Re: New diagnosis and surgery

[Guest guest]

The history you've provided doesn't contain the diagnostic testing

that would make seeing a surgeon appropriate at this point. While the

adenoma is suspicious, it may not be the cause of your elevated BP or

it may not be the only cause.

Can you describe how you are diagnostically confirmed to have

unilateral primary aldosteronism?

On 12/16/08, alexchisholm93 <alexchisholm93@...> wrote:

> I've always had low PB so when it started to rise approximately 3 years ago

> I was surprised.

> I'm a 46 yo female in otherwise stellar condition, low BMI and no family

> history of

> hypertension. I was put on a thiazide drug which seemed to be lowering my

> potassium. An

> ACE inhibitor was added but potassium was still low. 2.5 years later I had

> my aldosterone

> tested and it came back high. It was actually tested in July of this year

> but my MD. didn't

> follow up on it. Had a CT last week which revealed 24mm adenoma on my right

> adrenal. I

> also have a kidney stone in the UVJ on my left side. I had passed a kidney

> stone in April of

> this year (is this the worst pain known to man - I think it is). Will be

> seeing surgeon for

> consultation in a few days. Not looking forward to surgery but would love to

> feel better and

> hopefully have BP stabilize.

>

>

[Guest guest]

Please read and take my article to your

Surgeon

What you want to know is how many he has operated on with and without

AVS and what his cure rate has been at 5 and 10 years

You will note that ACEs don't work inPA

We always recommend a trial is spiro and DASHing before any surgery

Sent from my iPhone

CE Grim MD

On Dec 16, 2008, at 1:47 AM, datawrhsdoc@... wrote:

> The history you've provided doesn't contain the diagnostic testing

> that would make seeing a surgeon appropriate at this point. While the

> adenoma is suspicious, it may not be the cause of your elevated BP or

> it may not be the only cause.

>

> Can you describe how you are diagnostically confirmed to have

> unilateral primary aldosteronism?

>

> On 12/16/08, alexchisholm93 <alexchisholm93@...> wrote:

> > I've always had low PB so when it started to rise approximately 3

> years ago

> > I was surprised.

> > I'm a 46 yo female in otherwise stellar condition, low BMI and no

> family

> > history of

> > hypertension. I was put on a thiazide drug which seemed to be

> lowering my

> > potassium. An

> > ACE inhibitor was added but potassium was still low. 2.5 years

> later I had

> > my aldosterone

> > tested and it came back high. It was actually tested in July of

> this year

> > but my MD. didn't

> > follow up on it. Had a CT last week which revealed 24mm adenoma on

> my right

> > adrenal. I

> > also have a kidney stone in the UVJ on my left side. I had passed

> a kidney

> > stone in April of

> > this year (is this the worst pain known to man - I think it is).

> Will be

> > seeing surgeon for

> > consultation in a few days. Not looking forward to surgery but

> would love to

> > feel better and

> > hopefully have BP stabilize.

> >

> >

>

[Guest guest]

You did not mention Renin

You cannot interpret also with out

Sent from my iPhone

CE Grim MD

On Dec 16, 2008, at 8:07 PM, alexchisholm93 <alexchisholm93@...>

wrote:

> I've always had low PB so when it started to rise approximately 3

> years ago I was surprised.

> I'm a 46 yo female in otherwise stellar condition, low BMI and no

> family history of

> hypertension. I was put on a thiazide drug which seemed to be

> lowering my potassium. An

> ACE inhibitor was added but potassium was still low. 2.5 years later

> I had my aldosterone

> tested and it came back high. It was actually tested in July of this

> year but my MD. didn't

> follow up on it. Had a CT last week which revealed 24mm adenoma on

> my right adrenal. I

> also have a kidney stone in the UVJ on my left side. I had passed a

> kidney stone in April of

> this year (is this the worst pain known to man - I think it is).

> Will be seeing surgeon for

> consultation in a few days. Not looking forward to surgery but would

> love to feel better and

> hopefully have BP stabilize.

>

>

[Guest guest]

Thanks for your prompt reply. I had a battery of tests done last week and was

put on

50mg of Spiro starting this past Monday. I am slowly going off the ACE and still

take

10mg of Norvasc. My renin was measured in June and was low at <0.1 and

Aldosterone

urine was 65.8 mcg. I've been on the DASH diet for at least a year trying to

bring my BP

down. It stays in the 140/85-150/95 range without medication. I'm seeing my

Endocrinologist Friday, anything else I should ask him. He has been at UCSF for

many

years though specializes in thyroid.

> > > I've always had low PB so when it started to rise approximately 3

> > years ago

> > > I was surprised.

> > > I'm a 46 yo female in otherwise stellar condition, low BMI and no

> > family

> > > history of

> > > hypertension. I was put on a thiazide drug which seemed to be

> > lowering my

> > > potassium. An

> > > ACE inhibitor was added but potassium was still low. 2.5 years

> > later I had

> > > my aldosterone

> > > tested and it came back high. It was actually tested in July of

> > this year

> > > but my MD. didn't

> > > follow up on it. Had a CT last week which revealed 24mm adenoma on

> > my right

> > > adrenal. I

> > > also have a kidney stone in the UVJ on my left side. I had passed

> > a kidney

> > > stone in April of

> > > this year (is this the worst pain known to man - I think it is).

> > Will be

> > > seeing surgeon for

> > > consultation in a few days. Not looking forward to surgery but

> > would love to

> > > feel better and

> > > hopefully have BP stabilize.

> > >

> > >

> >

>

>

>

[Guest guest]

Dr Grim, which article should I be looking at. Is it in the Files area? Thanks.

> > > I've always had low PB so when it started to rise approximately 3

> > years ago

> > > I was surprised.

> > > I'm a 46 yo female in otherwise stellar condition, low BMI and no

> > family

> > > history of

> > > hypertension. I was put on a thiazide drug which seemed to be

> > lowering my

> > > potassium. An

> > > ACE inhibitor was added but potassium was still low. 2.5 years

> > later I had

> > > my aldosterone

> > > tested and it came back high. It was actually tested in July of

> > this year

> > > but my MD. didn't

> > > follow up on it. Had a CT last week which revealed 24mm adenoma on

> > my right

> > > adrenal. I

> > > also have a kidney stone in the UVJ on my left side. I had passed

> > a kidney

> > > stone in April of

> > > this year (is this the worst pain known to man - I think it is).

> > Will be

> > > seeing surgeon for

> > > consultation in a few days. Not looking forward to surgery but

> > would love to

> > > feel better and

> > > hopefully have BP stabilize.

> > >

> > >

> >

>

>

>

[Guest guest]

Question: so if I had AVS done and it showed high aldo coming from

both glands would I want to leave the tumor alone and just stay on

the spiro? Is the point that the surgery would be useless in curing

the HTN, high aldo and low K? Thanks.

> >

> > > I do hope you don't have ANY surgery without prior adrenal vein

> > > sampling.

> > > As I recall, they don't do AVS at UCSF.

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism] On Behalf Of

> > > alexchisholm93

> > >

> > > Thanks for your prompt reply. I had a battery of tests done last

> > > week and

> > > was put on

> > > 50mg of Spiro starting this past Monday. I am slowly going off

the

> > > ACE and

> > > still take

> > > 10mg of Norvasc. My renin was measured in June and was low at

> > <0.1 and

> > > Aldosterone

> > > urine was 65.8 mcg. I've been on the DASH diet for at least a

year

> > > trying to

> > > bring my BP

> > > down. It stays in the 140/85-150/95 range without medication.

I'm

> > > seeing my

> > > Endocrinologist Friday, anything else I should ask him. He has

been

> > > at UCSF

> > > for many

> > > years though specializes in thyroid.

> > >

> > >