001 " <frazleen@a...> wrote:

> Hi to all! It's been a long time since I've been on the site, but

> thought it was time to check in and share Frazier's success!! I

tried

> to post some pictures, not sure if it worked! Our story begins when

> Frazier was 3 months old, I started to worry about the odd shape of

> his head. He had the traditional flat right side and he looked

> extremely strange in the mirror. His ears were a bit off and he

> preffered to only look to the right. Thanks to the internet, I

found

> this site in May of 2001. I immediately began to panic. We got

> Frazier into see a neurologist and a neurosurgeon immediately with

> the help of a doctor friend. Frazier was diagnosed with moderate

> plagio and mild torticollis. The surgeon we saw at Dupont Hospital

> for Children in Wilmington Delaware told us he'd grow out of it and

> sent us to rehab for the tort. I wasn't sure he'd grow out of it

and

> I went back in forth - " to band or not to band " until finally we

> actually had Frazier casted for the STARband. But I felt sick to my

> stomach about it, and after talking to family and friends and

another

> non-banding mom from this site, we cancelled the making of our

band!

> We have never looked back since! We practiced re-positioning as

best

> we could (but not frantically) and his head got better with each

> month. Frazier's head is perfect now at 18 months old! There is NO

> sign of plagio. We are a true non-banding success story! I know

every

> story and every head is different, but we just wanted to share what

> we've been through! Thanks and hope everyone is doing well!

> Eileen and Frazier

[Guest guest]

Eileen:

CONGRATULATIONS!! What a wonderful story and outcome, and thank you

so much for sharing it with all of us on this site. It is great to

hear that repositioning does work in some cases! I'm sure that it

will be a relief to moms and dads to hear of options other than

banding.

Kind regards,

, Rhiannon's mom

> Hi to all! It's been a long time since I've been on the site, but

> thought it was time to check in and share Frazier's success!! I

tried

> to post some pictures, not sure if it worked! Our story begins when

> Frazier was 3 months old, I started to worry about the odd shape of

> his head. He had the traditional flat right side and he looked

> extremely strange in the mirror. His ears were a bit off and he

> preffered to only look to the right. Thanks to the internet, I

found

> this site in May of 2001. I immediately began to panic. We got

> Frazier into see a neurologist and a neurosurgeon immediately with

> the help of a doctor friend. Frazier was diagnosed with moderate

> plagio and mild torticollis. The surgeon we saw at Dupont Hospital

> for Children in Wilmington Delaware told us he'd grow out of it and

> sent us to rehab for the tort. I wasn't sure he'd grow out of it

and

> I went back in forth - " to band or not to band " until finally we

> actually had Frazier casted for the STARband. But I felt sick to my

> stomach about it, and after talking to family and friends and

another

> non-banding mom from this site, we cancelled the making of our

band!

> We have never looked back since! We practiced re-positioning as

best

> we could (but not frantically) and his head got better with each

> month. Frazier's head is perfect now at 18 months old! There is NO

> sign of plagio. We are a true non-banding success story! I know

every

> story and every head is different, but we just wanted to share what

> we've been through! Thanks and hope everyone is doing well!

> Eileen and Frazier

[Guest guest]

Eileen and Frazier!! So good to hear from your guys!!

I'm so happy to hear that Frazier's head as rounded out : ) : ) !!!

Big congrats to you guys!! Thanks for coming back and sharing your

success story with everyone.

If you get a chance, please share how you repositioned Frazier and

your repositioning tricks, there is a lot of repositioning parents

around the board right now, I'm sure they would love to hear your

techniques : )

I looked for the pictures, they were not attached to the message, and

I didn't see them in the file section or photo section. I'd love to

see his cute face again : ) I think you still have pictures of

Frazier from last year in the file section, if you want to try adding

the new there too for comparision.

Well, big congrats to you guys once more!!

Annick

Mom to (17 months old-repo grad)

Mtl, Canada