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Good evening everyone,

I wanted to say thanks to all those who replied to my " New here and at

wit's end " post last week. I planned to reply sooner than this but we

had to make an emergency run out to South Dakota to pick up my 19 year

old step-daughter. Grrrrr.

Anyway, I got back yesterday and I was able to read through all the

posts and I am so grateful for the nice replies. I got some great advice

from you!! I DID find another PT who can see Amaya next Friday. I think

in light of our no-insurance situation, I am going to just have them

teach me how to do the exercises and I will do them at home. Also, I

called her dr. and was told that if we wait until her 6 mo. appt. we

will still have plenty of time to get her referred for further

treatment. So...I guess I will chill out and wait til then, although I

don't WANT to wait...they're not really giving me an option to be seen

sooner. Also...in the meantime I researched info on the helmets, because

I am almost positive she will be needing one. Her condition is so

obvious and really severe in my opinion. Unfortunately, there isn't a

Cranial Technologies office here in Minnesota, but there is 4 hours away

in Wisconsin. Do you all think it would be worth the trip(s) to see

them? Or just go through someone local? Or what? From what I read, the

DOCBand is far superior, and of course, like any mom, I only want the

best for my baby. Is there anyone else from the loop in the Minneapolis

area who can offer more specific advice - and who to go to?

Thanks again!!!!!!!! You all are great!!

~Sheila

P.S. I've attached a pic of Amaya which isn't the best pic of her, but

clearly shows the tort. and the assymetry of her eyes and ears, and even

her nose and mouth. You can't really see the flat spot tho which is more

towards the back of her head.

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i hope everything is going well..as for the ct in wi, i'm in wi..and i think you are talking about the one in madison it is a great place. we went there for tucker..mary (the pt) is wonderful..there is another one there but i wasn't comfy with her, but it couldhave just been me..they are nice people there and straigt forward, if you have any questions about them or choose to go there and need place to crash, i'm only 20 minutes from madison..feel free to email

ruby1@...

brenda

mom of tucker

Thanks for the wonderful welcome :-)

Good evening everyone,I wanted to say thanks to all those who replied to my "New here and atwit's end" post last week. I planned to reply sooner than this but wehad to make an emergency run out to South Dakota to pick up my 19 yearold step-daughter. Grrrrr.Anyway, I got back yesterday and I was able to read through all theposts and I am so grateful for the nice replies. I got some great advicefrom you!! I DID find another PT who can see Amaya next Friday. I thinkin light of our no-insurance situation, I am going to just have themteach me how to do the exercises and I will do them at home. Also, Icalled her dr. and was told that if we wait until her 6 mo. appt. wewill still have plenty of time to get her referred for furthertreatment. So...I guess I will chill out and wait til then, although Idon't WANT to wait...they're not really giving me an option to be seensooner. Also...in the meantime I researched info on the helmets, becauseI am almost positive she will be needing one. Her condition is soobvious and really severe in my opinion. Unfortunately, there isn't aCranial Technologies office here in Minnesota, but there is 4 hours awayin Wisconsin. Do you all think it would be worth the trip(s) to seethem? Or just go through someone local? Or what? From what I read, theDOCBand is far superior, and of course, like any mom, I only want thebest for my baby. Is there anyone else from the loop in the Minneapolisarea who can offer more specific advice - and who to go to?Thanks again!!!!!!!! You all are great!!~SheilaP.S. I've attached a pic of Amaya which isn't the best pic of her, butclearly shows the tort. and the assymetry of her eyes and ears, and evenher nose and mouth. You can't really see the flat spot tho which is moretowards the back of her head.For more plagio info

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