Update on Dakota's STAR band..

[Guest guest]

Well, today we walked into the clinic, and talked to ette the

orthodist. She addressed EVERY concern I had, and even educated me a

LOT more! As of today I am VERY confident in having her as an

orthodist, and I am going to stick with the STAR band for now. My

worries WERE right, and his helmet WAS shifting too much! While his

head does look worse we are suspecting that it's because it is

growning while keeping it's deformed shape.. If that make sense to

you?.... His head is wanting to grow in height, and not around. This

is making it dificult to change shape, but we are going to try a new

approach. She thinks that the helmet is possibly been OVER corrected,

and that maybe part of the reason why it's shifting too much? This

week she is going to call the company, and ask a bunch of questions

to see if the helmet can be saved. Right now with out knowing more

then she saw, what I had to offer, and her experience we are looking

at a completely new helmet. It's possible that we may not be able to

save it! She kept the helmet, and is going to try to do some

modifications. Tommorow she is going to mail it to me (UPS same day),

and we are going to see if it will help any. That too will tell us

more, but right now we are playing the waiting game. On thursday she

is going to again recast his head, so they have a better idea of what

has happened. This too could possible give them an idea on how to fix

it. Who knows at this point, but I am just SURE they can fix it.

When we go in for our visit I am going to take my walker, because I

think that will give us more control. That is rather than have him

try to squirm around on the tabe, and get fussy! Has anyone tried

this? ette (the ortho) is excited to try it, and so am I!

Anyways, it's late, and has been a long day! I hope this makes at

least a little bit of sense, but who knows at this point! LOL

Thanks EVERYONE for the great advice, because who knows what damage

could have been done in that weeks time!! Thank you thank you thank

you!!!! Once again you all are life savers!!

Amie, mommy to Dakota (star band), and Dayton!

[Guest guest]

Amie,

I am so glad that you met with ette, and that you are so

comfortable with her. That really will make a huge difference! You

are another prime example that our parental instincts will show us

the right way to go.

I honestly can't remember hearing of anyone who used a walker while

they're child was being casted, but I think it is a wonderful idea!

You'll have to let us know how it works out for you!

Good luck Amie, let us know how Dakota does with his band tomorrow!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> Well, today we walked into the clinic, and talked to ette the

> orthodist. She addressed EVERY concern I had, and even educated me

a

> LOT more! As of today I am VERY confident in having her as an

> orthodist, and I am going to stick with the STAR band for now. My

> worries WERE right, and his helmet WAS shifting too much! While his

> head does look worse we are suspecting that it's because it is

> growning while keeping it's deformed shape.. If that make sense to

> you?.... His head is wanting to grow in height, and not around.

This

> is making it dificult to change shape, but we are going to try a

new

> approach. She thinks that the helmet is possibly been OVER

corrected,

> and that maybe part of the reason why it's shifting too much? This

> week she is going to call the company, and ask a bunch of questions

> to see if the helmet can be saved. Right now with out knowing more

> then she saw, what I had to offer, and her experience we are

looking

> at a completely new helmet. It's possible that we may not be able

to

> save it! She kept the helmet, and is going to try to do some

> modifications. Tommorow she is going to mail it to me (UPS same

day),

> and we are going to see if it will help any. That too will tell us

> more, but right now we are playing the waiting game. On thursday

she

> is going to again recast his head, so they have a better idea of

what

> has happened. This too could possible give them an idea on how to

fix

> it. Who knows at this point, but I am just SURE they can fix it.

>

> When we go in for our visit I am going to take my walker, because I

> think that will give us more control. That is rather than have him

> try to squirm around on the tabe, and get fussy! Has anyone tried

> this? ette (the ortho) is excited to try it, and so am I!

> Anyways, it's late, and has been a long day! I hope this makes at

> least a little bit of sense, but who knows at this point! LOL

>

> Thanks EVERYONE for the great advice, because who knows what damage

> could have been done in that weeks time!! Thank you thank you thank

> you!!!! Once again you all are life savers!!

>

> Amie, mommy to Dakota (star band), and Dayton!

[Guest guest]

Aime,

I'm so pleased to hear that you had a good appointment with the orthotist. You

really did the right thing by following up with her and I'm thrilled to hear

that she addressed each and every concern.

If they can't save the band then it sounds like recasting and a new band might

be just the thing. It will be interesting to hear how the walker thing works out

- let us know how that goes!

Marci (Mom to )

Oklahoma

[Guest guest]

Amie:

That is great ette has helped you & sounds to be very educated &

experienced in treating plagio. I would personally request an

entirely new band at this point. Even if the modifications do seem

to be correct, after this much time from his original cast, a lot has

probably changed with his head shape. That is my suggestion.

That's a great idea to bring his walker to your appt! I had never

thought of this before.

Good luck tomorrow - please let us know how the band fits. Hope all

goes well!

Debbie abby' smom DOCGrad

MI

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> Well, today we walked into the clinic, and talked to ette the

> orthodist. She addressed EVERY concern I had, and even educated me

a

> LOT more! As of today I am VERY confident in having her as an

> orthodist, and I am going to stick with the STAR band for now. My

> worries WERE right, and his helmet WAS shifting too much! While his

> head does look worse we are suspecting that it's because it is

> growning while keeping it's deformed shape.. If that make sense to

> you?.... His head is wanting to grow in height, and not around.

This

> is making it dificult to change shape, but we are going to try a

new

> approach. She thinks that the helmet is possibly been OVER

corrected,

> and that maybe part of the reason why it's shifting too much? This

> week she is going to call the company, and ask a bunch of questions

> to see if the helmet can be saved. Right now with out knowing more

> then she saw, what I had to offer, and her experience we are

looking

> at a completely new helmet. It's possible that we may not be able

to

> save it! She kept the helmet, and is going to try to do some

> modifications. Tommorow she is going to mail it to me (UPS same

day),

> and we are going to see if it will help any. That too will tell us

> more, but right now we are playing the waiting game. On thursday

she

> is going to again recast his head, so they have a better idea of

what

> has happened. This too could possible give them an idea on how to

fix

> it. Who knows at this point, but I am just SURE they can fix it.

>

> When we go in for our visit I am going to take my walker, because I

> think that will give us more control. That is rather than have him

> try to squirm around on the tabe, and get fussy! Has anyone tried

> this? ette (the ortho) is excited to try it, and so am I!

> Anyways, it's late, and has been a long day! I hope this makes at

> least a little bit of sense, but who knows at this point! LOL

>

> Thanks EVERYONE for the great advice, because who knows what damage

> could have been done in that weeks time!! Thank you thank you thank

> you!!!! Once again you all are life savers!!

>

> Amie, mommy to Dakota (star band), and Dayton!

[Guest guest]

Amie,

I think the fact that ette stepped up to the plate and said there was a

problem, gives her extra points in my book for not putting you off and acting

as if YOU were the problem, which some parents have experienced. That's

great that she is willing to do whatever it takes to get this right- just

keep her on her toes and as you are now educated you can gauge the situation

for yourself along the way and I know you'll be able to spot a problem if

there is one! Good luck and keep us posted!

' Mom