Re: Major VENT but good news too

[Guest guest]

Sheila,

I don't eevn know what to say! That nurse is an ass!! She has some

nerve talking to you like that! I'm in shock. I can't believe it.

I'd definitely let the Dr. know that happened. But I would still look

for a new Dr. When I wanted a referral for my daughter to get a 2nd

opinion. I called my ins company b/c I wanted the referral NOW and my

Dr. was on vacation. I explained everything to them and how time was

of the essence...they gave me my referral right then and there, over

the phone..they gave me the referral number and I brought it with me

to my appt, even though my ins company sent it to them. I wouldn't of

been seen by this Dr. without it.

Good luck and please keep us posted!

Your doing the RIGHT thing for Amaya!!

> Hi everyone,

> I just got off the phone with Amaya's pediatrician's office and I

really

> need to vent because I am so p*ssed right now!!!

> Let me start at the beginning....I was up til 4am this morning doing

> research - trying to find out where to go locally for a

consultation for

> a helmet, since we don't have a Cranial Tech. office in MN. I was

very

> happy to discover that Gillette Children's Clinic here in St.

has

> FDA approval for the " CranioCap " , which is a band rather than a

helmet.

> This is the only FDA-approved craniofacial orthosis besides the STAR

> Band and DOC Band in the country. I read all about it, and the dr.

> ( Wood) who helped develop it, and decided this is who I want

to

> see. So today I called my insurance company and by some stroke of

luck,

> this dr. and clinic ARE providers for our insurance. Woo hoo! They

also

> told me the CranioCap would be covered 90%...Woo hoo again! They

said I

> just have to get a referral from our primary care physician. So I

called

> the physician's office, and the dr. isn't in today, so I spoke with

the

> nurse. I explained the situation, and told her I do not want to wait

> another month like the dr. told me to, and I was STUNNED when she

said

> " There is no possible way we can refer you to Gillette's. We ONLY

refer

> to specialists within our own clinic system. " So I explained that

> Gillette's is the only place that offers the CranioCap and she

(this is

> supposed to be a PROFESSIONAL nurse) said real snippy " Well that's

just

> too bad for you then. We will NOT make a referral. Besides, if the

dr.

> told you to wait til her 6 month check-up then she must not be

> concerned. " And then I lost it. Yikes! I told her my daughter was

NOT

> going to suffer just because they wanted to keep the dollars in

their

> own system. I also told her that the pediatrician's lack of concern

is

> just making the problem worse, and I REFUSE to stand by and watch

> nothing be done, therefore I will be finding a new pediatrician at

a new

> clinic. And the nurse told me " Go ahead, we don't have the time or

> resources to deal with hypochondriacs (sp?) here anyway. " OMG!!!!!

I am

> still in shock that she would say such a thing!!! For one thing,

the dr.

> WAS concerned enough to have 25 stinkin x-rays taken of Amaya's

head at

> her last visit, and for another thing, this is the ONLY issue I have

> been persistent about, because I am the one who has to look at my

poor

> baby's head and face every day, knowing that the clock is ticking.

How

> does that make me a hypochondriac?! I am so angry right now. I am

going

> to send off a letter to the clinic, my insurance company, the

medical

> board, and anyone else I think of who can address the matter. I hope

> this nurse gets fired...but she probably won't, since I never did

get

> her name (stupid me I know...I was just so angry I couldn't think

> straight). And I am NOT bringing Amaya there ever again.

> Anyway....(it is now 20 minutes after I wrote the first part of this

> vent), I called Dr. Wood's office directly and told them what

happened

> and they allowed me to make an appointment with Dr. Wood himself for

> next Monday, without getting a referral. I just hope my insurance

> company will still cover it. If he determines she needs the

CranioCap I

> don't see what it matters anyway whether I had a referral or not.

So,

> wish us luck with this and in finding a new pediatrician!

> Oh...and for those who had read my first post when I was utterly

> clueless....we were approved for the loan so we can continue our

> insurance. So that is a HUGE relief. It must have been due to all

your

> prayers! :-)

> Thanks so much for letting me vent if you read this far...I know you

> guys would understand my anger regarding this.

>

> --

> ~Sheila (mommy to Amaya - 5 months old)

[Guest guest]

Ooooo, my blood is boiling just reading your post!!! I can't believe

that nurse!!! Absolutley appalling. I am so glad for the good news

though!!

-/Logan 5 1/2 months

PA

In Plagiocephaly@y..., Sheila <sheila@a...> wrote:

> Hi everyone,

> I just got off the phone with Amaya's pediatrician's office and I

really

> need to vent because I am so p*ssed right now!!!

> Let me start at the beginning....I was up til 4am this morning doing

> research - trying to find out where to go locally for a

consultation for

> a helmet, since we don't have a Cranial Tech. office in MN. I was

very

> happy to discover that Gillette Children's Clinic here in St.

has

> FDA approval for the " CranioCap " , which is a band rather than a

helmet.

> This is the only FDA-approved craniofacial orthosis besides the STAR

> Band and DOC Band in the country. I read all about it, and the dr.

> ( Wood) who helped develop it, and decided this is who I want

to

> see. So today I called my insurance company and by some stroke of

luck,

> this dr. and clinic ARE providers for our insurance. Woo hoo! They

also

> told me the CranioCap would be covered 90%...Woo hoo again! They

said I

> just have to get a referral from our primary care physician. So I

called

> the physician's office, and the dr. isn't in today, so I spoke with

the

> nurse. I explained the situation, and told her I do not want to wait

> another month like the dr. told me to, and I was STUNNED when she

said

> " There is no possible way we can refer you to Gillette's. We ONLY

refer

> to specialists within our own clinic system. " So I explained that

> Gillette's is the only place that offers the CranioCap and she

(this is

> supposed to be a PROFESSIONAL nurse) said real snippy " Well that's

just

> too bad for you then. We will NOT make a referral. Besides, if the

dr.

> told you to wait til her 6 month check-up then she must not be

> concerned. " And then I lost it. Yikes! I told her my daughter was

NOT

> going to suffer just because they wanted to keep the dollars in

their

> own system. I also told her that the pediatrician's lack of concern

is

> just making the problem worse, and I REFUSE to stand by and watch

> nothing be done, therefore I will be finding a new pediatrician at

a new

> clinic. And the nurse told me " Go ahead, we don't have the time or

> resources to deal with hypochondriacs (sp?) here anyway. " OMG!!!!!

I am

> still in shock that she would say such a thing!!! For one thing,

the dr.

> WAS concerned enough to have 25 stinkin x-rays taken of Amaya's

head at

> her last visit, and for another thing, this is the ONLY issue I have

> been persistent about, because I am the one who has to look at my

poor

> baby's head and face every day, knowing that the clock is ticking.

How

> does that make me a hypochondriac?! I am so angry right now. I am

going

> to send off a letter to the clinic, my insurance company, the

medical

> board, and anyone else I think of who can address the matter. I hope

> this nurse gets fired...but she probably won't, since I never did

get

> her name (stupid me I know...I was just so angry I couldn't think

> straight). And I am NOT bringing Amaya there ever again.

> Anyway....(it is now 20 minutes after I wrote the first part of this

> vent), I called Dr. Wood's office directly and told them what

happened

> and they allowed me to make an appointment with Dr. Wood himself for

> next Monday, without getting a referral. I just hope my insurance

> company will still cover it. If he determines she needs the

CranioCap I

> don't see what it matters anyway whether I had a referral or not.

So,

> wish us luck with this and in finding a new pediatrician!

> Oh...and for those who had read my first post when I was utterly

> clueless....we were approved for the loan so we can continue our

> insurance. So that is a HUGE relief. It must have been due to all

your

> prayers! :-)

> Thanks so much for letting me vent if you read this far...I know you

> guys would understand my anger regarding this.

>

> --

> ~Sheila (mommy to Amaya - 5 months old)

[Guest guest]

OMG Sheila!!!!

That is absolutely amazing this nurse said all those horrible things

to you! I cannot believe it. Definitely send letters out about the

way you were so mistreated to EVERYONE you can think of who could get

her SO fired. Your story takes the cake. I'm totally p!ssed off now

too! WOW.

That is great news about your ins. covering the majority of the

band. I would like to caution you though, we have another group

member (, Rhia's mom) whose daughter wore a CranioCap for a

short time with nothing but problems...she also saw Dr. Wood. I'm

sure will reply to you with her details. Not that the

CranioCap doesn't work, but you should be aware of this going in to

help prevent any possible problems.

You also mentioned the CranioCap, DOCband & STARbands are the only

FDA approved bands in the States. There's surprisingly quite a few

more. Check out this link: FDA Cleared Cranial Remolding Orthoses -

Table.doc

I'm this link doesn't work, it's in teh Files section of our group,

then FDA Cranial Moldin Orthosis.

Again, I'm still shocked at the way you were so wrongfully treated.

But I'm happy to hear you will be switching peds and Amaya will be on

her way to a rounder head thanks to a terrific mommy!

Keep us updated & good luck.

Debbie Abby's mom DOCGread

MI

> Hi everyone,

> I just got off the phone with Amaya's pediatrician's office and I

really

> need to vent because I am so p*ssed right now!!!

> Let me start at the beginning....I was up til 4am this morning doing

> research - trying to find out where to go locally for a

consultation for

> a helmet, since we don't have a Cranial Tech. office in MN. I was

very

> happy to discover that Gillette Children's Clinic here in St.

has

> FDA approval for the " CranioCap " , which is a band rather than a

helmet.

> This is the only FDA-approved craniofacial orthosis besides the STAR

> Band and DOC Band in the country. I read all about it, and the dr.

> ( Wood) who helped develop it, and decided this is who I want

to

> see. So today I called my insurance company and by some stroke of

luck,

> this dr. and clinic ARE providers for our insurance. Woo hoo! They

also

> told me the CranioCap would be covered 90%...Woo hoo again! They

said I

> just have to get a referral from our primary care physician. So I

called

> the physician's office, and the dr. isn't in today, so I spoke with

the

> nurse. I explained the situation, and told her I do not want to wait

> another month like the dr. told me to, and I was STUNNED when she

said

> " There is no possible way we can refer you to Gillette's. We ONLY

refer

> to specialists within our own clinic system. " So I explained that

> Gillette's is the only place that offers the CranioCap and she

(this is

> supposed to be a PROFESSIONAL nurse) said real snippy " Well that's

just

> too bad for you then. We will NOT make a referral. Besides, if the

dr.

> told you to wait til her 6 month check-up then she must not be

> concerned. " And then I lost it. Yikes! I told her my daughter was

NOT

> going to suffer just because they wanted to keep the dollars in

their

> own system. I also told her that the pediatrician's lack of concern

is

> just making the problem worse, and I REFUSE to stand by and watch

> nothing be done, therefore I will be finding a new pediatrician at

a new

> clinic. And the nurse told me " Go ahead, we don't have the time or

> resources to deal with hypochondriacs (sp?) here anyway. " OMG!!!!!

I am

> still in shock that she would say such a thing!!! For one thing,

the dr.

> WAS concerned enough to have 25 stinkin x-rays taken of Amaya's

head at

> her last visit, and for another thing, this is the ONLY issue I have

> been persistent about, because I am the one who has to look at my

poor

> baby's head and face every day, knowing that the clock is ticking.

How

> does that make me a hypochondriac?! I am so angry right now. I am

going

> to send off a letter to the clinic, my insurance company, the

medical

> board, and anyone else I think of who can address the matter. I hope

> this nurse gets fired...but she probably won't, since I never did

get

> her name (stupid me I know...I was just so angry I couldn't think

> straight). And I am NOT bringing Amaya there ever again.

> Anyway....(it is now 20 minutes after I wrote the first part of this

> vent), I called Dr. Wood's office directly and told them what

happened

> and they allowed me to make an appointment with Dr. Wood himself for

> next Monday, without getting a referral. I just hope my insurance

> company will still cover it. If he determines she needs the

CranioCap I

> don't see what it matters anyway whether I had a referral or not.

So,

> wish us luck with this and in finding a new pediatrician!

> Oh...and for those who had read my first post when I was utterly

> clueless....we were approved for the loan so we can continue our

> insurance. So that is a HUGE relief. It must have been due to all

your

> prayers! :-)

> Thanks so much for letting me vent if you read this far...I know you

> guys would understand my anger regarding this.

>

> --

> ~Sheila (mommy to Amaya - 5 months old)

[Guest guest]

Holy crud Sheila!! I cannot beleive how incredibly rude that nurse

was too you! Good thing it was over the phone, I can imagine you

telling her that the pain she is feeling after you b!tch slapped her

is because she is a hypochondriac!! Make sure you get in touch with

the ped and let him know that his nurse is the reason he is losing

money and that you will tell everyone you know with kids what a

horrible office it is....money talks, especially when its going out

the door.

Good luck at your appointment on Monday, be sure to let us know how

it goes! And congrats on the continuing insurance coverage! Yaaaay!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi everyone,

> I just got off the phone with Amaya's pediatrician's office and I

really

> need to vent because I am so p*ssed right now!!!

> Let me start at the beginning....I was up til 4am this morning doing

> research - trying to find out where to go locally for a

consultation for

> a helmet, since we don't have a Cranial Tech. office in MN. I was

very

> happy to discover that Gillette Children's Clinic here in St.

has

> FDA approval for the " CranioCap " , which is a band rather than a

helmet.

> This is the only FDA-approved craniofacial orthosis besides the STAR

> Band and DOC Band in the country. I read all about it, and the dr.

> ( Wood) who helped develop it, and decided this is who I want

to

> see. So today I called my insurance company and by some stroke of

luck,

> this dr. and clinic ARE providers for our insurance. Woo hoo! They

also

> told me the CranioCap would be covered 90%...Woo hoo again! They

said I

> just have to get a referral from our primary care physician. So I

called

> the physician's office, and the dr. isn't in today, so I spoke with

the

> nurse. I explained the situation, and told her I do not want to wait

> another month like the dr. told me to, and I was STUNNED when she

said

> " There is no possible way we can refer you to Gillette's. We ONLY

refer

> to specialists within our own clinic system. " So I explained that

> Gillette's is the only place that offers the CranioCap and she

(this is

> supposed to be a PROFESSIONAL nurse) said real snippy " Well that's

just

> too bad for you then. We will NOT make a referral. Besides, if the

dr.

> told you to wait til her 6 month check-up then she must not be

> concerned. " And then I lost it. Yikes! I told her my daughter was

NOT

> going to suffer just because they wanted to keep the dollars in

their

> own system. I also told her that the pediatrician's lack of concern

is

> just making the problem worse, and I REFUSE to stand by and watch

> nothing be done, therefore I will be finding a new pediatrician at

a new

> clinic. And the nurse told me " Go ahead, we don't have the time or

> resources to deal with hypochondriacs (sp?) here anyway. " OMG!!!!!

I am

> still in shock that she would say such a thing!!! For one thing,

the dr.

> WAS concerned enough to have 25 stinkin x-rays taken of Amaya's

head at

> her last visit, and for another thing, this is the ONLY issue I have

> been persistent about, because I am the one who has to look at my

poor

> baby's head and face every day, knowing that the clock is ticking.

How

> does that make me a hypochondriac?! I am so angry right now. I am

going

> to send off a letter to the clinic, my insurance company, the

medical

> board, and anyone else I think of who can address the matter. I hope

> this nurse gets fired...but she probably won't, since I never did

get

> her name (stupid me I know...I was just so angry I couldn't think

> straight). And I am NOT bringing Amaya there ever again.

> Anyway....(it is now 20 minutes after I wrote the first part of this

> vent), I called Dr. Wood's office directly and told them what

happened

> and they allowed me to make an appointment with Dr. Wood himself for

> next Monday, without getting a referral. I just hope my insurance

> company will still cover it. If he determines she needs the

CranioCap I

> don't see what it matters anyway whether I had a referral or not.

So,

> wish us luck with this and in finding a new pediatrician!

> Oh...and for those who had read my first post when I was utterly

> clueless....we were approved for the loan so we can continue our

> insurance. So that is a HUGE relief. It must have been due to all

your

> prayers! :-)

> Thanks so much for letting me vent if you read this far...I know you

> guys would understand my anger regarding this.

>

> --

> ~Sheila (mommy to Amaya - 5 months old)

[Guest guest]

>>>>This is the only FDA-approved craniofacial orthosis besides the

STAR

Band and DOC Band in the country.<<<<

Sheila:

I just wanted to correct this statement. There is a table you can

find in our files section

(Plagiocephaly/files/FDA%20%26%

20Cranial%20Orthosis/ - Copy and paste that, or press FILES, then FDA

and CRANIAL ORTHOSIS (5th down), then " FDA Cleared Cranial Remolding

Orthoses - Table.doc " ) that lists all of the FDA approved cranial

orthosis available. There are actually 4 in MN that I counted (I

just did a quick scan, so you may find more). There are a total of

17 FDA approved CO's available country wide.

Good luck with Dr. Wood, and please keep us posted! ) I'm glad to

hear that the Cranio Cap is close to you, and that you were able to

make an appt. without referral! ) Yay!

Kendra

> Hi everyone,

> I just got off the phone with Amaya's pediatrician's office and I

really

> need to vent because I am so p*ssed right now!!!

> Let me start at the beginning....I was up til 4am this morning doing

> research - trying to find out where to go locally for a

consultation for

> a helmet, since we don't have a Cranial Tech. office in MN. I was

[Guest guest]

please stop sending me these emails

Re: Major VENT but good news too

OMG Sheila!!!!That is absolutely amazing this nurse said all those horrible things to you! I cannot believe it. Definitely send letters out about the way you were so mistreated to EVERYONE you can think of who could get her SO fired. Your story takes the cake. I'm totally p!ssed off now too! WOW.That is great news about your ins. covering the majority of the band. I would like to caution you though, we have another group member (, Rhia's mom) whose daughter wore a CranioCap for a short time with nothing but problems...she also saw Dr. Wood. I'm sure will reply to you with her details. Not that the CranioCap doesn't work, but you should be aware of this going in to help prevent any possible problems.You also mentioned the CranioCap, DOCband & STARbands are the only FDA approved bands in the States. There's surprisingly quite a few more. Check out this link: FDA Cleared Cranial Remolding Orthoses - Table.doc I'm this link doesn't work, it's in teh Files section of our group, then FDA Cranial Moldin Orthosis. Again, I'm still shocked at the way you were so wrongfully treated. But I'm happy to hear you will be switching peds and Amaya will be on her way to a rounder head thanks to a terrific mommy!Keep us updated & good luck.Debbie Abby's mom DOCGreadMI> Hi everyone,> I just got off the phone with Amaya's pediatrician's office and I really> need to vent because I am so p*ssed right now!!!> Let me start at the beginning....I was up til 4am this morning doing> research - trying to find out where to go locally for a consultation for> a helmet, since we don't have a Cranial Tech. office in MN. I was very> happy to discover that Gillette Children's Clinic here in St. has> FDA approval for the "CranioCap", which is a band rather than a helmet.> This is the only FDA-approved craniofacial orthosis besides the STAR> Band and DOC Band in the country. I read all about it, and the dr.> ( Wood) who helped develop it, and decided this is who I want to> see. So today I called my insurance company and by some stroke of luck,> this dr. and clinic ARE providers for our insurance. Woo hoo! They also> told me the CranioCap would be covered 90%...Woo hoo again! They said I> just have to get a referral from our primary care physician. So I called> the physician's office, and the dr. isn't in today, so I spoke with the> nurse. I explained the situation, and told her I do not want to wait> another month like the dr. told me to, and I was STUNNED when she said> "There is no possible way we can refer you to Gillette's. We ONLY refer> to specialists within our own clinic system." So I explained that> Gillette's is the only place that offers the CranioCap and she (this is> supposed to be a PROFESSIONAL nurse) said real snippy "Well that's just> too bad for you then. We will NOT make a referral. Besides, if the dr.> told you to wait til her 6 month check-up then she must not be> concerned." And then I lost it. Yikes! I told her my daughter was NOT> going to suffer just because they wanted to keep the dollars in their> own system. I also told her that the pediatrician's lack of concern is> just making the problem worse, and I REFUSE to stand by and watch> nothing be done, therefore I will be finding a new pediatrician at a new> clinic. And the nurse told me "Go ahead, we don't have the time or> resources to deal with hypochondriacs (sp?) here anyway." OMG!!!!! I am> still in shock that she would say such a thing!!! For one thing, the dr.> WAS concerned enough to have 25 stinkin x-rays taken of Amaya's head at> her last visit, and for another thing, this is the ONLY issue I have> been persistent about, because I am the one who has to look at my poor> baby's head and face every day, knowing that the clock is ticking. How> does that make me a hypochondriac?! I am so angry right now. I am going> to send off a letter to the clinic, my insurance company, the medical> board, and anyone else I think of who can address the matter. I hope> this nurse gets fired...but she probably won't, since I never did get> her name (stupid me I know...I was just so angry I couldn't think> straight). And I am NOT bringing Amaya there ever again.> Anyway....(it is now 20 minutes after I wrote the first part of this> vent), I called Dr. Wood's office directly and told them what happened> and they allowed me to make an appointment with Dr. Wood himself for> next Monday, without getting a referral. I just hope my insurance> company will still cover it. If he determines she needs the CranioCap I> don't see what it matters anyway whether I had a referral or not. So,> wish us luck with this and in finding a new pediatrician!> Oh...and for those who had read my first post when I was utterly> clueless....we were approved for the loan so we can continue our> insurance. So that is a HUGE relief. It must have been due to all your> prayers! :-)> Thanks so much for letting me vent if you read this far...I know you> guys would understand my anger regarding this.> > --> ~Sheila (mommy to Amaya - 5 months old)For more plagio info