Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 In a message dated 7/23/2002 6:27:35 AM Pacific Daylight Time, iammichelle@... writes: just can't get the DOC band fast enough. He won't actually be getting it until 8-16 and he will be over 6 months then , is getting his Doc Band 8/15....and he is 6 months now. He will be 7 months on 8/21 so he will be close to 7 months by the time he gets the Doc Band. That has me nervous..b/c i was hoping to get him in the band earlier...and now i wonder if it's going to take a lot longer... Luckily doesn't have any facial assymetries...(although one eye looks bigger than the other at times..but what's weird is it's not always the same eye..so it must be just the way is looking or something...b/c one minute one eye will look bigger and then a few minutes later..the other eye could look bigger). But his head is really flat..so i wonder how long he will be in it. Both my ped and the craniologist had said probably about 2 months.but i feel like they are underestimating the time... Anyway, i know how you feel.... Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 , I can't remember if Logan has tort or not- but I firmly believe that ' smaller eye was helped by stretching the muscle, and facial massage, and of course the DOC band- but if its tort try incorporating as much stretching as possible and light facial massage (nickel weight strokes) in an upward fashion to give the face some slack. Sorry if this does not relate to you! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 In a message dated 7/23/2002 9:39:42 AM Eastern Daylight Time, Av@... writes: but what's weird is it's not always the same eye..so it must be just the way is looking or something...b/c one minute one eye will look bigger and then a few minutes later..the other eye could look bigger). I also wanted to throw out there a condition, and I hope I get this right, called Marcus Gunn Hood Eye Jaw wink syndrome. seems to have some of this as well, and in my uneducated guess I feel that the nerve in the SCM was also damaged (I know , no one believes me either!)- but its a condition where the nerve misfires and the eye will open really wide when sucking or yawning- have you noticed it getting bigger at those times? I had a link but lost it- I do recall the info saying it usually corrected on its own (oh boy, did I believe that?!) and left it alone since its nothing major. Could this be what your seeing? ' mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 This morning Logan's facial assymetries just looked worse than usual. His right eye looks so much bigger! I just can't get the DOC band fast enough. He won't actually be getting it until 8-16 and he will be over 6 months then. *sigh* I dunno, just thinking out loud this morning. He has an appt with a pediatric plastic surgeon tomorrow. We already have the script and LOMN from a neuro, but our friend worked so hard to get us this appt, and she's paying for it, so of course we will get a third opinion.. -/Logan 5.5 months PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 -Thanks . Looks like we'll be starting this journey together... -/Logan 5.5 months PA -- In Plagiocephaly@y..., Av@a... wrote: > In a message dated 7/23/2002 6:27:35 AM Pacific Daylight Time, > iammichelle@e... writes: > > > > just can't get the DOC > > band fast enough. He won't actually be getting it until 8-16 and he > > will be over 6 months then > > , > > is getting his Doc Band 8/15....and he is 6 months now. He will be 7 > months on 8/21 so he will be close to 7 months by the time he gets the Doc > Band. That has me nervous..b/c i was hoping to get him in the band > earlier...and now i wonder if it's going to take a lot longer... > > Luckily doesn't have any facial assymetries...(although one eye looks > bigger than the other at times..but what's weird is it's not always the same > eye..so it must be just the way is looking or something...b/c one > minute one eye will look bigger and then a few minutes later..the other eye > could look bigger). But his head is really flat..so i wonder how long he > will be in it. Both my ped and the craniologist had said probably about 2 > months.but i feel like they are underestimating the time... > > Anyway, i know how you feel.... > > > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 , It will be here before you know it. Logan will still be at a great age for some really good correction. Best wishes your way! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 , Yes! Logan does have tort. We go for our first PT visit on Thursday. What are nickel weight strokes?? How do I do the facial massage? Thanks a lot! -/Logan 5.5 months PA > , > I can't remember if Logan has tort or not- but I firmly believe that > ' smaller eye was helped by stretching the muscle, and facial > massage, and of course the DOC band- but if its tort try incorporating as > much stretching as possible and light facial massage (nickel weight strokes) > in an upward fashion to give the face some slack. Sorry if this does not > relate to you! > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Good luck at the other specialist appt tomorrow . Don't worry, Aug 16 will be here soon enough. Logan will still be plenty young enough to see great correction in his band! Hang in there. Debbie Abby' smom DOCGrad MI -- In Plagiocephaly@y..., " iamaltobum " <iammichelle@e...> wrote: > This morning Logan's facial assymetries just looked worse than > usual. His right eye looks so much bigger! I just can't get the DOC > band fast enough. He won't actually be getting it until 8-16 and he > will be over 6 months then. *sigh* I dunno, just thinking out loud > this morning. He has an appt with a pediatric plastic surgeon > tomorrow. We already have the script and LOMN from a neuro, but our > friend worked so hard to get us this appt, and she's paying for it, > so of course we will get a third opinion.. > > -/Logan 5.5 months > PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 He won't actually be getting it until 8-16 and he > will be over 6 months then. , Maybe we can commiserate together on that day. Logan will be getting his band, and my babies will turn two that day!! Even though Logan will be over 6 months by then, he is still young enough to see really good results! Don't let the wait get you down, it will be herre before you know it!! Good luck at your appointment tomorrow, let us know how it goes! Niki Kaylie & Danny (STAR grads) Phila., PA Quote Link to comment Share on other sites More sharing options...
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