Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Hi Sheila, Amaya is so adorable! She has such beautiful eyes! I can clearly see the tort. I also see the facial asymmetry. She's a cutie! > Good evening everyone, > I wanted to say thanks to all those who replied to my " New here and at > wit's end " post last week. I planned to reply sooner than this but we > had to make an emergency run out to South Dakota to pick up my 19 year > old step-daughter. Grrrrr. > Anyway, I got back yesterday and I was able to read through all the > posts and I am so grateful for the nice replies. I got some great advice > from you!! I DID find another PT who can see Amaya next Friday. I think > in light of our no-insurance situation, I am going to just have them > teach me how to do the exercises and I will do them at home. Also, I > called her dr. and was told that if we wait until her 6 mo. appt. we > will still have plenty of time to get her referred for further > treatment. So...I guess I will chill out and wait til then, although I > don't WANT to wait...they're not really giving me an option to be seen > sooner. Also...in the meantime I researched info on the helmets, because > I am almost positive she will be needing one. Her condition is so > obvious and really severe in my opinion. Unfortunately, there isn't a > Cranial Technologies office here in Minnesota, but there is 4 hours away > in Wisconsin. Do you all think it would be worth the trip(s) to see > them? Or just go through someone local? Or what? From what I read, the > DOCBand is far superior, and of course, like any mom, I only want the > best for my baby. Is there anyone else from the loop in the Minneapolis > area who can offer more specific advice - and who to go to? > Thanks again!!!!!!!! You all are great!! > > ~Sheila > > P.S. I've attached a pic of Amaya which isn't the best pic of her, but > clearly shows the tort. and the assymetry of her eyes and ears, and even > her nose and mouth. You can't really see the flat spot tho which is more > towards the back of her head. Quote Link to comment Share on other sites More sharing options...
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