Re: - 's Mom

[Guest guest]

Hi :

Welcome to the group! I don't remember seeing you post before, if so,

my apology.

Would you mind giving us some more plagio info on your daughter?

We'd lvoe to hear it.

You said she had a red spot on her face from wearing her band. Where

on her face was this red spot? How long did it take to go away? Why

was her face getting red spots?

Is she back in her band now? I hope she's doing well. Welcome again!

Debbie Abby's mom DOCGrad

MI

> > Hi,

> > Well slept in her band last night! She feel asleep,like

she

> > always does. ( no fussing because of the band) She slept the

night

> > and woke up with NO RED SPOTS!!!! I am soooooo happy! Yesterday

was

> > her first 23 hour day and I'm amazed at how well she did. Woo Hoo!

> > She's finally on her way to a rounder head!!

> >

[Guest guest]

Hi,~

It's nice to meet you! I'm so glad to hear that is a happy

little boy who's doing well. Those neutropenic sores are the worst! We

also found GCSF helped w/ that and the appetite. I guess you were

relieved to get the negative results on HIM. Did they ever give you

any other diagnosis?

Thanks for the reply,

~, VA

Mom of Kaitlyn,13 (healthy donor for brothers' double BMT)

,10 (XHIM, 1 yr. post BMT @ Duke)

, 6 (XHIM, 1 yr. post BMT @ Duke)

www.caringbridge.org/va/tatem

[Guest guest]

OPPS! I thought you said GCSF...now I reread it and see you actually

said he's on SCIG. I'm glad that his IgG levels have improved on that.

Has he tried GCSF for the neutropenia?

Sorry for the misunderstanding,

~ Tatem, VA

Mom of Kaitlyn,13 (healthy donor for brothers' double BMT)

,10 (XHIM, 1 yr. post BMT @ Duke)

, 6 (XHIM, 1 yr. post BMT @ Duke)

www.caringbridge.org/va/tatem